Published on in Vol 22, No 8 (2020): August

Preprints (earlier versions) of this paper are available at https://preprints.jmir.org/preprint/19799, first published .
COVID-19 Research: Navigating the European General Data Protection Regulation

COVID-19 Research: Navigating the European General Data Protection Regulation

COVID-19 Research: Navigating the European General Data Protection Regulation

Journals

  1. Sills J, Dove E, Chen J, Loideain N. Raising standards for global data-sharing. Science 2021;371(6525):133 View
  2. Beauvais M, Knoppers B. Coming Out to Play: Privacy, Data Protection, Children’s Health, and COVID-19 Research. Frontiers in Genetics 2021;12 View
  3. Beauvais M, Knoppers B, Illes J. A marathon, not a sprint – neuroimaging, Open Science and ethics. NeuroImage 2021;236:118041 View
  4. Yom-Tov E, Ofran Y. Implementation of data protection laws in the European Union and in California is associated with a move of clinical trials to countries with fewer data protections. Frontiers in Medicine 2022;9 View
  5. Akinnuwesi B, Uzoka F, Fashoto S, Mbunge E, Odumabo A, Amusa O, Okpeku M, Owolabi O. A modified UTAUT model for the acceptance and use of digital technology for tackling COVID-19. Sustainable Operations and Computers 2022;3:118 View
  6. Cheshmehzangi A, Su Z, Zou T. ICT applications and the COVID-19 pandemic: Impacts on the individual's digital data, digital privacy, and data protection. Frontiers in Human Dynamics 2023;5 View
  7. Christofidou M, Lea N, Coorevits P. A Literature Review on the GDPR, COVID-19 and the Ethical Considerations of Data Protection During a Time of Crisis. Yearbook of Medical Informatics 2021;30(01):226 View
  8. Pavelek O, Zajíčková D. Personal Data Protection in the Decision-Making of the CJEU Before and After the Lisbon Treaty. TalTech Journal of European Studies 2021;11(2):167 View
  9. Fiske A, Degelsegger-Márquez A, Marsteurer B, Prainsack B. Value-creation in the health data domain: a typology of what health data help us do. BioSocieties 2023;18(3):473 View
  10. Smit J, Mostert M, van der Graaf R, Grobbee D, van Delden J. Specific measures for data-intensive health research without consent: a systematic review of soft law instruments and academic literature. European Journal of Human Genetics 2024;32(1):21 View
  11. Wilmes N, Hendriks C, Viets C, Cornelissen S, van Mook W, Cox-Brinkman J, Celi L, Martinez-Martin N, Gichoya J, Watkins C, Bakhshi-Raiez F, Wynants L, van der Horst I, van Bussel B. Structural under-reporting of informed consent, data handling and sharing, ethical approval, and application of Open Science principles as proxies for study quality conduct in COVID-19 research: a systematic scoping review. BMJ Global Health 2023;8(5):e012007 View
  12. de Kok J, de la Hoz M, de Jong Y, Brokke V, Elbers P, Thoral P, Castillejo A, Trenor T, Castellano J, Bronchalo A, Merz T, Faltys M, Casares C, Jiménez A, Requejo J, Gutiérrez S, Curto D, Rätsch G, Peppink J, Driessen R, Sijbrands E, Kompanje E, Girbes A, Barberan J, Varona J, Villares P, van der Horst I, Xu M, Celi L, van Bussel B, Borrat X. A guide to sharing open healthcare data under the General Data Protection Regulation. Scientific Data 2023;10(1) View
  13. Stjernswärd S, Tilgmann C, Glasdam S. The Ethics of Using News Stories concerning Minors as Empirical Material in Health Research: Reflections on a Swedish Case. Ethics & Human Research 2024;46(1):26 View
  14. Luquin Bergareche R. Medicina personalizada y uso secundario de datos de salud para fines de investigación: algunas cuestiones. Cuadernos de Derecho Privado 2024;4(8):69 View

Books/Policy Documents

  1. Moses J, Adibi S. The Science behind the COVID Pandemic and Healthcare Technology Solutions. View
  2. Gidiotis I. Handbook of Research on Teacher and Student Perspectives on the Digital Turn in Education. View
  3. . The Privacy Fallacy. View