Ethics and Privacy Implications of Using the Internet and Social Media to Recruit Participants for Health Research: A Privacy-by-Design Framework for Online Recruitment

Ethics and Privacy Implications of Using the Internet and Social Media to Recruit Participants for Health Research: A Privacy-by-Design Framework for Online Recruitment

Ethics and Privacy Implications of Using the Internet and Social Media to Recruit Participants for Health Research: A Privacy-by-Design Framework for Online Recruitment

Jacqueline Lorene Bender   1, 2 , PhD ;   Alaina B Cyr   3 , BSc ;   Luk Arbuckle   4 , BSc ;   Lorraine E Ferris   2 , LLM, PhD

1 Electronic Living Laboratory for Interdisciplinary Cancer Survivorship Research (ELLICSR) Health, Wellness, and Cancer Survivorship Centre, Department of Supportive Care, Princess Margaret Cancer Centre, University Health Network, Toronto, ON, Canada

2 Dalla Lana School of Public Health, University of Toronto, Toronto, ON, Canada

3 Cancer Education, Princess Margaret Cancer Centre, University Health Network, Toronto, ON, Canada

4 Electronic Health Information Lab, Children's Hospital of Eastern Ontario (CHEO) Research Institute, Ottawa, ON, Canada

Corresponding Author:

  • Jacqueline Lorene Bender, PhD
  • Electronic Living Laboratory for Interdisciplinary Cancer Survivorship Research (ELLICSR) Health, Wellness, and Cancer Survivorship Centre
  • Department of Supportive Care
  • Princess Margaret Cancer Centre, University Health Network
  • B PMB 130 Toronto General Hospital
  • 585 University Ave
  • Toronto, ON, M5G 2C4
  • Canada
  • Phone: 1 416-581-8606
  • Email: jackie.bender@uhnresearch.ca