Participatory Medicine & E-Patients

Users’ Willingness to Share Health Information in a Social Question-and-Answer Community: Cross-sectional Survey in China

PengFei Li, Lin Xu, TingTing Tang, Xiaoqian Wu, Cheng Huang

JMIR Med Inform 2021 (Mar 30); 9(3):e26265

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Global Collaborative Social Network (Share4Rare) to Promote Citizen Science in Rare Disease Research: Platform Development Study

Roxana Radu, Sara Hernández-Ortega, Oriol Borrega, Avril Palmeri, Dimitrios Athanasiou, Nicholas Brooke, Inma Chapí, Anaïs Le Corvec, Michela Guglieri, Alexandre Perera-Lluna, Jon Garrido-Aguirre, Bettina Ryll, Begonya Nafria Escalera

JMIR Form Res 2021 (Mar 29); 5(3):e22695

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Googling for Neurological Disorders: From Seeking Health-Related Information to Patient Empowerment, Advocacy, and Open, Public Self-Disclosure in the Neurology 2.0 Era

Mariano Martini, Nicola Luigi Bragazzi

J Med Internet Res 2021 (Mar 26); 23(3):e13999

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Share to Seek: The Effects of Disease Complexity on Health Information–Seeking Behavior

Ashwag Alasmari, Lina Zhou

J Med Internet Res 2021 (Mar 24); 23(3):e21642

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A Social Media–Promoted Educational Community of Joint Replacement Patients Using the WeChat App: Survey Study

Xianzuo Zhang, Xiaoxuan Chen, Nikolaos Kourkoumelis, Ran Gao, Guoyuan Li, Chen Zhu

JMIR Mhealth Uhealth 2021 (Mar 18); 9(3):e18763

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Evaluation of a New Personalized Health Dashboard in Preventive Child Health Care: Protocol for a Mixed Methods Feasibility Randomized Controlled Trial

Miriam Weijers, Frans Feron, Jonne van der Zwet, Caroline Bastiaenen

JMIR Res Protoc 2021 (Mar 16); 10(3):e21942

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Antibiotic Prescription Rates After eVisits Versus Office Visits in Primary Care: Observational Study

Artin Entezarjou, Susanna Calling, Tapomita Bhattacharyya, Veronica Milos Nymberg, Lina Vigren, Ashkan Labaf, Ulf Jakobsson, Patrik Midlöv

JMIR Med Inform 2021 (Mar 15); 9(3):e25473

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Educational Needs and Preferences for Patient-Centered Outcomes Research in the Cystic Fibrosis Community: Mixed Methods Study

Emily M Godfrey, Traci M Kazmerski, Georgia Brown, Erin K Thayer, Laura Mentch, Molly Pam, Morhaf Al Achkar

JMIR Form Res 2021 (Mar 04); 5(3):e24302

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Assessment of Patients’ Ability to Review Electronic Health Record Information to Identify Potential Errors: Cross-sectional Web-Based Survey

Lisa Freise, Ana Luisa Neves, Kelsey Flott, Paul Harrison, John Kelly, Ara Darzi, Erik K Mayer

JMIR Form Res 2021 (Feb 26); 5(2):e19074

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Quantifying Patient Portal Use: Systematic Review of Utilization Metrics

Lauren L Beal, Jacob M Kolman, Stephen L Jones, Aroub Khleif, Terri Menser

J Med Internet Res 2021 (Feb 25); 23(2):e23493

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The Epidemiology of Patients' Email Addresses in a French University Hospital: Case-Control Study

Vincent Looten, Antoine Neuraz, Nicolas Garcelon, Anita Burgun, Gilles Chatellier, Bastien Rance

J Med Internet Res 2021 (Feb 24); 23(2):e13992

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Online Medical Record Nonuse Among Patients: Data Analysis Study of the 2019 Health Information National Trends Survey

Safa Elkefi, Zhongyuan Yu, Onur Asan

J Med Internet Res 2021 (Feb 22); 23(2):e24767

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Opening a “Can of Worms” to Explore the Public's Hopes and Fears About Health Care Data Sharing: Qualitative Study

Olivia Lounsbury, Lily Roberts, Jonathan R Goodman, Philippa Batey, Lenny Naar, Kelsey M Flott, Anna Lawrence-Jones, Saira Ghafur, Ara Darzi, Ana Luisa Neves

J Med Internet Res 2021 (Feb 22); 23(2):e22744

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A Novel Patient Values Tab for the Electronic Health Record: A User-Centered Design Approach

Anjali Varma Desai, Chelsea L Michael, Gilad J Kuperman, Gregory Jordan, Haley Mittelstaedt, Andrew S Epstein, MaryAnn Connor, Rika Paula B Villar, Camila Bernal, Dana Kramer, Mary Elizabeth Davis, Yuxiao Chen, Catherine Malisse, Gigi Markose, Judith E Nelson

J Med Internet Res 2021 (Feb 17); 23(2):e21615

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Patient Experience and Predictors of Improvement in a Group Behavioral and Educational Intervention for Individuals With Diabetes and Serious Mental Illness: Mixed Methods Case Study

Kristina Schnitzer, Corrine Cather, Vanya Zvonar, Alyson Dechert, Rachel Plummer, Kelsey Lowman, Gladys Pachas, Kevin Potter, Anne Eden Evins

J Participat Med 2021 (Feb 12); 13(1):e21934

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Using the Patient Portal Sexual Health Instrument in Surveys and Patient Questionnaires Among Sexual Minority Men in the United States: Cross-sectional Psychometric Validation Study

Kevon-Mark P Jackman, Jeremy Kane, Hadi Kharrazi, Renee M Johnson, Carl Latkin

J Med Internet Res 2021 (Feb 10); 23(2):e18750

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Online Communities as a Driver for Patient Empowerment: Systematic Review

Victoria Johansson, Anna Sigridur Islind, Tomas Lindroth, Eva Angenete, Martin Gellerstedt

J Med Internet Res 2021 (Feb 09); 23(2):e19910

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Income-Generating Processes of Free Web-Based Digital Health Tools to Engage Patients: Qualitative Analysis

Claudia Lai, Raisa Deber, Alejandro R Jadad, Aviv Shachak

J Med Internet Res 2021 (Feb 03); 23(2):e23654

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Patient Perspectives on Health Data Privacy and Implications for Adverse Drug Event Documentation and Communication: Qualitative Study

Serena S Small, Corinne M Hohl, Ellen Balka

J Med Internet Res 2021 (Jan 20); 23(1):e21452

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Patients’ Perspectives About Factors Affecting Their Use of Electronic Personal Health Records in England: Qualitative Analysis

Alaa Abd-Alrazaq, Zeineb Safi, Bridgette M Bewick, Mowafa Househ, Peter H Gardner

J Med Internet Res 2021 (Jan 13); 23(1):e17500

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