Ethics, Privacy, and Legal Issues

Articles published in 2022 in this theme: 71 (scroll down to load remaining articles)

2022

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A Hybrid Architecture (CO-CONNECT) to Facilitate Rapid Discovery and Access to Data Across the United Kingdom in Response to the COVID-19 Pandemic: Development Study

Emily Jefferson, Christian Cole, Shahzad Mumtaz, Samuel Cox, Thomas Charles Giles, Sam Adejumo, Esmond Urwin, Daniel Lea, Calum Macdonald, Joseph Best, Erum Masood, Gordon Milligan, Jenny Johnston, Scott Horban, Ipek Birced, Christopher Hall, Aaron S Jackson, Clare Collins, Sam Rising, Charlotte Dodsley, Jill Hampton, Andrew Hadfield, Roberto Santos, Simon Tarr, Vasiliki Panagi, Joseph Lavagna, Tracy Jackson, Antony Chuter, Jillian Beggs, Magdalena Martinez-Queipo, Helen Ward, Julie von Ziegenweidt, Frances Burns, Joanne Martin, Neil Sebire, Carole Morris, Declan Bradley, Rob Baxter, Anni Ahonen-Bishopp, Paul Smith, Amelia Shoemark, Ana M Valdes, Benjamin Ollivere, Charlotte Manisty, David Eyre, Stephanie Gallant, George Joy, Andrew McAuley, David Connell, Kate Northstone, Katie Jeffery, Emanuele Di Angelantonio, Amy McMahon, Mat Walker, Malcolm Gracie Semple, Jessica Mai Sims, Emma Lawrence, Bethan Davies, John Kenneth Baillie, Ming Tang, Gary Leeming, Linda Power, Thomas Breeze, Duncan Murray, Chris Orton, Iain Pierce, Ian Hall, Shamez Ladhani, Natalie Gillson, Matthew Whitaker, Laura Shallcross, David Seymour, Susheel Varma, Gerry Reilly, Andrew Morris, Susan Hopkins, Aziz Sheikh, Philip Quinlan

J Med Internet Res 2022 (Dec 27); 24(12):e40035

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Ethical Issues in the Use of Smartphone Apps for HIV Prevention in Malaysia: Focus Group Study With Men Who Have Sex With Men

Antoine Khati, Jeffrey A Wickersham, Aviana O Rosen, Jeffrey Ralph B Luces, Nicholas Copenhaver, Alma Jeri-Wahrhaftig, Mohd Akbar Ab Halim, Iskandar Azwa, Kamal Gautam, Kai Hong Ooi, Roman Shrestha

JMIR Form Res 2022 (Dec 23); 6(12):e42939

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Perceptions of a Secure Cloud-Based Solution for Data Sharing During Acute Stroke Care: Qualitative Interview Study

Marcela Tuler de Oliveira, Lúcio Henrik Amorim Reis, Henk Marquering, Aeilko H Zwinderman, Sílvia Delgado Olabarriaga

JMIR Form Res 2022 (Dec 23); 6(12):e40061

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Theoretical Approach and Scale Construction of Patient Privacy Protection Behavior of Doctors in Public Medical Institutions in China: Pilot Development Study

Jie Xu, Lu Lu, Kaichen Xing, Huwei Shi, Ruiyao Chen, Yujun Yao, Sichen Liu, Zhongzhou Xiao, Xinwei Peng, Shuqing Luo, Yun Zhong

JMIR Form Res 2022 (Dec 14); 6(12):e39947

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The Reconstruction of Human Fingerprints From High-Resolution Computed Tomography Data: Feasibility Study and Associated Ethical Issues

Orestis L Katsamenis, Charles B Burson-Thomas, Philip J Basford, J Brian Pickering, Martin Browne

J Med Internet Res 2022 (Nov 23); 24(11):e38650

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The Patient Role in a Federal National-Scale Health Information Exchange

Joshua C Mandel, J P Pollak, Kenneth D Mandl

J Med Internet Res 2022 (Nov 04); 24(11):e41750

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Technical, Ethical, Legal, and Societal Challenges With Digital Twin Systems for the Management of Chronic Diseases in Children and Young People

David Drummond, Adrien Coulet

J Med Internet Res 2022 (Oct 31); 24(10):e39698

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The Post-Roe Political Landscape Demands a Morality of Caution for Women’s Health

Sarah Goodday, Daniel Karlin, Christine Suver, Stephen Friend

J Med Internet Res 2022 (Oct 20); 24(10):e41417

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Bridging the European Data Sharing Divide in Genomic Science

Fruzsina Molnár-Gábor, Michael J S Beauvais, Alexander Bernier, Maria Pilar Nicolas Jimenez, Mikel Recuero, Bartha Maria Knoppers

J Med Internet Res 2022 (Oct 19); 24(10):e37236

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Secure Collaborative Platform for Health Care Research in an Open Environment: Perspective on Accountability in Access Control

Giluk Kang, Young-Gab Kim

J Med Internet Res 2022 (Oct 14); 24(10):e37978

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Optimized Informed Consent for Psychotherapy: Protocol for a Randomized Controlled Trial

Leonie Gerke, Sönke Ladwig, Franz Pauls, Manuel Trachsel, Martin Härter, Yvonne Nestoriuc

JMIR Res Protoc 2022 (Sep 30); 11(9):e39843

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Collaborative Challenges of Multi-Cohort Projects in Pharmacogenetics—Why Time Is Essential for Meaningful Collaborations

Filippo Franchini, Katharina Kusejko, Catia Marzolini, Christoph Tellenbach, Simona Rossi, Susanne Stampf, Michael Koller, Jivko Stoyanov, Burkhard Möller, Alexander Benedikt Leichtle

JMIR Form Res 2022 (Sep 29); 6(9):e36759

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Next-Generation Capabilities in Trusted Research Environments: Interview Study

Sanaz Kavianpour, James Sutherland, Esma Mansouri-Benssassi, Natalie Coull, Emily Jefferson

J Med Internet Res 2022 (Sep 20); 24(9):e33720

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Public Deliberation Process on Patient Perspectives on Health Information Sharing: Evaluative Descriptive Study

Minakshi Raj, Kerry Ryan, Paige Nong, Karen Calhoun, M Grace Trinidad, Raymond De Vries, Melissa Creary, Kayte Spector-Bagdady, Sharon L R Kardia, Jodyn Platt

JMIR Cancer 2022 (Sep 16); 8(3):e37793

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Modeling Adoption, Security, and Privacy of COVID-19 Apps: Findings and Recommendations From an Empirical Study Using the Unified Theory of Acceptance and Use of Technology

Nuno Nunes, Greta Adamo, Miguel Ribeiro, Bruna R Gouveia, Elvio Rubio Gouveia, Pedro Teixeira, Valentina Nisi

JMIR Hum Factors 2022 (Sep 14); 9(3):e35434

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Preventing and Protecting Against Internet Research Fraud in Anonymous Web-Based Research: Protocol for the Development and Implementation of an Anonymous Web-Based Data Integrity Plan

Kris L Hohn, April A Braswell, James M DeVita

JMIR Res Protoc 2022 (Sep 12); 11(9):e38550

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Patients’ and Publics’ Preferences for Data-Intensive Health Research Governance: Survey Study

Sam H A Muller, Ghislaine J M W van Thiel, Marilena Vrana, Menno Mostert, Johannes J M van Delden

JMIR Hum Factors 2022 (Sep 07); 9(3):e36797

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A Study of Publicly Available Resources Addressing Legal Data-Sharing Barriers: Systematic Assessment

Mohammad A Karim, Hye-Chung Kum, Cason D Schmit

J Med Internet Res 2022 (Sep 06); 24(9):e39333

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Privacy of Study Participants in Open-access Health and Demographic Surveillance System Data: Requirements Analysis for Data Anonymization

Matthias Templ, Chifundo Kanjala, Inken Siems

JMIR Public Health Surveill 2022 (Sep 02); 8(9):e34472

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Publishing Identifiable Patient Photographs in Scientific Journals: Scoping Review of Policies and Practices

Marija Roguljić, Dina Šimunović, Tina Poklepović Peričić, Marin Viđak, Ana Utrobičić, Matko Marušić, Ana Marušić

J Med Internet Res 2022 (Aug 31); 24(8):e37594

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