This paper is in the following e-collection/theme issue:

Personal Health Records, Patient-Accessible Electronic Health Records, Patient Portals (543) Email Communication, Web-Based Communication, Secure Messaging (148) Consumer & Patient Education and Shared-Decision Making (641)

Published on in Vol 18, No 2 (2016): February

Patients Know Best: Qualitative Study on How Families Use Patient-Controlled Personal Health Records

Patients Know Best: Qualitative Study on How Families Use Patient-Controlled Personal Health Records

Patients Know Best: Qualitative Study on How Families Use Patient-Controlled Personal Health Records

Authors of this article:

Hanna Schneider1, 2 Author Orcid Image ;   Susan Hill3 Author Orcid Image ;   Ann Blandford4 Author Orcid Image
Article Authors Cited by (23) Tweetations (28) Metrics

Journals

  1. Blandford A, Furniss D, Makri S. Qualitative HCI Research: Going Behind the Scenes. Synthesis Lectures on Human-Centered Informatics 2016;9(1):1 View
  2. Niazkhani Z, Toni E, Cheshmekaboodi M, Georgiou A, Pirnejad H. Barriers to patient, provider, and caregiver adoption and use of electronic personal health records in chronic care: a systematic review. BMC Medical Informatics and Decision Making 2020;20(1) View
  3. Diffin J, Byrne B, Kerr H, Price J, Abbott A, McLaughlin D, O'Halloran P. The usefulness and acceptability of a personal health record to children and young people living with a complex health condition: A realist review of the literature. Child: Care, Health and Development 2019;45(3):313 View
  4. Blandford A. HCI for health and wellbeing: Challenges and opportunities. International Journal of Human-Computer Studies 2019;131:41 View
  5. Schofield P, Shaw T, Pascoe M. Toward Comprehensive Patient-Centric Care by Integrating Digital Health Technology With Direct Clinical Contact in Australia. Journal of Medical Internet Research 2019;21(6):e12382 View
  6. Jokinen A, Stolt M, Suhonen R. Ethical issues related to eHealth: An integrative review. Nursing Ethics 2021;28(2):253 View
  7. Powell K. Patient-Perceived Facilitators of and Barriers to Electronic Portal Use. CIN: Computers, Informatics, Nursing 2017;35(11):565 View
  8. Hackett C, Brennan K, Smith Fowler H, Leaver C. Valuing Citizen Access to Digital Health Services: Applied Value-Based Outcomes in the Canadian Context and Tools for Modernizing Health Systems. Journal of Medical Internet Research 2019;21(6):e12277 View
  9. Crameri K, Maher L, Van Dam P, Prior S. Personal electronic healthcare records: What influences consumers to engage with their clinical data online? A literature review. Health Information Management Journal 2022;51(1):3 View
  10. Gimpel H, Manner-Romberg T, Schmied F, Winkler T. Understanding the evaluation of mHealth app features based on a cross-country Kano analysis. Electronic Markets 2021;31(4):765 View
  11. Dang T, Nguyen T, Hoang Van M, Santin O, Tran O, Schofield P. Patient-Centered Care: Transforming the Health Care System in Vietnam With Support of Digital Health Technology. Journal of Medical Internet Research 2021;23(6):e24601 View
  12. Anderson M, Pitchforth E, Asaria M, Brayne C, Casadei B, Charlesworth A, Coulter A, Franklin B, Donaldson C, Drummond M, Dunnell K, Foster M, Hussey R, Johnson P, Johnston-Webber C, Knapp M, Lavery G, Longley M, Clark J, Majeed A, McKee M, Newton J, O'Neill C, Raine R, Richards M, Sheikh A, Smith P, Street A, Taylor D, Watt R, Whyte M, Woods M, McGuire A, Mossialos E. LSE–Lancet Commission on the future of the NHS: re-laying the foundations for an equitable and efficient health and care service after COVID-19. The Lancet 2021;397(10288):1915 View
  13. Burgess E, Kaziunas E, Jacobs M. Care Frictions: A Critical Reframing of Patient Noncompliance in Health Technology Design. Proceedings of the ACM on Human-Computer Interaction 2022;6(CSCW2):1 View
  14. Schneider H. Designing for empowerment – An investigation and critical reflection. it - Information Technology 2019;61(1):59 View
  15. Galliford N, Yin K, Blandford A, Jung J, Lau A. Patient Work Personas of Type 2 Diabetes—A Data-Driven Approach to Persona Development and Validation. Frontiers in Digital Health 2022;4 View
  16. Whitman S, Pine K, Thorsteinsdottir B, Organick-Lee P, Thota A, Espinoza Suarez N, Johnston E, Boehmer K. Bodily Experiences of Illness and Treatment as Information Work: The Case of Chronic Kidney Disease. Proceedings of the ACM on Human-Computer Interaction 2021;5(CSCW2):1 View
  17. Hagström J, Blease C, Haage B, Scandurra I, Hansson S, Hägglund M. Views, Use, and Experiences of Web-Based Access to Pediatric Electronic Health Records for Children, Adolescents, and Parents: Scoping Review. Journal of Medical Internet Research 2022;24(11):e40328 View
  18. Hägglund M, McMillan B, Whittaker R, Blease C. Patient empowerment through online access to health records. BMJ 2022:e071531 View
  19. Kurniyawan E, Santoso S, Widayati N, Dewi E, Hakam M, Deviantony F, Fitria Y. Self-Empowerment And Coping Strategies In Type 2 Diabetes Mellitus Patients. Jurnal Kegawatdaruratan Medis Indonesia 2023;2(2):166 View
  20. Vickery L, Keep M, Janssen A. Factors affecting engagement with a patient portal in a tertiary children's hospital: A qualitative study. Human Factors in Healthcare 2024:100063 View

Books/Policy Documents

  1. Blandford A. Handbook of Human Computer Interaction. View