Published on in Vol 18, No 2 (2016): February

Patients Know Best: Qualitative Study on How Families Use Patient-Controlled Personal Health Records

Patients Know Best: Qualitative Study on How Families Use Patient-Controlled Personal Health Records

Patients Know Best: Qualitative Study on How Families Use Patient-Controlled Personal Health Records

Authors of this article:

Hanna Schneider1, 2 Author Orcid Image ;   Susan Hill3 Author Orcid Image ;   Ann Blandford4 Author Orcid Image


  1. Blandford A, Furniss D, Makri S. Qualitative HCI Research: Going Behind the Scenes. Synthesis Lectures on Human-Centered Informatics 2016;9(1):1 View
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  4. Blandford A. HCI for health and wellbeing: Challenges and opportunities. International Journal of Human-Computer Studies 2019;131:41 View
  5. Schofield P, Shaw T, Pascoe M. Toward Comprehensive Patient-Centric Care by Integrating Digital Health Technology With Direct Clinical Contact in Australia. Journal of Medical Internet Research 2019;21(6):e12382 View
  6. Jokinen A, Stolt M, Suhonen R. Ethical issues related to eHealth: An integrative review. Nursing Ethics 2021;28(2):253 View
  7. Powell K. Patient-Perceived Facilitators of and Barriers to Electronic Portal Use. CIN: Computers, Informatics, Nursing 2017;35(11):565 View
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  12. Anderson M, Pitchforth E, Asaria M, Brayne C, Casadei B, Charlesworth A, Coulter A, Franklin B, Donaldson C, Drummond M, Dunnell K, Foster M, Hussey R, Johnson P, Johnston-Webber C, Knapp M, Lavery G, Longley M, Clark J, Majeed A, McKee M, Newton J, O'Neill C, Raine R, Richards M, Sheikh A, Smith P, Street A, Taylor D, Watt R, Whyte M, Woods M, McGuire A, Mossialos E. LSE–Lancet Commission on the future of the NHS: re-laying the foundations for an equitable and efficient health and care service after COVID-19. The Lancet 2021;397(10288):1915 View
  13. Burgess E, Kaziunas E, Jacobs M. Care Frictions: A Critical Reframing of Patient Noncompliance in Health Technology Design. Proceedings of the ACM on Human-Computer Interaction 2022;6(CSCW2):1 View
  14. Schneider H. Designing for empowerment – An investigation and critical reflection. it - Information Technology 2019;61(1):59 View
  15. Galliford N, Yin K, Blandford A, Jung J, Lau A. Patient Work Personas of Type 2 Diabetes—A Data-Driven Approach to Persona Development and Validation. Frontiers in Digital Health 2022;4 View
  16. Whitman S, Pine K, Thorsteinsdottir B, Organick-Lee P, Thota A, Espinoza Suarez N, Johnston E, Boehmer K. Bodily Experiences of Illness and Treatment as Information Work: The Case of Chronic Kidney Disease. Proceedings of the ACM on Human-Computer Interaction 2021;5(CSCW2):1 View
  17. Hagström J, Blease C, Haage B, Scandurra I, Hansson S, Hägglund M. Views, Use, and Experiences of Web-Based Access to Pediatric Electronic Health Records for Children, Adolescents, and Parents: Scoping Review. Journal of Medical Internet Research 2022;24(11):e40328 View
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Books/Policy Documents

  1. Blandford A. Handbook of Human Computer Interaction. View