Health Information Governance

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Articles published in this theme: 67 (scroll down to load remaining articles)

2026

Laptop displaying a digital medical record form with fields for personal information.

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Ethics of Health Data Infrastructures: Toward Continuous Governance and Public Trust

Yusuke Inoue, Jennifer Viberg Johansson

J Med Internet Res 2026 (Sep 08); 28:e104402

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Young businesswoman using smartphone outdoors in city

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Consumer and Patient Health Information Seeking With Generative AI Tools: Scoping Review of Facilitators and Barriers

Lilach Alon, Inbar Levkovich

J Med Internet Res 2026 (Sep 02); 28:e93944

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Phone displaying e-Sveikata app with health record options

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Lithuania’s National Digital Health System Architecture, Evolution, and Lessons From a Centralized Approach Using Longitudinal Document Analysis: Descriptive National Case Study

Austėja Dapkutė, Olegas Niakšu, Julius Juodakis, Danguolė Jankauskienė, Justas Trinkūnas, Arvydas Laurinavičius, Tomas Jovaiša, Donata Ringaitienė, Martyna Atraškevičienė, Rytis Masiliūnas

JMIR Form Res 2026 (Sep 02); 10:e91911

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Ophthalmologists examine OCT scans of the retina on a computer screen.

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Building a National Interoperable Rare Eye Disease Data Warehouse: Methodological Framework and Implementation Report From the French Rare Eye Disease Database (FREDD) Initiative

Camille Beluffi Marin, Marilyne Oswald, Laura Ratenet, Matthieu Stoll, Kirsley Chennen, Nathalie Chabin, Julie Hubert, Grégoire Rey, Guylène Le Meur, Vasily Smirnov, Isabelle Meunier, Isabelle Audo, Hélène Dollfus

JMIR Med Inform 2026 (Aug 25); 14:e99206

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Nurse in blue scrubs reviews patient chart and computer schedule at desk

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Public Reporting Systems in Health Care and the Underconceptualized Technical Substrate, a Core Information Systems Dimension: Scoping Review

Elorm Damalie, Reima Suomi, Moustafa Mahmoud

JMIR Med Inform 2026 (Aug 24); 14:e84820

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Young woman in a floral top looking at her smartphone by a window

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Comparative Content Analysis and Expert Physician Risk Assessment of Aesthetic Procedures Promoted on TikTok in Taiwan: Quantitative Study

Cheng-Jung Wu, Sheng-Yu Wu, Cheng-Yu Tsai, Arnab Majumdar, Jeffrey Yang, Jinn-Moon Yang, Lok-Yee Joyce Li

JMIR Infodemiology 2026 (Aug 19); 6:e88227

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Nurse using voice-to-text on laptop for Project NARRATE medical transcription.

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Nurse-Led Ambient AI Scribe for Patient Safety Incident Investigation Reports (Project NARRATE): Retrospective Pre-Post Comparative Document-Quality Study

Kai Yunn Teo, Liwen Huang, Kelly Chai Yuen Woh, Shin Yuh Ang, Jade Gaik Nai Ng

JMIR Nursing 2026 (Aug 10); 9:e100775

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Medical team uses XR headset to view 3D heart model, discussing clinical adoption strategy.

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The Multicriteria Decision Analysis for Extended Reality (MCDA-XR) Governance Framework for Health Care Adoption: Mixed Methods Development Study

José Ferrer Costa, Manuel Armayones Ruiz, Pierre Bourdin-Kreitz

J Med Internet Res 2026 (Jul 31); 28:e89801

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Digital brain with circuits, data flow, and informed consent document

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Informed Consent Disclosures and Minimum Requirements in AI Clinical Trials: Cross-Sectional Analysis

Hankun Su, Fen Xiao, Hoksan Chau, Yuqian Tong, Siyi Han, Xinyu Cheng, Zhilin Che, Liye Sun, Yuemeng Yang, Jing Zhao, Yanping Li, Hui Li

J Med Internet Res 2026 (Jul 02); 28:e94504

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Young woman with blonde hair and glasses working on a laptop with coffee

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Governing Ethical Tensions in Youth Digital Mental Health Research

Kristin Berre Ørjasæter, Stefan Rennick-Egglestone, Kristin Øksendal Børresen, Cathrine Fredriksen Moe, Anna Leiler, Helga DI Sigurdardóttir, Victor Manuel Pèrez Colado, Malle Vogelsang, Teddy Nambazira, Jone Trovåg, Victor Valderaune, Ingunn Skjesol, Fiona Ng, Ottar Ness, Mike Slade

JMIR Ment Health 2026 (Jun 30); 13:e88622

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Doctor in white coat using tablet in modern clinic office

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A Futures Framework for Clinical AI Governance: Anticipating Emerging Risks, Shifting Roles, and Regulatory Challenges

Yi Yang, Jialin Liu, Siru Liu

J Med Internet Res 2026 (Jun 29); 28:e96152

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Library card catalog drawer with open section revealing index cards.

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Improving Semantic Interoperability in Health Care Through Translation and Contextualization of International Organization for Standardization 13940 (ContSys) in Estonia: Qualitative Document- and Artifact-Based Study

Kristian Juha Ismo Kankainen, Janek Metsallik, Ruth Erm, Gunnar Piho, Peeter Ross

JMIR Form Res 2026 (Jun 29); 10:e81227

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Child looking at digital icons representing data security, education, and health.

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Pediatric Clinical Images Without Consent: A Governance Gap in the Long-Term Reuse of Health Data in Digital Health Ecosystems

Iwona Bujek

J Med Internet Res 2026 (Jun 01); 28:e94952

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Man in white shirt using a smartphone for business or communication.

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Health Information Adoption Among Patients With Chronic Disease in China: Qualitative Interview Study of Patient–Platform Coshaping

Lin Huang, Guimin Duan, Jiani Tang, Peipei He

J Med Internet Res 2026 (May 20); 28:e85229

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AI and brain data visualization with two people discussing

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Co-Lifecycle Governance for Learning Medical AI: A Hybrid Convergence Framework for Adaptive Regulatory Oversight

Jae Hyun Lee, Boram Choi, Kwunho Jeong, Sang Won Suh, Ju Han Kim, Dae-Soon Son

J Med Internet Res 2026 (May 19); 28:e90654

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Woman reading a magazine under a hair dryer in a salon

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Determinants of Willingness to Receive Health Information From Neighborhood Food and Beauty Establishments: Cross-Sectional Study

Seema Aithal, Huiling Guo, Zoe Lara-Jane Hildon, May O Lwin, Angela Chow

JMIR Public Health Surveill 2026 (May 14); 12:e86435

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Doctor consults patient via telehealth, showing X-rays on screen

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Governing Patient-Facing AI-Generated Video in Digital Health: A Risk-and-Ethics Matrix for Deployment, Monitoring, and Change Control

Yongzheng Hu, Wei Jiang

J Med Internet Res 2026 (May 08); 28:e91940

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Doctor holding a glowing sphere with medical icons, representing healthcare technology.

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From Pilot Trap to Institutional Capacity: A Governance Framework for Sustainable Clinical AI Implementation in Health Systems

Jin Tian, Zengren Zhao, Longmei Tang, Yongzhao Song, Yuchang Li, Nan Jiang

J Med Internet Res 2026 (May 07); 28:e92680

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Laptop displaying a medical record form with fields for personal information.

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A Review of Medical Data Sharing Initiatives With a Focus on the Use of Blockchain Technologies: Qualitative Comparative Analysis

James Cunningham, Nigel Davies, Sarah Devaney, Mike Harding, Søren Holm, Victoria Neumann, Clare Smith, John Ainsworth

J Med Internet Res 2026 (Apr 22); 28:e63575

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Doctors reviewing patient data on a laptop in a hospital setting

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Reporting Horizon Scanning Studies: Prototype Development Study

Sonia Garcia Gonzalez-Moral, Megan Fairweather, Sarah Khan, Ross Fairbairn, Gill Norman

J Med Internet Res 2026 (Apr 16); 28:e88253

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