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This paper is in the following e-collection/theme issue:

Patient-Reported Outcome Measures (PROMs) (396) Medicine 2.0: Social Media, Open, Participatory, Collaborative Medicine (1991) Email Communication, Web-Based Communication, Secure Messaging (193) Research Instruments, Questionnaires, and Tools (799) Peer-to-Peer Support and Online Communities (846) Cancer Survivorship (372) Emotional, Social, Psychological Support for Cancer (284) Cancer Self-Management (102) Skin Cancer and Melanoma Prevention (129) Infoveillance and Social Listening (329)

Published on in Vol 23, No 12 (2021): December

Preprints (earlier versions) of this paper are available at https://preprints.jmir.org/preprint/27497, first published .
Information Patients With Melanoma Spontaneously Report About Health-Related Quality of Life on Web-Based Forums: Case Study

Information Patients With Melanoma Spontaneously Report About Health-Related Quality of Life on Web-Based Forums: Case Study

Information Patients With Melanoma Spontaneously Report About Health-Related Quality of Life on Web-Based Forums: Case Study

Authors of this article:

Rachel R J Kalf1, 2 Author Orcid Image ;   Diana M J Delnoij2, 3 Author Orcid Image ;   Bettina Ryll4 Author Orcid Image ;   Marcel L Bouvy1 Author Orcid Image ;   Wim G Goettsch1, 2 Author Orcid Image
Article Authors Cited by (5) Tweetations (8) Metrics

Journals

  1. Chauhan J, Aasaithambi S, Márquez-Rodas I, Formisano L, Papa S, Meyer N, Forschner A, Faust G, Lau M, Sagkriotis A. Understanding the Lived Experiences of Patients With Melanoma: Real-World Evidence Generated Through a European Social Media Listening Analysis. JMIR Cancer 2022;8(2):e35930 View
  2. Eguchi M, Elder D, Barnhill R, Piepkorn M, Knezevich S, Elmore J, Kerr K. Prognostic modeling of cutaneous melanoma stage I patients using cancer registry data identifies subsets with very‐low melanoma mortality. Cancer 2023;129(1):89 View
  3. Delnoij D, Derks M, Koolen L, Shekary S, Suitela J. Using Patient Blogs on Social Media to Assess the Content Validity of Patient-Reported Outcome Measures: Qualitative Analysis of Patient-Written Blogs. JMIR Formative Research 2023;7:e43210 View
  4. Haff P, Jacobson A, Taylor M, Schandua H, Farris D, Doan H, Nelson K. The New Media Landscape and Its Effects on Skin Cancer Diagnostics, Prognostics, and Prevention: Scoping Review. JMIR Dermatology 2024;7:e53373 View
  5. Musche V, Schadendorf T, Schweda A, Lodde G, Neumann J, Zimmer L, Hüning S, Schadendorf D, Skoda E, Livingstone E, Teufel M. Development and validation of the Essen Melanoma Quality of Life Inventory (EMQoLI). JDDG: Journal der Deutschen Dermatologischen Gesellschaft 2026 View