This paper is in the following e-collection/theme issue:

Personal Health Records, Patient-Accessible Electronic Health Records, Patient Portals (440) Participatory Medicine & E-Patients (601)

Published on in Vol 17 , No 6 (2015) :June

“Nothing About Me Without Me”: An Interpretative Review of Patient Accessible Electronic Health Records

“Nothing About Me Without Me”: An Interpretative Review of Patient Accessible Electronic Health Records

“Nothing About Me Without Me”: An Interpretative Review of Patient Accessible Electronic Health Records

Authors of this article:

Sagar Ramesh Jilka 1 Author Orcid Image ;   Ryan Callahan 1 Author Orcid Image ;   Nick Sevdalis 2 Author Orcid Image ;   Erik K Mayer 1 Author Orcid Image ;   Ara Darzi 1 Author Orcid Image
Article Authors Cited by (52) Tweetations (91) Metrics

Journals

  1. Bailoor K, Kamil L, Goldman E, Napiewocki L, Winiarski D, Vercler C, Shuman A. The Voice Is As Mighty As the Pen: Integrating Conversations into Advance Care Planning. Journal of Bioethical Inquiry 2018;15(2):185 View
  2. Poss-Doering R, Kunz A, Pohlmann S, Hofmann H, Kiel M, Winkler E, Ose D, Szecsenyi J. Utilizing a Prototype Patient-Controlled Electronic Health Record in Germany: Qualitative Analysis of User-Reported Perceptions and Perspectives. JMIR Formative Research 2018;2(2):e10411 View
  3. Geerts P, van der Weijden T, Loeffen P, Janssen L, Almekinders C, Wienhold T, Bos G. Developing a patient portal for haematology patients requires involvement of all stakeholders and a customised design, tailored to the individual needs. BMC Medical Informatics and Decision Making 2019;19(1) View
  4. Alpert J, Morris B, Thomson M, Matin K, Brown R. Implications of Patient Portal Transparency in Oncology: Qualitative Interview Study on the Experiences of Patients, Oncologists, and Medical Informaticists. JMIR Cancer 2018;4(1):e5 View
  5. Ford E, Hesse B, Huerta T. Personal Health Record Use in the United States: Forecasting Future Adoption Levels. Journal of Medical Internet Research 2016;18(3):e73 View
  6. Kendall M, Lynch I. Long-term monitoring for nanomedicine implants and drugs. Nature Nanotechnology 2016;11(3):206 View
  7. Warren L, Harrison M, Arora S, Darzi A. Working with patients and the public to design an electronic health record interface: a qualitative mixed-methods study. BMC Medical Informatics and Decision Making 2019;19(1) View
  8. Lima V, Mazza V. INFORMATION NEEDS OF FAMILIES ON THE HEALTH/DISEASE OF PRETERM INFANTS IN A NEONATAL INTENSIVE CARE UNIT. Texto & Contexto - Enfermagem 2019;28 View
  9. Moll J, Rexhepi H, Cajander Å, Grünloh C, Huvila I, Hägglund M, Myreteg G, Scandurra I, Åhlfeldt R. Patients’ Experiences of Accessing Their Electronic Health Records: National Patient Survey in Sweden. Journal of Medical Internet Research 2018;20(11):e278 View
  10. Mold F, de Lusignan S. Patients’ Online Access to Their Primary Care Electronic Health Records and Linked Online Services: Implications for Research and Practice. Journal of Personalized Medicine 2015;5(4):452 View
  11. Rau H, Wu Y, Chu C, Wang F, Hsu M, Chang C, Chen K, Lee Y, Kao S, Chiu Y, Wen H, Fuad A, Hsu C, Chiu H. Importance-Performance Analysis of Personal Health Records in Taiwan: A Web-Based Survey. Journal of Medical Internet Research 2017;19(4):e131 View
  12. Vreugdenhil M, Ranke S, de Man Y, Haan M, Kool R. Patient and Health Care Provider Experiences With a Recently Introduced Patient Portal in an Academic Hospital in the Netherlands: Mixed Methods Study. Journal of Medical Internet Research 2019;21(8):e13743 View
  13. Kipping S, Stuckey M, Hernandez A, Nguyen T, Riahi S. A Web-Based Patient Portal for Mental Health Care: Benefits Evaluation. Journal of Medical Internet Research 2016;18(11):e294 View
  14. Risling T, Martinez J, Young J, Thorp-Froslie N. Evaluating Patient Empowerment in Association With eHealth Technology: Scoping Review. Journal of Medical Internet Research 2017;19(9):e329 View
  15. Mold F, Raleigh M, Alharbi N, de Lusignan S. The impact of patient online access to computerized medical records (CMR) and services for Type 2 Diabetes: systematic review. (Preprint). Journal of Medical Internet Research 2017 View
  16. Rosenkrantz A, Rawson J. Trends in Publications in Radiology Journals Designated as Relating to Patient-Centered Care. Journal of the American College of Radiology 2017;14(5):703 View
  17. Goldzweig C. Opening up to Open Notes and adding the patient to the team. BMJ Quality & Safety 2017;26(4):257 View
  18. Neves A, Carter A, Freise L, Laranjo L, Darzi A, Mayer E. Impact of sharing electronic health records with patients on the quality and safety of care: a systematic review and narrative synthesis protocol. BMJ Open 2018;8(8):e020387 View
  19. Zanaboni P, Kummervold P, Sørensen T, Johansen M. Patient Use and Experience With Online Access to Electronic Health Records in Norway: Results From an Online Survey. Journal of Medical Internet Research 2020;22(2):e16144 View
  20. Risling T, Martinez J, Young J, Thorp-Froslie N. Defining Empowerment and Supporting Engagement Using Patient Views From the Citizen Health Information Portal: Qualitative Study. JMIR Medical Informatics 2018;6(3):e43 View
  21. Wass S, Vimarlund V. The Role of PAEHRs in Patient Involvement. Journal of Medical Systems 2018;42(11) View
  22. Masters K. Preparing medical students for the e-patient. Medical Teacher 2017;39(7):681 View
  23. Bernaerdt J, Moerenhout T, Devisch I. Vulnerable patients' attitudes towards sharing medical data and granular control in patient portal systems: an interview study. Journal of Evaluation in Clinical Practice 2021;27(2):429 View
  24. Determann D, Lambooij M, Gyrd-Hansen D, de Bekker-Grob E, Steyerberg E, Heldoorn M, Pedersen L, de Wit G. Personal health records in the Netherlands: potential user preferences quantified by a discrete choice experiment. Journal of the American Medical Informatics Association 2017;24(3):529 View
  25. Avdagovska M, Ballermann M, Olson K, Graham T, Menon D, Stafinski T. Patient Portal Implementation and Uptake: Qualitative Comparative Case Study. Journal of Medical Internet Research 2020;22(7):e18973 View
  26. Razmak J, Bélanger C, Farhan W. Development of a techno-humanist model for e-health adoption of innovative technology. International Journal of Medical Informatics 2018;120:62 View
  27. Essén A, Scandurra I, Gerrits R, Humphrey G, Johansen M, Kierkegaard P, Koskinen J, Liaw S, Odeh S, Ross P, Ancker J. Patient access to electronic health records: Differences across ten countries. Health Policy and Technology 2018;7(1):44 View
  28. Rodriguez E. Using Patient Portals to Increase Engagement in Patients with Cancer. Seminars in Oncology Nursing 2018;34(2):177 View
  29. Kamerer J, McDermott D. Cybersecurity: Nurses on the Front Line of Prevention and Education. Journal of Nursing Regulation 2020;10(4):48 View
  30. Elkhaili El Alami L, Nemoto A, Nakata Y. General patients' expectations on online accessibility to their electronic health records in Japan. Global Health & Medicine 2020;2(3):168 View
  31. McDermott D, Kamerer J, Birk A. Electronic Health Records. International Journal of Cyber Research and Education 2019;1(2):42 View
  32. Jansson I, Fors A, Ekman I, Ulin K. Documentation of person-centred health plans for patients with acute coronary syndrome. European Journal of Cardiovascular Nursing 2018;17(2):114 View
  33. Turk M, McDermott S. Do Electronic Health Records support the complex needs of people with disability?. Disability and Health Journal 2018;11(4):491 View
  34. Garattini C, Raffle J, Aisyah D, Sartain F, Kozlakidis Z. Big Data Analytics, Infectious Diseases and Associated Ethical Impacts. Philosophy & Technology 2019;32(1):69 View
  35. Plastiras P, O’Sullivan D. Combining Ontologies and Open Standards to Derive a Middle Layer Information Model for Interoperability of Personal and Electronic Health Records. Journal of Medical Systems 2017;41(12) View
  36. Moerenhout T, Devisch I, Cooreman L, Bernaerdt J, De Sutter A, Provoost V. Patients’ moral attitudes toward electronic health records: Survey study with vignettes and statements. Health Informatics Journal 2021;27(1):146045822098003 View
  37. Avdagovska M, Menon D, Stafinski T. Capturing the Impact of Patient Portals Based on the Quadruple Aim and Benefits Evaluation Frameworks: Scoping Review. Journal of Medical Internet Research 2020;22(12):e24568 View
  38. Elkhaili El Alami L, Nemoto A, Nakata Y. Investigation of users' experiences for online access to their electronic health records in Japan. Global Health & Medicine 2021;3(1):37 View
  39. Heath M, Porter T, Dunegan K. Obstacles to continued use of personal health records. Behaviour & Information Technology 2022;41(3):574 View
  40. Kruithof N, Spreeuwenberg M, Kleijkers S, Bruls B, Gurp E. Zorgen om online inzage in het eigen patiëntendossier. Huisarts en wetenschap 2020;63(12):62 View
  41. Tome J, Ahmed S, Fagerlin A, Powell C, Mourao M, Chen E, Harrison S, Segal J, Abdel-Kader K, Nunes J. Patient Electronic Health Record Portal Use and Patient-Centered Outcomes in CKD. Kidney Medicine 2021;3(2):231 View
  42. Nøst T, Faxvaag A, Steinsbekk A. Participants’ views and experiences from setting up a shared patient portal for primary and specialist health services- a qualitative study. BMC Health Services Research 2021;21(1) View
  43. Valeur H, Lie A, Moen K. Patient Rationales Against the Use of Patient-Accessible Electronic Health Records: Qualitative Study. Journal of Medical Internet Research 2021;23(5):e24090 View
  44. Chapman R, Haroon S, Simms-Williams N, Bhala N, Miah F, Nirantharakumar K, Ferguson J. Socioeconomic deprivation, age and language are barriers to accessing personal health records: a cross-sectional study of a large hospital-based personal health record system. BMJ Open 2022;12(1):e054655 View
  45. Khadjesari Z, Houghton J, Brown T, Jopling H, Stevenson F, Lynch J. Contextual Factors That Impact the Implementation of Patient Portals With a Focus on Older People in Acute Care Hospitals: Scoping Review. JMIR Aging 2023;6:e31812 View
  46. Schwarz J, Bärkås A, Blease C, Collins L, Hägglund M, Markham S, Hochwarter S. Sharing Clinical Notes and Electronic Health Records With People Affected by Mental Health Conditions: Scoping Review. JMIR Mental Health 2021;8(12):e34170 View
  47. Thielmann R, Hoving C, Schutgens-Kok E, Cals J, Crutzen R. Patient online access to general practice medical records: A qualitative study on patients’ needs and expectations. Health Information Management Journal 2023:183335832211446 View
  48. Thielmann R, Hoving C, Cals J, Crutzen R. Effects of Patient Online Access to General Practice Medical Records: A Longitudinal Survey Study on Patients’ Perceptions (Preprint). Journal of Medical Internet Research 2023 View

Books/Policy Documents

  1. Palumbo R. The Bright Side and the Dark Side of Patient Empowerment. View
  2. Scandurra I, Jansson A, Forsberg-Fransson M, Ålander T. Consumer-Driven Technologies in Healthcare. View