Participatory Medicine & E-Patients

Impact and Perceived Value of iGeriCare e-Learning Among Dementia Care Partners and Others: Pilot Evaluation Using the IAM4all Questionnaire

Andrew F Scott, Stephanie Ayers, Pierre Pluye, Roland Grad, Richard Sztramko, Sharon Marr, Alexandra Papaioannou, Sandra Clark, Patricia Gerantonis, Anthony J Levinson

JMIR Aging 2022 (Dec 22); 5(4):e40357

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Patient Trust in Physicians Matters—Understanding the Role of a Mobile Patient Education System and Patient-Physician Communication in Improving Patient Adherence Behavior: Field Study

Dezhi Wu, Paul Benjamin Lowry, Dongsong Zhang, Youyou Tao

J Med Internet Res 2022 (Dec 20); 24(12):e42941

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Racial Disparities in Patient-Provider Communication During Telehealth Visits Versus Face-to-face Visits Among Asian and Native Hawaiian and Other Pacific Islander Patients With Cancer: Cross-sectional Analysis

Jared D Acoba, Chelsea Yin, Michael Meno, Justin Abe, Ian Pagano, Sharon Tamashiro, Kristy Fujinaga, Christa Braun-Inglis, Jami Fukui

JMIR Cancer 2022 (Dec 09); 8(4):e37272

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Digital Platform Uses for Help and Support Seeking of Parents With Children Affected by Disabilities: Scoping Review

Oliver Gruebner, Afua van Haasteren, Anna Hug, Suzanne Elayan, Martin Sykora, Emiliano Albanese, John Naslund, Markus Wolf, Marta Fadda, Michael von Rhein

J Med Internet Res 2022 (Dec 06); 24(12):e37972

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The Web-Based Advance Care Planning Program “Explore Your Preferences for Treatment and Care”: Development, Pilot Study, and Before-and-After Evaluation

Doris van der Smissen, Judith A C Rietjens, Sandra van Dulmen, Ton Drenthen, F Ragnhild M D Vrijaldenhoven-Haitsma, Marijke Wulp, Agnes van der Heide, Ida J Korfage

J Med Internet Res 2022 (Dec 02); 24(12):e38561

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Spotlighting Disability in a Major Electronic Health Record: Michigan Medicine’s Disability and Accommodations Tab

Heather Halkides, Tyler G James, Michael M McKee, Michelle A Meade, Christa Moran, Sophia Park

JMIR Form Res 2022 (Dec 02); 6(12):e38003

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Meeting the Burden of Self-management: Qualitative Study Investigating the Empowering Behaviors of Patients and Informal Caregivers

Therese Scott Duncan, Jon Engström, Sara Riggare, Maria Hägglund, Sabine Koch

J Particip Med 2022 (Nov 16); 14(1):e39174

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Supporting Shared Decision-making About Surveillance After Breast Cancer With Personalized Recurrence Risk Calculations: Development of a Patient Decision Aid Using the International Patient Decision AIDS Standards Development Process in Combination With a Mixed Methods Design

Jet Wies Ankersmid, Sabine Siesling, Luc J A Strobbe, Johanna M Meulepas, Yvonne E A van Riet, Noel Engels, Janine C M Prick, Regina The, Asako Takahashi, Mirjam Velting, Cornelia F van Uden-Kraan, Constance H C Drossaert

JMIR Cancer 2022 (Nov 14); 8(4):e38088

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From Individuals to Systems and Contributions to Creations: Novel Framework for Mapping the Efforts of Individuals by Convening The Center of Health and Health Care

Dana Lewis, Liz Salmi, Alicia Staley, John Harlow

J Particip Med 2022 (Nov 03); 14(1):e39339

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Investigating the Provision and Context of Use of Hearing Aid Listening Programs From Real-world Data: Observational Study

Alessandro Pasta, Tiberiu-Ioan Szatmari, Jeppe Høy Christensen, Kasper Juul Jensen, Niels Henrik Pontoppidan, Kang Sun, Jakob Eg Larsen

J Med Internet Res 2022 (Oct 17); 24(10):e36671

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The Burden of Disease in Alopecia Areata: Canadian Online Survey of Patients and Caregivers

Anthony Justin Gilding, Nhung Ho, Elena Pope, Cathryn Sibbald

JMIR Dermatol 2022 (Oct 06); 5(4):e39167

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From Testers to Cocreators—the Value of and Approaches to Successful Patient Engagement in the Development of eHealth Solutions: Qualitative Expert Interview Study

Christine Jacob, Steven Bourke, Sabina Heuss

JMIR Hum Factors 2022 (Oct 06); 9(4):e41481

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Patient-Reported Outcome Dashboards Within the Electronic Health Record to Support Shared Decision-making: Protocol for Co-design and Clinical Evaluation With Patients With Advanced Cancer and Chronic Kidney Disease

Laura M Perry, Victoria Morken, John D Peipert, Betina Yanez, Sofia F Garcia, Cynthia Barnard, Lisa R Hirschhorn, Jeffrey A Linder, Neil Jordan, Ronald T Ackermann, Alexandra Harris, Sheetal Kircher, Nisha Mohindra, Vikram Aggarwal, Rebecca Frazier, Ava Coughlin, Katy Bedjeti, Melissa Weitzel, Eugene C Nelson, Glyn Elwyn, Aricca D Van Citters, Mary O'Connor, David Cella

JMIR Res Protoc 2022 (Sep 21); 11(9):e38461

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COVID-19’s Impact on Digital Health Adoption: The Growing Gap Between a Technological and a Cultural Transformation

Bertalan Meskó

JMIR Hum Factors 2022 (Sep 19); 9(3):e38926

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Digital Health Literacy as a Predictor of Awareness, Engagement, and Use of a National Web-Based Personal Health Record: Population-Based Survey Study

Christina Cheng, Emma Gearon, Melanie Hawkins, Crystal McPhee, Lisa Hanna, Roy Batterham, Richard H Osborne

J Med Internet Res 2022 (Sep 16); 24(9):e35772

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Public Deliberation Process on Patient Perspectives on Health Information Sharing: Evaluative Descriptive Study

Minakshi Raj, Kerry Ryan, Paige Nong, Karen Calhoun, M Grace Trinidad, Raymond De Vries, Melissa Creary, Kayte Spector-Bagdady, Sharon L R Kardia, Jodyn Platt

JMIR Cancer 2022 (Sep 16); 8(3):e37793

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Patient Design: The Importance of Including Patients in Designing Health Care

Bertalan Meskó, Dave deBronkart

J Med Internet Res 2022 (Aug 31); 24(8):e39178

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Evaluating a Global Assessment Measure Created by Standardized Patients for the Multiple Mini Interview in Medical School Admissions: Mixed Methods Study

Ann Blair Kennedy, Cindy Nessim Youssef Riyad, Ryan Ellis, Perry R Fleming, Mallorie Gainey, Kara Templeton, Anna Nourse, Virginia Hardaway, April Brown, Pam Evans, Nabil Natafgi

J Particip Med 2022 (Aug 30); 14(1):e38209

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Digital Patient Experience: Umbrella Systematic Review

Tingting Wang, Guido Giunti, Marijke Melles, Richard Goossens

J Med Internet Res 2022 (Aug 04); 24(8):e37952

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Moving to Personalized Medicine Requires Personalized Health Plans

Adam Powell, Paul Dolan

J Particip Med 2022 (Aug 04); 14(1):e35798

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