The Role of Online Social Support in Supporting and Educating Parents of Young Children With Special Health Care Needs in the United States: A Scoping Review

Journals

1. Castro A, Chougui K, Bilodeau C, Tsimicalis A. Exploring the Views of Osteogenesis Imperfecta Caregivers on Internet-Based Technologies: Qualitative Descriptive Study. Journal of Medical Internet Research 2019;21(12):e15924 View
2. Tikkanen S, Peterson B, Parsloe S. Courtesy Stigma and Social Support: An Exploration of Fathers’ Buffering Strategies and Blocking Rationalizations. Health Communication 2019;34(13):1543 View
3. Pionke J, Manson J. Creating Disability LibGuides with Accessibility in Mind. Journal of Web Librarianship 2018;12(1):63 View
4. Donley T, King D, Nyathi N, Okafor A, Mbizo J. Socioeconomic Status, Family Functioning and Delayed Care Among Children With Special Needs. Social Work in Public Health 2018;33(6):366 View
5. Castro A, Marinello J, Chougui K, Morand M, Bilodeau C, Tsimicalis A. The day‐to‐day experiences of caring for children with Osteogenesis Imperfecta: A qualitative descriptive study. Journal of Clinical Nursing 2020;29(15-16):2999 View
6. Canty M, Breitbart S, Siegel L, Fehlings D, Milo-Manson G, Alotaibi N, Ibrahim G. The role of social media in selective dorsal rhizotomy for children: information sharing and social support. Child's Nervous System 2019;35(11):2179 View
7. Boss R, Raisanen J, Detwiler K, Fratantoni K, Huff S, Neubauer K, Donohue P. Lived Experience of Pediatric Home Health Care Among Families of Children With Medical Complexity. Clinical Pediatrics 2020;59(2):178 View
8. Dol J, Richardson B, Boates T, Campbell-Yeo M. Learning to parent from Google? Evaluation of available online health evidence for parents of preterm infants requiring neonatal intensive care. Health Informatics Journal 2019;25(4):1265 View
9. Ashcraft L, Asato M, Houtrow A, Kavalieratos D, Miller E, Ray K. Parent Empowerment in Pediatric Healthcare Settings: A Systematic Review of Observational Studies. The Patient - Patient-Centered Outcomes Research 2019;12(2):199 View
10. Johnston E, Martinez I, Currie E, Brock K, Wolfe J. Hospital or Home? Where Should Children Die and How Do We Make That a Reality?. Journal of Pain and Symptom Management 2020;60(1):106 View
11. Sinclair M, McCullough J, Elliott D, Latos-Bielenska A, Braz P, Cavero-Carbonell C, Jamry-Dziurla A, João Santos A, Páramo-Rodríguez L. Exploring Research Priorities of Parents Who Have Children With Down Syndrome, Cleft Lip With or Without Cleft Palate, Congenital Heart Defects, or Spina Bifida Using ConnectEpeople: A Social Media Coproduction Research Study. Journal of Medical Internet Research 2019;21(11):e15847 View
12. Skliarova T, Zaitsev D. Developing Practices of Inclusive Culture Social Services: Interdisciplinary Analysis Challenges and Perspectives. Bulletin of Science and Practice 2019;5(11):343 View
13. Fuller M, Vaucher Y, Bann C, Das A, Vohr B. Lack of social support as measured by the Family Resource Scale screening tool is associated with early adverse cognitive outcome in extremely low birth weight children. Journal of Perinatology 2019;39(11):1546 View
14. Petrenko C, Parr J, Kautz C, Tapparello C, Olson H. A Mobile Health Intervention for Fetal Alcohol Spectrum Disorders (Families Moving Forward Connect): Development and Qualitative Evaluation of Design and Functionalities. JMIR mHealth and uHealth 2020;8(4):e14721 View
15. Jansen R, Reid M. Communication Technology Use by Caregivers of Adolescents With Mental Health Issues: Systematic Review. JMIR mHealth and uHealth 2020;8(8):e13179 View
16. Motti V, Kalantari N, Neris V. Understanding how social media imagery empowers caregivers: an analysis of microcephaly in Latin America. Personal and Ubiquitous Computing 2021;25(2):321 View
17. Ramey L, Osborne C, Kasitinon D, Juengst S. Apps and Mobile Health Technology in Rehabilitation. Physical Medicine and Rehabilitation Clinics of North America 2019;30(2):485 View
18. Davis E, Young D, Gilson K, Reynolds J, Carter R, Tonmukayakul U, Williams K, Gibbs L, McDonald R, Reddihough D, Tracy J, Morgan J, Ireland P, Kenyon C, Carracher R. A Capacity Building Program to Improve the Self-Efficacy of Key Workers to Support the Well-Being of Parents of a Child With a Disability Accessing an Early Childhood Intervention Service: Protocol for a Stepped-Wedge Design Trial. JMIR Research Protocols 2019;8(4):e12531 View
19. Kent de Grey R, Uchino B, Baucom B, Smith T, Holton A, Diener E. Enemies and friends in high-tech places: the development and validation of the Online Social Experiences Measure. DIGITAL HEALTH 2019;5:205520761987835 View
20. Grace R, Kemp L, Barnes J, Elcombe E, Knight J, Baird K, Webster V, Byrne F. Community Volunteer Support for Families With Young Children: Protocol for the Volunteer Family Connect Randomized Controlled Trial. JMIR Research Protocols 2018;7(7):e10000 View
21. Huang K, Lee D, Nakigudde J, Cheng S, Gouley K, Mann D, Schoenthaler A, Chokshi S, Kisakye E, Tusiime C, Mendelsohn A. Use of Technology to Promote Child Behavioral Health in the Context of Pediatric Care: A Scoping Review and Applications to Low- and Middle-Income Countries. Frontiers in Psychiatry 2019;10 View
22. Jansen R, Reid M. Interest in Communication Technology by Rural Caregivers of Adolescents with Mental Health Issues in South Africa: The Mmogo-Method®. Issues in Mental Health Nursing 2021;42(1):24 View
23. Jindal P, MacDermid J, Rosenbaum P, DiRezze B, Narayan A. Perspectives on rehabilitation of children with cerebral palsy: exploring a cross-cultural view of parents from India and Canada using the international classification of functioning, disability and health. Disability and Rehabilitation 2018;40(23):2745 View
24. Fry J, Frader J. “We want to do everything”: how parents represent their experiences with maternal–fetal surgery online. Journal of Perinatology 2018;38(3):226 View
25. Springer A. Optimal Management of Undescended Testis in Boys with Cerebral Palsy. A Debate. Sexual Development 2019;13(1):20 View
26. Dodds R. Meeting families where they are: Text‐based support in parent to parent programs. Child: Care, Health and Development 2021;47(2):290 View
27. Uhm J, Kim M. Predicting Quality of Life among Mothers in an Online Health Community for Children with Type 1 Diabetes. Children 2020;7(11):235 View
28. Buteau-Poulin A, Gosselin C, Bergeron-Ouellet A, Kiss J, Lamontagne M, Maltais D, Trottier C, Desmarais C. Availability and Quality of Web Resources for Parents of Children With Disability: Content Analysis and Usability Study. JMIR Pediatrics and Parenting 2020;3(2):e19669 View
29. Jeffrey A, Andracchio L, Dvorak M, Lomas P, Smith B, Borowitz D. Virtual Peer Support for People With Cystic Fibrosis and Their Family Members: A Program Evaluation. Journal of Patient Experience 2020;7(6):1748 View
30. Fernández-Medina I, Granero-Molina J, Hernández-Padilla J, Jiménez-Lasserrotte M, Ruiz-Fernández M, Fernández-Sola C. Socio-family support for parents of technology-dependent extremely preterm infants after hospital discharge. Journal of Child Health Care 2021:136749352199649 View
31. Hanna G, Batko B, Potter J, Ippolito J, Edobor-Osula F. The role of social media in clubfoot: information sharing and social support. Journal of Children's Orthopaedics 2021;15(1):81 View
32. Iotova V, Schalin-Jäntti C, Bruegmann P, Broesamle M, De Graaf J, Bratina N, Tillmann V, Pereira A, Hiort O. Access to patient oriented information—a baseline Endo-ERN survey among patients with rare endocrine disorders. Endocrine 2021;71(3):542 View
33. Schindler M, Domahidi E. The growing field of interdisciplinary research on user comments: A computational scoping review. New Media & Society 2021:146144482199449 View

Books/Policy Documents

1. Simeonsson R, Simeonsson K. Public Health Perspectives on Disability. View