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This paper is in the following e-collection/theme issue:

Viewpoints and Perspectives (1419) Ethics, Privacy, and Legal Issues (813) Security in Digital Health (82) Research Infrastructures and Registries (103) Ethical, Legal, and Social Implications of Public Health Informatics (29) Health Information Governance (125)

Published on in Vol 28 (2026)

Preprints (earlier versions) of this paper are available at https://preprints.jmir.org/preprint/104402, first published .
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Ethics of Health Data Infrastructures: Toward Continuous Governance and Public Trust

Ethics of Health Data Infrastructures: Toward Continuous Governance and Public Trust

Authors of this article:

Yusuke Inoue1 Author Orcid Image ;   Jennifer Viberg Johansson2, 3 Author Orcid Image
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Yusuke Inoue   1 , MPH, PhD ;   Jennifer Viberg Johansson   2, 3 , PhD

1 Department of Healthcare Ethics, Kyoto University School of Public Health, Kyoto, Japan

2 Centre for Research Ethics & Bioethics, Department of Public Health and Caring Sciences, Uppsala University, Uppsala, Sweden

3 Health Services Research, Department of Public Health and Caring Sciences, Uppsala University, Uppsala, Sweden

Corresponding Author: