Participatory Medicine & E-Patients

Articles published in this theme: 921 (scroll down to load remaining articles)

2026

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End User Needs and Perspectives for a Digital Opioid Safety Tool in Adolescents and Young Adults With Inflammatory Bowel Disease: A Qualitative Human-Centered Design Study

Maria Younan, Amanda Acquaire, Lauren Castro, Deysi Paniagua-Perez, Devyani Dharanipragada, Stephen B Hanauer, Jane L Holl, Mehul V Raval, Andrew B L Berry, Salva N Balbale

JMIR Form Res 2026 (Jul 31); 10:e92202

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An Information Tool Incorporating Real-World Outcome Data for Women With Metastatic Breast Cancer Eligible for Treatment With a CDK4/6 Inhibitor: Development and Evaluation

Ellen G Engelhardt, Mariska Q N Hackert, Anne Vogelaar, Afke F de Jong, Cristina Guerrero Paez, Annette W G van der Velden, Christa Putker, Mariette J Agterof, Ewoudt M W van de Garde, Cornelia F van Uden-Kraan

JMIR Cancer 2026 (Jul 30); 12:e73156

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Patient and Family Perspectives on Generative AI Tools in Rare Diseases: Exploratory Mixed Methods Online Survey

Charlotte Blease, James Jones, Catherine E Blease, Anna Kharko, Carolina Garcia Sanchez, Kenneth D Mandl

J Particip Med 2026 (Jul 24); 18:e93720

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Engagement and Intersectionality in Digital Self-Management Interventions for Asthma and Chronic Obstructive Pulmonary Disease: Scoping Review

Martin Ruddock, Lucy Yardley, Katherine Bradbury, Tom Wilkinson, Ben Ainsworth

J Med Internet Res 2026 (Jul 23); 28:e73431

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Multilingual Voice AI for Postoperative Cataract Follow-Up in Turkish Speaking Patients in the United Kingdom: Patient and Public Involvement Focus Group Study

Mertcan Sevgi, Ariel Yuhan Ong, Katie Lean, Sian Rees, Ernest Lim, David Adrian Merle, Alexander C Day, Badrul Hussain, Pearse A Keane, Aisling Higham, Roxanne Crosby-Nwaobi

JMIR Form Res 2026 (Jul 22); 10:e90809

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Knowledge Translation Interventions for Youth Health Care Transitions: Protocol for a Realist Review

Grace MacIntyre, Rachel Flynn, Kathryn A Birnie, Leah Boulos, Sarah M Gallant, Ian D Graham, Amy Grant, Megan Gray, Gillian Harvey, Amanda Higgins, Carla T Hilario, Julia C Kontak, Deborah A McNeil, Sarah Munce, Jacklynn Pidduck, Shannon D Scott, Alene Toulany, Christine E Cassidy

JMIR Res Protoc 2026 (Jul 15); 15:e99731

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Experiences and Challenges of Patients With Chronic Respiratory Disease During a Virtual Research Study: Qualitative Study

Noah Tregobov, Austin McMillan, Aditya Dhariwal, Y Sarah Chae, Bahareh Poureslami, Maryam Mahjoob, Joshua Block, Iraj Poureslami

J Particip Med 2026 (Jul 09); 18:e80216

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Using Partner-Driven Maximum Variance Sampling to Form a Lived Experience Panel: Step-by-Step Tutorial

Anna Jolliff, Teresa Thuemling, Jessica Arora, Geri L Baumblatt, Daniel J Digmann, Ursulá T Garcia-Mayes, Misty Hawkins, Sydney Hoel, Heather Janes, Nicole Orendain, Alan Richmond, Aracely Rosales, Pete Wendel, Nicole E Werner, Rupa S Valdez

J Particip Med 2026 (Jun 26); 18:e95145

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Testing a Web-Based Parent-Focused HIV Prevention Intervention for Gay and Bisexual Adolescents: Protocol for a Randomized Controlled Trial

David M Huebner, Brian RW Baucom, Stephanie Micucci, Andrew P Barnett, Maggie Matson, Vincent Guilamo-Ramos, Jenny Mackenzie, Rana Saber

JMIR Res Protoc 2026 (Jun 22); 15:e81316

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Enhancing Patient Participation in Co-Productive Decision-Making With Personal Value Sets: Clinical Trial Prototype

Jack Dowie, Mette Kjer Kaltoft, Vije Kumar Rajput

J Particip Med 2026 (Jun 16); 18:e81623

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Patient-Reported Experiences With Viewing and Understanding Test Results in Patient Portals: Cross-Sectional Survey Analysis

Chelsea Richwine, Bryan Steitz, Jordan Everson

J Med Internet Res 2026 (Jun 12); 28:e94098

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A Preventive Social Media Intervention for Perinatal Depression and Anxiety in Regional, Rural, and Remote Communities: Participatory Co-Design Study

Kacey Jane Lynch, Adrian Brian Royce Shatte, Jessica Muller, Kendall George, Gisele Rossini, Courtney Hala, Angela Anson, James Dimmock, Delyse Hutchinson, Samantha Teague

J Med Internet Res 2026 (Jun 10); 28:e91778

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Patient Experiences With Online Laboratory Test Presentations From Access to Activation: Systematic Review

Mia Liza A Lustria, Lovinta Atrinawati, Kyunghye Kim, Zhe He, Obianuju Aliche

J Med Internet Res 2026 (May 29); 28:e88259

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Recruitment and Participation of Black Home Health Care Patients in Speech-Based Cognitive Research: Mixed Methods Feasibility Study

Ian Spens, Hossein Azadmaleki, Sasha Vergez, Grace Flaherty, Nicole Onorato, James M Noble, Margaret McDonald, Maryam Zolnoori, Zhihong Zhang

JMIR Form Res 2026 (May 28); 10:e87295

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Planning and Developing a Symptom Diary Intervention for Breast Cancer Survivors With Concerns About Medication Brands (ENABLE Study): User-Centered Design Approach

Yolanda Eraso, Duncan Stewart, Ruth Edwards, Bal Nanray, Jacqueline Cochrane

JMIR Cancer 2026 (May 26); 12:e91234

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Implementing UK Oncology Nursing Society–Informed Digital Symptom Triage With Episode-Based Review in Routine NHS Acute Oncology: Service Evaluation

Mohamed Sheeraz Mohamed Azhar, Rishabh Ray, Sagar Sharma, Hiten Chauhan, Margaret Ruth Robinson, Yetunde Owoseni, Anupama Vijay, Sadaqat Hussain

JMIR Cancer 2026 (May 21); 12:e92586

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Development, Implementation, and Preliminary Results of a Novel Social Network for Rare Disease Communities: Mixed Methods Study

Lara Fendrich, Henriette Högl, Ralf Schmidt, David Bascom, Armin Berger, Max Lübbering, Gundula Ernst, Justus Schumacher, Sabrina Hölzer, Lorenz Grigull

JMIR Hum Factors 2026 (May 15); 13:e80230

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Diabetes Technologies in Ultra-Endurance Type 1 Diabetes: Qualitative Study

Jean-Charles Vauthier, Lucie Choley, Delphine Arduini, Patrick Mas, Bernard Kabuth

J Med Internet Res 2026 (May 08); 28:e86815

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Patient Concerns Regarding Artificial Intelligence Applications in Health Care: Systematic Review and Meta-Synthesis Based on Social Ecological Theory

Jiayu Hou, Zhiqiao Zhang, Xuan Cheng, Weihong Wang

J Med Internet Res 2026 (Apr 28); 28:e85663

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Exploring Patient Empowerment and Health System Outcomes Associated With MyHealthNB, a Provincial Personal Health Record System: Exploratory Mixed Methods Study

Paula Voorheis, Stephan U Dombrowski, Frances Bruno, Carolyn Steele Gray

J Med Internet Res 2026 (Apr 28); 28:e87521

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