Published on in Vol 23, No 2 (2021): February
Preprints (earlier versions) of this paper are
available at
https://preprints.jmir.org/preprint/25120, first published
.
Journals
- Bentzen H, Castro R, Fears R, Griffin G, ter Meulen V, Ursin G. Remove obstacles to sharing health data with researchers outside of the European Union. Nature Medicine 2021;27(8):1329 View
- Scheibner J, Ienca M, Vayena E. Health data privacy through homomorphic encryption and distributed ledger computing: an ethical-legal qualitative expert assessment study. BMC Medical Ethics 2022;23(1) View
- Luo C, Islam M, Sheils N, Buresh J, Reps J, Schuemie M, Ryan P, Edmondson M, Duan R, Tong J, Marks-Anglin A, Bian J, Chen Z, Duarte-Salles T, Fernández-Bertolín S, Falconer T, Kim C, Park R, Pfohl S, Shah N, Williams A, Xu H, Zhou Y, Lautenbach E, Doshi J, Werner R, Asch D, Chen Y. DLMM as a lossless one-shot algorithm for collaborative multi-site distributed linear mixed models. Nature Communications 2022;13(1) View
- Kim M, Wang S, Jiang X, Harmanci A. SVAT: Secure outsourcing of variant annotation and genotype aggregation. BMC Bioinformatics 2022;23(1) View
- Guo L, Gao W, Cao Y, Lai X. Research on medical data security sharing scheme based on homomorphic encryption. Mathematical Biosciences and Engineering 2022;20(2):2261 View
- McCradden M, Anderson J, A. Stephenson E, Drysdale E, Erdman L, Goldenberg A, Zlotnik Shaul R. A Research Ethics Framework for the Clinical Translation of Healthcare Machine Learning. The American Journal of Bioethics 2022;22(5):8 View
- Kernebeck S, Busse T, Jux C, Bork U, Ehlers J. Electronic Medical Records for (Visceral) Medicine: An Overview of the Current Status and Prospects. Visceral Medicine 2021;37(6):476 View
- Lazic I, Agullo F, Ausso S, Alves B, Barelle C, Berral J, Bizopoulos P, Bunduc O, Chouvarda I, Dominguez D, Filos D, Gutierrez-Torre A, Hesso I, Jakovljević N, Kayyali R, Kogut-Czarkowska M, Kosvyra A, Lalas A, Lavdaniti M, Loncar-Turukalo T, Martinez-Alabart S, Michas N, Nabhani-Gebara S, Raptopoulos A, Roussakis Y, Stalika E, Symvoulidis C, Tsave O, Votis K, Charalambous A. The Holistic Perspective of the INCISIVE Project—Artificial Intelligence in Screening Mammography. Applied Sciences 2022;12(17):8755 View
- Acosta J, Falcone G, Rajpurkar P, Topol E. Multimodal biomedical AI. Nature Medicine 2022;28(9):1773 View
- Allam A, Feuerriegel S, Rebhan M, Krauthammer M. Analyzing Patient Trajectories With Artificial Intelligence. Journal of Medical Internet Research 2021;23(12):e29812 View
- Guo S, Dang Y, She B, Li Y. Sharing intention of electronic health records in online health communities: Patients’ behavioral decisions in the context of privacy protection measures. Frontiers in Psychology 2022;13 View
- Halfpenny W, Baxter S. Towards effective data sharing in ophthalmology: data standardization and data privacy. Current Opinion in Ophthalmology 2022 View
- Eke D, Aasebø I, Akintoye S, Knight W, Karakasidis A, Mikulan E, Ochang P, Ogoh G, Oostenveld R, Pigorini A, Stahl B, White T, Zehl L. Pseudonymisation of neuroimages and data protection: Increasing access to data while retaining scientific utility. Neuroimage: Reports 2021;1(4):100053 View
- Rehm H, Page A, Smith L, Adams J, Alterovitz G, Babb L, Barkley M, Baudis M, Beauvais M, Beck T, Beckmann J, Beltran S, Bernick D, Bernier A, Bonfield J, Boughtwood T, Bourque G, Bowers S, Brookes A, Brudno M, Brush M, Bujold D, Burdett T, Buske O, Cabili M, Cameron D, Carroll R, Casas-Silva E, Chakravarty D, Chaudhari B, Chen S, Cherry J, Chung J, Cline M, Clissold H, Cook-Deegan R, Courtot M, Cunningham F, Cupak M, Davies R, Denisko D, Doerr M, Dolman L, Dove E, Dursi L, Dyke S, Eddy J, Eilbeck K, Ellrott K, Fairley S, Fakhro K, Firth H, Fitzsimons M, Fiume M, Flicek P, Fore I, Freeberg M, Freimuth R, Fromont L, Fuerth J, Gaff C, Gan W, Ghanaim E, Glazer D, Green R, Griffith M, Griffith O, Grossman R, Groza T, Guidry Auvil J, Guigó R, Gupta D, Haendel M, Hamosh A, Hansen D, Hart R, Hartley D, Haussler D, Hendricks-Sturrup R, Ho C, Hobb A, Hoffman M, Hofmann O, Holub P, Hsu J, Hubaux J, Hunt S, Husami A, Jacobsen J, Jamuar S, Janes E, Jeanson F, Jené A, Johns A, Joly Y, Jones S, Kanitz A, Kato K, Keane T, Kekesi-Lafrance K, Kelleher J, Kerry G, Khor S, Knoppers B, Konopko M, Kosaki K, Kuba M, Lawson J, Leinonen R, Li S, Lin M, Linden M, Liu X, Liyanage I, Lopez J, Lucassen A, Lukowski M, Mann A, Marshall J, Mattioni M, Metke-Jimenez A, Middleton A, Milne R, Molnár-Gábor F, Mulder N, Munoz-Torres M, Nag R, Nakagawa H, Nasir J, Navarro A, Nelson T, Niewielska A, Nisselle A, Niu J, Nyrönen T, O’Connor B, Oesterle S, Ogishima S, Ota Wang V, Paglione L, Palumbo E, Parkinson H, Philippakis A, Pizarro A, Prlic A, Rambla J, Rendon A, Rider R, Robinson P, Rodarmer K, Rodriguez L, Rubin A, Rueda M, Rushton G, Ryan R, Saunders G, Schuilenburg H, Schwede T, Scollen S, Senf A, Sheffield N, Skantharajah N, Smith A, Sofia H, Spalding D, Spurdle A, Stark Z, Stein L, Suematsu M, Tan P, Tedds J, Thomson A, Thorogood A, Tickle T, Tokunaga K, Törnroos J, Torrents D, Upchurch S, Valencia A, Guimera R, Vamathevan J, Varma S, Vears D, Viner C, Voisin C, Wagner A, Wallace S, Walsh B, Williams M, Winkler E, Wold B, Wood G, Woolley J, Yamasaki C, Yates A, Yung C, Zass L, Zaytseva K, Zhang J, Goodhand P, North K, Birney E. GA4GH: International policies and standards for data sharing across genomic research and healthcare. Cell Genomics 2021;1(2):100029 View
- Wang J, Lin W. Privacy-Preserving Anonymity for Periodical Releases of Spontaneous Adverse Drug Event Reporting Data: Algorithm Development and Validation. JMIR Medical Informatics 2021;9(10):e28752 View
- Majeed A, Hwang S. A Comprehensive Analysis of Privacy Protection Techniques Developed for COVID-19 Pandemic. IEEE Access 2021;9:164159 View
- Bhachawat S, Shriram E, Srinivasan K, Hu Y. Leveraging Computational Intelligence Techniques for Diagnosing Degenerative Nerve Diseases: A Comprehensive Review, Open Challenges, and Future Research Directions. Diagnostics 2023;13(2):288 View
- Rahimzadeh V. Regulatory Angels and Technology Demons? Making Sense of Evolving Realities in Health Data Privacy for the Digital Age. The American Journal of Bioethics 2022;22(7):68 View
- Garcia‐Santaolalla N, de Klerk K. Ensuring Market Supply Transparency for Personal Protective Equipment: Preparing for Future Pandemics. Global Policy 2022;13(3):401 View
- Vishnoi A, Sapra V, Srikanth P, Sharma K. Securing medical transcription using homomorphic transform. Materials Today: Proceedings 2022;69:620 View
- Froelicher D, Troncoso-Pastoriza J, Raisaro J, Cuendet M, Sousa J, Cho H, Berger B, Fellay J, Hubaux J. Truly privacy-preserving federated analytics for precision medicine with multiparty homomorphic encryption. Nature Communications 2021;12(1) View
- Gürsoy G, Chielle E, Brannon C, Maniatakos M, Gerstein M. Privacy-preserving genotype imputation with fully homomorphic encryption. Cell Systems 2022;13(2):173 View
- Johnson T, Kollnig K, Dewitte P. Towards responsible, lawful and ethical data processing: patient data in the UK. Internet Policy Review 2022;11(1) View
- Gaudio A, Smailagic A, Faloutsos C, Mohan S, Johnson E, Liu Y, Costa P, Campilho A. DeepFixCX: Explainable privacy‐preserving image compression for medical image analysis. WIREs Data Mining and Knowledge Discovery 2023;13(4) View
- . Enhanced Data Security Unlocks the Power of Real-World Data. Inside Precision Medicine 2023;10(2):50 View
- Landers C, Ormond K, Blasimme A, Brall C, Vayena E. Talking Ethics Early in Health Data Public Private Partnerships. Journal of Business Ethics 2024;190(3):649 View
- Kim M, Sohn H, Choi S, Kim S. Requirements for Trustworthy Artificial Intelligence and its Application in Healthcare. Healthcare Informatics Research 2023;29(4):315 View
- Meier D, Troncoso Pastoriza J. Privacy Preserving Machine Learning. SSRN Electronic Journal 2023 View
- Wolfien M, Ahmadi N, Fitzer K, Grummt S, Heine K, Jung I, Krefting D, Kühn A, Peng Y, Reinecke I, Scheel J, Schmidt T, Schmücker P, Schüttler C, Waltemath D, Zoch M, Sedlmayr M. Ten Topics to Get Started in Medical Informatics Research. Journal of Medical Internet Research 2023;25:e45948 View
- Bernier A, Molnár-Gábor F, Knoppers B, Borry P, Cesar P, Devriendt T, Goisauf M, Murtagh M, Jiménez P, Recuero M, Rial-Sebbag E, Shabani M, Wilson R, Zaccagnini D, Maxwell L. Reconciling the biomedical data commons and the GDPR: three lessons from the EUCAN ELSI collaboratory. European Journal of Human Genetics 2024;32(1):69 View
- Li W, Kim M, Zhang K, Chen H, Jiang X, Harmanci A. COLLAGENE enables privacy-aware federated and collaborative genomic data analysis. Genome Biology 2023;24(1) View
- Lin F, Xiong B, Zhi P, Cheng E. A three-dimensional framework of perceiving privacy: A cross-national survey on contact tracing technology and privacy concerns during the COVID-19 pandemic. Computers in Human Behavior 2024;152:108047 View
- Bao Z, He D, Wang H, Luo M, Peng C. A Group Signature Scheme With Selective Linkability and Traceability for Blockchain-Based Data Sharing Systems in E-Health Services. IEEE Internet of Things Journal 2023;10(23):21115 View
- Ohta T, Hananoe A, Fukushima-Nomura A, Ashizaki K, Sekita A, Seita J, Kawakami E, Sakurada K, Amagai M, Koseki H, Kawasaki H. Best practices for multimodal clinical data management and integration: An atopic dermatitis research case. Allergology International 2024;73(2):255 View
- Hua Z, Ke Y, Yang Z, Di Z, Pan G, Gao K. Computer vision-aided mmWave communications for indoor medical healthcare. Computers in Biology and Medicine 2024;169:107869 View
- Lichtenauer N, Schmidbauer L, Wilhelm S, Wahl F. A Scoping Review on Analysis of the Barriers and Support Factors of Open Data. Information 2023;15(1):5 View
- Luo M, Yue Y, Du N, Xiao Y, Chen C, Huan Z. Needs for mobile and internet-based psychological intervention in patients with self-injury and suicide-related behaviors: a qualitative systematic review. BMC Psychiatry 2024;24(1) View
- Hau C, Woods P, Guski A, Raju S, Zhu L, Alba P, Cushman W, Glassman P, Ishani A, Taylor A, Ferguson R, Leatherman S. Strategies for secondary use of real-world clinical and administrative data for outcome ascertainment in pragmatic clinical trials. Journal of Biomedical Informatics 2024;150:104587 View
- Grzybowski A, Jin K, Wu H. Challenges of artificial intelligence in medicine and dermatology. Clinics in Dermatology 2024;42(3):210 View
- Rudnicka Z, Proniewska K, Perkins M, Pregowska A. Cardiac Healthcare Digital Twins Supported by Artificial Intelligence-Based Algorithms and Extended Reality—A Systematic Review. Electronics 2024;13(5):866 View
- Ormond K, Bavamian S, Becherer C, Currat C, Joerger F, Geiger T, Hiendlmeyer E, Maurer J, Staub T, Vayena E. What are the bottlenecks to health data sharing in Switzerland? An interview study. Swiss Medical Weekly 2024;154(1):3538 View
- Lohmöller J, Pennekamp J, Matzutt R, Schneider C, Vlad E, Trautwein C, Wehrle K. The unresolved need for dependable guarantees on security, sovereignty, and trust in data ecosystems. Data & Knowledge Engineering 2024;151:102301 View
- Jayousi S, Barchielli C, Alaimo M, Caputo S, Paffetti M, Zoppi P, Mucchi L. ICT in Nursing and Patient Healthcare Management: Scoping Review and Case Studies. Sensors 2024;24(10):3129 View
- Im E, Kim H, Lee H, Jiang X, Kim J. Exploring the tradeoff between data privacy and utility with a clinical data analysis use case. BMC Medical Informatics and Decision Making 2024;24(1) View
- Schultz K, Hughes M, Akram W, Mongiu A. Artificial intelligence for the colorectal surgeon in 2024 – A narrative review of Prevalence, Policies, and (needed) Protections. Seminars in Colon and Rectal Surgery 2024;35(3):101037 View
- Alsamhi S, Hawbani A, Kumar S, Timilsina M, Al-Qatf M, Haque R, Nashwan F, Zhao L, Curry E. Empowering Dataspace 4.0: Unveiling Promise of Decentralized Data-Sharing. IEEE Access 2024;12:112637 View
Books/Policy Documents
- Troncoso-Pastoriza J, Froelicher D, Hu P, Aloufi A, Hubaux J. Protecting Privacy through Homomorphic Encryption. View
- Graydon C, Teede H, Sullivan C, De Silva K, Enticott J. Big Data Analytics for Healthcare. View
- Young M. Intracranial EEG. View
- Kogut-Czarkowska M. GDPR Requirements for Biobanking Activities Across Europe. View
- Corrales Compagnucci M, Fenwick M, Aboy M, Minssen T. The Law and Ethics of Data Sharing in Health Sciences. View
- Li L, Dai F, He S, Yu H, Liu H. Deep Learning Approaches for Early Diagnosis of Neurodegenerative Diseases. View