Published on in Vol 9, No 2 (2007):

How Cancer Survivors Provide Support on Cancer-Related Internet Mailing Lists

How Cancer Survivors Provide Support on Cancer-Related Internet Mailing Lists

How Cancer Survivors Provide Support on Cancer-Related Internet Mailing Lists

Journals

  1. BUIS L. Emotional and Informational Support Messages in an Online Hospice Support Community. CIN: Computers, Informatics, Nursing 2008;26(6):358 View
  2. Aho A, Paavilainen E, Kaunonen M. Mothers’ experiences of peer support via an Internet discussion forum after the death of a child. Scandinavian Journal of Caring Sciences 2012;26(3):417 View
  3. Hesse B, Cole G, Powe B. Partnering Against Cancer Today: A Blueprint for Coordinating Efforts Through Communication Science. JNCI Monographs 2013;2013(47):233 View
  4. Han J, Shah D, Kim E, Namkoong K, Lee S, Moon T, Cleland R, Bu Q, McTavish F, Gustafson D. Empathic Exchanges in Online Cancer Support Groups: Distinguishing Message Expression and Reception Effects. Health Communication 2011;26(2):185 View
  5. Myrick J, Oliver M. Laughing and Crying: Mixed Emotions, Compassion, and the Effectiveness of a YouTube PSA About Skin Cancer. Health Communication 2015;30(8):820 View
  6. Brigo F, Igwe S, Nardone R, Orioli A, Otte W. Cancer information disparities on the internet: An infodemiological study. Journal of Cancer Policy 2016;8:33 View
  7. Liu Y, Ren C, Shi D, Li K, Zhang X. Evaluating the social value of online health information for third-party patients: Is uncertainty always bad?. Information Processing & Management 2020;57(5):102259 View
  8. Cipolletta S, Votadoro R, Faccio E. Online support for transgender people: an analysis of forums and social networks. Health & Social Care in the Community 2017;25(5):1542 View
  9. Lynch M. Guys and dolls: a qualitative study of teachers’ views of gendered play in kindergarten. Early Child Development and Care 2015;185(5):679 View
  10. Bawden D, Robinson L. Pharmaceutical information: A 30-year perspective on the literature. Annual Review of Information Science and Technology 2011;45(1):63 View
  11. Paterson B, Brewer J, Stamler L. Engagement of Parents in On-line Social Support Interventions. Journal of Pediatric Nursing 2013;28(2):114 View
  12. McLaughlin M, Nam Y, Gould J, Pade C, Meeske K, Ruccione K, Fulk J. A videosharing social networking intervention for young adult cancer survivors. Computers in Human Behavior 2012;28(2):631 View
  13. KLEMM P. Effects of Online Support Group Format (Moderated vs Peer-Led) on Depressive Symptoms and Extent of Participation in Women With Breast Cancer. CIN: Computers, Informatics, Nursing 2012;30(1):9 View
  14. Fieseler C, Meckel M, Müller S. With a little help of my peers. The supportive role of online contacts for the unemployed. Computers in Human Behavior 2014;41:164 View
  15. Dale J, Caramlau I, Lindenmeyer A, Williams S. Peer support telephone calls for improving health. Cochrane Database of Systematic Reviews 2008 View
  16. Canhilal S, Canboy B, Bakici T. Social support for expatriates through virtual platforms: exploring the role of online and offline participation. The International Journal of Human Resource Management 2020:1 View
  17. Zhang S, Bantum E, Owen J, Bakken S, Elhadad N. Online cancer communities as informatics intervention for social support: conceptualization, characterization, and impact. Journal of the American Medical Informatics Association 2017;24(2):451 View
  18. Weiss J, Berner E, Johnson K, Giuse D, Murphy B, Lorenzi N. Recommendations for the design, implementation and evaluation of social support in online communities, networks, and groups. Journal of Biomedical Informatics 2013;46(6):970 View
  19. Lyons E, Hatkevich C. Prevalence of Behavior Changing Strategies in Fitness Video Games: Theory-Based Content Analysis. Journal of Medical Internet Research 2013;15(5):e81 View
  20. Kim K, Kwon N. Profile of e-Patients: Analysis of Their Cancer Information-Seeking From a National Survey. Journal of Health Communication 2010;15(7):712 View
  21. Chou W, Prestin A, Lyons C, Wen K. Web 2.0 for Health Promotion: Reviewing the Current Evidence. American Journal of Public Health 2013;103(1):e9 View
  22. Moon T, Chih M, Shah D, Yoo W, Gustafson D. Breast Cancer Survivors’ Contribution to Psychosocial Adjustment of Newly Diagnosed Breast Cancer Patients in a Computer-Mediated Social Support Group. Journalism & Mass Communication Quarterly 2017;94(2):486 View
  23. KLEMM P. Late Effects of Treatment for Long-term Cancer Survivors. CIN: Computers, Informatics, Nursing 2008;26(1):49 View
  24. Salvador P, Alves K, Rodrigues C, Oliveira L. Online data collection strategies used in qualitative research of the health field: a scoping review. Revista Gaúcha de Enfermagem 2020;41 View
  25. Chuang K, Yang C. Interaction Patterns of Nurturant Support Exchanged in Online Health Social Networking. Journal of Medical Internet Research 2012;14(3):e54 View
  26. Hong Y, Peña-Purcell N, Ory M. Outcomes of online support and resources for cancer survivors: A systematic literature review. Patient Education and Counseling 2012;86(3):288 View
  27. Olsen A, Keogh J, Sargeant S. Investigating How Bowel Cancer Survivors Discuss Exercise and Physical Activity Within Web-Based Discussion Forums: Qualitative Analysis. Journal of Medical Internet Research 2019;21(12):e13929 View
  28. Hesse B, Suls J. Informatics-Enabled Behavioral Medicine in Oncology. The Cancer Journal 2011;17(4):222 View
  29. Abedin B, Milne D, Erfani E. Attraction, selection, and attrition in online health communities: Initial conversations and their association with subsequent activity levels. International Journal of Medical Informatics 2020;141:104216 View
  30. Grant M, Wiegand D. Palliative Care Online: A Pilot Study on a Pancreatic Cancer Website. Journal of Palliative Medicine 2011;14(7):846 View
  31. Robertson M, Tsai E, Lyons E, Srinivasan S, Swartz M, Baum M, Basen-Engquist K. Mobile Health Physical Activity Intervention Preferences in Cancer Survivors: A Qualitative Study. JMIR mHealth and uHealth 2017;5(1):e3 View
  32. Lyons E, Baranowski T, Basen-Engquist K, Lewis Z, Swartz M, Jennings K, Volpi E. Testing the effects of narrative and play on physical activity among breast cancer survivors using mobile apps: study protocol for a randomized controlled trial. BMC Cancer 2016;16(1) View
  33. Ma H, Smith C, He L, Narayanan S, Giaquinto R, Evans R, Hanson L, Yarosh S. Write for Life. Proceedings of the ACM on Human-Computer Interaction 2017;1(CSCW):1 View
  34. Chew S, Khoo C. Comparison of drug information on consumer drug review sites versus authoritative health information websites. Journal of the Association for Information Science and Technology 2016;67(2):333 View
  35. Smith C, Levonian Z, Ma H, Giaquinto R, Lein-Mcdonough G, Li Z, O’conner-Von S, Yarosh S. "I Cannot Do All of This Alone". ACM Transactions on Computer-Human Interaction 2020;27(5):1 View
  36. Méadel C, Oziel D. Une charte des listes de discussion entre patients : proposition pour une autorégulation. La Presse Médicale 2008;37(12):1809 View
  37. Savolainen R. Requesting and providing information in blogs and internet discussion forums. Journal of Documentation 2011;67(5):863 View
  38. Barak A, Grohol J. Current and Future Trends in Internet-Supported Mental Health Interventions. Journal of Technology in Human Services 2011;29(3):155 View
  39. Akrich M, Méadel C. Les échanges entre patients sur l’Internet. La Presse Médicale 2009;38(10):1484 View
  40. Bender J, Katz J, Ferris L, Jadad A. What is the role of online support from the perspective of facilitators of face-to-face support groups? A multi-method study of the use of breast cancer online communities. Patient Education and Counseling 2013;93(3):472 View
  41. Wen K, McTavish F, Kreps G, Wise M, Gustafson D. From Diagnosis to Death: A Case Study of Coping With Breast Cancer as Seen Through Online Discussion Group Messages. Journal of Computer-Mediated Communication 2011;16(2):331 View
  42. Kim E, Scheufele D, Han J, Shah D. Opinion Leaders in Online Cancer Support Groups: An Investigation of Their Antecedents and Consequences. Health Communication 2017;32(2):142 View
  43. Foster C, Roffe L. An exploration of the internet as a self-management resource. Journal of Research in Nursing 2009;14(1):13 View
  44. Lu A. An Experimental Test of the Persuasive Effect of Source Similarity in Narrative and Nonnarrative Health Blogs. Journal of Medical Internet Research 2013;15(7):e142 View
  45. van Eenbergen M, van de Poll-Franse L, Heine P, Mols F. The Impact of Participation in Online Cancer Communities on Patient Reported Outcomes: Systematic Review. JMIR Cancer 2017;3(2):e15 View
  46. Sherman L, Greenfield P. Forging friendship, soliciting support: A mixed-method examination of message boards for pregnant teens and teen mothers. Computers in Human Behavior 2013;29(1):75 View
  47. van Uden-Kraan C, Drossaert C, Taal E, Seydel E, van de Laar M. Self-Reported Differences in Empowerment Between Lurkers and Posters in Online Patient Support Groups. Journal of Medical Internet Research 2008;10(2):e18 View
  48. Eddens K, Kreuter M, Morgan J, Beatty K, Jasim S, Garibay L, Tao D, Buskirk T, Jupka K. Disparities by Race and Ethnicity in Cancer Survivor Stories Available on the Web. Journal of Medical Internet Research 2009;11(4):e50 View
  49. Kirk S, Milnes L. An exploration of how young people and parents use online support in the context of living with cystic fibrosis. Health Expectations 2016;19(2):309 View
  50. Amato M, Papandonatos G, Cha S, Wang X, Zhao K, Cohn A, Pearson J, Graham A. Inferring Smoking Status from User Generated Content in an Online Cessation Community. Nicotine & Tobacco Research 2019;21(2):205 View
  51. HESS R, WEINLAND J, BEEBE K. "I Am Not Alone". CIN: Computers, Informatics, Nursing 2010;28(4):215 View
  52. Hasler L, Ruthven I, Buchanan S. Using internet groups in situations of information poverty: Topics and information needs. Journal of the Association for Information Science and Technology 2014;65(1):25 View
  53. Lynch M. Kindergarten food familiarization. An exploratory study of teachers' perspectives on food and nutrition in kindergartens. Appetite 2015;87:46 View
  54. Thomson M, Siminoff L, Longo D. Internet Use for Prediagnosis Symptom Appraisal by Colorectal Cancer Patients. Health Education & Behavior 2012;39(5):583 View
  55. Høybye M, Olsen P, Hansson H, Spiegel D, Bennetsen H, Cheslack-Postava E. Virtual environments in cancer care: Pilot-testing a three-dimensional web-based platform as a tool for support in young cancer patients. Health Informatics Journal 2018;24(4):419 View
  56. van Uden-Kraan C, Drossaert C, Taal E, Seydel E, van de Laar M. Patient-initiated online support groups: motives for initiation, extent of success and success factors. Journal of Telemedicine and Telecare 2010;16(1):30 View
  57. Banerjee S, D’Agostino T, Gordon M, Hay J. “It’s Not JUST Skin Cancer”: Understanding Their Cancer Experience From Melanoma Survivor Narratives Shared Online. Health Communication 2018;33(2):188 View
  58. Wang Y, Kraut R, Levine J. Eliciting and Receiving Online Support: Using Computer-Aided Content Analysis to Examine the Dynamics of Online Social Support. Journal of Medical Internet Research 2015;17(4):e99 View
  59. Yli-Uotila T, Rantanen A, Suominen T. Motives of cancer patients for using the internet to seek social support. European Journal of Cancer Care 2013;22(2):261 View
  60. Dieleman C, Duncan E. Investigating the purpose of an online discussion group for health professionals: a case example from forensic occupational therapy. BMC Health Services Research 2013;13(1) View
  61. van Eenbergen M, van de Poll-Franse L, Krahmer E, Verberne S, Mols F. Analysis of Content Shared in Online Cancer Communities: Systematic Review. JMIR Cancer 2018;4(1):e6 View
  62. Bragadóttir H. Computer-Mediated Support Group Intervention for Parents. Journal of Nursing Scholarship 2008;40(1):32 View
  63. Kozlowski K, Holmes C. Experiences in Online Process Groups: A Qualitative Study. The Journal for Specialists in Group Work 2014;39(4):276 View
  64. Han J, Wise M, Kim E, Pingree R, Hawkins R, Pingree S, McTavish F, Gustafson D. Factors Associated with Use of Interactive Cancer Communication System: An Application of the Comprehensive Model of Information Seeking. Journal of Computer-Mediated Communication 2010;15(3):367 View
  65. BUIS L, WHITTEN P. Comparison of Social Support Content Within Online Communities for High- and Low-Survival-Rate Cancers. CIN: Computers, Informatics, Nursing 2011;29(8):461 View
  66. Blank T, Schmidt S, Vangsness S, Monteiro A, Santagata P. Differences among breast and prostate cancer online support groups. Computers in Human Behavior 2010;26(6):1400 View
  67. Goto Y, Nagase T. Oncology Information on the Internet. Japanese Journal of Clinical Oncology 2012;42(5):368 View
  68. McRoy S, Rastegar-Mojarad M, Wang Y, Ruddy K, Haddad T, Liu H. Assessing Unmet Information Needs of Breast Cancer Survivors: Exploratory Study of Online Health Forums Using Text Classification and Retrieval. JMIR Cancer 2018;4(1):e10 View
  69. Hartzler A, Pratt W. Managing the Personal Side of Health: How Patient Expertise Differs from the Expertise of Clinicians. Journal of Medical Internet Research 2011;13(3):e62 View
  70. Magnezi R, Grosberg D, Novikov I, Ziv A, Shani M, Freedman L. Characteristics of patients seeking health information online via social health networks versus general Internet sites: a comparative study. Informatics for Health and Social Care 2015;40(2):125 View
  71. Zhang S, Grave E, Sklar E, Elhadad N. Longitudinal analysis of discussion topics in an online breast cancer community using convolutional neural networks. Journal of Biomedical Informatics 2017;69:1 View
  72. Hamilton J, Lillie S, Alden D, Scherer L, Oser M, Rini C, Tanaka M, Baleix J, Brewster M, Craddock Lee S, Goldstein M, Jacobson R, Myers R, Zikmund-Fisher B, Waters E. What is a good medical decision? A research agenda guided by perspectives from multiple stakeholders. Journal of Behavioral Medicine 2017;40(1):52 View
  73. Symes Y, Barrington C, Austin J, Wu L, Fisher E, Rini C. Advice to patients undergoing stem cell transplant: Content analysis of survivor peer support narratives. Journal of Health Psychology 2018;23(6):818 View
  74. Frost J, Vermeulen I, Beekers N. Anonymity Versus Privacy: Selective Information Sharing in Online Cancer Communities. Journal of Medical Internet Research 2014;16(5):e126 View
  75. Vassilev I, Rogers A, Sanders C, Kennedy A, Blickem C, Protheroe J, Bower P, Kirk S, Chew-Graham C, Morris R. Social networks, social capital and chronic illness self-management: a realist review. Chronic Illness 2011;7(1):60 View
  76. Myrick J, Holton A, Himelboim I, Love B. #Stupidcancer: Exploring a Typology of Social Support and the Role of Emotional Expression in a Social Media Community. Health Communication 2016;31(5):596 View
  77. Hanghøj S, Boisen K, Hjerming M, Pappot H. Adolescents’ and young adults’ experiences of a prototype cancer smartphone app. DIGITAL HEALTH 2021;7:205520762199725 View
  78. Allison K, Patterson P, Guilbert D, Noke M, Husson O. Logging On, Reaching Out, and Getting By. Proceedings of the ACM on Human-Computer Interaction 2021;5(CSCW1):1 View

Books/Policy Documents

  1. Wicks P, Little M. Handbook of Human Computation. View
  2. Ngenye L, Wright K. Global Perspectives on Health Communication in the Age of Social Media. View
  3. Zeiger R, Frydman G. Oncology Informatics. View
  4. Hartzler A, Huh J. Consumer Health Informatics. View
  5. Graham A, Cobb C, Cobb N. Handbook of Health Decision Science. View
  6. Tsang E, Hui D. Communicating, Networking: Interacting. View
  7. Blank T, Schmidt S. Encyclopedia of Cyber Behavior. View
  8. Ding H. Emerging Genres in New Media Environments. View
  9. Bender J. Novel Applications of Virtual Communities in Healthcare Settings. View
  10. Schiavon F, Guglielmi G, Ranchio F. La comunicazione radiologica nella società del benessere. View
  11. Jones R, Boulos M, Maramba I, Skirton H, Freeman J. Virtual Social Networks. View
  12. Ngenye L, Wright K. Research Anthology on Improving Health Literacy Through Patient Communication and Mass Media. View