This paper is in the following e-collection/theme issue:

Recruitment of Research Participants (300) Innovations in Clinical Trials and Research Data Management (83) Medicine 2.0: Social Media, Open, Participatory, Collaborative Medicine (1660) Digital Health Reviews (1318)

Published on in Vol 22, No 10 (2020): October

Preprints (earlier versions) of this paper are available at https://preprints.jmir.org/preprint/22810, first published .
The Role of Social Media in Enhancing Clinical Trial Recruitment: Scoping Review

The Role of Social Media in Enhancing Clinical Trial Recruitment: Scoping Review

The Role of Social Media in Enhancing Clinical Trial Recruitment: Scoping Review

Authors of this article:

Ida Darmawan1 Author Orcid Image ;   Caitlin Bakker2 Author Orcid Image ;   Tabetha A Brockman3, 4 Author Orcid Image ;   Christi A Patten3, 4 Author Orcid Image ;   Milton Eder5, 6 Author Orcid Image
Article Authors Cited by (86) Tweetations (20) Metrics

Journals

  1. Spahrkäs S, Looijmans A, Sanderman R, Hagedoorn M. Recruiting participants for an international mHealth study via Facebook Ads: Experiences from the Untire App RCT. Internet Interventions 2021;23:100362 View
  2. Mirza M, Siebert S, Pratt A, Insch E, McIntosh F, Paton J, Wright C, Buckley C, Isaacs J, McInnes I, Raza K, Falahee M. Impact of the COVID‐19 pandemic on recruitment to clinical research studies in rheumatology. Musculoskeletal Care 2022;20(1):209 View
  3. Patten C, Balls-Berry J, Cohen E, Brockman T, Valdez Soto M, West I, Cha J, Zavala Rocha M, Eder M. Feasibility of a virtual Facebook community platform for engagement on health research. Journal of Clinical and Translational Science 2021;5(1) View
  4. Ash G, Griggs S, Nally L, Stults-Kolehmainen M, Jeon S, Brandt C, Gulanski B, Spanakis E, Baker J, Whittemore R, Weinzimer S, Fucito L. Evaluation of Web-Based and In-Person Methods to Recruit Adults With Type 1 Diabetes for a Mobile Exercise Intervention: Prospective Observational Study. JMIR Diabetes 2021;6(3):e28309 View
  5. Saini G, Gogineni K, Kittles R, Aneja R. Undercutting efforts of precision medicine: roadblocks to minority representation in breast cancer clinical trials. Breast Cancer Research and Treatment 2021;187(3):605 View
  6. Cook S, Jerome R, Dunagan J, Kennedy N, Edwards T, Minnix J, Witmer L, Ferguson J, Cinciripini P, Wilkins C, Harris P. Engaging smokers in research: Utility of Facebook in facilitating recruitment to a smoking cessation study. Contemporary Clinical Trials 2021;107:106461 View
  7. Heckman C, Riley M, Khavjou O, Ohman-Strickland P, Manne S, Yaroch A, Bhurosy T, Coups E, Glanz K. Cost, reach, and representativeness of recruitment efforts for an online skin cancer risk reduction intervention trial for young adults. Translational Behavioral Medicine 2021;11(10):1875 View
  8. Wisk L, Buhr R. Rapid deployment of a community engagement study and educational trial via social media: implementation of the UC-COVID study. Trials 2021;22(1) View
  9. Reuter K, Liu C, Le N, Angyan P, Finley J. General Practice and Digital Methods to Recruit Stroke Survivors to a Clinical Mobility Study: Comparative Analysis. Journal of Medical Internet Research 2021;23(10):e28923 View
  10. Doley J, Rodgers R, Paxton S, McLean S. Effectiveness of recruitment strategies for a social media literacy E-intervention for young adults with body dissatisfaction: cost, time, diversity, and completion. Eating Disorders 2022;30(5):515 View
  11. Al Abbasi O, Al Taisan A, Alqahtani B, Alburayk K, Alenezi S, Al Owaifeer A. The Use of Social Media among Saudi Ophthalmologists. Middle East African Journal of Ophthalmology 2021;28(3):159 View
  12. Deckler E, Ferland M, Brazis S, Mayer M, Carlson M, Kantrowitz J. Challenges and Strategies for the Recruitment of Patients With Schizophrenia in a Research Setting. International Journal of Neuropsychopharmacology 2022;25(11):924 View
  13. Zanudin A, Mercer T, Samaan C, Jagadamma K, McKelvie G, van der Linden M. A community-based exercise program for ambulant adolescents with cerebral palsy, a feasibility study. European Journal of Adapted Physical Activity 2021;14(2):12 View
  14. Spada F, Harrison I, Barnes T, Greive K, Daniels D, Townley J, Mostafa N, Fong A, Tong P, Shumack S. Recruitment of adults with moderate eczema for a randomised trial: Comparison of traditional versus modern methods. Australasian Journal of Dermatology 2021;62(4) View
  15. Darko E, Kleib M, Olson J. Social Media Use for Research Participant Recruitment: Integrative Literature Review. Journal of Medical Internet Research 2022;24(8):e38015 View
  16. Williams T, Alexander S, Blackstone J, De Angelis F, John N, Doshi A, Beveridge J, Braisher M, Gray E, Chataway J. Optimising recruitment in clinical trials for progressive multiple sclerosis: observational analysis from the MS-SMART and MS-STAT2 randomised controlled trials. Trials 2022;23(1) View
  17. Tsaltskan V, Nguyen K, Eaglin C, Holers V, Deane K, Firestein G. Comparison of Web‐Based Advertising and a Social Media Platform as Recruitment Tools for Underserved and Hard‐to‐Reach Populations in Rheumatology Clinical Research. ACR Open Rheumatology 2022;4(7):623 View
  18. Knowlson C, Tharmanathan P, Arundel C, James S, Flett L, Gascoyne S, Welch C, Warwick D, Dias J. Can learnings from the COVID-19 pandemic improve trial conduct post-pandemic? A case study of strategies used by the DISC trial. Research Methods in Medicine & Health Sciences 2023;4(2):50 View
  19. Gangl C, Krychtiuk K. Digital health—high tech or high touch?. Wiener Medizinische Wochenschrift 2023;173(5-6):115 View
  20. Higgins K, Thomas A, Soto N, Paulus R, George T, Julian T, Hartson Stine S, Markham M, Werner-Wasik M. Creating and Implementing a Principal Investigator Tool Kit for Enhancing Accrual to Late Phase Clinical Trials: Development and Usability Study. JMIR Cancer 2022;8(3):e38514 View
  21. Wentzell K, Walker H, Hughes A, Vessey J. Engaging Social Media Influencers to Recruit Hard-to-Reach Populations. Nursing Research 2021;70(6):455 View
  22. Mühlhoff R, Willem T. Social media advertising for clinical studies: Ethical and data protection implications of online targeting. Big Data & Society 2023;10(1) View
  23. Hrincu V, An Z, Joseph K, Jiang Y, Robillard J, Rosen A. Dementia Research on Facebook and Twitter: Current Practice and Challenges. Journal of Alzheimer's Disease 2022;90(2):447 View
  24. McInnis S, Sobolewski J, Dass M, Gehtland L, Bailey D. Using Facebook, Instagram, and Pinterest advertising campaigns to increase enrollment in newborn screening research. Frontiers in Communication 2022;7 View
  25. Koss J, Rheinlaender A, Truebel H, Bohnet-Joschko S. Social media mining in drug development—Fundamentals and use cases. Drug Discovery Today 2021;26(12):2871 View
  26. Engelmann P, Löwe B, Hüsing P. From the identification of biopsychosocial risk factors to an increase in pain-related self-efficacy (IDRIS) – The online-based conveyance of an explanatory model for chronic back pain: Study protocol of a cohort multiple randomized controlled trial. Internet Interventions 2022;30:100582 View
  27. McGorm K, Brown J, Thomson R, Oakey H, Moore B, Hendry A, Colman P, Craig M, Davis E, Harris M, Harrison L, Haynes A, Soldatos G, Vuillermin P, Wentworth J, Couper J, Penno M. A Long-Term Evaluation of Facebook for Recruitment and Retention in the ENDIA Type 1 Diabetes Pregnancy-Birth Cohort Study. Journal of Diabetes Science and Technology 2023;17(3):696 View
  28. Lander J, Heiberger A, Von Sommoggy J, Schulz A, Dresch C, Altawil H, Schmitt G, Wirtz M. Intentional and actional components of engaged participation in public health research studies: qualitative synthesis of a recruitment and retention process into the theory-informed INTACT-RS framework. BMC Medical Research Methodology 2023;23(1) View
  29. Pendolino A, Navaratnam A, Nijim J, Kelly C, Randhawa P, Andrews P. The Role of Social Media in Improving Patient Recruitment for Research Studies on Persistent Post-Infectious Olfactory Dysfunction. Medicina 2022;58(3):348 View
  30. Wang E, Keller H, Mourtzakis M, Rodrigues I, Steinke A, Ashe M, Thabane L, Brien S, Funnell L, Cheung A, Milligan J, Papaioannou A, Weston Z, Straus S, Giangregorio L. MoveStrong at home: a feasibility study of a model for remote delivery of functional strength and balance training combined with nutrition education for older pre-frail and frail adults. Applied Physiology, Nutrition, and Metabolism 2022;47(12):1172 View
  31. Luo T, Li M, Williams D, Fritz J, Beiter K, Phillippi S, Yu Q, Kantrow S, Chen L, Chen Y, Tseng T. A WeChat-based smoking cessation intervention for Chinese smokers: a feasibility study. Translational Behavioral Medicine 2022;12(10):1018 View
  32. Bieganek C, Aliferis C, Ma S, V E S. Prediction of clinical trial enrollment rates. PLOS ONE 2022;17(2):e0263193 View
  33. Reuter K, Angyan P, Le N, Buchanan T. Using Patient-Generated Health Data From Twitter to Identify, Engage, and Recruit Cancer Survivors in Clinical Trials in Los Angeles County: Evaluation of a Feasibility Study. JMIR Formative Research 2021;5(11):e29958 View
  34. Jiang S, Hong Y. Clinical trial participation in America: The roles of eHealth engagement and patient–provider communication. DIGITAL HEALTH 2021;7 View
  35. Al-Lawati E, Abdul Kohar U, Shahrin Suleiman E. Entrepreneurial culture in educational institutions: A scoping review. Cogent Business & Management 2022;9(1) View
  36. Wang D, Balapal N, Ankem A, Shyamsundar S, Balaji A, Kannikal J, Bruno M, He S, Chong P. Primary Perspectives in Meme Utilization as a Digital Driver for Medical Community Engagement and Education Mobilization: Pre-Post Study. JMIR Human Factors 2023;10:e40244 View
  37. Jalkanen K, Järvenpää R, Tilles-Tirkkonen T, Martikainen J, Aarnio E, Männikkö R, Rantala E, Karhunen L, Kolehmainen M, Harjumaa M, Poutanen K, Ermes M, Absetz P, Schwab U, Lakka T, Pihlajamäki J, Lindström J. Comparison of Communication Channels for Large-Scale Type 2 Diabetes Risk Screening and Intervention Recruitment: Empirical Study. JMIR Diabetes 2021;6(3):e21356 View
  38. Goldman N, Willem T, Buyx A, Zimmermann B. Practical Benefits, Challenges, and Recommendations on Social Media Recruitment: Multi-Stakeholder Interview Study. Journal of Medical Internet Research 2023;25:e44587 View
  39. Lang S, Day K, Gallaher E, Jebeile H, Collins C, Baur L, Truby H. Participant recruitment for paediatric research using social media: A practical ‘how‐to’ guide for researchers. Nutrition & Dietetics 2023;80(4):338 View
  40. Mackereth P, Stringer J. Receiving acupuncture for chemotherapy-induced peripheral neuropathy: A nested qualitative study. European Journal of Integrative Medicine 2023;60:102258 View
  41. Buckler E, González O, Ball G, Hamilton J, Ho J, Morrison K, Mâsse L. Recruiting families using social media versus pediatric obesity clinics: A secondary analysis of the Aim2Be RCT. Contemporary Clinical Trials 2023;133:107322 View
  42. Okpara C, Ioannidis G, Thabane L, Adachi J, Rabinovich A, Hewston P, Lee J, McArthur C, Kennedy C, Woo T, Boulos P, Bobba R, Wang M, Thrall S, Mangin D, Marr S, Armstrong D, Patterson C, Bray S, de Wit K, Maharaj S, Misiaszek B, Sookhoo J, Thompson K, Papaioannou A. The Geras virtual frailty rehabilitation program to build resilience in older adults with frailty during COVID-19: a randomized feasibility trial. Pilot and Feasibility Studies 2023;9(1) View
  43. Duus Holm Z, Zibert J, Thomsen S, Isberg A, Andersen A, Ali Z. Rapid Web-Based Recruitment of Patients With Psoriasis: Multinational Cohort Study. JMIR Dermatology 2023;6:e44405 View
  44. Meksawasdichai S, Lerksuthirat T, Ongphiphadhanakul B, Sriphrapradang C. Perspectives and Experiences of Patients With Thyroid Cancer at a Global Level: Retrospective Descriptive Study of Twitter Data. JMIR Cancer 2023;9:e48786 View
  45. McAree M, Sharashidze V. Social Media in Stroke Career Development. Stroke 2023;54(6) View
  46. Wong K, Lau W, Man K, Bilbow A, Ip P, Wei L. Effectiveness of Facebook Groups and Pages on Participant Recruitment Into a Randomized Controlled Trial During the COVID-19 Pandemic: Descriptive Study. Journal of Medical Internet Research 2023;25:e46190 View
  47. Muldowney L, Hynes S, Oglesby M, Dwyer C. A qualitative exploration of advantages and disadvantages to using technology in the process of randomised controlled trial recruitment. HRB Open Research 2023;6:56 View
  48. Shorey S, Tam T, Thilagamangai , Mathews J, Lim S, Shi L, Chua J, Chan Y, Law E, Chee C, Chong Y. ‘Been there, experienced that’: A qualitative study on the experiences and perceptions of online peer volunteers in supporting Singaporean mothers at risk of depression. Journal of Advanced Nursing 2024;80(3):1072 View
  49. Sanusi I, Arisoyin A, Aruoture S, Folorunsho I, Okereke O, Adeyemo D, Salawu M, Okobi O, Gupta A, Akunne H, Patel R, Emmanuel O, Ezeudemba N. Exploring the Prevalence and Factors Influencing Clinical Trial Awareness in US Adults with Self-Reported Depression and Anxiety. Cureus 2023 View
  50. Auwal F, Copeland C, Clark E, Naraynassamy C, McClelland G. A systematic review of models of patient engagement in the development and life cycle management of medicines. Drug Discovery Today 2023;28(9):103702 View
  51. Matthews S, Just J, Jennings G, Bray J, Lewis J, Buttery A. Can a Targeted Social Media Campaign Increase Reach of, and Engagement With, Heart Failure Self-Management Resources in Culturally and Linguistically Diverse Communities in Victoria, Australia? An Evaluation Including Cost. Heart, Lung and Circulation 2023;32(9):1089 View
  52. Tsaltskan V, Sanchez Baez R, Firestein G. Cost-effectiveness of social media advertising as a recruitment tool: A systematic review and meta-analysis. Journal of Clinical and Translational Science 2023;7(1) View
  53. Boxall C, Renz S, Eminton Z, Nuttall J, Saji A, Cluff C, Wilcox C, Muller I, Layton A, Soulsby I, Santer M. Factors that influence women’s enrolment and ongoing participation in a partially decentralised randomised controlled dermatology trial: a qualitative interview study with participants in the SAFA (Spironolactone for Adult Female Acne) trial. Trials 2023;24(1) View
  54. Lepage S, Conway A, Goodson N, Wicks P, Flight L, Devane D, Wong C. Online randomised trials with children: A scoping review. PLOS ONE 2023;18(5):e0280965 View
  55. Ejem D, Wechsler S, Gallups S, Khalidi S, Coffee-Dunning J, Montgomery A, Stevens C, Keene K, Rocque G, Chamberlin M, Hegel M, Azuero A, Pisu M, Ellis D, Ingram S, Lawhon V, Gilbert T, Morrissette K, Morency J, Thorp K, Codini M, Newman R, Echols J, Cloyd D, dos Anjos S, Muse C, Goedeken S, Laws K, Herbert J, Bakitas M, Lyons K. Enhancing Efficiency and Reach Using Facebook to Recruit Breast Cancer Survivors for a Telephone-Based Supportive Care Randomized Trial During the COVID-19 Pandemic. JCO Oncology Practice 2023;19(11):1020 View
  56. Keedle H, Dahlen H. Incorporating co‐design principles and social media strategies to enhance cross‐sectional online survey participation: The Birth Experience Study. Journal of Nursing Scholarship 2024;56(2):341 View
  57. Vos S, Adatorwovor R, Roberts M, Sherman D, Bonds D, Dunfee M, Spring B, Schoenberg N. Community engagement through social media: A promising low‐cost strategy for rural recruitment?. The Journal of Rural Health 2024;40(3):467 View
  58. Jones K, Wilson-Keates B, Melrose S. Using social media to recruit research participants: a literature review. Nurse Researcher 2024;32(1):28 View
  59. Hao J, Yao Z, Remis A, Huang B, Li Y, Yu X. Pelvic floor muscle training in telerehabilitation: a systematic review and meta-analysis. Archives of Gynecology and Obstetrics 2024;309(5):1753 View
  60. Kasahara A, Mitchell J, Yang J, Cuomo R, McMann T, Mackey T. Digital technologies used in clinical trial recruitment and enrollment including application to trial diversity and inclusion: A systematic review. DIGITAL HEALTH 2024;10 View
  61. Clohessy S, Arvanitis T, Rashid U, Craddock C, Evans M, Toro C, Elliott M. Using digital tools in clinical, health and social care research: a mixed-methods study of UK stakeholders. BMJ Open 2024;14(4):e076613 View
  62. Heckman C, Mitarotondo A, Lin Y, Khavjou O, Riley M, Manne S, Yaroch A, Niu Z, Glanz K. Digital Interventions to Modify Skin Cancer Risk Behaviors in a National Sample of Young Adults: Randomized Controlled Trial. Journal of Medical Internet Research 2024;26:e55831 View
  63. Johnson L, Stevens G, Cantrell M, Little N, Holahan T, Saunders C, Thomeer R, Sheppard R, Elwyn G, Durand M. Engaging Long-Term Care Workers in Research: Recruitment Approaches and Participant Characteristics From a Randomized Controlled Trial to Improve COVID-19 Vaccine Confidence. Journal of the American Medical Directors Association 2024;25(6):104978 View
  64. Benedict C, Ford J, Schapira L, Davis A, Simon P, Spiegel D, Diefenbach M. Preliminary testing of “roadmap to parenthood” decision aid and planning tool for family building after cancer: Results of a single‐arm pilot study. Psycho-Oncology 2024;33(4) View
  65. Daniels A, Law J, Green Snyder L, Diehl K, Goin-Kochel R, Feliciano P, Chung W. Effectiveness of multimodal participant recruitment in SPARK, a large, online longitudinal research study of autism. Journal of Clinical and Translational Science 2024;8(1) View
  66. Grudziąż-Sękowska J, Sękowski K, Pinkas J, Jankowski M. Preferred sources of information on diabetes prevention programmes: a population-based cross-sectional study in Poland. BMJ Open 2024;14(5):e083362 View
  67. Willem T, Zimmermann B, Matthes N, Rost M, Buyx A. Acceptance of Social Media Recruitment for Clinical Studies Among Patients With Hepatitis B: Mixed Methods Study. Journal of Medical Internet Research 2024;26:e54034 View
  68. Muldowney L, Hynes S, Oglesby M, Dwyer C. A qualitative exploration of advantages and disadvantages to using technology in the process of randomised controlled trial recruitment. HRB Open Research 2024;6:56 View
  69. de Graaf B, Gerritse M, Michiels K, Kluivers K, van de Belt T. Social media recruitment of participants in a female stress urinary incontinence trial: A feasibility study. European Journal of Obstetrics & Gynecology and Reproductive Biology 2024;299:253 View
  70. Teano A, Scott A, Gipson C, Albert M, Pettigrew C. Social Media Programs for Outreach and Recruitment Supporting Aging and Alzheimer Disease and Related Dementias Research: Longitudinal Descriptive Study. JMIR Aging 2024;7:e51520 View
  71. Hung M, Mohajeri A, Almpani K, Carberry G, Wisniewski J, Janes K, Janes B, Hardy C, Zakeri G, Raymond B, Trinh H, Bretner J, Cheever V, Garibyan R, Bachstein P, Licari F. Successes and Challenges in Clinical Trial Recruitment: The Experience of a New Study Team. Medical Sciences 2024;12(3):39 View
  72. Portz J, Moore S, Bull S. Evolutionary Trends in the Adoption, Adaptation, and Abandonment of Mobile Health Technologies: Viewpoint Based on 25 Years of Research. Journal of Medical Internet Research 2024;26:e62790 View
  73. Reza N, Fiuzat M, Konstam M. Measures to Improve Trial Enrollment. JACC: Heart Failure 2024;12(11):1942 View
  74. Kaufman R, Agrawal L, Teplinsky E, Kiel L, Abioye O, Florez N. From diagnosis to survivorship addressing the sexuality of women during cancer. The Oncologist 2024 View
  75. Belfiglio A, Page S, Pettersson S, van Rijn M, Vellone E, Westland H, Freedland K, Lee C, Strömberg A, Wiebe D, Aryal S, Riegel B, Jaarsma T, Shevchenko Y. Lessons learned from the MOMENT study on how to recruit and retain a target population online, across borders, and with automated remote data collection. PLOS ONE 2024;19(9):e0307440 View
  76. Miller H, Askew S, Berger M, Trefney E, Blackman Carr L, Kay M, Barnes C, Yang Q, Tyson C, Svetkey L, Shaw R, Steinberg D, Bennett G. Sociodemographic predictors of successful screening and subsequent randomization in a digital health hypertension intervention. DIGITAL HEALTH 2024;10 View
  77. Fortney J, Ratzliff A, Blanchard B, Ferro L, Rouvere J, Chase E, Duncan M, Merrill J, Simpson T, Williams E, Austin E, Curran G, Schoenbaum M, Heagerty P, Saxon A. Collaborating to heal addiction and mental health in primary care (CHAMP): A protocol for a hybrid type 2a trial. Contemporary Clinical Trials 2024;146:107700 View
  78. Wright A, Willett Y, Ferron E, Kumarasamy V, Lem S, Ahmed O. Using Social Media to Recruit Participants in Health Care Research: Case Study. Journal of Medical Internet Research 2024;26:e51751 View
  79. Tandon M, Mener A, Rosenbaum A. The Influence of Social Media in Orthopaedics. JBJS Journal of Orthopaedics for Physician Assistants 2024;12(4):e24.00018 View
  80. Raeside R, Todd A, Barakat S, Rom S, Boulet S, Maguire S, Williams K, Mihrshahi S, Hackett M, Redfern J, Partridge S. Recruitment of adolescents to virtual clinical trials: experiences from the Health4Me clinical trial (Preprint). JMIR Pediatrics and Parenting 2024 View
  81. Zheng W, Shvetcov A, Slade A, Jenkins Z, Hoon L, Whitton A, Logothetis R, Ravindra S, Kurniawan S, Gupta S, Huckvale K, Stech E, Agarwal A, Kupper J, Cameron S, Rosenberg J, Manoglou N, Senadeera M, Venkatesh S, Mouzakis K, Vasa R, Christensen H, Newby J. Recruiting young people for digital mental health trials: lessons learned (Preprint). Journal of Medical Internet Research 2024 View
  82. Mizrach H, Markwart M, Rosen R, Park E, Finkelstein-Fox L, Recklitis C, Perez G. Reddit for research recruitment? Social media as a novel clinical trial recruitment tool for adolescent and young adult (AYA) cancer survivors. Journal of Cancer Survivorship 2024 View
  83. Ruan J, Su Q, Chen Z, Huang J, Li Y. CPRS: a clinical protocol recommendation system based on LLMs. International Journal of Medical Informatics 2025;195:105746 View

Books/Policy Documents

  1. Martin A, Snyder R. Pancreatic Cancer: Basic Mechanisms and Therapies. View
  2. Vippa T, Kuenze C. Translational Sports Medicine. View