Published on 22.12.16 in Vol 18, No 12 (2016): December
Works citing "The Role of Online Social Support in Supporting and Educating Parents of Young Children With Special Health Care Needs in the United States: A Scoping Review"
According to Crossref, the following articles are citing this article (DOI 10.2196/jmir.6722):
(note that this is only a small subset of citations)
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Castro AR, Chougui K, Bilodeau C, Tsimicalis A. Exploring the Views of Osteogenesis Imperfecta Caregivers on Internet-Based Technologies: Qualitative Descriptive Study. Journal of Medical Internet Research 2019;21(12):e15924
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Tikkanen SA, Peterson BL, Parsloe SM. Courtesy Stigma and Social Support: An Exploration of Fathers’ Buffering Strategies and Blocking Rationalizations. Health Communication 2019;34(13):1543
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Pionke JJ, Manson J. Creating Disability LibGuides with Accessibility in Mind. Journal of Web Librarianship 2018;12(1):63
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Donley T, King DM, Nyathi N, Okafor A, Mbizo J. Socioeconomic Status, Family Functioning and Delayed Care Among Children With Special Needs. Social Work in Public Health 2018;33(6):366
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Castro AR, Marinello J, Chougui K, Morand M, Bilodeau C, Tsimicalis A. The day‐to‐day experiences of caring for children with Osteogenesis Imperfecta: A qualitative descriptive study. Journal of Clinical Nursing 2020;29(15-16):2999
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Canty MJ, Breitbart S, Siegel L, Fehlings D, Milo-Manson G, Alotaibi NM, Ibrahim GM. The role of social media in selective dorsal rhizotomy for children: information sharing and social support. Child's Nervous System 2019;35(11):2179
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Boss RD, Raisanen JC, Detwiler K, Fratantoni K, Huff SM, Neubauer K, Donohue PK. Lived Experience of Pediatric Home Health Care Among Families of Children With Medical Complexity. Clinical Pediatrics 2020;59(2):178
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Dol J, Richardson B, Boates T, Campbell-Yeo M. Learning to parent from Google? Evaluation of available online health evidence for parents of preterm infants requiring neonatal intensive care. Health Informatics Journal 2019;25(4):1265
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Ashcraft LE, Asato M, Houtrow AJ, Kavalieratos D, Miller E, Ray KN. Parent Empowerment in Pediatric Healthcare Settings: A Systematic Review of Observational Studies. The Patient - Patient-Centered Outcomes Research 2019;12(2):199
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Johnston EE, Martinez I, Currie E, Brock KE, Wolfe J. Hospital or Home? Where Should Children Die and How Do We Make That a Reality?. Journal of Pain and Symptom Management 2020;60(1):106
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Sinclair M, McCullough JE, Elliott D, Latos-Bielenska A, Braz P, Cavero-Carbonell C, Jamry-Dziurla A, João Santos A, Páramo-Rodríguez L. Exploring Research Priorities of Parents Who Have Children With Down Syndrome, Cleft Lip With or Without Cleft Palate, Congenital Heart Defects, or Spina Bifida Using ConnectEpeople: A Social Media Coproduction Research Study. Journal of Medical Internet Research 2019;21(11):e15847
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Skliarova T, Zaitsev D. Developing Practices of Inclusive Culture Social Services: Interdisciplinary Analysis Challenges and Perspectives. Bulletin of Science and Practice 2019;5(11):343
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Fuller MG, Vaucher YE, Bann CM, Das A, Vohr BR. Lack of social support as measured by the Family Resource Scale screening tool is associated with early adverse cognitive outcome in extremely low birth weight children. Journal of Perinatology 2019;39(11):1546
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Petrenko CL, Parr J, Kautz C, Tapparello C, Olson HC. A Mobile Health Intervention for Fetal Alcohol Spectrum Disorders (Families Moving Forward Connect): Development and Qualitative Evaluation of Design and Functionalities. JMIR mHealth and uHealth 2020;8(4):e14721
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Jansen R, Reid M. Communication Technology Use by Caregivers of Adolescents With Mental Health Issues: Systematic Review. JMIR mHealth and uHealth 2020;8(8):e13179
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Motti VG, Kalantari N, Neris V. Understanding how social media imagery empowers caregivers: an analysis of microcephaly in Latin America. Personal and Ubiquitous Computing 2021;25(2):321
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Ramey L, Osborne C, Kasitinon D, Juengst S. Apps and Mobile Health Technology in Rehabilitation. Physical Medicine and Rehabilitation Clinics of North America 2019;30(2):485
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Davis E, Young D, Gilson K, Reynolds J, Carter R, Tonmukayakul U, Williams K, Gibbs L, McDonald R, Reddihough D, Tracy J, Morgan J, Ireland P, Kenyon C, Carracher R. A Capacity Building Program to Improve the Self-Efficacy of Key Workers to Support the Well-Being of Parents of a Child With a Disability Accessing an Early Childhood Intervention Service: Protocol for a Stepped-Wedge Design Trial. JMIR Research Protocols 2019;8(4):e12531
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Kent de Grey RG, Uchino BN, Baucom BR, Smith TW, Holton AE, Diener EF. Enemies and friends in high-tech places: the development and validation of the Online Social Experiences Measure. DIGITAL HEALTH 2019;5:205520761987835
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Grace R, Kemp L, Barnes J, Elcombe E, Knight J, Baird K, Webster V, Byrne F. Community Volunteer Support for Families With Young Children: Protocol for the Volunteer Family Connect Randomized Controlled Trial. JMIR Research Protocols 2018;7(7):e10000
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Huang K, Lee D, Nakigudde J, Cheng S, Gouley KK, Mann D, Schoenthaler A, Chokshi S, Kisakye EN, Tusiime C, Mendelsohn A. Use of Technology to Promote Child Behavioral Health in the Context of Pediatric Care: A Scoping Review and Applications to Low- and Middle-Income Countries. Frontiers in Psychiatry 2019;10
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Jansen R, Reid M. Interest in Communication Technology by Rural Caregivers of Adolescents with Mental Health Issues in South Africa: The Mmogo-Method®. Issues in Mental Health Nursing 2021;42(1):24
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Jindal P, MacDermid JC, Rosenbaum P, DiRezze B, Narayan A. Perspectives on rehabilitation of children with cerebral palsy: exploring a cross-cultural view of parents from India and Canada using the international classification of functioning, disability and health. Disability and Rehabilitation 2018;40(23):2745
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Fry JT, Frader JE. “We want to do everything”: how parents represent their experiences with maternal–fetal surgery online. Journal of Perinatology 2018;38(3):226
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. Optimal Management of Undescended Testis in Boys with Cerebral Palsy. A Debate. Sexual Development 2019;13(1):20
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. Meeting families where they are: Text‐based support in parent to parent programs. Child: Care, Health and Development 2021;47(2):290
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Uhm J, Kim MS. Predicting Quality of Life among Mothers in an Online Health Community for Children with Type 1 Diabetes. Children 2020;7(11):235
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Buteau-Poulin A, Gosselin C, Bergeron-Ouellet A, Kiss J, Lamontagne M, Maltais D, Trottier C, Desmarais C. Availability and Quality of Web Resources for Parents of Children With Disability: Content Analysis and Usability Study. JMIR Pediatrics and Parenting 2020;3(2):e19669
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Jeffrey A, Andracchio L, Dvorak M, Lomas P, Smith B, Borowitz D. Virtual Peer Support for People With Cystic Fibrosis and Their Family Members: A Program Evaluation. Journal of Patient Experience 2020;7(6):1748
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Fernández-Medina IM, Granero-Molina J, Hernández-Padilla JM, Jiménez-Lasserrotte MDM, Ruiz-Fernández MD, Fernández-Sola C. Socio-family support for parents of technology-dependent extremely preterm infants after hospital discharge. Journal of Child Health Care 2022;26(1):42
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Hanna G, Batko BD, Potter J, Ippolito J, Edobor-Osula F. The role of social media in clubfoot: Information sharing and social support. Journal of Children's Orthopaedics 2021;15(1):81
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Iotova V, Schalin-Jäntti C, Bruegmann P, Broesamle M, De Graaf J, Bratina N, Tillmann V, Pereira AM, Hiort O. Access to patient oriented information—a baseline Endo-ERN survey among patients with rare endocrine disorders. Endocrine 2021;71(3):542
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Schindler M, Domahidi E. The growing field of interdisciplinary research on user comments: A computational scoping review. New Media & Society 2021;23(8):2474
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Deuitch NT, Beckman E, Halley MC, Young JL, Reuter CM, Kohler J, Bernstein JA, Wheeler MT, Ormond KE, Tabor HK. “Doctors can read about it, they can know about it, but they've never lived with it”: How parents use social media throughout the diagnostic odyssey. Journal of Genetic Counseling 2021;30(6):1707
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Schimith MD, Cezar-Vaz MR, Xavier DM, Cardoso LS. Communication in health and inter-professional collaboration in the care for children with chronic conditions. Revista Latino-Americana de Enfermagem 2021;29
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Cao P, McGrath C, Rudman DL. Navigating the “Blind World”: The psychosocial and occupational experiences of parents of adolescents with visual impairments. British Journal of Visual Impairment 2023;:026461962311544
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Mbuthia K, Mwangi S, Owino G. Implications of providing social support to close network members on the social well-being of older people in Kitui County, Kenya. Frontiers in Aging 2022;3
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Gruebner O, van Haasteren A, Hug A, Elayan S, Sykora M, Albanese E, Naslund J, Wolf M, Fadda M, von Rhein M. Digital Platform Uses for Help and Support Seeking of Parents With Children Affected by Disabilities: Scoping Review. Journal of Medical Internet Research 2022;24(12):e37972
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Xi Y, Elkana O, Jiao W, Li D, Tao Z. Associations between social support and anxiety during the COVID-19 lockdown in young and middle-aged Israelis: A cross-sectional study. World Journal of Psychiatry 2022;12(9):1194
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Kaji N, Ando S, Nishida A, Yamasaki S, Kuwabara H, Kanehara A, Satomura Y, Jinde S, Kano Y, Hiraiwa‐Hasegawa M, Igarashi T, Kasai K. Children with special health care needs and mothers' anxiety/depression: Findings from the Tokyo Teen Cohort study. Psychiatry and Clinical Neurosciences 2021;75(12):394
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Schimith MD, Cezar-Vaz MR, Xavier DM, Cardoso LS. Communication in health and inter-professional collaboration in the care for children with chronic conditions. Revista Latino-Americana de Enfermagem 2021;29
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Harney S, Chu T, Trask CL, Welch JJ. Health-related Internet Use by Caregivers of Children and Adolescents With Cancer. Journal of Pediatric Hematology/Oncology 2023;45(2):e214
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Elliott K, Vears DF, Sung V, Poulakis Z, Sheehan J. Exploring Parent Support Needs during the Newborn Hearing Diagnosis Pathway. Journal of Clinical Medicine 2022;11(5):1389
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Forner-Puntonet M, Gisbert-Gustemps L, Castell-Panisello E, Larrarte M, Quintero J, Ariceta G, Gran F, Iglesias-Serrano I, Garcia-Morán A, Español-Martín G, Ibañez-Jimenez P, Ramos-Quiroga JA. Stress and coping strategies of families of pediatric solid organ transplant recipients in times of pandemic. Frontiers in Psychology 2023;14
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Bonnot Fazio S, Dany L, Dahan S, Tosello B. Communication, information, and the parent–caregiver relationship in neonatal intensive care units: A review of the literature. Archives de Pédiatrie 2022;29(5):331
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Callans K, Carroll DL, McDonough A. Parental experience of hypoglossal nerve stimulator implantation in adolescents with Down Syndrome and obstructive sleep apnea. Journal of Pediatric Nursing 2023;68:24
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Costa RPUVD, Lamy ZC, Oliveira PSD, Carvalho RHDSBFD, Pereira MUL, Guimarães CNM, Batista RFL, Nascimento MDDSB. Síndrome congênita pelo vírus zika: análise das redes de apoio de pais. Acta Paulista de Enfermagem 2022;35
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Kelly KJ, Doucet S, Luke A, Azar R, Montelpare W. Experiences, Motivations, and Perceived Impact of Participation in a Facebook-Based Support Group for Caregivers of Children and Youth With Complex Care Needs: Qualitative Descriptive Study. JMIR Pediatrics and Parenting 2022;5(3):e33172
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Taylor K, Havinga J, Moore B, Tumin D, Bear K. Social Media as a Source of Medical Information for Parents of Premature Infants: A Content Analysis of Prematurity-Related Facebook Groups. American Journal of Perinatology 2023;40(15):1629
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Kwon S, O’Neill ME, Foster CC. The Associations of Child’s Clinical Conditions and Behavioral Problems with Parenting Stress among Families of Preschool-Aged Children: 2018–2019 National Survey of Child Health. Children 2022;9(2):241
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Hoover CG, Coller RJ, Houtrow A, Harris D, Agrawal R, Turchi R. Understanding Caregiving and Caregivers: Supporting Children and Youth With Special Health Care Needs at Home. Academic Pediatrics 2022;22(2):S14
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Lynch A, Raziano V, Feehan K, Thompson E, Massey P, Turchi R. Unmet Needs of Male Caregivers of Children and Youth with Special Health Care Needs. Maternal and Child Health Journal 2021;25(12):1992
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Gulzar S, Saeed S, Taufiq Kirmani S, Karmaliani R, Majumder MAA. Enhancing the knowledge of parents on child health using eLearning in a government school in the semi-rural community of Karachi, Pakistan. PLOS Global Public Health 2022;2(6):e0000500
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Houwen T, Vugts MAP, Lansink KWW, Theeuwes HP, Neequaye N, Beerekamp MSH, Joosen MCW, de Jongh MAC. Developing mHealth to the Context and Valuation of Injured Patients and Professionals in Hospital Trauma Care: Qualitative and Quantitative Formative Evaluations. JMIR Human Factors 2022;9(2):e35342
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Kelly KJ, Doucet S, Luke A, Azar R, Montelpare W. Exploring the Use of a Facebook-Based Support Group for Caregivers of Children and Youth With Complex Care Needs: Qualitative Descriptive Study. JMIR Pediatrics and Parenting 2022;5(2):e33170
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Pérez-Ardanaz B, Peláez-Cantero MJ, González-Cano-Caballero M, Gutiérrez-Rodríguez L, Gómez-González AJ, Lupiáñez-Pérez I, Morales-Asencio JM, Canca-Sánchez JC. Utilization of Parallel Resources and Sociodemographic Factors in Treating Children with Complex Chronic Diseases: A Cross-Sectional Study. Children 2021;8(11):973
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Olpin E, Hanson CL, Crandall A. Influence of Social Media Uses and Gratifications on Family Health among U.S. Parents: A Cross-Sectional Study. International Journal of Environmental Research and Public Health 2023;20(3):1910
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. Women in health: Social practices in online health information management. Masyarakat, Kebudayaan dan Politik 2020;33(4):371
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Para A, Batko B, Ippolito J, Hanna G, Edobor-Osula F. Developmental Dysplasia of the Hip: How Does Social Media Influence Patients and Caregivers Seeking Information?. Children 2021;8(10):869
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Currie G, Finlay B, Seth A, Roth C, Elsabbagh M, Hudon A, Hunt M, Jodoin S, Lach L, Lencucha R, Nicholas DB, Shakako K, Zwicker J. Mental health challenges during COVID-19: perspectives from parents with children with neurodevelopmental disabilities. International Journal of Qualitative Studies on Health and Well-being 2022;17(1)
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Dorner RA, Lemmon ME, Vazifedan T, Johnson E, Boss RD. Symptoms of Cerebrospinal Shunt Malfunction in Young Children: A National Caregiver Survey. Child Neurology Open 2023;10:2329048X2311535
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Craig KP, Riggan KA, Rubeck S, Meredith SH, Allyse MA, Michie M. Never “totally prepared”: Support groups on helping families prepare for a child with a genetic condition. Journal of Community Genetics 2023;14(3):319
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Cimino S, Cerniglia L. Breastfeeding Apps: A Descriptive Report. Behavioral Sciences 2023;13(10):801
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Baskar D, Ngnepieba M, Paul P, Segovia NA, Frick S. Conversations About Congenital Clubfoot: Investigating How Parents Share Information About a Structural Diagnosis With Their Children. Cureus 2023;
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McDaniel BT, Pater J, Cornet V, Mughal S, Reining L, Schaller A, Radesky J, Drouin M. Parents’ desire to change phone use: Associations with objective smartphone use and feelings about problematic use and distraction. Computers in Human Behavior 2023;148:107907
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Heydon R, Akiwenzie E, Cooper E, Ghannoum H, Havord-Wier D, Johns B, MacAlpine K, McKee L, Nagle J, Neeganagwedgin E, Potts DP, Poczobut S, Coelho CR, Stooke A, Tran A, Zhang Z. Guidelines for virtual early childhood and family learning: An equity, diversity, inclusion, and decolonization-informed systematic review of the literature. Journal of Early Childhood Research 2023;
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Kosaka M, Kotera Y, Masunaga H, Bhandari D, Miyatake H, Nishikawa Y, Komori N, Ozaki A, Beniya H. Emotional impacts of excursions on parents of children with medical complexity. Pediatrics International 2023;65(1)
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Wong TCY, Yeung KHT, Khalikova VR, Hui LL, Chow KM, Lau EYY, Nelson EAS. Online ethnography of breastfeeding discussions in social networking sites for Hong Kong mothers. Food Science & Nutrition 2024;12(2):843
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Pearce E, Raj H, Emezienna N, Gilkey MB, Lazard AJ, Ribisl KM, Savage SA, Han PK. The Use of Social Media to Express and Manage Medical Uncertainty in Dyskeratosis Congenita: Content Analysis. JMIR Infodemiology 2024;4:e46693
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Khare J, Kalra S, Jindal S. Sociocrinology: Impact of Social Media on Endocrine Health – A Review. Indian Journal of Endocrinology and Metabolism 2023;27(6):480
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Nowland R, McNally L, Gregory P. Parents’ use of digital technology for social connection during the COVID‐19 pandemic: A mixed‐methods study. Scandinavian Journal of Psychology 2024;
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Baiden P, Graaf G, Okine L, LaBrenz C. Association between Adverse Childhood Experiences and Unmet Health Care Needs among Children in the United States. Social Work in Public Health 2024;39(3):261
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Apps J, Webb S, Hutton E. Parents’ and carers’ attitudes to the use of digital technology and its role in the care of children with complex needs. British Journal of Occupational Therapy 2024;
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Postma A, Ketelaar M, van Nispen tot Sevenaer J, Downs Z, van Rappard D, Jongmans M, Zinkstok J. Exploring individual parent‐to‐parent support interventions for parents caring for children with brain‐based developmental disabilities: A scoping review. Child: Care, Health and Development 2024;50(3)
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Wu J, Lu F, Li Z, Dai Y, Wang Y, Bao R, Rao Y, Wang H. Parents’ experience of children’s transitions from intensive care unit after liver transplantation: A qualitative study. Intensive and Critical Care Nursing 2024;83:103698
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According to Crossref, the following books are citing this article (DOI 10.2196/jmir.6722):