This paper is in the following e-collection/theme issue:

Ethics, Privacy, and Legal Issues (617) Viewpoints and Perspectives (619)

Published on in Vol 21, No 1 (2019): January

Protecting User Privacy and Rights in Academic Data-Sharing Partnerships: Principles From a Pilot Program at Crisis Text Line

Protecting User Privacy and Rights in Academic Data-Sharing Partnerships: Principles From a Pilot Program at Crisis Text Line

Protecting User Privacy and Rights in Academic Data-Sharing Partnerships: Principles From a Pilot Program at Crisis Text Line

Authors of this article:

Anthony R Pisani1, 2 Author Orcid Image ;   Nitya Kanuri3, 4 Author Orcid Image ;   Bob Filbin5 Author Orcid Image ;   Carlos Gallo6 Author Orcid Image ;   Madelyn Gould7, 8 Author Orcid Image ;   Lisa Soleymani Lehmann9, 10 Author Orcid Image ;   Robert Levine11, 12 Author Orcid Image ;   John E Marcotte13, 14 Author Orcid Image ;   Brian Pascal15 Author Orcid Image ;   David Rousseau16 Author Orcid Image ;   Shairi Turner5 Author Orcid Image ;   Shirley Yen17 Author Orcid Image ;   Megan L Ranney18 Author Orcid Image
Article Authors Cited by (16) Tweetations (28) Metrics

Journals

  1. Petersen C, Subbian V. Special Section on Ethics in Health Informatics. Yearbook of Medical Informatics 2020;29(01):077 View
  2. Kaewkungwal J, Adams P, Sattabongkot J, Lie R, Wendler D. Issues and Challenges Associated with Data-Sharing in LMICs: Perspectives of Researchers in Thailand. The American Journal of Tropical Medicine and Hygiene 2020;103(1):528 View
  3. Hoffberg A, Stearns-Yoder K, Brenner L. The Effectiveness of Crisis Line Services: A Systematic Review. Frontiers in Public Health 2020;7 View
  4. Szlyk H, Roth K, García-Perdomo V. Engagement With Crisis Text Line Among Subgroups of Users Who Reported Suicidality. Psychiatric Services 2020;71(4):319 View
  5. Hajduk G, Jamieson N, Baker B, Olesen O, Lang T. It is not enough that we require data to be shared; we have to make sharing easy, feasible and accessible too!. BMJ Global Health 2019;4(4):e001550 View
  6. Pisani A, Gould M, Gallo C, Ertefaie A, Kelberman C, Harrington D, Weller D, Green S. Individuals who text crisis text line: Key characteristics and opportunities for suicide prevention. Suicide and Life-Threatening Behavior 2022;52(3):567 View
  7. Sugg M, Runkle J, Hajnos S, Green S, Michael K. Understanding the concurrent risk of mental health and dangerous wildfire events in the COVID-19 pandemic. Science of The Total Environment 2022;806:150391 View
  8. Munro-Kramer M, Moylan C, Carlson M, Campbell R, Fedewa T. Core Skills for Digital Crisis Intervention: Lessons from a University-Based Online Sexual Assault Hotline. Journal of Technology in Human Services 2023;41(1):1 View
  9. Zabelski S, Kaniuka A, A. Robertson R, Cramer R. Crisis Lines: Current Status and Recommendations for Research and Policy. Psychiatric Services 2023;74(5):505 View
  10. Pisani A, Gallo C, Gould M, Kanuri N, Marcotte J, Pascal B, Rousseau D, Ranney M, Filbin B, Turner S. Authors' Reply: Commentary on “Protecting User Privacy and Rights in Academic Data-Sharing Partnerships: Principles From a Pilot Program at Crisis Text Line”. Journal of Medical Internet Research 2025;27:e59734 View
  11. . Correction: Protecting User Privacy and Rights in Academic Data-Sharing Partnerships: Principles From a Pilot Program at Crisis Text Line. Journal of Medical Internet Research 2024;26:e67880 View
  12. Reierson T. Commentary on “Protecting User Privacy and Rights in Academic Data-Sharing Partnerships: Principles From a Pilot Program at Crisis Text Line”. Journal of Medical Internet Research 2024;26:e42144 View
  13. Eysenbach G. Crisis Text Line and Loris.ai Controversy Highlights the Complexity of Informed Consent on the Internet and Data-Sharing Ethics for Machine Learning and Research. Journal of Medical Internet Research 2025;27:e67878 View
  14. Trujillo D. Response From Crisis Text Line to “Commentary on ‘Protecting User Privacy and Rights in Academic Data-Sharing Partnerships: Principles From a Pilot Program at Crisis Text Line’”. Journal of Medical Internet Research 2025;27:e64015 View
  15. Mazzer K, Curll S, Barzinjy H, Goecke R, Larsen M, Batterham P, Titov N, Rickwood D. Changes in Mental State for Help-Seekers of Lifeline Australia’s Online Chat Service: Lexical Analysis Approach. JMIR Formative Research 2025;9:e63257 View

Conference Proceedings

  1. Larsen M, Torok M, Huckvale K, Reda B, Berrouiguet S, Christensen H. 2019 41st Annual International Conference of the IEEE Engineering in Medicine and Biology Society (EMBC). Geospatial suicide clusters and emergency responses: An analysis of text messages to a crisis service View