This paper is in the following e-collection/theme issue:

Canada Health Infoway e-Collection Benefits Evaluation (35) Ethics, Privacy, and Legal Issues (616) Participatory Medicine & E-Patients (872) Consumer & Patient Education and Shared-Decision Making (862) Digital Health Reviews (1723)

Published on in Vol 25 (2023)

Preprints (earlier versions) of this paper are available at https://preprints.jmir.org/preprint/42507, first published .
Patient Perspectives and Preferences for Consent in the Digital Health Context: State-of-the-art Literature Review

Patient Perspectives and Preferences for Consent in the Digital Health Context: State-of-the-art Literature Review

Patient Perspectives and Preferences for Consent in the Digital Health Context: State-of-the-art Literature Review

Authors of this article:

Iman Kassam1, 2 Author Orcid Image ;   Daria Ilkina3 Author Orcid Image ;   Jessica Kemp1, 2 Author Orcid Image ;   Heba Roble1, 2 Author Orcid Image ;   Abigail Carter-Langford3 Author Orcid Image ;   Nelson Shen1, 2 Author Orcid Image
Article Authors Cited by (36) Tweetations (32) Metrics

Journals

  1. Verbeke K, Jain C, Shpendi A, Borry P. Safeguarding Users of Consumer Mental Health Apps in Research and Product Improvement Studies: an Interview Study. Neuroethics 2024;17(1) View
  2. Panadés Zafra R, Amorós Parramon N, Albiol-Perarnau M, Yuguero Torres O. Análisis de retos y dilemas que deberá afrontar la bioética del siglo xxi, en la era de la salud digital. Atención Primaria 2024;56(7):102901 View
  3. Botha N, Ansah E, Segbedzi C, Dumahasi V, Maneen S, Kodom R, Tsedze I, Akoto L, Atsu F. Artificial intelligent tools: evidence-mapping on the perceived positive effects on patient-care and confidentiality. BMC Digital Health 2024;2(1) View
  4. Northwood M, Saari M, Heckman G, Alexander T, Eastway B, Gerantonis P, Gillies D, Gregg S, McKinnon Wilson J, Morrison A, Sultan H, Turcotte L. Use of an electronic wellness instrument in the integrated health and social care of older adults: a group concept mapping study. BMC Health Services Research 2024;24(1) View
  5. Bilal A, Pagoni K, Iliadis S, Papadopoulos F, Skalkidou A, Öster C. Exploring User Experiences of the Mom2B mHealth Research App During the Perinatal Period: Qualitative Study. JMIR Formative Research 2024;8:e53508 View
  6. Zainal H, Hui X, Thumboo J, Fong W, Yong F. Patients’ Expectations of Doctors’ Clinical Competencies in the Digital Health Care Era: Qualitative Semistructured Interview Study Among Patients. JMIR Human Factors 2024;11:e51972 View
  7. Yusuf Z, Dixon W, Sharp C, Cook L, Holm S, Sanders C. Building and Sustaining Public Trust in Health Data Sharing for Musculoskeletal Research: Semistructured Interview and Focus Group Study. Journal of Medical Internet Research 2024;26:e53024 View
  8. Elliott M, Fiest K, Love S, Birdsell D, Loth M, Dumka H, Rana B, Shommu N, Benterud E, Gil S, Acharya D, Harrison T, Pannu N, James M. Patient Preferences and Priorities for the Design of an Acute Kidney Injury Prevention Trial. Kidney360 2024;5(10):1455 View
  9. Heavner S, Kumar V, Anderson W, Al-Hakim T, Dasher P, Armaignac D, Clermont G, Cobb J, Manion S, Remy K, Reuter-Rice K, Haendel M. Critical Data for Critical Care: A Primer on Leveraging Electronic Health Record Data for Research From Society of Critical Care Medicine’s Panel on Data Sharing and Harmonization. Critical Care Explorations 2024;6(11):e1179 View
  10. Welzel C, Brückner S, Brightwell C, Fenech M, Gilbert S, Ayatollahi H. A transparent and standardized performance measurement platform is needed for on-prescription digital health apps to enable ongoing performance monitoring. PLOS Digital Health 2024;3(11):e0000656 View
  11. Trotsyuk A, Waeiss Q, Bhatia R, Aponte B, Heffernan I, Madgavkar D, Felder R, Lehmann L, Palmer M, Greely H, Wald R, Goetz L, Trengove M, Vandersluis R, Lin H, Cho M, Altman R, Endy D, Relman D, Levi M, Satz D, Magnus D. Toward a framework for risk mitigation of potential misuse of artificial intelligence in biomedical research. Nature Machine Intelligence 2024;6(12):1435 View
  12. Tanaka M. From Serendipity to Precision: Integrating AI, Multi-Omics, and Human-Specific Models for Personalized Neuropsychiatric Care. Biomedicines 2025;13(1):167 View
  13. Giger O, Pfitzer E, Mekniran W, Gebhardt H, Fleisch E, Jovanova M, Kowatsch T. Digital health technologies and innovation patterns in diabetes ecosystems. DIGITAL HEALTH 2025;11 View
  14. Moulaei K, Akhlaghpour S, Fatehi F. Patient consent for the secondary use of health data in artificial intelligence (AI) models: A scoping review. International Journal of Medical Informatics 2025;198:105872 View
  15. Moldovan F, Moldovan L. An Innovative Assessment Framework for Remote Care in Orthopedics. Healthcare 2025;13(7):736 View
  16. Stroud A, Minteer S, Zhu X, Ridgeway J, Miller J, Barry B, Ghasemi H. Patient information needs for transparent and trustworthy cardiovascular artificial intelligence: A qualitative study. PLOS Digital Health 2025;4(4):e0000826 View
  17. Schmidt R, Schiering I, Zwingelberg H, Friedewald M. Challenges and Solutions in Implementing Informed Consent in Digital Environments: A Scoping Review. IEEE Access 2025;13:71965 View
  18. Niño de Rivera S, Zhao Y, Omollo S, Eslami S, Benda N, Sharma Y, Reading Turchioe M, Sharko M, Dugdale L, Masterson Creber R. Integrating public preferences to overcome racial disparities in research: findings from a US survey on enhancing trust in research data-sharing practices. JAMIA Open 2025;8(3) View
  19. Huang Y, Munteanu V, Love M, Ronkowski C, Deshpande D, Wong-Beringer A, Corbett-Detig R, Dimian M, Moore J, Garmire L, Reddy T, Butte A, Robinson M, Eskin E, Abedalthagafi M, Mangul S. Perceptual and technical barriers in sharing and formatting metadata accompanying omics studies. Cell Genomics 2025;5(5):100845 View
  20. Wang B, Asan O, Alelyani T. Exploring policy and regulations of clinical AI systems: Views from patients with chronic diseases. Health Policy and Technology 2025;14(5):101035 View
  21. Kolasa K, Baliga-Nicholson K, Wasniewski J, Laskowska N, Milian K, Ciupek D. Shall we call for a doctor? How to build trust toward AI in healthcare: Insights from a Polish cross-sectional preference study. Health Policy 2025;159:105379 View
  22. Weinberger N, Baumann M, Maia M. Self-monitoring of health - user viewpoints on gathering data using consumer health technologies during leisure time. Frontiers in Digital Health 2025;7 View
  23. Goldschmitt M, Gleim P, Mandelartz S, Kellmeyer P, Rigotti T. Digitalizing informed consent in healthcare: a scoping review. BMC Health Services Research 2025;25(1) View
  24. Lewis J, Alpert A, Galusha D, Faria A, Hirschman A, Wolfe H, Hart L, Nunez-Smith M, Wang K. Patient perspectives on safety and privacy in sexual orientation and gender identity data collection. JNCI Monographs 2025;2025(69):170 View
  25. Fesl S, Lang C, Schmitt J, Brückner S, Gilbert S, Deckert S, Scheibe M. Factors influencing patients’ willingness to share their digital health data for primary and secondary use: A theory- and evidence-based overview of reviews. DIGITAL HEALTH 2025;11 View
  26. Keuper J, Hek K, van Tuyl L, Batenburg R, Verheij R. Determinants of consent for electronic health information exchange: an observational retrospective study. Health Research Policy and Systems 2025;23(1) View
  27. Welzel C, Ostermann M, Smith H, Minssen T, Kirsten T, Gilbert S. Enabling secure and self determined health data sharing and consent management. npj Digital Medicine 2025;8(1) View
  28. Alifia R, Sadeghi M, Eluru M, Jafari M, Grando M. Bridging ethical gaps in digital health research: a framework for informed consent aligned with NIH guidance. BMC Medical Ethics 2025;26(1) View
  29. Leimstädtner D, Sörries P, Müller-Birn C. Designing Value-Centered Consent Interfaces: A Mixed-Methods Approach to Support Patient Values in Data-Sharing Decisions. Proceedings of the ACM on Human-Computer Interaction 2025;9(7):1 View
  30. Zhang L, Hussain W, Md Ali S. Trust transfer in digital healthcare: The role of self-service systems in reducing patient treatment barriers. DIGITAL HEALTH 2025;11 View

Books/Policy Documents

  1. Owotoki W, Enseroth A, Mbugua R, Owotoki P. Digital Technologies for Learning and Psychological Interventions. View
  2. Ferreira L, Martins T, Dias E, Ferreira A. Computer-Human Interaction Research and Applications. View
  3. Naik D, Pokharkar P, Patil R, Pitre A. Modern Digital Approaches to Care Technologies for Individuals With Disabilities. View
  4. Mallick N, Sahu S, Singh B, Wongmahesak K. Prioritizing Employee Mental Health and Well-Being for Organizational Success. View

Conference Proceedings

  1. Szerencsés D, Zrubka Z. 2025 IEEE 19th International Symposium on Applied Computational Intelligence and Informatics (SACI). Do Patients Need New Digital Skills for Health 4.0? View
  2. Singh G, Bajaj R, Hooda M. 2025 4th OPJU International Technology Conference (OTCON) on Smart Computing for Innovation and Advancement in Industry 5.0. The Ethics of Cybersecurity: Balancing Privacy, Surveillance, and Security in a Digital World View