Published on in Vol 7, No 2 (2005):

Expectations of Patients and Physicians Regarding Patient-Accessible Medical Records

Expectations of Patients and Physicians Regarding Patient-Accessible Medical Records

Expectations of Patients and Physicians Regarding Patient-Accessible Medical Records

Journals

  1. Ortega Egea J, Román González M. Explaining physicians’ acceptance of EHCR systems: An extension of TAM with trust and risk factors. Computers in Human Behavior 2011;27(1):319 View
  2. Giardina T, Callen J, Georgiou A, Westbrook J, Greisinger A, Esquivel A, Forjuoh S, Parrish D, Singh H. Releasing test results directly to patients: A multisite survey of physician perspectives. Patient Education and Counseling 2015;98(6):788 View
  3. Baudendistel I, Winkler E, Kamradt M, Brophy S, Längst G, Eckrich F, Heinze O, Bergh B, Szecsenyi J, Ose D. The patients’ active role in managing a personal electronic health record: a qualitative analysis. Supportive Care in Cancer 2015;23(9):2613 View
  4. Ose D, Baudendistel I, Pohlmann S, Winkler E, Kunz A, Szecsenyi J. Persönliche Patientenakten im Internet. Ein narrativer Review zu Einstellungen, Erwartungen, Nutzung und Effekten. Zeitschrift für Evidenz, Fortbildung und Qualität im Gesundheitswesen 2017;122:9 View
  5. Hanauer D, Preib R, Zheng K, Choi S. Patient-initiated electronic health record amendment requests. Journal of the American Medical Informatics Association 2014;21(6):992 View
  6. Park H, Kim K, Soh J, Hyun Y, Jang S, Lee S, Hwang G, Kim H. Factors Influencing Acceptance of Personal Health Record Apps for Workplace Health Promotion: Cross-Sectional Questionnaire Study. JMIR mHealth and uHealth 2020;8(6):e16723 View
  7. Laranjo L, Rodolfo I, Pereira A, de Sá A. Characteristics of Innovators Adopting a National Personal Health Record in Portugal: Cross-Sectional Study. JMIR Medical Informatics 2017;5(4):e37 View
  8. Alpert J, Morris B, Thomson M, Matin K, Brown R. Implications of Patient Portal Transparency in Oncology: Qualitative Interview Study on the Experiences of Patients, Oncologists, and Medical Informaticists. JMIR Cancer 2018;4(1):e5 View
  9. Zhang Z, Genc Y, Xing A, Wang D, Fan X, Citardi D. Lay individuals' perceptions of artificial intelligence (AI)‐empowered healthcare systems. Proceedings of the Association for Information Science and Technology 2020;57(1) View
  10. Huba N, Zhang Y. Designing Patient-Centered Personal Health Records (PHRs): Health Care Professionals’ Perspective on Patient-Generated Data. Journal of Medical Systems 2012;36(6):3893 View
  11. Jackson S, Mejilla R, Darer J, Oster N, Ralston J, Leveille S, Walker J, Delbanco T, Elmore J. Patients Who Share Transparent Visit Notes With Others: Characteristics, Risks, and Benefits. Journal of Medical Internet Research 2014;16(11):e247 View
  12. Brandt R, Rice R. Building a better PHR paradigm: Lessons from the discontinuation of Google Health™. Health Policy and Technology 2014;3(3):200 View
  13. de Lusignan S, Mold F, Sheikh A, Majeed A, Wyatt J, Quinn T, Cavill M, Gronlund T, Franco C, Chauhan U, Blakey H, Kataria N, Barker F, Ellis B, Koczan P, Arvanitis T, McCarthy M, Jones S, Rafi I. Patients' online access to their electronic health records and linked online services: a systematic interpretative review. BMJ Open 2014;4(9):e006021 View
  14. Wass S, Vimarlund V. Same, same but different: Perceptions of patients’ online access to electronic health records among healthcare professionals. Health Informatics Journal 2019;25(4):1538 View
  15. Ploner N, Neurath M, Schoenthaler M, Zielke A, Prokosch H. Concept to gain trust for a German personal health record system using public cloud and FHIR. Journal of Biomedical Informatics 2019;95:103212 View
  16. Archer N, Fevrier-Thomas U, Lokker C, McKibbon K, Straus S. Personal health records: a scoping review. Journal of the American Medical Informatics Association 2011;18(4):515 View
  17. Baudendistel I, Winkler E, Kamradt M, Längst G, Eckrich F, Heinze O, Bergh B, Szecsenyi J, Ose D. Personal Electronic Health Records: Understanding User Requirements and Needs in Chronic Cancer Care. Journal of Medical Internet Research 2015;17(5):e121 View
  18. van der Vaart R, Drossaert C, Taal E, van de Laar M. Giving rheumatology patients online home access to their electronic medical record (EMR): advantages, drawbacks and preconditions according to care providers. Rheumatology International 2013;33(9):2405 View
  19. Nazi K, Hogan T, McInnes D, Woods S, Graham G. Evaluating Patient Access to Electronic Health Records. Medical Care 2013;51:S52 View
  20. Rodriguez E, Thom B, Schneider S. Nurse and Physician Perspectives on Patients With Cancer Having Online Access to Their Laboratory Results. Oncology Nursing Forum 2011;38(4):476 View
  21. Ronda M, Dijkhorst-Oei L, Rutten G. Reasons and Barriers for Using a Patient Portal: Survey Among Patients With Diabetes Mellitus. Journal of Medical Internet Research 2014;16(11):e263 View
  22. Baudendistel I, Winkler E, Kamradt M, Brophy S, Längst G, Eckrich F, Heinze O, Bergh B, Szecsenyi J, Ose D. Cross-sectoral cancer care: views from patients and health care professionals regarding a personal electronic health record. European Journal of Cancer Care 2017;26(2):e12429 View
  23. Bergevi C, Lendahls L, Crang-Svalenius E, Oscarsson M. From passive passenger to participating co-pilot – Pregnant women’s expectations of being able to access their online journal from antenatal care. Sexual & Reproductive Healthcare 2018;15:35 View
  24. Archer N, Cocosila M. A Comparison of Physician Pre-Adoption and Adoption Views on Electronic Health Records in Canadian Medical Practices. Journal of Medical Internet Research 2011;13(3):e57 View
  25. Hsiao C, Jha A, King J, Patel V, Furukawa M, Mostashari F. Office-Based Physicians Are Responding To Incentives And Assistance By Adopting And Using Electronic Health Records. Health Affairs 2013;32(8):1470 View
  26. Vermeir P, Degroote S, Vandijck D, Van Tiggelen H, Peleman R, Verhaeghe R, Mariman A, Vogelaers D. The patient perspective on the effects of medical record accessibility: a systematic review. Acta Clinica Belgica 2017;72(3):186 View
  27. de Graaf M, Totté J, van Os-Medendorp H, van Renselaar W, Breugem C, Pasmans S. Treatment of Infantile Hemangioma in Regional Hospitals With eHealth Support: Evaluation of Feasibility and Acceptance by Parents and Doctors. JMIR Research Protocols 2014;3(4):e52 View
  28. Atkinson N, Massett H, Mylks C, Hanna B, Deering M, Hesse B. User-Centered Research on Breast Cancer Patient Needs and Preferences of an Internet-Based Clinical Trial Matching System. Journal of Medical Internet Research 2007;9(2):e13 View
  29. Tuil W, ten Hoopen A, Braat D, de Vries Robbé P, Kremer J. Patient-centred care: using online personal medical records in IVF practice. Human Reproduction 2006;21(11):2955 View
  30. Zanaboni P, Kummervold P, Sørensen T, Johansen M. Patient Use and Experience With Online Access to Electronic Health Records in Norway: Results From an Online Survey. Journal of Medical Internet Research 2020;22(2):e16144 View
  31. van der Vaart R, Drossaert C, de Heus M, Taal E, van de Laar M. Measuring Actual eHealth Literacy Among Patients With Rheumatic Diseases: a Qualitative Analysis of Problems Encountered Using Health 1.0 and Health 2.0 Applications. Journal of Medical Internet Research 2013;15(2):e27 View
  32. Kind E, Fowles J, Craft C, Kind A, Richter S. No Change in Physician Dictation Patterns When Visit Notes Are Made Available Online for Patients. Mayo Clinic Proceedings 2011;86(5):397 View
  33. Jilka S, Callahan R, Sevdalis N, Mayer E, Darzi A. “Nothing About Me Without Me”: An Interpretative Review of Patient Accessible Electronic Health Records. Journal of Medical Internet Research 2015;17(6):e161 View
  34. Helou S, Abou-Khalil V, Yamamoto G, Kondoh E, Tamura H, Hiragi S, Sugiyama O, Okamoto K, Nambu M, Kuroda T. Understanding the EMR-Related Experiences of Pregnant Japanese Women to Redesign Antenatal Care EMR Systems. Informatics 2019;6(2):15 View
  35. Sabahi A, Ahmadian L, Mirzaee M. Communicating laboratory results through a Web site: Patients' priorities and viewpoints. Journal of Clinical Laboratory Analysis 2018;32(6) View
  36. Esch T, Mejilla R, Anselmo M, Podtschaske B, Delbanco T, Walker J. Engaging patients through open notes: an evaluation using mixed methods. BMJ Open 2016;6(1):e010034 View
  37. Miller Jr D, Latulipe C, Melius K, Quandt S, Arcury T. Primary Care Providers’ Views of Patient Portals: Interview Study of Perceived Benefits and Consequences. Journal of Medical Internet Research 2016;18(1):e8 View
  38. Vermeir P, Degroote S, Van Tiggelen H, Vandijck D, Peleman R, Verhaeghe R, Mariman A, Vermeersch H, Vogelaers D. Patient perspectives on electronic health record accessibility and patient participation: a questionnaire survey. Acta Clinica Belgica 2018;73(4):292 View
  39. Ammar N, Bailey J, Davis R, Shaban-Nejad A. Using a Personal Health Library–Enabled mHealth Recommender System for Self-Management of Diabetes Among Underserved Populations: Use Case for Knowledge Graphs and Linked Data. JMIR Formative Research 2021;5(3):e24738 View
  40. Huvila I, Cajander Å, Daniels M, Åhlfeldt R. Patients' perceptions of their medical records from different subject positions. Journal of the Association for Information Science and Technology 2015;66(12):2456 View
  41. Trubitt M, Alozie O, Shokar G, Flores S, Shokar N. Patterns and Correlates of Internet Use, Cell Phone Use, and Attitudes Toward Patient Portals Among a Predominantly Mexican-American Clinic Population. Telemedicine and e-Health 2018;24(11):861 View
  42. Halaska C, Sachs P, Sanfilippo K, Lin C. Patient Attitudes About Viewing Their Radiology Images Online: Preintervention Survey. Journal of Medical Internet Research 2019;21(7):e12595 View
  43. Emani S, Yamin C, Peters E, Karson A, Lipsitz S, Wald J, Williams D, Bates D. Patient Perceptions of a Personal Health Record: A Test of the Diffusion of Innovation Model. Journal of Medical Internet Research 2012;14(6):e150 View
  44. van der Vaart R, Drossaert C, Taal E, Drossaers-Bakker K, Vonkeman H, van de Laar M. Impact of patient-accessible electronic medical records in rheumatology: use, satisfaction and effects on empowerment among patients. BMC Musculoskeletal Disorders 2014;15(1) View
  45. Oeffinger K, McCabe M. Models for Delivering Survivorship Care. Journal of Clinical Oncology 2006;24(32):5117 View
  46. Flynn D, Gregory P, Makki H, Gabbay M. Expectations and experiences of eHealth in primary care: A qualitative practice-based investigation. International Journal of Medical Informatics 2009;78(9):588 View
  47. Hammar T, Nyström S, Petersson G, Åstrand B, Rydberg T. Patients satisfied with e-prescribing in Sweden: a survey of a nationwide implementation. Journal of Pharmaceutical Health Services Research 2011;2(2):97 View
  48. Antonio M, Petrovskaya O, Lau F. Is research on patient portals attuned to health equity? A scoping review. Journal of the American Medical Informatics Association 2019;26(8-9):871 View
  49. Shaverdian N, Chang E, Chu F, Morasso E, Pfeffer M, Cheng E, Wu A, McCloskey S, Raldow A, Steinberg M. Impact of Open Access to Physician Notes on Radiation Oncology Patients: Results from an Exploratory Survey. Practical Radiation Oncology 2019;9(2):102 View
  50. Zarcadoolas C, Vaughon W, Czaja S, Levy J, Rockoff M. Consumers' Perceptions of Patient-Accessible Electronic Medical Records. Journal of Medical Internet Research 2013;15(8):e168 View
  51. Mold F, de Lusignan S. Patients’ Online Access to Their Primary Care Electronic Health Records and Linked Online Services: Implications for Research and Practice. Journal of Personalized Medicine 2015;5(4):452 View
  52. Johansson I, Vikkelsø S. Mobilizing information infrastructure, shaping patient‐centred care. International Journal of Public Sector Management 2010;23(4):340 View
  53. Leveille S, Walker J, Ralston J, Ross S, Elmore J, Delbanco T. Evaluating the impact of patients' online access to doctors' visit notes: designing and executing the OpenNotes project. BMC Medical Informatics and Decision Making 2012;12(1) View
  54. Callen J, Giardina T, Singh H, Li L, Paoloni R, Georgiou A, Runciman W, Westbrook J. Emergency Physicians’ Views of Direct Notification of Laboratory and Radiology Results to Patients Using the Internet: A Multisite Survey. Journal of Medical Internet Research 2015;17(3):e60 View
  55. Milliat-Guittard L, Charlois A, Letrilliart L, Favrel V, Galand-Desme S, Schott A, Berthoux N, Chapet O, Mere P, Colin C. Shared medical information: Expectations of breast cancer patients. Gynecologic Oncology 2007;107(3):474 View
  56. Kloek C, Bossen D, Veenhof C, van Dongen J, Dekker J, de Bakker D. Effectiveness and cost-effectiveness of a blended exercise intervention for patients with hip and/or knee osteoarthritis: study protocol of a randomized controlled trial. BMC Musculoskeletal Disorders 2014;15(1) View
  57. Wells S, Mahony F, Huang Y, Day K. Perspectives of New Zealand patients and GPs at the beginning of patient portal implementation. Journal of Primary Health Care 2019;11(4):315 View
  58. Woods S, Schwartz E, Tuepker A, Press N, Nazi K, Turvey C, Nichol W. Patient Experiences With Full Electronic Access to Health Records and Clinical Notes Through the My HealtheVet Personal Health Record Pilot: Qualitative Study. Journal of Medical Internet Research 2013;15(3):e65 View
  59. Wiljer D, Urowitz S, Apatu E, DeLenardo C, Eysenbach G, Harth T, Pai H, Leonard K. Patient Accessible Electronic Health Records: Exploring Recommendations for Successful Implementation Strategies. Journal of Medical Internet Research 2008;10(4):e34 View
  60. Montelius E, Åstrand B, Hovstadius B, Petersson G. Individuals Appreciate Having Their Medication Record on the Web: A Survey of Attitudes to a National Pharmacy Register. Journal of Medical Internet Research 2008;10(4):e35 View
  61. Van Roy K. Het gebruik van elektronische patiëntenportalen. Huisarts Nu 2017;46(1):4 View
  62. Zhang Z, Citardi D, Wang D, Genc Y, Shan J, Fan X. Patients’ perceptions of using artificial intelligence (AI)-based technology to comprehend radiology imaging data. Health Informatics Journal 2021;27(2):146045822110112 View
  63. Zhang Z, Genc Y, Wang D, Ahsen M, Fan X. Effect of AI Explanations on Human Perceptions of Patient-Facing AI-Powered Healthcare Systems. Journal of Medical Systems 2021;45(6) View
  64. Zanaboni P, Kristiansen E, Lintvedt O, Wynn R, Johansen M, Sørensen T, Fagerlund A. Impact on patient-provider relationship and documentation practices when mental health patients access their electronic health records online: a qualitative study among health professionals in an outpatient setting. BMC Psychiatry 2022;22(1) View
  65. Agrawal L, Ndabu T, Mulgund P, Sharman R. Factors Affecting the Extent of Patients’ Electronic Medical Record Use: An Empirical Study Focusing on System and Patient Characteristics. Journal of Medical Internet Research 2021;23(10):e30637 View
  66. Schwarz J, Bärkås A, Blease C, Collins L, Hägglund M, Markham S, Hochwarter S. Sharing Clinical Notes and Electronic Health Records With People Affected by Mental Health Conditions: Scoping Review. JMIR Mental Health 2021;8(12):e34170 View
  67. Müller J, Weinert L, Svensson L, Rivinius R, Kreusser M, Heinze O. Mobile Access to Medical Records in Heart Transplantation Aftercare: Mixed-Methods Study Assessing Usability, Feasibility and Effects of a Mobile Application. Life 2022;12(8):1204 View

Books/Policy Documents

  1. Wicks P, Little M. Handbook of Human Computation. View
  2. Mirza F, Mirza A, Chung C, Sundaram D. Future Network Systems and Security. View
  3. Staccini P, Daniel C, Dart T, Bouhaddou O. Medical Informatics, e-Health. View
  4. Ammar N, Bailey J, Davis R, Shaban-Nejad A. Explainable AI in Healthcare and Medicine. View
  5. . From Patient Data to Medical Knowledge. View