Patient-Reported Outcome Measures (PROMs)

Function and Emotion in Everyday Life With Type 1 Diabetes (FEEL-T1D): Protocol for a Fully Remote Intensive Longitudinal Study

Elizabeth Ann Pyatak, Raymond Hernandez, Loree T Pham, Khatira Mehdiyeva, Stefan Schneider, Anne Peters, Valerie Ruelas, Jill Crandall, Pey-Jiuan Lee, Haomiao Jin, Claire J Hoogendoorn, Gladys Crespo-Ramos, Heidy Mendez-Rodriguez, Mark Harmel, Martha Walker, Sara Serafin-Dokhan, Jeffrey S Gonzalez, Donna Spruijt-Metz

JMIR Res Protoc 2021 (Oct 22); 10(10):e30901

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Revealing the Nature of Chronic Obstructive Pulmonary Disease Using Self-tracking and Analysis of Contact Patterns: Longitudinal Study

Klaus Phanareth, Astrid Laura Dam, Martin A B C Hansen, Signe Lindskrog, Søren Vingtoft, Lars Kayser

J Med Internet Res 2021 (Oct 19); 23(10):e22567

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Measuring the Time to Deterioration for Health-Related Quality of Life in Patients With Metastatic Breast Cancer Using a Web-Based Monitoring Application: Longitudinal Cohort Study

Katharina Brusniak, Manuel Feisst, Linda Sebesteny, Andreas Hartkopf, Joachim Graf, Tobias Engler, Andreas Schneeweiss, Markus Wallwiener, Thomas Maximilian Deutsch

JMIR Cancer 2021 (Oct 12); 7(4):e25776

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Trends in Hidradenitis Suppurativa Disease Severity and Quality of Life Outcome Measures: Scoping Review

Jalal Maghfour, Torunn Elise Sivesind, Robert Paul Dellavalle, Cory Dunnick

JMIR Dermatol 2021 (Oct 01); 4(2):e27869

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Selecting a Subset Based on the Patient-Reported Outcomes Version of the Common Terminology Criteria for Adverse Events for Patient-Reported Symptom Monitoring in Lung Cancer Treatment: Mixed Methods Study

Evalien Veldhuijzen, Iris Walraven, José Belderbos

JMIR Cancer 2021 (Sep 14); 7(3):e26574

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How Should Oncologists Choose an Electronic Patient-Reported Outcome System for Remote Monitoring of Patients With Cancer?

Fabrice Denis, Ivan Krakowski

J Med Internet Res 2021 (Sep 09); 23(9):e30549

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Presentation, Treatment, and Natural Course of Severe Symptoms of Urinary Tract Infections Measured by a Smartphone App: Observational and Feasibility Study

Akke Vellinga, Karen Farrell, Roisin Fallon, Daniel Hare, Una Sutton-Fitzpatrick, Martin Cormican

J Med Internet Res 2021 (Sep 03); 23(9):e25364

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Perceived Benefits, Barriers, and Facilitators of a Digital Patient-Reported Outcomes Tool for Routine Diabetes Care: Protocol for a National, Multicenter, Mixed Methods Implementation Study

Søren Eik Skovlund, Antonio Nicolucci, Nina Balk-Møller, Dorthe B Berthelsen, Charlotte Glümer, Hans Perrild, Pernille Kjær, Lise Mellergaard Nørgaard, Lise Havbæk Troelsen, Anna Pietraszek, Danielle Hessler, Sherrie Kaplan, Niels Ejskjær

JMIR Res Protoc 2021 (Sep 03); 10(9):e28391

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Digital Technology Tools to Examine Patient Adherence to a Prescription-Only Omega-3 Polyunsaturated Fatty Acid Therapy To Mitigate Cardiovascular Risk: Protocol for a Prospective Observational Study and Preliminary Demographic Analysis

Gregory P Arutyunov, Alexander G Arutyunov, Fail T Ageev, Tatiana V Fofanova

JMIR Res Protoc 2021 (Aug 30); 10(8):e29061

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The COVID-19 Citizen Science Study: Protocol for a Longitudinal Digital Health Cohort Study

Alexis L Beatty, Noah D Peyser, Xochitl E Butcher, Thomas W Carton, Jeffrey E Olgin, Mark J Pletcher, Gregory M Marcus

JMIR Res Protoc 2021 (Aug 30); 10(8):e28169

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Variations in Patients’ Overall Assessment of Their Health Across and Within Disease Groups Using the EQ-5D Questionnaire: Protocol for a Longitudinal Study in the Swedish National Quality Registers

Fitsum Sebsibe Teni, Ola Rolfson, Nancy Devlin, David Parkin, Emma Nauclér, Kristina Burström, The Swedish Quality Register (SWEQR) Study Group

JMIR Res Protoc 2021 (Aug 27); 10(8):e27669

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Measurement Properties of Patient-Reported Outcome Measures for Diabetes: Systematic Review

Priscilla Jia Ling Wee, Yu Heng Kwan, Dionne Hui Fang Loh, Jie Kie Phang, Troy H Puar, Truls Østbye, Julian Thumboo, Sungwon Yoon, Lian Leng Low

J Med Internet Res 2021 (Aug 13); 23(8):e25002

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Digital Patient-Reported Outcome Measures for Monitoring of Patients on Cancer Treatment: Cross-sectional Questionnaire Study

Mayuran Ananth Sivanandan, Catherine Sharma, Pippa Bullard, Judith Christian

JMIR Form Res 2021 (Aug 13); 5(8):e18502

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The Effect of Collaborative Reviews of Electronic Patient-Reported Outcomes on the Congruence of Patient- and Clinician-Reported Toxicity in Cancer Patients Receiving Systemic Therapy: Prospective, Multicenter, Observational Clinical Trial

Andreas Trojan, Nicolas Leuthold, Christoph Thomssen, Achim Rody, Thomas Winder, Andreas Jakob, Claudine Egger, Ulrike Held, Christian Jackisch

J Med Internet Res 2021 (Aug 05); 23(8):e29271

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Supporting Patient-Clinician Interaction in Chronic HIV Care: Design and Development of a Patient-Reported Outcomes Software Application

Susan Herrmann, Brad Power, Amineh Rashidi, Mark Cypher, Frank Mastaglia, Amy Grace, Elizabeth McKinnon, Pierre Sarrot, Christophe Michau, Matthew Skinner, Renae Desai, Martin Duracinsky

J Med Internet Res 2021 (Jul 30); 23(7):e27861

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Recursive Partitioning vs Computerized Adaptive Testing to Reduce the Burden of Health Assessments in Cleft Lip and/or Palate: Comparative Simulation Study

Conrad J Harrison, Chris J Sidey-Gibbons, Anne F Klassen, Karen W Y Wong Riff, Dominic Furniss, Marc C Swan, Jeremy N Rodrigues

J Med Internet Res 2021 (Jul 30); 23(7):e26412

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Patient-Reported Outcomes From Patients With Heart Failure Participating in the Future Patient Telerehabilitation Program: Data From the Intervention Arm of a Randomized Controlled Trial

Cathrine Skov Schacksen, Anne-Kirstine Dyrvig, Nanna Celina Henneberg, Josefine Dam Gade, Helle Spindler, Jens Refsgaard, Malene Hollingdal, Lars Dittman, Kim Dremstrup, Birthe Dinesen

JMIR Cardio 2021 (Jul 02); 5(2):e26544

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Understanding the Lived Experience of North American Dental Patients With a Single-Tooth Implant in the Upper Front Region of the Mouth: Protocol for a Qualitative Study

Kelvin Ian Afrashtehfar, Stephen Ross Bryant

JMIR Res Protoc 2021 (Jun 18); 10(6):e25767

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The Development of a Digital Patient-Reported Outcome Measurement for Adults With Chronic Disease (The Parsley Symptom Index): Prospective Cohort Study

Hants Williams, Sarah Steinberg, Robin Berzin

JMIR Form Res 2021 (Jun 11); 5(6):e29122

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Using the Computer-based Health Evaluation System (CHES) to Support Self-management of Symptoms and Functional Health: Evaluation of Hematological Patient Use of a Web-Based Patient Portal

Jens Lehmann, Petra Buhl, Johannes M Giesinger, Lisa M Wintner, Monika Sztankay, Lucia Neppl, Wolfgang Willenbacher, Roman Weger, Walpurga Weyrer, Gerhard Rumpold, Bernhard Holzner

J Med Internet Res 2021 (Jun 08); 23(6):e26022

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