This paper is in the following e-collection/theme issue:

Ethics, Privacy, and Legal Issues (617) Public (e)Health, Digital Epidemiology and Public Health Informatics (1008) Policy (74) Data Science (357) Public Health Policy (98)

Published on in Vol 25 (2023)

Preprints (earlier versions) of this paper are available at https://preprints.jmir.org/preprint/47066, first published .
Public Preferences for Digital Health Data Sharing: Discrete Choice Experiment Study in 12 European Countries

Public Preferences for Digital Health Data Sharing: Discrete Choice Experiment Study in 12 European Countries

Public Preferences for Digital Health Data Sharing: Discrete Choice Experiment Study in 12 European Countries

Authors of this article:

Roberta Biasiotto1, 2 Author Orcid Image ;   Jennifer Viberg Johansson3 Author Orcid Image ;   Melaku Birhanu Alemu4, 5 Author Orcid Image ;   Virginia Romano1 Author Orcid Image ;   Heidi Beate Bentzen6, 7 Author Orcid Image ;   Jane Kaye8, 9 Author Orcid Image ;   Mirko Ancillotti3 Author Orcid Image ;   Johanna Maria Catharina Blom2, 10 Author Orcid Image ;   Gauthier Chassang11, 12 Author Orcid Image ;   Dara Hallinan13 Author Orcid Image ;   Guðbjörg Andrea Jónsdóttir14 Author Orcid Image ;   Aníbal Monasterio Astobiza15 Author Orcid Image ;   Emmanuelle Rial-Sebbag11, 12 Author Orcid Image ;   David Rodríguez-Arias16 Author Orcid Image ;   Nisha Shah8 Author Orcid Image ;   Lea Skovgaard17 Author Orcid Image ;   Ciara Staunton1, 18 Author Orcid Image ;   Katharina Tschigg1, 19 Author Orcid Image ;   Jorien Veldwijk20, 21 Author Orcid Image ;   Deborah Mascalzoni1, 3 Author Orcid Image
Article Authors Cited by (14) Tweetations (16) Metrics

Journals

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  2. Staunton C, Blom J, Mascalzoni D. Ethical framework for FACILITATE: a foundation for the return of clinical trial data to participants. Frontiers in Medicine 2024;11 View
  3. Alemu M, Norman R, Dantas J, Belay D, Pereira G, Tessema G. Stated preferences of adolescents and young adults for sexual and reproductive health services in Africa: a systematic review protocol. BMJ Open 2024;14(9):e079502 View
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  9. Nouwens S, Marceta S, Bui M, van Dijk D, Groothuis-Oudshoorn C, Veldwijk J, van Til J, de Bekker-Grob E. The Evolving Landscape of Discrete Choice Experiments in Health Economics: A Systematic Review. PharmacoEconomics 2025;43(8):879 View
  10. Huang X, Zhu S, Lv Z, Zhou Q, Kou T. The open sharing operation mechanism of health data in the digital healthcare era: A study based on grounded theory and interpretative structural modeling method. DIGITAL HEALTH 2025;11 View
  11. Fukuda Y, Fukuda K. Public Attitudes and Predictors of Public Awareness of Personal Digital Health Data Sharing for Research: Cross-Sectional Study in Japan. JMIR Human Factors 2025;12:e64192 View
  12. Olsen Q, Dyda A, Woods L, Lobo E, Eden R, Krahe M, Richards B, Pather N, McGee L, Sullivan C, Pole J. Worldwide willingness to share health data high but privacy, consent and transparency paramount, a meta-analysis. npj Digital Medicine 2025;8(1) View
  13. Saladdin I, Handayani P. Information Technology Governance Implementation Challenges in Healthcare Facilities: A Systematic Literature Review. Sage Open 2025;15(4) View
  14. Wang J, Lin A, Huang Y, Li G, Chen T, Sun C, Qian W, Ren S, Wong H, Ding Y, Zhang L. Medical Data as a Key Asset in the Digital Health Era: A Framework for Challenges and Strategies. iMetaMed 2025 View