Participatory Medicine & E-Patients

Meeting the Burden of Self-management: Qualitative Study Investigating the Empowering Behaviors of Patients and Informal Caregivers

Therese Scott Duncan, Jon Engström, Sara Riggare, Maria Hägglund, Sabine Koch

J Particip Med 2022 (Nov 16); 14(1):e39174

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Supporting Shared Decision-making About Surveillance After Breast Cancer With Personalized Recurrence Risk Calculations: Development of a Patient Decision Aid Using the International Patient Decision AIDS Standards Development Process in Combination With a Mixed Methods Design

Jet Wies Ankersmid, Sabine Siesling, Luc J A Strobbe, Johanna M Meulepas, Yvonne E A van Riet, Noel Engels, Janine C M Prick, Regina The, Asako Takahashi, Mirjam Velting, Cornelia F van Uden-Kraan, Constance H C Drossaert

JMIR Cancer 2022 (Nov 14); 8(4):e38088

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From Individuals to Systems and Contributions to Creations: Novel Framework for Mapping the Efforts of Individuals by Convening The Center of Health and Health Care

Dana Lewis, Liz Salmi, Alicia Staley, John Harlow

J Particip Med 2022 (Nov 03); 14(1):e39339

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Investigating the Provision and Context of Use of Hearing Aid Listening Programs From Real-world Data: Observational Study

Alessandro Pasta, Tiberiu-Ioan Szatmari, Jeppe Høy Christensen, Kasper Juul Jensen, Niels Henrik Pontoppidan, Kang Sun, Jakob Eg Larsen

J Med Internet Res 2022 (Oct 17); 24(10):e36671

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The Burden of Disease in Alopecia Areata: Canadian Online Survey of Patients and Caregivers

Anthony Justin Gilding, Nhung Ho, Elena Pope, Cathryn Sibbald

JMIR Dermatol 2022 (Oct 06); 5(4):e39167

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From Testers to Cocreators—the Value of and Approaches to Successful Patient Engagement in the Development of eHealth Solutions: Qualitative Expert Interview Study

Christine Jacob, Steven Bourke, Sabina Heuss

JMIR Hum Factors 2022 (Oct 06); 9(4):e41481

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Patient-Reported Outcome Dashboards Within the Electronic Health Record to Support Shared Decision-making: Protocol for Co-design and Clinical Evaluation With Patients With Advanced Cancer and Chronic Kidney Disease

Laura M Perry, Victoria Morken, John D Peipert, Betina Yanez, Sofia F Garcia, Cynthia Barnard, Lisa R Hirschhorn, Jeffrey A Linder, Neil Jordan, Ronald T Ackermann, Alexandra Harris, Sheetal Kircher, Nisha Mohindra, Vikram Aggarwal, Rebecca Frazier, Ava Coughlin, Katy Bedjeti, Melissa Weitzel, Eugene C Nelson, Glyn Elwyn, Aricca D Van Citters, Mary O'Connor, David Cella

JMIR Res Protoc 2022 (Sep 21); 11(9):e38461

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COVID-19’s Impact on Digital Health Adoption: The Growing Gap Between a Technological and a Cultural Transformation

Bertalan Meskó

JMIR Hum Factors 2022 (Sep 19); 9(3):e38926

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Digital Health Literacy as a Predictor of Awareness, Engagement, and Use of a National Web-Based Personal Health Record: Population-Based Survey Study

Christina Cheng, Emma Gearon, Melanie Hawkins, Crystal McPhee, Lisa Hanna, Roy Batterham, Richard H Osborne

J Med Internet Res 2022 (Sep 16); 24(9):e35772

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Public Deliberation Process on Patient Perspectives on Health Information Sharing: Evaluative Descriptive Study

Minakshi Raj, Kerry Ryan, Paige Nong, Karen Calhoun, M Grace Trinidad, Raymond De Vries, Melissa Creary, Kayte Spector-Bagdady, Sharon L R Kardia, Jodyn Platt

JMIR Cancer 2022 (Sep 16); 8(3):e37793

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Patient Design: The Importance of Including Patients in Designing Health Care

Bertalan Meskó, Dave deBronkart

J Med Internet Res 2022 (Aug 31); 24(8):e39178

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Evaluating a Global Assessment Measure Created by Standardized Patients for the Multiple Mini Interview in Medical School Admissions: Mixed Methods Study

Ann Blair Kennedy, Cindy Nessim Youssef Riyad, Ryan Ellis, Perry R Fleming, Mallorie Gainey, Kara Templeton, Anna Nourse, Virginia Hardaway, April Brown, Pam Evans, Nabil Natafgi

J Particip Med 2022 (Aug 30); 14(1):e38209

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Digital Patient Experience: Umbrella Systematic Review

Tingting Wang, Guido Giunti, Marijke Melles, Richard Goossens

J Med Internet Res 2022 (Aug 04); 24(8):e37952

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Moving to Personalized Medicine Requires Personalized Health Plans

Adam Powell, Paul Dolan

J Particip Med 2022 (Aug 04); 14(1):e35798

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Evaluation of a Digital Self-management Platform for Patients With Chronic Illness in Primary Care: Qualitative Study of Stakeholders’ Perspectives

Steven van de Vijver, Deirdre Hummel, Annericht Hester van Dijk, Jan Cox, Oscar van Dijk, Nicoline Van den Broek, Esther Metting

JMIR Form Res 2022 (Aug 03); 6(8):e38424

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Implicit Incentives Among Reddit Users to Prioritize Attention Over Privacy and Reveal Their Faces When Discussing Direct-to-Consumer Genetic Test Results: Topic and Attention Analysis

Yongtai Liu, Zhijun Yin, Zhiyu Wan, Chao Yan, Weiyi Xia, Congning Ni, Ellen Wright Clayton, Yevgeniy Vorobeychik, Murat Kantarcioglu, Bradley A Malin

JMIR Infodemiology 2022 (Aug 03); 2(2):e35702

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Development of a Self-management and Peer-Mentoring Intervention to Improve Transition Readiness Among Young Adult Survivors of Pediatric Cancer: Formative Qualitative Research Study

Adrienne S Viola, Kristine Levonyan-Radloff, Margaret Masterson, Sharon L Manne, Shawna V Hudson, Katie A Devine

JMIR Form Res 2022 (Aug 03); 6(8):e36323

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Interventions, Participative Role, Barriers, and Facilitators for Involvement in eHealth Communication for People Undergoing Hemodialysis: Protocol for a Scoping Review

Anne Deinboll, Cathrine Fredriksen Moe, Mette Spliid Ludvigsen

JMIR Res Protoc 2022 (Jul 29); 11(7):e38615

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The Effects of Information Continuity and Interpersonal Continuity on Physician Services Online: Cross-sectional Study

Yan Xuan, Chaojin Guo, Wei Lu

JMIR Med Inform 2022 (Jul 21); 10(7):e35830

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The Power of Patient Engagement With Electronic Health Records as Research Participants

Jeff Pawelek, Katie Baca-Motes, Jay A Pandit, Benjamin B Berk, Edward Ramos

JMIR Med Inform 2022 (Jul 08); 10(7):e39145

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