Published on in Vol 19, No 2 (2017): February

Experience With Direct-to-Patient Recruitment for Enrollment Into a Clinical Trial in a Rare Disease: A Web-Based Study

Experience With Direct-to-Patient Recruitment for Enrollment Into a Clinical Trial in a Rare Disease: A Web-Based Study

Experience With Direct-to-Patient Recruitment for Enrollment Into a Clinical Trial in a Rare Disease: A Web-Based Study

Jeffrey Krischer 1*, PhD;  Peter F Cronholm 2*, MSCE, MD;  Cristina Burroughs 1*, BS;  Carol A McAlear 2*, MA;  Renee Borchin 1*, BSW;  Ebony Easley 2*, MPH;  Trocon Davis 2*, BA;  Joyce Kullman 3*, BS;  Simon Carette 4*, MD;  Nader Khalidi 5*, MD;  Curry Koening 6*, MS, MD;  Carol A Langford 7*, MHS, MD;  Paul Monach 8*, MD, PhD;  Larry Moreland 9*, MD;  Christian Pagnoux 4*, MD;  Ulrich Specks 10*, MD;  Antoine G Sreih 2*, MD;  Steven Ytterberg 10*, MD;  Peter A Merkel 2*, MPH, MD;   Vasculitis Clinical Research Consortium 11*

1 Rare Diseases Clinical Research Network Data Coordinating Center, Health Informatics Institute, University of South Florida, Tampa, FL, US

2 University of Pennsylvania , Philadelphia, PA, US

3 Vasculitis Foundation , Kansas City, MO, US

4 Mount Sinai Hospital , Toronto, ON, CA

5 St. Joseph's Healthcare Hamilton , Hamilton, ON, CA

6 University of Utah , Salt Lake City, UT, US

7 Cleveland Clinic Foundation , Cleveland, OH, US

8 Boston University School of Medicine , Boston, MA, US

9 University of Pittsburgh , Pittsburgh, PA, US

10 Mayo Clinic , Rochester, MN, US

11 Vasculitis Clinical Research Consortium , Philadelphia, PA, US

*all authors contributed equally

Corresponding Author:

  • Jeffrey Krischer, PhD
  • Rare Diseases Clinical Research Network Data Coordinating Center
  • Health Informatics Institute
  • University of South Florida
  • 3650 Spectrum Blvd, Suite 100
  • Tampa, FL
  • US
  • Phone: 1 813-396-9512
  • Email: Jeffrey.Krischer@epi.usf.edu