Accessibility settings

This paper is in the following e-collection/theme issue:

Personal Health Records, Patient-Accessible Electronic Health Records, Patient Portals (1018) Ethics, Privacy, and Legal Issues (799) Electronic Health Records (1694) Use and Perceptions of Technology in Everyday Life and for Rehabilitation (85) Secondary Use of Clinical Data for Research and Surveillance (621) Digital Health Reporting Standards, Quality and Transparency in e-Research (215) Data Science (693)

Published on in Vol 26 (2024)

Preprints (earlier versions) of this paper are available at https://preprints.jmir.org/preprint/53024, first published .
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Building and Sustaining Public Trust in Health Data Sharing for Musculoskeletal Research: Semistructured Interview and Focus Group Study

Building and Sustaining Public Trust in Health Data Sharing for Musculoskeletal Research: Semistructured Interview and Focus Group Study

Authors of this article:

Zainab K Yusuf1, 2 Author Orcid Image ;   William G Dixon1, 3 Author Orcid Image ;   Charlotte Sharp1, 2, 4 Author Orcid Image ;   Louise Cook1 Author Orcid Image ;   Søren Holm5 Author Orcid Image ;   Caroline Sanders2, 6 Author Orcid Image
Article Authors Cited by (6) Tweetations Metrics

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  3. Dungca A, See K. Bridging Data Silos: Toward a Data-Sharing Ontology for Coordinating Human Services for Older Adults. Journal of Technology in Human Services 2026;44(1):1 View
  4. Derksen C, Ramasawmy M, Arora S, Lau W, Scott S. Willingness to Share Internet Use Data for Research on Early Disease Detection: Cross-Sectional Survey. Journal of Medical Internet Research 2026;28:e85637 View
  5. Howe N, Chadwick T, Newbury-Birch D, McColl E. Attitudes of Longitudinal Study Participants and Members of the Public Towards Data Sharing for Secondary Research: A Survey Based Approach. Journal of Empirical Research on Human Research Ethics 2026 View
  6. Gillibrand S, Howells K, Bleksley D, Brown J, Sanders C. Empowerment or exclusion? Exploring perspectives on health data sharing through the lens of marginalisation and inequality. Social Science & Medicine 2026;406:119616 View