Published on in Vol 23 , No 12 (2021) :December

Preprints (earlier versions) of this paper are available at https://preprints.jmir.org/preprint/28021, first published .
Recruitment of Patients With Amyotrophic Lateral Sclerosis for Clinical Trials and Epidemiological Studies: Descriptive Study of the National ALS Registry’s Research Notification Mechanism

Recruitment of Patients With Amyotrophic Lateral Sclerosis for Clinical Trials and Epidemiological Studies: Descriptive Study of the National ALS Registry’s Research Notification Mechanism

Recruitment of Patients With Amyotrophic Lateral Sclerosis for Clinical Trials and Epidemiological Studies: Descriptive Study of the National ALS Registry’s Research Notification Mechanism

Paul Mehta 1 , MD ;   Jaime Raymond 1 , MPH ;   Moon Kwon Han 1 , PhD, MPH, MSc ;   Theodore Larson 1 , MSc ;   James D Berry 2 , MD, MPH ;   Sabrina Paganoni 2, 3 , PhD, MD ;   Hiroshi Mitsumoto 4 , MD ;   Richard Stanley Bedlack 5 , PhD, MD ;   D Kevin Horton 1 , DrPH, MSPH

1 Agency for Toxic Substances and Disease Registry , Centers for Disease Control and Prevention , Atlanta , GA , US

2 Sean M Healey & AMG Center for ALS , Massachusetts General Hospital , Boston , MA , US

3 Spaulding Rehabilitation Hospital , Harvard Medical School , Boston , MA , US

4 Department of Neurology , Columbia University College of Physicians and Surgeons , New York City , NY , US

5 Department of Neurology , Duke University School of Medicine , Durham , NC , US

Corresponding Author:

  • Paul Mehta, MD
  • Agency for Toxic Substances and Disease Registry
  • Centers for Disease Control and Prevention
  • 4770 Buford Hwy NE
  • Atlanta, GA
  • US
  • Phone: 1 770-488-0556
  • Email: pum4@cdc.gov