Published on in Vol 15, No 6 (2013): June

Using Online Health Communities to Deliver Patient-Centered Care to People With Chronic Conditions

Using Online Health Communities to Deliver Patient-Centered Care to People With Chronic Conditions

Using Online Health Communities to Deliver Patient-Centered Care to People With Chronic Conditions

Journals

  1. Koufopoulos J, Conner M, Gardner P, Kellar I. A Web-Based and Mobile Health Social Support Intervention to Promote Adherence to Inhaled Asthma Medications: Randomized Controlled Trial. Journal of Medical Internet Research 2016;18(6):e122 View
  2. Menvielle L, Menvielle W, Audrain-Pontevia A. Comprendre l’interaction des patients membres d’une communauté virtuelle de santé et son impact sur la relation que le patient entretient avec son médecin. Systèmes d'information & management 2018;23(2):43 View
  3. Sangrar R, Docherty-Skippen S, Beattie K. Blended face-to-face and online/computer-based education approaches in chronic disease self-management: A critical interpretive synthesis. Patient Education and Counseling 2019;102(10):1822 View
  4. von Thiele Schwarz U. Co-care: Producing better health outcome through interactions between patients, care providers and information and communication technology. Health Services Management Research 2016;29(1-2):10 View
  5. Razmgah P, Mojtahedzadeh R, Borjaliloo S, Mohammadi A. The Effect of Social Network and Short Messages through E-Content on Reducing Negative Thoughts in Women. Interdisciplinary Journal of Virtual Learning in Medical Sciences 2016;In Press(In Press) View
  6. Eikey E, Reddy M, Kuziemsky C. Examining the role of collaboration in studies of health information technologies in biomedical informatics: A systematic review of 25 years of research. Journal of Biomedical Informatics 2015;57:263 View
  7. Gruzd A, Haythornthwaite C. Enabling Community Through Social Media. Journal of Medical Internet Research 2013;15(10):e248 View
  8. Zhou J, Fan T. Understanding the Factors Influencing Patient E-Health Literacy in Online Health Communities (OHCs): A Social Cognitive Theory Perspective. International Journal of Environmental Research and Public Health 2019;16(14):2455 View
  9. Smedley R, Coulson N. Genetic testing for Huntington’s disease: A thematic analysis of online support community messages. Journal of Health Psychology 2021;26(4):580 View
  10. Chen D, Zhang R, Feng J, Liu K. Fulfilling information needs of patients in online health communities. Health Information & Libraries Journal 2020;37(1):48 View
  11. Vennik F, Adams S, Faber M, Putters K. Expert and experiential knowledge in the same place: Patients’ experiences with online communities connecting patients and health professionals. Patient Education and Counseling 2014;95(2):265 View
  12. Zhu P, Shen J, Xu M. The Agent-based Value Co-creation Behaviors in Online Health Communities and Its Influencing Factors. IOP Conference Series: Materials Science and Engineering 2019;490:062051 View
  13. Schuller K, Vaughan B, Wright I. Models of Care Delivery for Patients With Parkinson Disease Living in Rural Areas. Family & Community Health 2017;40(4):324 View
  14. Audrain-Pontevia A, Menvielle L. EFFECTS OF INTERPERSONAL TRUST AMONG USERS OF ONLINE HEALTH COMMUNITIES ON PATIENT TRUST IN AND SATISFACTION WITH THEIR PHYSICIAN. International Journal of Technology Assessment in Health Care 2018;34(1):56 View
  15. Radder D, Sturkenboom I, van Nimwegen M, Keus S, Bloem B, de Vries N. Physical therapy and occupational therapy in Parkinson's disease. International Journal of Neuroscience 2017;127(10):930 View
  16. Colón-Semenza C, Latham N, Quintiliani L, Ellis T. Peer Coaching Through mHealth Targeting Physical Activity in People With Parkinson Disease: Feasibility Study. JMIR mHealth and uHealth 2018;6(2):e42 View
  17. Liu J, Kong J, Zhang X. Study on Differences between Patients with Physiological and Psychological Diseases in Online Health Communities: Topic Analysis and Sentiment Analysis. International Journal of Environmental Research and Public Health 2020;17(5):1508 View
  18. Chen D, Zhang R, Liu K, Hou L. Knowledge Discovery from Posts in Online Health Communities Using Unified Medical Language System. International Journal of Environmental Research and Public Health 2018;15(6):1291 View
  19. de Graaf M, Totté J, van Os-Medendorp H, van Renselaar W, Breugem C, Pasmans S. Treatment of Infantile Hemangioma in Regional Hospitals With eHealth Support: Evaluation of Feasibility and Acceptance by Parents and Doctors. JMIR Research Protocols 2014;3(4):e52 View
  20. Ho Y, O’Connor B, Mulvaney S. Features of Online Health Communities for Adolescents With Type 1 Diabetes. Western Journal of Nursing Research 2014;36(9):1183 View
  21. Atanasova S, Petric G. Collective Empowerment in Online Health Communities: Scale Development and Empirical Validation. Journal of Medical Internet Research 2019;21(11):e14392 View
  22. Yang H, Gao H. Toward Sustainable Virtualized Healthcare: Extracting Medical Entities from Chinese Online Health Consultations Using Deep Neural Networks. Sustainability 2018;10(9):3292 View
  23. Mpinganjira M. Willingness to reciprocate in virtual health communities: the role of social capital, gratitude and indebtedness. Service Business 2019;13(2):269 View
  24. Makai P, Perry M, Robben S, Schers H, Heinen M, Olde Rikkert M, Melis R. Evaluation of an eHealth Intervention in Chronic Care for Frail Older People: Why Adherence is the First Target. Journal of Medical Internet Research 2014;16(6):e156 View
  25. Geramita E, Herbeck Belnap B, Abebe K, Rothenberger S, Rotondi A, Rollman B. The Association Between Increased Levels of Patient Engagement With an Internet Support Group and Improved Mental Health Outcomes at 6-Month Follow-Up: Post-Hoc Analyses From a Randomized Controlled Trial. Journal of Medical Internet Research 2018;20(7):e10402 View
  26. Willard S, Cremers G, Man Y, van Rossum E, Spreeuwenberg M, de Witte L. Development and testing of an online community care platform for frail older adults in the Netherlands: a user-centred design. BMC Geriatrics 2018;18(1) View
  27. Bientzle M, Griewatz J, Kimmerle J, Küppers J, Cress U, Lammerding-Koeppel M. Impact of Scientific Versus Emotional Wording of Patient Questions on Doctor-Patient Communication in an Internet Forum: A Randomized Controlled Experiment with Medical Students. Journal of Medical Internet Research 2015;17(11):e268 View
  28. Lu X, Zhang R. Impact of Physician-Patient Communication in Online Health Communities on Patient Compliance: Cross-Sectional Questionnaire Study. Journal of Medical Internet Research 2019;21(5):e12891 View
  29. Kim D. ‘How do you feel about a disease?’ The effect of psychological distance towards a disease on health communication. International Journal of Advertising 2019;38(1):139 View
  30. Sharma P, Land S. Patterns of knowledge sharing in an online affinity space for diabetes. Educational Technology Research and Development 2019;67(2):247 View
  31. Fissler T, Bientzle M, Cress U, Kimmerle J. The Impact of Advice Seekers’ Need Salience and Doctors’ Communication Style on Attitude and Decision Making: A Web-Based Mammography Consultation Role Play. JMIR Cancer 2015;1(2):e10 View
  32. Ping Q, Yang C, Marshall S, Avis N, Ip E. Breast Cancer Symptom Clusters Derived From Social Media and Research Study Data Using Improved $K$ -Medoid Clustering. IEEE Transactions on Computational Social Systems 2016;3(2):63 View
  33. Dixon D, Reed B. To tweet or not to tweet? A primer on social media for pharmacists. Journal of the American College of Clinical Pharmacy 2019;2(5):554 View
  34. Herrmann A, Carey M, Zucca A, Boyd L, Roberts B. Australian GPs’ perceptions of barriers and enablers to best practice palliative care: a qualitative study. BMC Palliative Care 2019;18(1) View
  35. Chen D, Zhang R, Liu K, Hou L. Enhancing Online Patient Support through Health-Care Knowledge in Online Health Communities: A Descriptive Study. Information 2018;9(8):199 View
  36. van der Eijk M, Faber M, Post B, Okun M, Schmidt P, Munneke M, Bloem B. Capturing patients’ experiences to change Parkinson’s disease care delivery: a multicenter study. Journal of Neurology 2015;262(11):2528 View
  37. Avila L, Errecalde M. A simple method for recommending specialized specifications for diabetes monitoring. Expert Systems with Applications 2018;91:298 View
  38. Willis E. The Power of Peers: Applying User-Generated Content to Health Behaviors “Off-Line”. Qualitative Health Research 2018;28(13):2081 View
  39. Disler R, Inglis S, Newton P, Currow D, Macdonald P, Glanville A, Donesky D, Carrieri-Kohlman V, Davidson P. Patterns of Technology Use in Patients Attending a Cardiopulmonary Outpatient Clinic: A Self-Report Survey. interactive Journal of Medical Research 2015;4(1):e5 View
  40. Benetoli A, Chen T, Schaefer M, Chaar B, Aslani P. Do pharmacists use social media for patient care?. International Journal of Clinical Pharmacy 2017;39(2):364 View
  41. Boogerd E, Maas-van Schaaijk N, Noordam C, Marks H, Verhaak C. Parents' experiences, needs, and preferences in pediatric diabetes care: Suggestions for improvement of care and the possible role of the Internet. A qualitative study. Journal for Specialists in Pediatric Nursing 2015;20(3):218 View
  42. Riggare S, Höglund P, Hvitfeldt Forsberg H, Eftimovska E, Svenningsson P, Hägglund M. Patients are doing it for themselves: A survey on disease-specific knowledge acquisition among people with Parkinson’s disease in Sweden. Health Informatics Journal 2019;25(1):91 View
  43. Tuarob S, Tucker C, Salathe M, Ram N. An ensemble heterogeneous classification methodology for discovering health-related knowledge in social media messages. Journal of Biomedical Informatics 2014;49:255 View
  44. Wittenberg-Lyles E, Washington K, Oliver D, Shaunfield S, Gage L, Mooney M, Lewis A. “It is the ‘starting over’ part that is so hard”: Using an online group to support hospice bereavement. Palliative and Supportive Care 2015;13(2):351 View
  45. Barr N, Vania D, Randall G, Mulvale G. Impact of information and communication technology on interprofessional collaboration for chronic disease management: a systematic review. Journal of Health Services Research & Policy 2017;22(4):250 View
  46. Rezaei Aghdam A, Watson J, Cliff C, Miah S. Improving the Theoretical Understanding Toward Patient-Driven Health Care Innovation Through Online Value Cocreation: Systematic Review. Journal of Medical Internet Research 2020;22(4):e16324 View
  47. Cipolletta S, Votadoro R, Faccio E. Online support for transgender people: an analysis of forums and social networks. Health & Social Care in the Community 2017;25(5):1542 View
  48. Bender B. Where does health communication technology fit into allergy practice?. Annals of Allergy, Asthma & Immunology 2018;121(1):24 View
  49. Fernandes L, Calado C, Araujo C. Redes sociais e práticas em saúde: influência de uma comunidade online de diabetes na adesão ao tratamento. Ciência & Saúde Coletiva 2018;23(10):3357 View
  50. Makai P, Perry M, Robben S, Schers H, Heinen M, Olde Rikkert M, Melis R. Which Frail Older Patients Use Online Health Communities and Why? A Mixed Methods Process Evaluation of Use of the Health and Welfare Portal. Journal of Medical Internet Research 2014;16(12):e278 View
  51. de Jong C, Ros W, van Leeuwen M, Schrijvers G. How Professionals Share an E-Care Plan for the Elderly in Primary Care: Evaluating the Use of an E-Communication Tool by Different Combinations of Professionals. Journal of Medical Internet Research 2016;18(11):e304 View
  52. Benetoli A, Chen T, Spagnardi S, Beer T, Aslani P. Provision of a Medicines Information Service to Consumers on Facebook: An Australian Case Study. Journal of Medical Internet Research 2015;17(11):e265 View
  53. Chen S, Guo X, Wu T, Ju X. Exploring the Online Doctor-Patient Interaction on Patient Satisfaction Based on Text Mining and Empirical Analysis. Information Processing & Management 2020;57(5):102253 View
  54. Virlée J, van Riel A, Hammedi W. Health literacy and its effects on well-being: how vulnerable healthcare service users integrate online resources. Journal of Services Marketing 2020;34(5):697 View
  55. Frank L, Forsythe L, Workman T, Hilliard T, Lavelle M, Harwell D, Fayish L. Patient, caregiver and clinician use of comparative effectiveness research findings in care decisions: results from a national study. Journal of Comparative Effectiveness Research 2017;6(3):219 View
  56. Lohan M, Aventin Á, Oliffe J, Han C, Bottorff J. Knowledge Translation in Men’s Health Research: Development and Delivery of Content for Use Online. Journal of Medical Internet Research 2015;17(1):e31 View
  57. Atanasova S, Kamin T, Petrič G. The benefits and challenges of online professional-patient interaction: Comparing views between users and health professional moderators in an online health community. Computers in Human Behavior 2018;83:106 View
  58. Hadjiconstantinou M, Schreder S, Brough C, Northern A, Stribling B, Khunti K, Davies M. Using Intervention Mapping to Develop a Digital Self-Management Program for People With Type 2 Diabetes: Tutorial on MyDESMOND. Journal of Medical Internet Research 2020;22(5):e17316 View
  59. Roccetti M, Prandi C, Salomoni P, Marfia G. Unleashing the true potential of social networks: confirming infliximab medical trials through Facebook posts. Network Modeling Analysis in Health Informatics and Bioinformatics 2016;5(1) View
  60. Roccetti M, Salomoni P, Prandi C, Marfia G, Mirri S. On the interpretation of the effects of the Infliximab treatment on Crohn’s disease patients from Facebook posts: a human vs. machine comparison. Network Modeling Analysis in Health Informatics and Bioinformatics 2017;6(1) View
  61. Choi M, Kim S, Lee S, Kwon B, Yi J, Choo J, Huh J. Toward Predicting Social Support Needs in Online Health Social Networks. Journal of Medical Internet Research 2017;19(8):e272 View
  62. Bright P, Hambly K. Patients Using an Online Forum for Reporting Progress When Engaging With a Six-Week Exercise Program for Knee Conditioning: Feasibility Study. JMIR Rehabilitation and Assistive Technologies 2018;5(1):e9 View
  63. Vianna H, Barbosa J. In search of computer-aided social support in non-communicable diseases care. Telematics and Informatics 2017;34(8):1419 View
  64. Forczek E, Makra P, Lanyi C, Bari F. The Internet as a New Tool in the Rehabilitation Process of Patients—Education in Focus. International Journal of Environmental Research and Public Health 2015;12(3):2373 View
  65. Zhou T, Yan L, Wang Y, Tan Y. Turn Your Online Engagement in Chronic Disease Management from Zero to Hero: A Multi-Dimensional Continuous-Time Evaluation. SSRN Electronic Journal 2019 View
  66. Litchman M, Edelman L, Donaldson G. Effect of Diabetes Online Community Engagement on Health Indicators: Cross-Sectional Study. JMIR Diabetes 2018;3(2):e8 View
  67. Lee Y, Kamen C, Margolies L, Boehmer U. Online health community experiences of sexual minority women with cancer. Journal of the American Medical Informatics Association 2019;26(8-9):759 View
  68. Kingod N, Cleal B, Wahlberg A, Husted G. Online Peer-to-Peer Communities in the Daily Lives of People With Chronic Illness. Qualitative Health Research 2017;27(1):89 View
  69. Rizzo R, Van den Bree M, Challenger A, Cuthbert A, Ayllon M, Clarke A, Thompson R. Co-creating a knowledge base in the “22q11.2 deletion syndrome” community. Journal of Community Genetics 2020;11(1):101 View
  70. Duroseau N, Abramson T, Pergament K, Chan V, Govindavari J, Ciraco C, Tegay D, Krishnamachari B. Acceptance of technology-based tools in a sample of Parkinson’s patients. Chronic Illness 2017;13(1):3 View
  71. Zhou J, Zuo M, Ye C. Understanding the factors influencing health professionals’ online voluntary behaviors: Evidence from YiXinLi, a Chinese online health community for mental health. International Journal of Medical Informatics 2019;130:103939 View
  72. Achey M, Aldred J, Aljehani N, Bloem B, Biglan K, Chan P, Cubo E, Ray Dorsey E, Goetz C, Guttman M, Hassan A, Khandhar S, Mari Z, Spindler M, Tanner C, van den Haak P, Walker R, Wilkinson J. The past, present, and future of telemedicine for Parkinson's disease. Movement Disorders 2014;29(7):871 View
  73. Boogaarts H, van Nuenen-Platvoet W, van den Abbeele L, Petersen H, Draskovic I, de Vries J, Westert G, Grotenhuis J, Bartels R. An Online Health Community for Aneurysmal Subarachnoid Hemorrhage Patients: A Pilot Study. JMIR Research Protocols 2014;3(4):e60 View
  74. Junod Perron N, Le Breton J, Perrier-Gros-Claude O, Schusselé Filliettaz S, Hudelson P, Pautex S. Written interprofessional communication in the context of home healthcare: A qualitative exploration of Swiss perceptions and practices. Home Health Care Services Quarterly 2019;38(3):224 View
  75. Myneni S, Lewis B, Singh T, Paiva K, Kim S, Cebula A, Villanueva G, Wang J. Diabetes Self-Management in the Age of Social Media: Large-Scale Analysis of Peer Interactions Using Semiautomated Methods. JMIR Medical Informatics 2020;8(6):e18441 View
  76. De Simoni A, Shah A, Fulton O, Parkinson J, Sheikh A, Panzarasa P, Pagliari C, Coulson N, Griffiths C. Superusers’ Engagement in Asthma Online Communities: Asynchronous Web-Based Interview Study. Journal of Medical Internet Research 2020;22(6):e18185 View
  77. Pereno A, Eriksson D. A multi-stakeholder perspective on sustainable healthcare: From 2030 onwards. Futures 2020;122:102605 View
  78. Tran V, Ravaud P. COllaborative open platform E-cohorts for research acceleration in trials and epidemiology. Journal of Clinical Epidemiology 2020;124:139 View
  79. Ju C, Zhang S. Influencing Factors of Continuous Use of Web-Based Diagnosis and Treatment by Patients With Diabetes: Model Development and Data Analysis. Journal of Medical Internet Research 2020;22(9):e18737 View
  80. Zhao D, Zhang Q, Ma F. Communication that changes lives: an exploratory research on a Chinese online hypertension community. Library Hi Tech 2020;38(4):883 View
  81. Green B, Van Horn K, Gupte K, Evans M, Hayes S, Bhowmick A. Assessment of Adaptive Engagement and Support Model for People With Chronic Health Conditions in Online Health Communities: Combined Content Analysis. Journal of Medical Internet Research 2020;22(7):e17338 View
  82. Li L, Chew A, Gunasekeran D. Digital health for patients with chronic pain during the COVID-19 pandemic. British Journal of Anaesthesia 2020;125(5):657 View
  83. Adé A, Debroucker F, Delporte L, De Monclin C, Fayet E, Legendre P, Radoszycki L, Chekroun M. Chronic patients’ satisfaction and priorities regarding medical care, information and services and quality of life: a French online patient community survey. BMC Health Services Research 2020;20(1) View
  84. der Cingel M, Bulle-Smid L, Holterman S, Prins H, Keuning W, Hettinga M. From clinical reasoning to ehealth interventions; a study on how nurses asses care and ehealth in home care. Nurse Education in Practice 2021;50:102925 View
  85. Betcheva L, Erhun F, Jiang H. Supply Chain Thinking in Healthcare: Lessons and Outlooks. Manufacturing & Service Operations Management 2020 View
  86. Mirzaei T, Esmaeilzadeh P. Engagement in online health communities: Channel expansion and social exchanges. Information & Management 2021;58(1):103404 View
  87. YILDIZ D, SARICI S, EREN FİDANCI B, KONUKBAY D, YAVUZ AKÇA S. 0-1 Yaş Bebeği Olan Annelerin Bebek Bakımına ve Büyüme Gelişmesine İlişkin İnterneti Kullanma Durumunun Değerlendirilmesi. Sağlık Bilimleri Üniversitesi Hemşirelik Dergisi 2020 View
  88. Schiffer L, Gertges R, Nöhre M, Schieffer E, Tegtbur U, Pape L, de Zwaan M, Schiffer M. Use and preferences regarding internet-based health care delivery in patients with chronic kidney disease. BMC Medical Informatics and Decision Making 2021;21(1) View
  89. Huurneman K, Lankhorst I, Baars E, van Wijk I, van der Sluis C. Opinions on rehabilitation care of young adults with transversal upper limb reduction deficiency in their transition to adulthood. Journal of Pediatric Rehabilitation Medicine 2021;14(1):103 View
  90. Yang Y, Zhu X, Song R, Zhang X, Guo F. Not just for the money? An examination of the motives behind physicians’ sharing of paid health information. Journal of Information Science 2021:016555152199102 View
  91. Martini M, Bragazzi N. Googling for Neurological Disorders: From Seeking Health-Related Information to Patient Empowerment, Advocacy, and Open, Public Self-Disclosure in the Neurology 2.0 Era. Journal of Medical Internet Research 2021;23(3):e13999 View
  92. Wang P, Wang J, Li Q. Cognitive mechanisms underlying interaction and contribution in online health communities: the perspectives of doctors and patients. Aslib Journal of Information Management 2021;ahead-of-print(ahead-of-print) View
  93. Yao Z, Tang P, Fan J, Luan J. Influence of Online Social Support on the Public's Belief in Overcoming COVID-19. Information Processing & Management 2021;58(4):102583 View

Books/Policy Documents

  1. Wu J, Hou S, Jin M. Smart Health. View
  2. Olaniran B. Virtual and Mobile Healthcare. View
  3. Wang C, Cai J, Gao J, Wu J. Smart Health. View
  4. Beaunoyer E, Guitton M. Novel Applications of Virtual Communities in Healthcare Settings. View
  5. Makubalo T, Scholtz B, Tokosi T. Responsible Design, Implementation and Use of Information and Communication Technology. View