Published on in Vol 12, No 4 (2010): Oct-Dec

Consumers’ Perceptions About and Use of the Internet for Personal Health Records and Health Information Exchange: Analysis of the 2007 Health Information National Trends Survey

Consumers’ Perceptions About and Use of the Internet for Personal Health Records and Health Information Exchange: Analysis of the 2007 Health Information National Trends Survey

Consumers’ Perceptions About and Use of the Internet for Personal Health Records and Health Information Exchange: Analysis of the 2007 Health Information National Trends Survey

Authors of this article:

Kuang-Yi Wen1 ;   Gary Kreps2 Author Orcid Image ;   Fang Zhu3 ;   Suzanne Miller1


  1. Monsen K, Westra B, Paitich N, Ekstrom D, Mehle S, Kaeding M, Abdo S, Natarajan G, Ruddarraju U. Developing a Personal Health Record for Community-Dwelling Older Adults and Clinicians: Technology and Content. Journal of Gerontological Nursing 2012;38(7):21 View
  2. Irizarry T, DeVito Dabbs A, Curran C. Patient Portals and Patient Engagement: A State of the Science Review. Journal of Medical Internet Research 2015;17(6):e148 View
  3. Zhuang Y, Sheets L, Chen Y, Shae Z, Tsai J, Shyu C. A Patient-Centric Health Information Exchange Framework Using Blockchain Technology. IEEE Journal of Biomedical and Health Informatics 2020;24(8):2169 View
  4. Byczkowski T, Munafo J, Britto M. Family perceptions of the usability and value of chronic disease web-based patient portals. Health Informatics Journal 2014;20(2):151 View
  5. Dixon B, Ofner S, Perkins S, Myers L, Rosenman M, Zillich A, French D, Weiner M, Haggstrom D. Which veterans enroll in a VA health information exchange program?. Journal of the American Medical Informatics Association 2017;24(1):96 View
  6. Crameri K, Maher L, Van Dam P, Prior S. Personal electronic healthcare records: What influences consumers to engage with their clinical data online? A literature review. Health Information Management Journal 2022;51(1):3 View
  7. Blake J, Schwemmer M, Sade R. The Patient-Surgeon Relationship in the Cyber Era. Thoracic Surgery Clinics 2012;22(4):531 View
  8. Ose D, Baudendistel I, Pohlmann S, Winkler E, Kunz A, Szecsenyi J. Persönliche Patientenakten im Internet. Ein narrativer Review zu Einstellungen, Erwartungen, Nutzung und Effekten. Zeitschrift für Evidenz, Fortbildung und Qualität im Gesundheitswesen 2017;122:9 View
  9. O’Donnell H, Patel V, Kern L, Barrón Y, Teixeira P, Dhopeshwarkar R, Kaushal R. Healthcare Consumers’ Attitudes Towards Physician and Personal Use of Health Information Exchange. Journal of General Internal Medicine 2011;26(9):1019 View
  10. Miles R, Hippe D, Elmore J, Wang C, Payne T, Lee C. Patient Access to Online Radiology Reports. Academic Radiology 2016;23(9):1162 View
  11. Thackeray R, Crookston B, West J. Correlates of Health-Related Social Media Use Among Adults. Journal of Medical Internet Research 2013;15(1):e21 View
  12. Potini V, Weerasuriya D, Lowery-North D, Kellermann A. Commercial Products That Convey Personal Health Information in Emergencies. Disaster Medicine and Public Health Preparedness 2011;5(4):261 View
  13. Crouch E, Gordon N. Prevalence and Factors Influencing Use of Internet and Electronic Health Resources by Middle-Aged and Older Adults in a US Health Plan Population: Cross-Sectional Survey Study. JMIR Aging 2019;2(1):e11451 View
  14. Zhou L, DeAlmeida D, Parmanto B. Applying a User-Centered Approach to Building a Mobile Personal Health Record App: Development and Usability Study. JMIR mHealth and uHealth 2019;7(7):e13194 View
  15. Brown S, Jouni H, Marroush T, Kullo I. Disclosing Genetic Risk for Coronary Heart Disease: Attitudes Toward Personal Information in Health Records. American Journal of Preventive Medicine 2017;52(4):499 View
  16. Qiao Y, Asan O, Montague E. Factors associated with patient trust in electronic health records used in primary care settings. Health Policy and Technology 2015;4(4):357 View
  17. Ware P, Bartlett S, Paré G, Symeonidis I, Tannenbaum C, Bartlett G, Poissant L, Ahmed S. Using eHealth Technologies: Interests, Preferences, and Concerns of Older Adults. Interactive Journal of Medical Research 2017;6(1):e3 View
  18. Fernández Alemán J, Hernández I, Sánchez García A. Encuesta de opinión sobre el uso de historias personales de salud en la Región de Murcia. Gaceta Sanitaria 2013;27(5):454 View
  19. Mäenpää T, Asikainen P, Suominen T. Views of patient, healthcare professionals and administrative staff on flow of information and collaboration in a regional health information exchange: a qualitative study. Scandinavian Journal of Caring Sciences 2017;31(4):939 View
  20. Roehrs A, da Costa C, Righi R, de Oliveira K. Personal Health Records: A Systematic Literature Review. Journal of Medical Internet Research 2017;19(1):e13 View
  21. Bhatia R, Taneja U. Factors Affecting Indian Consumers’ Intention to Use eHealth Services. Journal of Health Management 2019;21(2):258 View
  22. Thompson M, Reilly J, Valdez R. Work system barriers to patient, provider, and caregiver use of personal health records: A systematic review. Applied Ergonomics 2016;54:218 View
  23. Razmak J, Bélanger C. Using the technology acceptance model to predict patient attitude toward personal health records in regional communities. Information Technology & People 2018;31(2):306 View
  24. Kim K, Joseph J, Ohno-Machado L. Comparison of consumers’ views on electronic data sharing for healthcare and research. Journal of the American Medical Informatics Association 2015;22(4):821 View
  25. Asan O, Cooper II F, Nagavally S, Walker R, Williams J, Ozieh M, Egede L. Preferences for Health Information Technologies Among US Adults: Analysis of the Health Information National Trends Survey. Journal of Medical Internet Research 2018;20(10):e277 View
  26. Gordon P, Camhi E, Hesse R, Odlum M, Schnall R, Rodriguez M, Valdez E, Bakken S. Processes and outcomes of developing a continuity of care document for use as a personal health record by people living with HIV/AIDS in New York City. International Journal of Medical Informatics 2012;81(10):e63 View
  27. Hall M, Herda M, Handorf E, Rybak C, Keleher C, Siemon M, Daly M. Direct-to-patient disclosure of results of mismatch repair screening for Lynch syndrome via electronic personal health record: a feasibility study. Genetics in Medicine 2014;16(11):854 View
  28. Edmonds S, Lou Y, Robinson B, Cram P, Roblin D, Wright N, Saag K, Wolinsky F. Characteristics of older adults using patient web portals to view their DXA results. BMC Medical Informatics and Decision Making 2019;19(1) View
  29. Moon L. Factors influencing health data sharing preferences of consumers: A critical review. Health Policy and Technology 2017;6(2):169 View
  30. Gulliver A, Bennett K, Bennett A, Farrer L, Reynolds J, Griffiths K. Privacy Issues in the Development of a Virtual Mental Health Clinic for University Students: A Qualitative Study. JMIR Mental Health 2015;2(1):e9 View
  31. Duplaga M. Acceptance of Internet-Based Health Care Services Among Households in Poland: Secondary Analysis of a Population-Based Survey. Journal of Medical Internet Research 2012;14(6):e164 View
  32. Baudendistel I, Winkler E, Kamradt M, Brophy S, Längst G, Eckrich F, Heinze O, Bergh B, Szecsenyi J, Ose D. Cross-sectoral cancer care: views from patients and health care professionals regarding a personal electronic health record. European Journal of Cancer Care 2017;26(2):e12429 View
  33. Mayberry L, Kripalani S, Rothman R, Osborn C. Bridging the Digital Divide in Diabetes: Family Support and Implications for Health Literacy. Diabetes Technology & Therapeutics 2011;13(10):1005 View
  34. Liu C, Tsai Y, Jang F. Patients’ Acceptance towards a Web-Based Personal Health Record System: An Empirical Study in Taiwan. International Journal of Environmental Research and Public Health 2013;10(10):5191 View
  35. Baudendistel I, Winkler E, Kamradt M, Längst G, Eckrich F, Heinze O, Bergh B, Szecsenyi J, Ose D. Personal Electronic Health Records: Understanding User Requirements and Needs in Chronic Cancer Care. Journal of Medical Internet Research 2015;17(5):e121 View
  36. Jackson D, Chou W, Coa K, Oh A, Hesse B. Implications of social media use on health information technology engagement: Data from HINTS 4 cycle 3. Translational Behavioral Medicine 2016;6(4):566 View
  37. Fernández-Alemán J, Seva-Llor C, Toval A, Ouhbi S, Fernández-Luque L. Free Web-based Personal Health Records: An Analysis of Functionality. Journal of Medical Systems 2013;37(6) View
  38. Esmaeilzadeh P, Sambasivan M. Patients’ support for health information exchange: a literature review and classification of key factors. BMC Medical Informatics and Decision Making 2017;17(1) View
  39. Garrido T, Meng D, Wang J, Palen T, Kanter M. Secure E-mailing Between Physicians and Patients. Journal of Ambulatory Care Management 2014;37(3):211 View
  40. Luque A, van Keken A, Winters P, Keefer M, Sanders M, Fiscella K. Barriers and Facilitators of Online Patient Portals to Personal Health Records Among Persons Living With HIV: Formative Research. JMIR Research Protocols 2013;2(1):e8 View
  41. Ancker J, Silver M, Kaushal R. Rapid Growth in Use of Personal Health Records in New York, 2012–2013. Journal of General Internal Medicine 2014;29(6):850 View
  42. Vodicka E, Mejilla R, Leveille S, Ralston J, Darer J, Delbanco T, Walker J, Elmore J. Online Access to Doctors' Notes: Patient Concerns About Privacy. Journal of Medical Internet Research 2013;15(9):e208 View
  43. Trachtenbarg D, Asche C, Ramsahai S, Duling J, Ren J. The benefits, risks and costs of privacy: patient preferences and willingness to pay. Current Medical Research and Opinion 2017;33(5):845 View
  44. Esmaeilzadeh P. Challenges and Opportunities of Health Information Exchange (HIE) From Health Consumers' Perspective. International Journal of E-Health and Medical Communications 2018;9(3):20 View
  45. Huerta T, Hefner J, Ford E, McAlearney A, Menachemi N. Hospital Website Rankings in the United States: Expanding Benchmarks and Standards for Effective Consumer Engagement. Journal of Medical Internet Research 2014;16(2):e64 View
  46. Turvey C, Klein D, Fix G, Hogan T, Woods S, Simon S, Charlton M, Vaughan-Sarrazin M, Zulman D, Dindo L, Wakefield B, Graham G, Nazi K. Blue Button use by patients to access and share health record information using the Department of Veterans Affairs' online patient portal. Journal of the American Medical Informatics Association 2014;21(4):657 View
  47. Heath M, Appan R, Gudigantala N. Exploring Health Information Exchange (HIE) Through Collaboration Framework: Normative Guidelines for IT Leadership of Healthcare Organizations. Information Systems Management 2017;34(2):137 View
  48. Feldman S, Bhavsar G, Schooley B. Consumer perceptions of health IT utilization and benefits. JAMIA Open 2019;2(1):99 View
  49. Cocosila M, Archer N. Perceptions of chronically ill and healthy consumers about electronic personal health records: a comparative empirical investigation. BMJ Open 2014;4(7):e005304 View
  50. Goto Y, Nagase T. Oncology Information on the Internet. Japanese Journal of Clinical Oncology 2012;42(5):368 View
  51. Ancker J, Edwards A, Miller M, Kaushal R. Consumer Perceptions of Electronic Health Information Exchange. American Journal of Preventive Medicine 2012;43(1):76 View
  52. Esmaeilzadeh P. Healthcare consumers' opt-in intentions to Health Information Exchanges (HIEs): An empirical study. Computers in Human Behavior 2018;84:114 View
  53. Gordon N, Crouch E. Digital Information Technology Use and Patient Preferences for Internet-Based Health Education Modalities: Cross-Sectional Survey Study of Middle-Aged and Older Adults With Chronic Health Conditions. JMIR Aging 2019;2(1):e12243 View
  55. Medford-Davis L, Chang L, Rhodes K. Health Information Exchange: What do patients want?. Health Informatics Journal 2017;23(4):268 View
  56. TAMERGENCER Z, HAYTA S. A Study on Acne Patients’ Levels of Obtaining Information Through Social Media and Applying These Information. Erciyes İletişim Dergisi 2019;6(1):527 View
  57. Ancker J, Silver M, Miller M, Kaushal R. Consumer experience with and attitudes toward health information technology: a nationwide survey. Journal of the American Medical Informatics Association 2013;20(1):152 View
  58. Cristofaro M, Piselli P, Pianura E, Petrone A, Cimaglia C, Di Stefano F, Albarello F, Schininà V. Patient Access to an Online Portal for Outpatient Radiological Images and Reports: Two Years’ Experience. Journal of Digital Imaging 2020;33(6):1479 View
  59. LeRouge C, Van Slyke C, Seale D, Wright K. Baby Boomers’ Adoption of Consumer Health Technologies: Survey on Readiness and Barriers. Journal of Medical Internet Research 2014;16(9):e200 View
  60. Anthony D, Campos-Castillo C. A looming digital divide? Group differences in the perceived importance of electronic health records. Information, Communication & Society 2015;18(7):832 View
  61. Yeo Y, Park J, Roh S, Levkoff S. Use of electronic personal health records (PHRs) for complementary and alternative medicine (CAM) disclosure: Implications for integrative health care. Complementary Therapies in Medicine 2016;26:108 View
  62. Patel V, Beckjord E, Moser R, Hughes P, Hesse B. The Role of Health Care Experience and Consumer Information Efficacy in Shaping Privacy and Security Perceptions of Medical Records: National Consumer Survey Results. JMIR Medical Informatics 2015;3(2):e14 View
  63. Bouras A, Simoes E, Boren S, Hicks L, Zachary I, Buck C, Dhingra S, Ellis R. Non-Hispanic White Mothers’ Willingness to Share Personal Health Data With Researchers: Survey Results From an Opt-in Panel. Journal of Participatory Medicine 2020;12(2):e14062 View
  64. Greco G, Patel A, Lewis S, Shi W, Rasul R, Torosyan M, Erickson B, Hiremath A, Moskowitz A, Tellis W, Siegel E, Arenson R, Mendelson D. Patient-directed Internet-based Medical Image Exchange:. Academic Radiology 2016;23(2):237 View
  65. Graetz I, Gordon N, Fung V, Hamity C, Reed M. The Digital Divide and Patient Portals. Medical Care 2016;54(8):772 View
  66. Aleo C, Hark L, Leiby B, Dai Y, Murchison A, Martinez P, Haller J. Ophthalmic Patients' Utilization of Technology and Social Media: An Assessment to Improve Quality of Care. Telemedicine and e-Health 2014;20(10):887 View
  67. Ose D, Kunz A, Pohlmann S, Hofmann H, Qreini M, Krisam J, Uhlmann L, Jacke C, Winkler E, Salize H, Szecsenyi J. A Personal Electronic Health Record: Study Protocol of a Feasibility Study on Implementation in a Real-World Health Care Setting. JMIR Research Protocols 2017;6(3):e33 View
  68. Sandefer R, Westra B, Khairat S, Pieczkiewicz D, Speedie S. Assessment of Personal Health Care Management and Chronic Disease Prevalence: Comparative Analysis of Demographic, Socioeconomic, and Health-Related Variables. Journal of Medical Internet Research 2018;20(10):e276 View
  69. Tulu B, Trapp A, Strong D, Johnson S, Hoque M, Trudel J, Garber L. An analysis of patient portal utilization: what can we learn about online patient behavior by examining portal click data?. Health Systems 2016;5(1):66 View
  70. Ford E, Huerta T, Schilhavy R, Menachemi N. Effective US Health System Websites: Establishing Benchmarks and Standards for Effective Consumer Engagement. Journal of Healthcare Management 2012;57(1):47 View
  71. Bhatia R. Telehealth and COVID-19: Using technology to accelerate the curve on access and quality healthcare for citizens in India. Technology in Society 2021;64:101465 View
  72. Haas M, He S, Sternberg K, Jordan J, Deiorio N, Chan T, Yarris L. Reimagining Residency Selection: Part 1—A Practical Guide to Recruitment in the Post-COVID-19 Era. Journal of Graduate Medical Education 2020;12(5):539 View
  73. Esmaeilzadeh P, Dharanikota S, Mirzaei T. The role of patient engagement in patient-centric health information exchange (HIE) initiatives: an empirical study in the United States. Information Technology & People 2021 View
  74. Calvano J, Fundingsland Jr E, Lai D, Silacci S, Raja A, He S. Applying Website Rankings to Digital Health Centers in the United States to Assess Public Engagement: Website Usability Study. JMIR Human Factors 2021;8(1):e20721 View
  75. Elkefi S, Yu Z, Asan O. Online Medical Record Nonuse Among Patients: Data Analysis Study of the 2019 Health Information National Trends Survey. Journal of Medical Internet Research 2021;23(2):e24767 View
  76. Kim H, Kim H, Juon H. Racial/Ethnic Disparities in Patient-Provider Communication and the Role of E-Health Use. Journal of Health Communication 2021;26(3):194 View
  77. Park H, Kim K, Chung H, Jeong S, Soh J, Hyun Y, Kim H. A Worker-Centered Personal Health Record App for Workplace Health Promotion Using National Health Care Data Sets: Design and Development Study. JMIR Medical Informatics 2021;9(8):e29184 View
  78. Nguyen O, Renfro C, Hughes J, Kumar S, Alishahi Tabriz A, Hong Y, Hanna K, Feldman S, Schlossman D, Turner K. Patients’ use of smartphone apps for health record access in 2019: A cross-sectional study. International Journal of Medical Informatics 2022;166:104858 View
  79. Mandel J, Pollak J, Mandl K. The Patient Role in a Federal National-Scale Health Information Exchange. Journal of Medical Internet Research 2022;24(11):e41750 View
  80. Sunkara P, Powell L, Quick J, Landis G. A Comprehensive Assessment of Cleft Lip and Palate Websites and Patient Education Information. The Cleft Palate Craniofacial Journal 2024;61(6):945 View
  81. Gale J, Black K, Calvano J, Fundingsland Jr E, Lai D, Silacci S, He S. An Analysis of US Academic Medical Center Websites: Usability Study. Journal of Medical Internet Research 2021;23(12):e27750 View
  82. Pattanaik P, Himanshu U, Bhushan B, Thakur M, Pani A. A study of the adoption behaviour of an Electronic Health Information Exchange System for a Green economy. International Journal of Logistics Research and Applications 2024;27(4):512 View
  83. Aydin G, Kumru S. Paving the way for increased e-health record use: elaborating intentions of Gen-Z. Health Systems 2023;12(3):281 View
  84. Kerns J, Krist A, Longo D, Kuzel A, Woolf S. How patients want to engage with their personal health record: a qualitative study. BMJ Open 2013;3(7):e002931 View

Books/Policy Documents

  1. Kreps G, Wright K, Burke-Garcia A. Environmental Health Literacy. View
  2. Hiwale S, Ulman S, Subbaraman K. Pre-Screening Systems for Early Disease Prediction, Detection, and Prevention. View
  3. Salleh M, Abdullah R, Zakaria N. Advances in Health Management. View
  4. van den Akker M, Deckx L, Vos R, Muth C. Cancer and Chronic Conditions. View
  5. Alzahrani S, Daim T. R&D Management in the Knowledge Era. View
  6. Alzahrani S, Daim T. R&D Management in the Knowledge Era. View