This paper is in the following e-collection/theme issue:

Peer-to-Peer Support and Online Communities (735) Participatory Medicine & E-Patients (838) Emotional, Social, Psychological Support for Cancer (222)

Published on in Vol 20, No 6 (2018): June

Preprints (earlier versions) of this paper are available at https://preprints.jmir.org/preprint/9709, first published .
Sharing and Empathy in Digital Spaces: Qualitative Study of Online Health Forums for Breast Cancer and Motor Neuron Disease (Amyotrophic Lateral Sclerosis)

Sharing and Empathy in Digital Spaces: Qualitative Study of Online Health Forums for Breast Cancer and Motor Neuron Disease (Amyotrophic Lateral Sclerosis)

Sharing and Empathy in Digital Spaces: Qualitative Study of Online Health Forums for Breast Cancer and Motor Neuron Disease (Amyotrophic Lateral Sclerosis)

Authors of this article:

Sarah Hargreaves1 Author Orcid Image ;   Peter A Bath1 Author Orcid Image ;   Suzanne Duffin1 Author Orcid Image ;   Julie Ellis2 Author Orcid Image
Article Authors Cited by (44) Tweetations (38) Metrics

Journals

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  17. Gerritzen E, Lee A, McDermott O, Coulson N, Orrell M. Online Peer Support for People With Parkinson Disease: Narrative Synthesis Systematic Review. JMIR Aging 2022;5(3):e35425 View
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  20. Jin Y, Wu Y, Li J. Midwife empathy and its association with the childbirth experience: a cross-sectional study. BMC Pregnancy and Childbirth 2022;22(1) View
  21. Montali L, Zulato E, Frigerio A, Frangi E, Camussi E. Mirroring, monitoring, modelling, belonging, and distancing: Psychosocial processes in an online support group of breast cancer patients. Journal of Community Psychology 2022;50(2):992 View
  22. Simpson N, Kydd A, Phiri M, Mbewe M, Sigande L, Gachie T, Ngobeni M, Monese T, Figerova Z, Schlesinger H, Bond V, Belemu S, Simwinga M, Schaap A, Biriotti M, Fidler S, Ayles H. Insaka: mobile phone support groups for adolescent pregnant women living with HIV. BMC Pregnancy and Childbirth 2021;21(1) View
  23. Sanger S, Duffin S, Gough R, Bath P. Use of Online Health Forums by People Living With Breast Cancer During the COVID-19 Pandemic: Thematic Analysis. JMIR Cancer 2023;9:e42783 View
  24. Rushforth A, Ladds E, Wieringa S, Taylor S, Husain L, Greenhalgh T. Long Covid – The illness narratives. Social Science & Medicine 2021;286:114326 View
  25. Płaciszewski K, Wierzba W, Ostrowski J, Pinkas J, Jankowski M. Use of the Internet for Health Purposes—A National Web-Based Cross-Sectional Survey among Adults in Poland. International Journal of Environmental Research and Public Health 2022;19(23):16315 View
  26. Philippe T, Sikder N, Jackson A, Koblanski M, Liow E, Pilarinos A, Vasarhelyi K. Digital Health Interventions for Delivery of Mental Health Care: Systematic and Comprehensive Meta-Review. JMIR Mental Health 2022;9(5):e35159 View
  27. Hanghøj S, Bentsen L, Hjerming M, Simonsen A, Thycosen M, Bergmann M, Godiksen D, Pappot H. Experiences of Peer Communities in a Cancer Smartphone App Among Adolescents and Young Adults With Cancer. Seminars in Oncology Nursing 2023;39(4):151408 View
  28. Xiang M, Guan T, Lin M, Xie Y, Luo X, Han M, Lv K. Configuration Path Study of Influencing Factors on Health Information-Sharing Behavior among Users of Online Health Communities: Based on SEM and fsQCA Methods. Healthcare 2023;11(12):1789 View
  29. Figueras C, De Cock B. Patrones de empatía en dos foros virtuales: el caso de la diabetes y los trastornos de la conducta alimentaria. Círculo de Lingüística Aplicada a la Comunicación 2023;95:233 View
  30. Colditz C, Keinki C, Huebner J. Self-help management of patients undergoing chemotherapy: analysis of the online forum of the women’s self-help association against cancer. Breast Cancer 2023;30(6):926 View
  31. Xu S, Lin Y, Wu A. Online compassion on the border: The case of Chinese undergraduates on social media in the first weave of COVID-19 pandemic. Culture & Psychology 2025;31(1):299 View
  32. Gerritzen E, Lee A, McDermott O, Coulson N, Orrell M. Online peer support for people with Amyotrophic Lateral Sclerosis (ALS): a narrative synthesis systematic review. Frontiers in Digital Health 2024;6 View
  33. Davidson C, Booth R, Jackson K, Mantler T. Toxic Relationships Described by People With Breast Cancer on Reddit: Topic Modeling Study. JMIR Cancer 2024;10:e48860 View
  34. Zhao Y, Zhang L. Getting better? Examining the effects of social support in OHCs on users’ emotional improvement. Information Processing & Management 2024;61(4):103754 View
  35. Szawłoga T, Soroka K, Śliwińska M. Cyberchondria in students: an eHealth related problem. A review. Medical Science Pulse 2024;18(SUPPLEMENT 3) View
  36. Zhang Z, Lu M. When engagement meets departure: how social capital, social engagement and social support impact churn within online health communities. Aslib Journal of Information Management 2025 View
  37. Li M, Gu D, Li R, Gu Y, Liu H, Su K, Wang X, Zhang G. The Impact of Linguistic Signals on Cognitive Change in Support Seekers in Online Mental Health Communities: Text Analysis and Empirical Study. Journal of Medical Internet Research 2025;27:e60292 View
  38. Gaulan Y, Marmorstein M, Kampf Z. Reframing shame: Confrontational support discourse in online forums. Discourse & Communication 2025 View
  39. Hruška J, Bachmann P, Odei S. Enhancing ALS disease management: exploring integrated user value through online communities evidence. Frontiers in Neurology 2025;15 View
  40. Oh J, Chu H. Self-care mobile application for people with Amyotrophic Lateral Sclerosis: a development and usability test. Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration 2025:1 View
  41. Rueger J, Dolfsma W, Aalbers R. Overcoming Health Fears: How do online peers help patients with chronic pain?. Social Science & Medicine 2025;382:118297 View
  42. Duffin S, Bath P, Sbaffi L. The role of online groups for autistic people in users’ autism information journeys. Journal of Documentation 2025 View

Conference Proceedings

  1. Bishop J, Goode M, Julian L. 2023 Tenth International Conference on Social Networks Analysis, Management and Security (SNAMS). Understanding Social Networks and Behaviour Using Ecological Cognition: Parametric User Modelling for Online Health Communities View
  2. Syed S, Iftikhar Z, Xiao A, Huang J. Proceedings of the CHI Conference on Human Factors in Computing Systems. Machine and Human Understanding of Empathy in Online Peer Support: A Cognitive Behavioral Approach View