Methods to Generate Innovative Research Ideas and Improve Patient and Public Involvement in Modern Epidemiological Research: Review, Patient Viewpoint, and Guidelines for Implementation of a Digital Cohort Study

Journals

1. Schäfer F, Quinquis L, Klein M, Escutnaire J, Chavanel F, Chevallier H, Fagherazzi G. Attitudes and Expectations of Clinical Research Participants Toward Digital Health and Mobile Dietary Assessment Tools: Cross-Sectional Survey Study. Frontiers in Digital Health 2022;4 View
2. Fagherazzi G, Bour C, Ahne A. Emulating a virtual digital cohort study based on social media data as a complementary approach to traditional epidemiology: When, what for, and how?. Diabetes Epidemiology and Management 2022;7:100085 View
3. Jacob C, Bourke S, Heuss S. From Testers to Cocreators—the Value of and Approaches to Successful Patient Engagement in the Development of eHealth Solutions: Qualitative Expert Interview Study. JMIR Human Factors 2022;9(4):e41481 View
4. Goetzinger C, Alleaume C, Schritz A, Vrijens B, Préau M, Fagherazzi G, Huiart L. Analysing breast cancer survivors’ acceptance profiles for using an electronic pillbox connected to a smartphone application using Seintinelles, a French community-based research tool. Frontiers in Pharmacology 2022;13 View
5. Howells A, Aquino E, Bose D, Kelly M, Molony-Oates B, Syed A, Tolley K, Neill C, Hopkins S, Hall V, Islam J. Demonstrating the learning and impact of embedding participant involvement in a pandemic research study: the experience of the SARS-CoV-2 immunity & reinfection evaluation (SIREN) study UK, 2020–2023. Research Involvement and Engagement 2023;9(1) View
6. Alsaqqa H, Alwawi A. Digital intervention for public health: searching for implementing characteristics, concepts and recommendations: scoping review. Frontiers in Public Health 2023;11 View
7. Resell M, Stranden M, Qvigstad G, Chen D, Zhao C. Gaps between needs of patient and public involvement and interests of researchers on pancreatic cancer. Patient Education and Counseling 2024;120:108125 View
8. Zirnsak T, Ng A, Brasier C, Gray R. Public involvement in Australian clinical trials: A systematic review. Clinical Trials 2024;21(4):507 View
9. Janssens N, Van Wilder L, Van Hecke A, Van Hoorenbeeck K, Vanden Wyngaert K, De Smedt D, Goossens E, Clemence M. COCCOS study: Developing a transition program for adolescents with chronic conditions using Experience-Based Co-Design. A study protocol. PLOS ONE 2024;19(4):e0298571 View
10. Foster A, Caunt S, Schofield H, Glerum–Brooks K, Begum S, Gleeson P, Prestwich G, Baird W. Evaluating a grant development public involvement funding scheme: a qualitative document analysis. Research Involvement and Engagement 2024;10(1) View
11. Jensen K, Aagaard P, Suetta C, Nielsen J, Bech R, Schrøder H, Christensen J, Simonsen C, Diederichsen L. High-intensity resistance training improves quality of life, muscle endurance and strength in patients with myositis: a randomised controlled trial. Rheumatology International 2024;44(10):1909 View
12. Fischer A, Aguayo G, Pinker I, Oustric P, Lachaise T, Wilmes P, Larché J, Benoy C, Fagherazzi G. Co-design of a voice-based app to monitor long COVID symptoms with its end-users: A mixed-method study. DIGITAL HEALTH 2024;10 View
13. Poh J, Mullen C, Munot S, Brennan P, Chow C, O’Hagan E. Upskilling consumers for the digital health era: a content analysis of resources for consumer representative training. Health Literacy and Communication Open 2024;2(1) View
14. Jacob C, Müller R, Schüler S, Rey A, Rey G, Armenian B, Vonlaufen A, Drepper M, Zimmerli M. Think-Aloud Testing of a Companion App for Colonoscopy Exams: Usability Study (Preprint). JMIR Human Factors 2024 View