Recruitment of Patients With Amyotrophic Lateral Sclerosis for Clinical Trials and Epidemiological Studies: Descriptive Study of the National ALS Registry’s Research Notification Mechanism
Recruitment of Patients With Amyotrophic Lateral Sclerosis for Clinical Trials and Epidemiological Studies: Descriptive Study of the National ALS Registry’s Research Notification Mechanism
Paul Mehta 1, MD; Jaime Raymond 1, MPH; Moon Kwon Han 1, PhD, MPH, MSc; Theodore Larson 1, MSc; James D Berry 2, MD, MPH; Sabrina Paganoni 2, 3, PhD, MD; Hiroshi Mitsumoto 4, MD; Richard Stanley Bedlack 5, PhD, MD; D Kevin Horton 1, DrPH, MSPH 1 Agency for Toxic Substances and Disease Registry, Centers for Disease Control and Prevention , Atlanta, GA,
US
2 Sean M Healey & AMG Center for ALS, Massachusetts General Hospital , Boston, MA,
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3 Spaulding Rehabilitation Hospital, Harvard Medical School , Boston, MA,
US
4 Department of Neurology, Columbia University College of Physicians and Surgeons , New York City, NY,
US
5 Department of Neurology, Duke University School of Medicine , Durham, NC,
US
Corresponding Author:
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Paul Mehta, MD
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Agency for Toxic Substances and Disease Registry
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Centers for Disease Control and Prevention
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4770 Buford Hwy NE
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Atlanta, GA
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US
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Phone:
1 770-488-0556
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Email: pum4@cdc.gov