Recruitment of Patients With Amyotrophic Lateral Sclerosis for Clinical Trials and Epidemiological Studies: Descriptive Study of the National ALS Registry’s Research Notification Mechanism
Recruitment of Patients With Amyotrophic Lateral Sclerosis for Clinical Trials and Epidemiological Studies: Descriptive Study of the National ALS Registry’s Research Notification Mechanism
Paul Mehta
1
, MD
;
Jaime Raymond
1
, MPH
;
Moon Kwon Han
1
, PhD, MPH, MSc
;
Theodore Larson
1
, MSc
;
James D Berry
2
, MD, MPH
;
Sabrina Paganoni
2, 3
, PhD, MD
;
Hiroshi Mitsumoto
4
, MD
;
Richard Stanley Bedlack
5
, PhD, MD
;
D Kevin Horton
1
, DrPH, MSPH
1
Agency for Toxic Substances and Disease Registry
,
Centers for Disease Control and Prevention
,
Atlanta
,
GA
,
US
2
Sean M Healey & AMG Center for ALS
,
Massachusetts General Hospital
,
Boston
,
MA
,
US
3
Spaulding Rehabilitation Hospital
,
Harvard Medical School
,
Boston
,
MA
,
US
4
Department of Neurology
,
Columbia University College of Physicians and Surgeons
,
New York City
,
NY
,
US
5
Department of Neurology
,
Duke University School of Medicine
,
Durham
,
NC
,
US
Corresponding Author:
-
Paul Mehta, MD
-
Agency for Toxic Substances and Disease Registry
-
Centers for Disease Control and Prevention
-
4770 Buford Hwy NE
-
Atlanta, GA
-
US
-
Phone:
1 770-488-0556
-
Email: pum4@cdc.gov