Patient-Reported Outcome Measures (PROMs)

Selecting a Subset Based on the Patient-Reported Outcomes Version of the Common Terminology Criteria for Adverse Events for Patient-Reported Symptom Monitoring in Lung Cancer Treatment: Mixed Methods Study

Evalien Veldhuijzen, Iris Walraven, José Belderbos

JMIR Cancer 2021 (Sep 14); 7(3):e26574

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How Should Oncologists Choose an Electronic Patient-Reported Outcome System for Remote Monitoring of Patients With Cancer?

Fabrice Denis, Ivan Krakowski

J Med Internet Res 2021 (Sep 09); 23(9):e30549

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Presentation, Treatment, and Natural Course of Severe Symptoms of Urinary Tract Infections Measured by a Smartphone App: Observational and Feasibility Study

Akke Vellinga, Karen Farrell, Roisin Fallon, Daniel Hare, Una Sutton-Fitzpatrick, Martin Cormican

J Med Internet Res 2021 (Sep 03); 23(9):e25364

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Perceived Benefits, Barriers, and Facilitators of a Digital Patient-Reported Outcomes Tool for Routine Diabetes Care: Protocol for a National, Multicenter, Mixed Methods Implementation Study

Søren Eik Skovlund, Antonio Nicolucci, Nina Balk-Møller, Dorthe B Berthelsen, Charlotte Glümer, Hans Perrild, Pernille Kjær, Lise Mellergaard Nørgaard, Lise Havbæk Troelsen, Anna Pietraszek, Danielle Hessler, Sherrie Kaplan, Niels Ejskjær

JMIR Res Protoc 2021 (Sep 03); 10(9):e28391

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Digital Technology Tools to Examine Patient Adherence to a Prescription-Only Omega-3 Polyunsaturated Fatty Acid Therapy To Mitigate Cardiovascular Risk: Protocol for a Prospective Observational Study and Preliminary Demographic Analysis

Gregory P Arutyunov, Alexander G Arutyunov, Fail T Ageev, Tatiana V Fofanova

JMIR Res Protoc 2021 (Aug 30); 10(8):e29061

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The COVID-19 Citizen Science Study: Protocol for a Longitudinal Digital Health Cohort Study

Alexis L Beatty, Noah D Peyser, Xochitl E Butcher, Thomas W Carton, Jeffrey E Olgin, Mark J Pletcher, Gregory M Marcus

JMIR Res Protoc 2021 (Aug 30); 10(8):e28169

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Variations in Patients’ Overall Assessment of Their Health Across and Within Disease Groups Using the EQ-5D Questionnaire: Protocol for a Longitudinal Study in the Swedish National Quality Registers

Fitsum Sebsibe Teni, Ola Rolfson, Nancy Devlin, David Parkin, Emma Nauclér, Kristina Burström, The Swedish Quality Register (SWEQR) Study Group

JMIR Res Protoc 2021 (Aug 27); 10(8):e27669

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Measurement Properties of Patient-Reported Outcome Measures for Diabetes: Systematic Review

Priscilla Jia Ling Wee, Yu Heng Kwan, Dionne Hui Fang Loh, Jie Kie Phang, Troy H Puar, Truls Østbye, Julian Thumboo, Sungwon Yoon, Lian Leng Low

J Med Internet Res 2021 (Aug 13); 23(8):e25002

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Digital Patient-Reported Outcome Measures for Monitoring of Patients on Cancer Treatment: Cross-sectional Questionnaire Study

Mayuran Ananth Sivanandan, Catherine Sharma, Pippa Bullard, Judith Christian

JMIR Form Res 2021 (Aug 13); 5(8):e18502

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The Effect of Collaborative Reviews of Electronic Patient-Reported Outcomes on the Congruence of Patient- and Clinician-Reported Toxicity in Cancer Patients Receiving Systemic Therapy: Prospective, Multicenter, Observational Clinical Trial

Andreas Trojan, Nicolas Leuthold, Christoph Thomssen, Achim Rody, Thomas Winder, Andreas Jakob, Claudine Egger, Ulrike Held, Christian Jackisch

J Med Internet Res 2021 (Aug 05); 23(8):e29271

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Supporting Patient-Clinician Interaction in Chronic HIV Care: Design and Development of a Patient-Reported Outcomes Software Application

Susan Herrmann, Brad Power, Amineh Rashidi, Mark Cypher, Frank Mastaglia, Amy Grace, Elizabeth McKinnon, Pierre Sarrot, Christophe Michau, Matthew Skinner, Renae Desai, Martin Duracinsky

J Med Internet Res 2021 (Jul 30); 23(7):e27861

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Recursive Partitioning vs Computerized Adaptive Testing to Reduce the Burden of Health Assessments in Cleft Lip and/or Palate: Comparative Simulation Study

Conrad J Harrison, Chris J Sidey-Gibbons, Anne F Klassen, Karen W Y Wong Riff, Dominic Furniss, Marc C Swan, Jeremy N Rodrigues

J Med Internet Res 2021 (Jul 30); 23(7):e26412

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Patient-Reported Outcomes From Patients With Heart Failure Participating in the Future Patient Telerehabilitation Program: Data From the Intervention Arm of a Randomized Controlled Trial

Cathrine Skov Schacksen, Anne-Kirstine Dyrvig, Nanna Celina Henneberg, Josefine Dam Gade, Helle Spindler, Jens Refsgaard, Malene Hollingdal, Lars Dittman, Kim Dremstrup, Birthe Dinesen

JMIR Cardio 2021 (Jul 02); 5(2):e26544

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Understanding the Lived Experience of North American Dental Patients With a Single-Tooth Implant in the Upper Front Region of the Mouth: Protocol for a Qualitative Study

Kelvin Ian Afrashtehfar, Stephen Ross Bryant

JMIR Res Protoc 2021 (Jun 18); 10(6):e25767

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The Development of a Digital Patient-Reported Outcome Measurement for Adults With Chronic Disease (The Parsley Symptom Index): Prospective Cohort Study

Hants Williams, Sarah Steinberg, Robin Berzin

JMIR Form Res 2021 (Jun 11); 5(6):e29122

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Using the Computer-based Health Evaluation System (CHES) to Support Self-management of Symptoms and Functional Health: Evaluation of Hematological Patient Use of a Web-Based Patient Portal

Jens Lehmann, Petra Buhl, Johannes M Giesinger, Lisa M Wintner, Monika Sztankay, Lucia Neppl, Wolfgang Willenbacher, Roman Weger, Walpurga Weyrer, Gerhard Rumpold, Bernhard Holzner

J Med Internet Res 2021 (Jun 08); 23(6):e26022

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Assessing Health-Related Quality of Life, Morbidity, and Survival Status for Individuals With Down Syndrome in Pakistan (DS-Pak): Protocol for a Web-Based Collaborative Registry

Ayat Siddiqui, Laila Akbar Ladak, Abdul Momin Kazi, Sidra Kaleem, Fizza Akbar, Salman Kirmani

JMIR Res Protoc 2021 (Jun 03); 10(6):e24901

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The GIMEMA-ALLIANCE Digital Health Platform for Patients With Hematologic Malignancies in the COVID-19 Pandemic and Postpandemic Era: Protocol for a Multicenter, Prospective, Observational Study

Fabio Efficace, Massimo Breccia, Paola Fazi, Francesco Cottone, Bernhard Holzner, Marco Vignetti

JMIR Res Protoc 2021 (Jun 01); 10(6):e25271

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A Real-World Rheumatology Registry and Research Consortium: The German RheumaDatenRhePort (RHADAR) Registry

Stefan Kleinert, Peter Bartz-Bazzanella, Cay von der Decken, Johannes Knitza, Torsten Witte, Sándor P Fekete, Matthias Konitzny, Alexander Zink, Georg Gauler, Patrick Wurth, Peer Aries, Kirsten Karberg, Christoph Kuhn, Florian Schuch, Susanna Späthling-Mestekemper, Wolfgang Vorbrüggen, Matthias Englbrecht, Martin Welcker, RHADAR Group

J Med Internet Res 2021 (May 20); 23(5):e28164

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Digitization of Measurement-Based Care Pathways in Mental Health Through REDCap and Electronic Health Record Integration: Development and Usability Study

Steve Hawley, Joanna Yu, Nikola Bogetic, Natalia Potapova, Chris Wakefield, Mike Thompson, Stefan Kloiber, Sean Hill, Damian Jankowicz, David Rotenberg

J Med Internet Res 2021 (May 20); 23(5):e25656

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