This paper is in the following e-collection/theme issue:

E-Health / Health Services Research and New Models of Care (780) Adoption and Change Management of eHealth Systems (940) Consumer & Patient Education and Shared-Decision Making (908) Digital Science, Open Science (92) Participatory Medicine & E-Patients (893) Peer-to-Peer Support and Online Communities (829)

Published on in Vol 27 (2025)

Preprints (earlier versions) of this paper are available at https://preprints.jmir.org/preprint/62750, first published .
Digital Transformation in Patient Organizations: Interview and Focus Group Study

Digital Transformation in Patient Organizations: Interview and Focus Group Study

Digital Transformation in Patient Organizations: Interview and Focus Group Study

Authors of this article:

Simon Wallraf1 Author Orcid Image ;   Sara Köthemann2 Author Orcid Image ;   Claudia Wiesemann2 Author Orcid Image ;   Sabine Wöhlke3 Author Orcid Image ;   Marie-Luise Dierks1 Author Orcid Image ;   Marion Andrea Schmidt2 Author Orcid Image ;   Henk Jasper van Gils-Schmidt3 Author Orcid Image ;   Jonas Lander1 Author Orcid Image
Article Authors Cited by (3) Tweetations (1) Metrics Author Video

Journals

  1. Wallraf S, Dierks M, Wöhlke S, John C, Lander J. Between willingness and practice: a nationwide survey of 1,334 German patient organization members on user involvement in digital service development. Frontiers in Digital Health 2025;7 View
  2. Treanor B, England A, Moore N, Young R, McEntee M, Albeshan S, Elhaie M. Perceived Barriers and Facilitators to Radiology Examinations Among Patients with Parkinson's Disease in Ireland. Radiography 2026;32(3):103349 View
  3. Domaradzki J. “We are ambassadors, we are advocates”: rare disease patient advocacy groups as knowledge brokers across health and social systems—a qualitative study from Poland. Frontiers in Public Health 2026;14 View