Health Information Governance

Legitimacy as Social Infrastructure: A Critical Interpretive Synthesis of the Literature on Legitimacy in Health and Technology

Sydney Howe, Carin Uyl-de Groot, Rik Wehrens

JMIR Hum Factors 2025 (Mar 05); 12:e48955

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Recent Use of Novel Data Streams During Foodborne Illness Cluster Investigations by the United States Food and Drug Administration: Qualitative Review

Michael C Bazaco, Christina K Carstens, Tiffany Greenlee, Tyann Blessington, Evelyn Pereira, Sharon Seelman, Stranjae Ivory, Temesgen Jemaneh, Margaret Kirchner, Alvin Crosby, Stelios Viazis, Sheila van Twuyver, Michael Gwathmey, Tanya Malais, Oliver Ou, Stephanie Kenez, Nichole Nolan, Andrew Karasick, Cecile Punzalan, Colin Schwensohn, Laura Gieraltowski, Cary Chen Parker, Erin Jenkins, Stic Harris

JMIR Public Health Surveill 2025 (Feb 28); 11:e58797

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Strengthening Cause of Death Statistics in Selected Districts of 3 States in India: Protocol for an Uncontrolled, Before-After, Mixed Method Study

Ashoo Grover, Saritha Nair, Saurabh Sharma, Shefali Gupta, Suyesh Shrivastava, Pushpendra Singh, Srikanta Kanungo, Senthanro Ovung, Charan Singh, Abdul Mabood Khan, Sandeep Sharma, Subrata Kumar Palo, Tapas Chakma, Anjali Bajaj

JMIR Res Protoc 2024 (Dec 20); 13:e51493

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EyeMatics: An Ophthalmology Use Case Within the German Medical Informatics Initiative

Julian Varghese, Alexander Schuster, Broder Poschkamp, Kemal Yildirim, Johannes Oehm, Philipp Berens, Sarah Müller, Julius Gervelmeyer, Lisa Koch, Katja Hoffmann, Martin Sedlmayr, Vinodh Kakkassery, Oliver Kohlbacher, David Merle, Karl Ulrich Bartz-Schmidt, Marius Ueffing, Dana Stahl, Torsten Leddig, Martin Bialke, Christopher Hampf, Wolfgang Hoffmann, Sebastian Berthe, Dagmar Waltemath, Peter Walter, Myriam Lipprandt, Rainer Röhrig, Jens Julian Storp, Julian Alexander Zimmermann, Lea Holtrup, Tobias Brix, Andreas Stahl, Nicole Eter

JMIR Med Inform 2024 (Dec 05); 12:e60851

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Cybersecurity Interventions in Health Care Organizations in Low- and Middle-Income Countries: Scoping Review

Kaede Hasegawa, Niki O'Brien, Mabel Prendergast, Chris Agape Ajah, Ana Luisa Neves, Saira Ghafur

J Med Internet Res 2024 (Nov 20); 26:e47311

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Data Quality–Driven Improvement in Health Care: Systematic Literature Review

Anthony Lighterness, Michael Adcock, Lauren Abigail Scanlon, Gareth Price

J Med Internet Res 2024 (Aug 22); 26:e57615

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Key Characteristics and Perception of Different Outbreak Surveillance Systems in Côte d’Ivoire: Cross-Sectional Survey Among Users

Marta S Palmeirim, Clarisse A Houngbedji, Tanja Barth-Jaeggi, Jean-Pierre Y Kouamé, Aboubakar Krouman, Daouda Coulibaly, Kaspar Wyss

JMIR Public Health Surveill 2024 (Jul 30); 10:e56275

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Finding Medical Photographs of Patients Online: Randomized, Cross-Sectional Study

Zack Marshall, Maushumi Bhattacharjee, Meng Wang, Abdul Cadri, Hannah James, Shabnam Asghari, Rene Peltekian, Veronica Benz, Vanessa Finley-Roy, Brynna Childs, Lauren Asaad, Michelle Swab, Vivian Welch, Fern Brunger, Chris Kaposy

J Med Internet Res 2024 (Jun 24); 26:e55352

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Comparing Attitudes Toward Different Consent Mediums: Semistructured Qualitative Study

Xengie Doan, Arianna Rossi, Marietjie Botes, Annika Selzer

JMIR Hum Factors 2024 (Apr 30); 11:e53113

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Ethical and Information Governance Considerations for Promoting Digital Social Interventions in Primary Care

Georgios Dimitrios Karampatakis, Helen E Wood, Chris J Griffiths, Nathan C Lea, Richard E Ashcroft, Bill Day, Neil Walker, Neil S Coulson, Anna De Simoni

J Med Internet Res 2023 (Sep 27); 25:e44886

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Ethical Implications of Artificial Intelligence in Population Health and the Public’s Role in Its Governance: Perspectives From a Citizen and Expert Panel

Vincent Couture, Marie-Christine Roy, Emma Dez, Samuel Laperle, Jean-Christophe Bélisle-Pipon

J Med Internet Res 2023 (Apr 27); 25:e44357

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Learning From Experience and Finding the Right Balance in the Governance of Artificial Intelligence and Digital Health Technologies

Stephen Gilbert, Stuart Anderson, Martin Daumer, Phoebe Li, Tom Melvin, Robin Williams

J Med Internet Res 2023 (Apr 14); 25:e43682

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Setting up a Governance Framework for Secondary Use of Routine Health Data in Nursing Homes: Development Study Using Qualitative Interviews

Yvonne Wieland-Jorna, Robert A Verheij, Anneke L Francke, Marit Tomassen, Max Houtzager, Karlijn J Joling, Mariska G Oosterveld-Vlug

J Med Internet Res 2023 (Jan 25); 25:e38929

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Impact of Hospital Characteristics and Governance Structure on the Adoption of Tracking Technologies for Clinical and Supply Chain Use: Longitudinal Study of US Hospitals

Xiao Zhu, Youyou Tao, Ruilin Zhu, Dezhi Wu, Wai-kit Ming

J Med Internet Res 2022 (May 26); 24(5):e33742

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Elaborating Models of eHealth Governance: Qualitative Systematic Review

Anne Granstrom Ekeland, Line Helen Linstad

J Med Internet Res 2020 (Oct 28); 22(10):e17214

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Bringing Code to Data: Do Not Forget Governance

Christine Suver, Adrian Thorogood, Megan Doerr, John Wilbanks, Bartha Knoppers

J Med Internet Res 2020 (Jul 28); 22(7):e18087

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Toward the Development of Data Governance Standards for Using Clinical Free-Text Data in Health Research: Position Paper

Kerina H Jones, Elizabeth M Ford, Nathan Lea, Lucy J Griffiths, Lamiece Hassan, Sharon Heys, Emma Squires, Goran Nenadic

J Med Internet Res 2020 (Jun 29); 22(6):e16760

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Toward a Risk-Utility Data Governance Framework for Research Using Genomic and Phenotypic Data in Safe Havens: Multifaceted Review

Kerina Jones, Helen Daniels, Sharon Heys, Arron Lacey, David V Ford

J Med Internet Res 2020 (May 15); 22(5):e16346

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Intelligent Sensing to Inform and Learn (InSTIL): A Scalable and Governance-Aware Platform for Universal, Smartphone-Based Digital Phenotyping for Research and Clinical Applications

Scott Barnett, Kit Huckvale, Helen Christensen, Svetha Venkatesh, Kon Mouzakis, Rajesh Vasa

J Med Internet Res 2019 (Nov 06); 21(11):e16399

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One Health Approach through interactive Urban Health Governance Framework in a Smart city, India

Yasobant Sandul, Walter Bruchhausen, Deepak B. Saxena

Online J Public Health Inform 2018 (May 22); 10(1):e62280

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