Published on in Vol 19, No 2 (2017): February
Experience With Direct-to-Patient Recruitment for Enrollment Into a Clinical Trial in a Rare Disease: A Web-Based Study
Experience With Direct-to-Patient Recruitment for Enrollment Into a Clinical Trial in a Rare Disease: A Web-Based Study
;
Peter F
Cronholm
2
;
Cristina
Burroughs
1
;
Carol A
McAlear
2
;
Renee
Borchin
1
;
Ebony
Easley
2
;
Trocon
Davis
2
;
Joyce
Kullman
3
;
Simon
Carette
4
;
Nader
Khalidi
5
;
Curry
Koening
6
;
Carol A
Langford
7
;
Paul
Monach
8
;
Larry
Moreland
9
;
Christian
Pagnoux
4
;
Ulrich
Specks
10
;
Antoine G
Sreih
2
;
Steven
Ytterberg
10
;
Peter A
Merkel
2
;
1 Rare Diseases Clinical Research Network Data Coordinating Center, Health Informatics Institute, University of South Florida, Tampa, FL, US
2 University of Pennsylvania , Philadelphia, PA, US
3 Vasculitis Foundation , Kansas City, MO, US
4 Mount Sinai Hospital , Toronto, ON, CA
5 St. Joseph's Healthcare Hamilton , Hamilton, ON, CA
6 University of Utah , Salt Lake City, UT, US
7 Cleveland Clinic Foundation , Cleveland, OH, US
8 Boston University School of Medicine , Boston, MA, US
9 University of Pittsburgh , Pittsburgh, PA, US
10 Mayo Clinic , Rochester, MN, US
11 Vasculitis Clinical Research Consortium , Philadelphia, PA, US
*all authors contributed equally