“It’s Not Just Technology, It’s People”: Constructing a Conceptual Model of Shared Health Informatics for Tracking in Chronic Illness Management

Journals

1. Nebeker C, Weisberg B, Hekler E, Kurisu M. Using Self-Study and Peer-to-Peer Support to Change “Sick” Care to “Health” Care: The Patient Perspective. Frontiers in Digital Health 2020;2 View
2. Latulipe C, Mazumder S, Wilson R, Talton J, Bertoni A, Quandt S, Arcury T, Miller D. Security and Privacy Risks Associated With Adult Patient Portal Accounts in US Hospitals. JAMA Internal Medicine 2020;180(6):845 View
3. Reading Turchioe M, Burgermaster M, Mitchell E, Desai P, Mamykina L. Adapting the stage-based model of personal informatics for low-resource communities in the context of type 2 diabetes. Journal of Biomedical Informatics 2020;110:103572 View
4. Ng A, Kornfield R, Schueller S, Zalta A, Brennan M, Reddy M. Provider Perspectives on Integrating Sensor-Captured Patient-Generated Data in Mental Health Care. Proceedings of the ACM on Human-Computer Interaction 2019;3(CSCW):1 View
5. Wu D, Xin C, Bindhu S, Xu C, Sachdeva J, Brown J, Jung H. Clinician Perspectives and Design Implications in Using Patient-Generated Health Data to Improve Mental Health Practices: Mixed Methods Study. JMIR Formative Research 2020;4(8):e18123 View
6. Andersen T, Langstrup H, Lomborg S. Experiences With Wearable Activity Data During Self-Care by Chronic Heart Patients: Qualitative Study. Journal of Medical Internet Research 2020;22(7):e15873 View
7. Verloo H, Kampel T, Vidal N, Pereira F. Perceptions About Technologies That Help Community-Dwelling Older Adults Remain at Home: Qualitative Study. Journal of Medical Internet Research 2020;22(6):e17930 View
8. Dulaud P, Di Loreto I, Mottet D. Self-Quantification Systems to Support Physical Activity: From Theory to Implementation Principles. International Journal of Environmental Research and Public Health 2020;17(24):9350 View
9. Kamalumpundi V, Saeidzadeh S, Chi N, Nair R, Gilbertson-White S. The efficacy of web or mobile-based interventions to alleviate emotional symptoms in people with advanced cancer: a systematic review and meta-analysis. Supportive Care in Cancer 2022;30(4):3029 View
10. Zou N, Chi Y, He D, Xie B, Wang Z. Together they shall not fade away: Opportunities and challenges of self-tracking for dementia care. Information Processing & Management 2022;59(5):103024 View
11. Yamagami M, Mack K, Mankoff J, Steele K. “I’m Just Overwhelmed”: Investigating Physical Therapy Accessibility and Technology Interventions for People with Disabilities and/or Chronic Conditions. ACM Transactions on Accessible Computing 2022;15(4):1 View
12. Zech J, Johnson M, Pullmann M, Hull T, Althoff T, Munson S, Fridling N, Litvin B, Wu J, Areán P. An Integrative Engagement Model of Digital Psychotherapy: Exploratory Focus Group Findings. JMIR Formative Research 2023;7:e41428 View
13. Senteio C, Murdock P. The Efficacy of Health Information Technology in Supporting Health Equity for Black and Hispanic Patients With Chronic Diseases: Systematic Review. Journal of Medical Internet Research 2022;24(4):e22124 View
14. Martin-Hammond A, Purnell T. Bridging Community, History, and Culture in Personal Informatics Tools. Proceedings of the ACM on Human-Computer Interaction 2022;6(GROUP):1 View
15. Ankrah E, Marathe M, Bhattacharya A, Ritt-Olson A, Milam J, Torno L, Hayes G. Plan For Tomorrow: The Experience of Adolescent and Young Adult Childhood Cancer Survivors as they Transition to Adult Care. Proceedings of the ACM on Human-Computer Interaction 2023;7(CSCW2):1 View
16. Caldeira C, Nurain N, Heintzman A, Molchan H, Caine K, Demiris G, Siek K, Reeder B, Connelly K. How do I compare to the other people?": Older Adults' Perspectives on Personal Smart Home Data for Self-Management". Proceedings of the ACM on Human-Computer Interaction 2023;7(CSCW2):1 View
17. Tahsin F, Bahr T, Shaw J, Shachak A, Gray C. The relationship between treatment burden and the use of telehealth technologies among patients with chronic conditions: A scoping review. Health Policy and Technology 2024;13(2):100855 View
18. Richards O, Veinot T. Reconceptualizing Technology for Chronic Disease Management Activities in the Family: Supporting Collective Routines. ACM Transactions on Computer-Human Interaction 2025;32(3):1 View
19. Brown L, Veinot T. Individual and collective transitions: Changes in family information networks over time in life with chronic illness. Journal of the Association for Information Science and Technology 2025 View

Books/Policy Documents

1. Rayan R, Zafar I, Tsagkaris C. Advances in Data Science and Analytics. View
2. . Household Self-Tracking during a Global Health Crisis. View
3. Rayan R, Zafar I, Tsagkaris C. Blockchain Technology Solutions for the Security of IoT-Based Healthcare Systems. View
4. Ozkaynak M, Shan Z, Wu D. Reengineering Clinical Workflow in the Digital and AI Era. View

Conference Proceedings

1. Kirchner S, Schroeder J, Fogarty J, Munson S. Proceedings of the 2021 CHI Conference on Human Factors in Computing Systems. “They don’t always think about that”: Translational Needs in the Design of Personal Health Informatics Applications View
2. Claisse C, Kasadha B, Stumpf S, Durrant A. CHI Conference on Human Factors in Computing Systems. Investigating Daily Practices of Self-care to Inform the Design of Supportive Health Technologies for Living and Ageing Well with HIV View
3. Robertson S, Harley K, Salehi N. Proceedings of the Workshop on Human-In-the-Loop Data Analytics. Opportunities and risks for engaging research participants with self-logged menstrual health data View
4. Zou N. ACM SIGIR Conference on Human Information Interaction and Retrieval. From Data to Action: Toward a Framework for Collective Personal Informatics in Dementia Care View
5. Markum R, Wolf S, Claisse C, Hoefer M. Proceedings of the Eighteenth International Conference on Tangible, Embedded, and Embodied Interaction. Mediating the Sacred: Configuring a Design Space for Religious and Spiritual Tangible Interactive Artifacts View
6. Paymal L, Homewood S. Proceedings of the CHI Conference on Human Factors in Computing Systems. Good Days, Bad Days: Understanding the Trajectories of Technology Use During Chronic Fatigue Syndrome View
7. Sefidgar Y, Castillo C, Chopra S, Jiang L, Jones T, Mittal A, Ryu H, Schroeder J, Cole A, Murinova N, Munson S, Fogarty J. Proceedings of the CHI Conference on Human Factors in Computing Systems. MigraineTracker: Examining Patient Experiences with Goal-Directed Self-Tracking for a Chronic Health Condition View
8. Homewood S, Okholm Just K, Bramm Johansson O. Designing Interactive Systems Conference. The Unanticipated Use of Fitness Tracking Technologies During Post-COVID Syndrome View
9. Keys R, Marshall P, Stuart G, O'Kane A. Proceedings of the 2025 CHI Conference on Human Factors in Computing Systems. Rethinking Lived Experience in Chronic Illness: Navigating Bodily Doubt with Consumer Technology in Atrial Fibrillation Self-Care View
10. Homewood S, Hinkle C, Kaklopoulou I. Proceedings of the 2025 CHI Conference on Human Factors in Computing Systems. Cripping the Co-Design of Pacing Technologies For Energy-Limiting Conditions View
11. Bogdanova K, Cila N, Kudina O, Bozzon A. Proceedings of the 2025 CHI Conference on Human Factors in Computing Systems. Digital Phenotyping as Felt Informatics: Designing AI-Based Mental Health Diagnostic Tools Through Aesthetics View