Published on in Vol 19, No 2 (2017): February

Experience With Direct-to-Patient Recruitment for Enrollment Into a Clinical Trial in a Rare Disease: A Web-Based Study

Experience With Direct-to-Patient Recruitment for Enrollment Into a Clinical Trial in a Rare Disease: A Web-Based Study

Experience With Direct-to-Patient Recruitment for Enrollment Into a Clinical Trial in a Rare Disease: A Web-Based Study

Journals

  1. Frampton G, Shepherd J, Pickett K, Griffiths G, Wyatt J. Digital tools for the recruitment and retention of participants in randomised controlled trials: a systematic map. Trials 2020;21(1) View
  2. Applequist J, Burroughs C, Ramirez A, Merkel P, Rothenberg M, Trapnell B, Desnick R, Sahin M, Krischer J. A novel approach to conducting clinical trials in the community setting: utilizing patient-driven platforms and social media to drive web-based patient recruitment. BMC Medical Research Methodology 2020;20(1) View
  3. Glover C, Creel-Bulos C, Patel L, During S, Graham K, Montoya Y, Frick S, Phillips J, Shah R. Facilitators of research registry enrollment and potential variation by race and gender. Journal of Clinical and Translational Science 2018;2(4):234 View
  4. Kogushi K, LoPresti M, Ikeda S. Systematic literature review of clinical outcomes in adults with metastatic or advanced synovial sarcoma. Future Oncology 2020;16(35):2997 View
  5. Lamberti M, Smith Z, Henry R, Howe D, Goodwin M, Williams A, Getz K. Benchmarking Patient Recruitment and Retention Practices. Therapeutic Innovation & Regulatory Science 2021;55(1):19 View
  6. Jongen P, Kremer I, Hristodorova E, Evers S, Kool A, van Noort E, Hiligsmann M. Adherence to Web-Based Self-Assessments in Long-Term Direct-to-Patient Research: Two-Year Study of Multiple Sclerosis Patients. Journal of Medical Internet Research 2017;19(7):e249 View
  7. Clarke J, Proudfoot J, Vatiliotis V, Verge C, Holmes-Walker D, Campbell L, Wilhelm K, Moravac C, Indu P, Bridgett M. Attitudes towards mental health, mental health research and digital interventions by young adults with type 1 diabetes: A qualitative analysis. Health Expectations 2018;21(3):668 View
  8. Reuter K, Angyan P, Le N, MacLennan A, Cole S, Bluthenthal R, Lane C, El-Khoueiry A, Buchanan T. Monitoring Twitter Conversations for Targeted Recruitment in Cancer Trials in Los Angeles County: Protocol for a Mixed-Methods Pilot Study. JMIR Research Protocols 2018;7(9):e177 View
  9. Stergiopoulos S. #PatientVoiceMatters: How Social Media Is Bringing Patients and Biopharmaceutical Companies Together to Improve Drug Development. Clinical Therapeutics 2017;39(11):2170 View
  10. Lamarca A, Frizziero M, McNamara M, Valle J. Clinical and Translational Research Challenges in Biliary Tract Cancers. Current Medicinal Chemistry 2020;27(29):4756 View
  11. Samman K, Ross C, Pagnoux C, Makhzoum J, Rothschild B. Update in the Management of ANCA-Associated Vasculitis: Recent Developments and Future Perspectives. International Journal of Rheumatology 2021;2021:1 View
  12. Nowell W, Merkel P, McBurney R, Young K, Venkatachalam S, Shaw D, Dobes A, Cerciello E, Kolaczkowski L, Curtis J, Kappelman M. Patient-Powered Research Networks of the Autoimmune Research Collaborative: Rationale, Capacity, and Future Directions. The Patient - Patient-Centered Outcomes Research 2021 View
  13. Pagnoux C, Fifi-Mah A. Update on Maintenance Therapies for ANCA-Associated Vasculitis. Current Treatment Options in Rheumatology 2021;7(2):112 View
  14. Dwyer A, Zeng Z, Lee C. Validating online approaches for rare disease research using latent class mixture modeling. Orphanet Journal of Rare Diseases 2021;16(1) View
  15. Miller E, Woodward A, Flinchum G, Young J, Tabor H, Halley M. Opportunities and pitfalls of social media research in rare genetic diseases: a systematic review. Genetics in Medicine 2021 View