Published on in Vol 19, No 4 (2017): April

This is a member publication of Centre for Global eHealth Innovation, Toronto, ON, Canada

Ethics and Privacy Implications of Using the Internet and Social Media to Recruit Participants for Health Research: A Privacy-by-Design Framework for Online Recruitment

Ethics and Privacy Implications of Using the Internet and Social Media to Recruit Participants for Health Research: A Privacy-by-Design Framework for Online Recruitment

Ethics and Privacy Implications of Using the Internet and Social Media to Recruit Participants for Health Research: A Privacy-by-Design Framework for Online Recruitment

Jacqueline Lorene Bender 1, 2, PhD;  Alaina B Cyr 3, BSc;  Luk Arbuckle 4, BSc;  Lorraine E Ferris 1, LLM, PhD

1 Dalla Lana School of Public Health , University of Toronto, Toronto, ON, CA

2 Electronic Living Laboratory for Interdisciplinary Cancer Survivorship Research (ELLICSR) Health, Wellness, and Cancer Survivorship Centre, Department of Supportive Care, Princess Margaret Cancer Centre, University Health Network, Toronto, ON, CA

3 Cancer Education, Princess Margaret Cancer Centre, University Health Network, Toronto, ON, CA

4 Electronic Health Information Lab , Children's Hospital of Eastern Ontario (CHEO) Research Institute, Ottawa, ON, CA

Corresponding Author:

  • Jacqueline Lorene Bender, PhD
  • Electronic Living Laboratory for Interdisciplinary Cancer Survivorship Research (ELLICSR) Health, Wellness, and Cancer Survivorship Centre
  • Department of Supportive Care
  • Princess Margaret Cancer Centre, University Health Network
  • B PMB 130 Toronto General Hospital
  • 585 University Ave
  • Toronto, ON
  • CA
  • Phone: 1 416-581-8606
  • Email: jackie.bender@uhnresearch.ca