This paper is in the following e-collection/theme issue:

Ethics, Privacy, and Legal Issues (617) Policy (74) Participatory Medicine & E-Patients (873) Secondary Use of Clinical Data for Research and Surveillance (474) E-Health Policy and Health Systems Innovation (341) Big Data (307)

Published on in Vol 23, No 7 (2021): July

Preprints (earlier versions) of this paper are available at https://preprints.jmir.org/preprint/25266, first published .
US Privacy Laws Go Against Public Preferences and Impede Public Health and Research: Survey Study

US Privacy Laws Go Against Public Preferences and Impede Public Health and Research: Survey Study

US Privacy Laws Go Against Public Preferences and Impede Public Health and Research: Survey Study

Authors of this article:

Cason Schmit1 Author Orcid Image ;   Theodoros Giannouchos1, 2 Author Orcid Image ;   Mahin Ramezani1 Author Orcid Image ;   Qi Zheng3 Author Orcid Image ;   Michael A Morrisey1 Author Orcid Image ;   Hye-Chung Kum1 Author Orcid Image
Article Authors Cited by (7) Tweetations (14) Metrics

Journals

  1. SCHMIT C, LARSON B, TANABE T, RAMEZANI M, ZHENG Q, KUM H. Changing US Support for Public Health Data Use Through Pandemic and Political Turmoil. The Milbank Quarterly 2024;102(2):463 View
  2. Chan H, Toh H, Lysaght T. Cross-jurisdictional Data Transfer in Health Research: Stakeholder Perceptions on the Role of Law. Asian Bioethics Review 2024;16(4):663 View
  3. Roeschley A, Merrion Dale Frederick . The Difference Between Passive Subjects and Autonomous Actors: Proposing an Orientation Toward Consent in Library and Information Science. Proceedings of the ALISE Annual Conference 2024 View
  4. Schmit C, O’Connell M, Shewbrooks S, Abourezk C, Cochlin F, Doerr M, Kum H. Dying in Darkness: Deviations From Data Sharing Ethics in the US Public Health System and the Data Genocide of American Indian and Alaska Native Communities. Journal of Medical Internet Research 2025;27:e70983 View
  5. Nouwens S, Marceta S, Bui M, van Dijk D, Groothuis-Oudshoorn C, Veldwijk J, van Til J, de Bekker-Grob E. The Evolving Landscape of Discrete Choice Experiments in Health Economics: A Systematic Review. PharmacoEconomics 2025;43(8):879 View

Books/Policy Documents

  1. Paus T. Environmental Neuroscience. View

Conference Proceedings

  1. Nasrat M, Mahmood B. 2025 XXVIII International Conference on Soft Computing and Measurements (SCM). The Role of an Artificial Intelligence in the Detection and Protection of Sensitive Information (medical records to personal files): A Review View