This paper is in the following e-collection/theme issue:

Ethics, Privacy, and Legal Issues (366) Big Data (169) Secondary Use of Clinical Data for Research and Surveillance (253)

Published on in Vol 22 , No 12 (2020) :December

Preprints (earlier versions) of this paper are available at https://preprints.jmir.org/preprint/20783, first published .
Communicating With Patients About Software for Enhancing Privacy in Secondary Database Research Involving Record Linkage: Delphi Study

Communicating With Patients About Software for Enhancing Privacy in Secondary Database Research Involving Record Linkage: Delphi Study

Communicating With Patients About Software for Enhancing Privacy in Secondary Database Research Involving Record Linkage: Delphi Study

Authors of this article:

Cason Schmit 1 Author Orcid Image ;   Kobi V Ajayi 1 Author Orcid Image ;   Alva O Ferdinand 2 Author Orcid Image ;   Theodoros Giannouchos 1, 3 Author Orcid Image ;   Gurudev Ilangovan 1 Author Orcid Image ;   W Benjamin Nowell 4 Author Orcid Image ;   Hye-Chung Kum 1 Author Orcid Image
Article Authors Cited by (4) Tweetations (7) Metrics

Journals

  1. Giannouchos T, Ferdinand A, Ilangovan G, Ragan E, Nowell W, Kum H, Schmit C. Identifying and prioritizing benefits and risks of using privacy-enhancing software through participatory design: a nominal group technique study with patients living with chronic conditions. Journal of the American Medical Informatics Association 2021;28(8):1746 View
  2. Laurijssen S, van der Graaf R, van Dijk W, Schuit E, Groenwold R, Grobbee D, de Vries M. When is it impractical to ask informed consent? A systematic review. Clinical Trials 2022;19(5):545 View
  3. Weng L, Liu M, Lin W, Han S, Yang J, Lin X, Yang J. Design of Cancer Pain Management App Modules: Using a Modified Delphi Process (Preprint). JMIR Formative Research 2021 View
  4. Cumyn A, Ménard J, Barton A, Dault R, Lévesque F, Ethier J. Patients and Members of the Public’s Wishes Regarding Transparency in the Context of Secondary Use of Health Data: A Scoping Review (Preprint). Journal of Medical Internet Research 2022 View