Participatory Medicine & E-Patients

Learnings in Digital Health Design: Insights From a Pilot Web App for Structured Note-Taking for Patients With Rheumatoid Arthritis

Ujwal Srivastava, Shobha Dasari, Neha Shah

JMIR Form Res 2023 (Nov 28); 7:e49358

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Co-design of a Mobile App for Engaging Breast Cancer Patients in Reporting Health Experiences: Qualitative Case Study

Carla Taramasco, Carla Rimassa, René Noël, María Loreto Bravo Storm, César Sánchez

J Med Internet Res 2023 (Nov 27); 25:e45968

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Exploring Patient Advisors’ Perceptions of Virtual Care Across Canada: Qualitative Phenomenological Study

Heather Braund, Nancy Dalgarno, Sophy Chan-Nguyen, Geneviève Digby, Faizal Haji, Anne O'Riordan, Ramana Appireddy

J Med Internet Res 2023 (Nov 23); 25:e45215

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An Ethics Action Plan for Rare Disease Care: Participatory Action Research Approach

Ariane Quintal, Isabelle Carreau, Annie-Danielle Grenier, Caroline Hébert, Christine Yergeau, Yves Berthiaume, Eric Racine

J Particip Med 2023 (Nov 23); 15:e46607

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Co-Designing an Initiative to Increase Shared Access to Older Adults’ Patient Portals: Stakeholder Engagement

Vadim Dukhanin, Jennifer L Wolff, Liz Salmi, Kendall Harcourt, Deborah Wachenheim, Ira Byock, Matthew J Gonzales, Doug Niehus, Marianne Parshley, Caroline Reay, Sara Epstein, Supriya Mohile, Timothy W Farrell, Mark A Supiano, Anushka Jajodia, Catherine M DesRoches, The Shared Access Project Team

J Med Internet Res 2023 (Nov 22); 25:e46146

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Electronic Patient Portal Use Among People Living With HIV

André Hall, Samantha Devlin, Joshua Won, Jessica Schmitt, Jessica P Ridgway

J Med Internet Res 2023 (Nov 21); 25:e47740

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Incorporating Community Partner Perspectives on eHealth Technology Data Sharing Practices for the California Early Psychosis Intervention Network: Qualitative Focus Group Study With a User-Centered Design Approach

Laura M Tully, Kathleen E Nye, Sabrina Ereshefsky, Valerie L Tryon, Christopher Komei Hakusui, Mark Savill, Tara A Niendam

JMIR Hum Factors 2023 (Nov 14); 10:e44194

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The NORDeHEALTH 2022 Patient Survey: Cross-Sectional Study of National Patient Portal Users in Norway, Sweden, Finland, and Estonia

Maria Hägglund, Anna Kharko, Josefin Hagström, Annika Bärkås, Charlotte Blease, Åsa Cajander, Catherine DesRoches, Asbjørn Johansen Fagerlund, Barbara Haage, Isto Huvila, Iiris Hörhammer, Bridget Kane, Gunnar O Klein, Eli Kristiansen, Kerli Luks, Jonas Moll, Irene Muli, Eline Hovstad Raphaug, Hanife Rexhepi, Sara Riggare, Peeter Ross, Isabella Scandurra, Saija Simola, Hedvig Soone, Bo Wang, Maedeh Ghorbanian Zolbin, Rose-Mharie Åhlfeldt, Sari Kujala, Monika Alise Johansen

J Med Internet Res 2023 (Nov 13); 25:e47573

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Developing an Audit and Feedback Dashboard for Family Physicians: User-Centered Design Process

Jennifer Shuldiner, Tara Kiran, Payal Agarwal, Maryam Daneshvarfard, Kirsten Eldridge, Susie Kim, Michelle Greiver, Iffat Jokhio, Noah Ivers

JMIR Hum Factors 2023 (Nov 09); 10:e47718

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Experiences and Priorities in Youth and Family Mental Health: Protocol for an Arts-Based Priority-Setting Focus Group Study

Mandy Archibald, Sharifat Makinde, Nicole Tongol, Sydney Levasseur-Puhach, Leslie Roos

JMIR Res Protoc 2023 (Nov 07); 12:e50208

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Errors, Omissions, and Offenses in the Health Record of Mental Health Care Patients: Results from a Nationwide Survey in Sweden

Annika Bärkås, Anna Kharko, Charlotte Blease, Åsa Cajander, Asbjørn Johansen Fagerlund, Isto Huvila, Monika Alise Johansen, Bridget Kane, Sari Kujala, Jonas Moll, Hanife Rexhepi, Isabella Scandurra, Bo Wang, Maria Hägglund

J Med Internet Res 2023 (Nov 03); 25:e47841

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Leveling the Research Playing Field: Decolonizing Global Health Research Through Web-Based Platforms

Rajeev Seth, Baldeep K Dhaliwal, Emily Miller, Tyler Best, Alexis Sullivan, Betty Thankachen, Yawar Qaiyum, Anita Shet

J Med Internet Res 2023 (Oct 31); 25:e46897

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Mobilizing Patient and Public Involvement in the Development of Real-World Digital Technology Solutions: Tutorial

Alison Keogh, Ríona Mc Ardle, Mara Gabriela Diaconu, Nadir Ammour, Valdo Arnera, Federica Balzani, Gavin Brittain, Ellen Buckley, Sara Buttery, Alma Cantu, Solange Corriol-Rohou, Laura Delgado-Ortiz, Jacques Duysens, Tom Forman-Hardy, Tova Gur-Arieh, Dominique Hamerlijnck, John Linnell, Letizia Leocani, Tom McQuillan, Isabel Neatrour, Ashley Polhemus, Werner Remmele, Isabel Saraiva, Kirsty Scott, Norman Sutton, Koen van den Brande, Beatrix Vereijken, Martin Wohlrab, Lynn Rochester, Mobilise-D consortium

J Med Internet Res 2023 (Oct 27); 25:e44206

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Role of Individual Clinician Authority in the Implementation of Informatics Tools for Population-Based Medication Management: Qualitative Semistructured Interview Study

Allison Ranusch, Ying-Jen Lin, Michael P Dorsch, Arthur L Allen, Patrick Spoutz, F Jacob Seagull, Jeremy B Sussman, Geoffrey D Barnes

JMIR Hum Factors 2023 (Oct 24); 10:e49025

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Clinician and Patient Perspectives on the Use of Passive Mobile Monitoring and Self-Tracking for Patients With Serious Mental Illness: User-Centered Approach

Melissa Medich, Shay L Cannedy, Lauren C Hoffmann, Melissa Y Chinchilla, Jose M Pila, Stephanie A Chassman, Ronald A Calderon, Alexander S Young

JMIR Hum Factors 2023 (Oct 24); 10:e46909

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Parents’ Use of Social Media for Health Information Before and After a Consultation With Health Care Professionals: Australian Cross-Sectional Study

Erika Frey, Catriona Bonfiglioli, Jane Frawley

JMIR Pediatr Parent 2023 (Oct 20); 6:e48012

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Preference Elicitation and Treatment Decision-Making Among Men Diagnosed With Prostate Cancer: Randomized Controlled Trial Results of Healium

Michael A Diefenbach, Allison Marziliano, Erin K Tagai, Halie Pfister, Emmanuel Lapitan, Simon J Hall, Manish Vira, Said Ibrahim, Kelli Aibel, Alexander Kutikov, Eric M Horwitz, Curtis Miyamoto, Adam C Reese, Suzanne M Miller

J Med Internet Res 2023 (Oct 20); 25:e46552

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Patient and Health Care Provider Perspectives on Patient Access to Test Results via Web Portals: Scoping Review

Olga Petrovskaya, Albina Karpman, Joanna Schilling, Simran Singh, Larissa Wegren, Vera Caine, Elizabeth Kusi-Appiah, Willow Geen

J Med Internet Res 2023 (Oct 19); 25:e43765

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Toward Shared Decision-Making in Degenerative Cervical Myelopathy: Protocol for a Mixed Methods Study

Irina Sangeorzan, Grazia Antonacci, Anne Martin, Ben Grodzinski, Carl M Zipser, Rory K J Murphy, Panoraia Andriopoulou, Chad E Cook, David B Anderson, James Guest, Julio C Furlan, Mark R N Kotter, Timothy F Boerger, Iwan Sadler, Elizabeth A Roberts, Helen Wood, Christine Fraser, Michael G Fehlings, Vishal Kumar, Josephine Jung, James Milligan, Aria Nouri, Allan R Martin, Tammy Blizzard, Luiz Roberto Vialle, Lindsay Tetreault, Sukhvinder Kalsi-Ryan, Anna MacDowall, Esther Martin-Moore, Martin Burwood, Lianne Wood, Abdul Lalkhen, Manabu Ito, Nicky Wilson, Caroline Treanor, Sheila Dugan, Benjamin M Davies

JMIR Res Protoc 2023 (Oct 09); 12:e46809

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Older Persons’ and Health Care Professionals’ Design Choices When Co-Designing a Medication Plan Aiming to Promote Patient Safety: Case Study

Malin Holmqvist, Linda Johansson, Bertil Lindenfalk, Johan Thor, Axel Ros

JMIR Aging 2023 (Oct 05); 6:e49154

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