Published on in Vol 23, No 12 (2021): December

Preprints (earlier versions) of this paper are available at https://preprints.jmir.org/preprint/28021, first published .
Recruitment of Patients With Amyotrophic Lateral Sclerosis for Clinical Trials and Epidemiological Studies: Descriptive Study of the National ALS Registry’s Research Notification Mechanism

Recruitment of Patients With Amyotrophic Lateral Sclerosis for Clinical Trials and Epidemiological Studies: Descriptive Study of the National ALS Registry’s Research Notification Mechanism

Recruitment of Patients With Amyotrophic Lateral Sclerosis for Clinical Trials and Epidemiological Studies: Descriptive Study of the National ALS Registry’s Research Notification Mechanism

Paul Mehta 1, MD;  Jaime Raymond 1, MPH;  Moon Kwon Han 1, PhD, MPH, MSc;  Theodore Larson 1, MSc;  James D Berry 2, MD, MPH;  Sabrina Paganoni 2, 3, PhD, MD;  Hiroshi Mitsumoto 4, MD;  Richard Stanley Bedlack 5, PhD, MD;  D Kevin Horton 1, DrPH, MSPH

1 Agency for Toxic Substances and Disease Registry, Centers for Disease Control and Prevention , Atlanta, GA, US

2 Sean M Healey & AMG Center for ALS, Massachusetts General Hospital , Boston, MA, US

3 Spaulding Rehabilitation Hospital, Harvard Medical School , Boston, MA, US

4 Department of Neurology, Columbia University College of Physicians and Surgeons , New York City, NY, US

5 Department of Neurology, Duke University School of Medicine , Durham, NC, US

Corresponding Author:

  • Paul Mehta, MD
  • Agency for Toxic Substances and Disease Registry
  • Centers for Disease Control and Prevention
  • 4770 Buford Hwy NE
  • Atlanta, GA
  • US
  • Phone: 1 770-488-0556
  • Email: pum4@cdc.gov