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Citing this Article

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Published on 23.08.13 in Vol 15, No 8 (2013): August

This paper is in the following e-collection/theme issue:

Works citing "Patient and Public Views on Electronic Health Records and Their Uses in the United Kingdom: Cross-Sectional Survey"

According to Crossref, the following articles are citing this article (DOI 10.2196/jmir.2701):

(note that this is only a small subset of citations)

  1. Thilakanathan D, Calvo RA, Chen S, Nepal S, Glozier N. Facilitating Secure Sharing of Personal Health Data in the Cloud. JMIR Medical Informatics 2016;4(2):e15
    CrossRef
  2. Zalin A, Papoutsi C, Shotliff K, Majeed A, Marston C, Reed J. The use of information for diabetes research and care: patient views in West London. Practical Diabetes 2016;33(3):81
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  3. Saluvan M, Ozonoff A. Functionality of hospital information systems: results from a survey of quality directors at Turkish hospitals. BMC Medical Informatics and Decision Making 2018;18(1)
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  4. Casey JA, Schwartz BS, Stewart WF, Adler NE. Using Electronic Health Records for Population Health Research: A Review of Methods and Applications. Annual Review of Public Health 2016;37(1):61
    CrossRef
  5. Riordan F, Papoutsi C, Reed JE, Marston C, Bell D, Majeed A. Patient and public attitudes towards informed consent models and levels of awareness of Electronic Health Records in the UK. International Journal of Medical Informatics 2015;84(4):237
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  6. Mazor KM, Richards A, Gallagher M, Arterburn DE, Raebel MA, Nowell WB, Curtis JR, Paolino AR, Toh S. Stakeholders’ views on data sharing in multicenter studies. Journal of Comparative Effectiveness Research 2017;6(6):537
    CrossRef
  7. Vezyridis P, Timmons S. On the adoption of personal health records: some problematic issues for patient empowerment. Ethics and Information Technology 2015;17(2):113
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  8. Stockdale J, Cassell J, Ford E. “Giving something back”: A systematic review and ethical enquiry into public views on the use of patient data for research in the United Kingdom and the Republic of Ireland. Wellcome Open Research 2019;3:6
    CrossRef
  9. Papoutsi C, Reed JE, Marston C, Lewis R, Majeed A, Bell D. Patient and public views about the security and privacy of Electronic Health Records (EHRs) in the UK: results from a mixed methods study. BMC Medical Informatics and Decision Making 2015;15(1)
    CrossRef
  10. Sarabdeen J, Moonesar IA. Privacy protection laws and public perception of data privacy. Benchmarking: An International Journal 2018;25(6):1883
    CrossRef
  11. Patil S, Lu H, Saunders CL, Potoglou D, Robinson N. Public preferences for electronic health data storage, access, and sharing — evidence from a pan-European survey. Journal of the American Medical Informatics Association 2016;23(6):1096
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  12. Mello MM, Lieou V, Goodman SN. Clinical Trial Participants’ Views of the Risks and Benefits of Data Sharing. New England Journal of Medicine 2018;378(23):2202
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  13. Darquy S, Moutel G, Lapointe A, D'Audiffret D, Champagnat J, Guerroui S, Vendeville M, Boespflug-Tanguy O, Duchange N. Patient/family views on data sharing in rare diseases: study in the European LeukoTreat project. European Journal of Human Genetics 2016;24(3):338
    CrossRef
  14. Williams H, Spencer K, Sanders C, Lund D, Whitley EA, Kaye J, Dixon WG. Dynamic Consent: A Possible Solution to Improve Patient Confidence and Trust in How Electronic Patient Records Are Used in Medical Research. JMIR Medical Informatics 2015;3(1):e3
    CrossRef
  15. Stockdale J, Cassell J, Ford E. “Giving something back”: A systematic review and ethical enquiry of public opinions on the use of patient data for research in the United Kingdom and the Republic of Ireland. Wellcome Open Research 2018;3:6
    CrossRef
  16. Harron K, Gamble C, Gilbert R. E-health data to support and enhance randomised controlled trials in the United Kingdom. Clinical Trials 2015;12(2):180
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  17. Azarm M, Backman C, Kuziemsky C, Peyton L. Breaking the Healthcare Interoperability Barrier by Empowering and Engaging Actors in the Healthcare System. Procedia Computer Science 2017;113:326
    CrossRef
  18. McCormick N, Hamilton CB, Koehn CL, English K, Stordy A, Li LC. Canadians’ views on the use of routinely collected data in health research: a patient-oriented cross-sectional survey. CMAJ Open 2019;7(2):E203
    CrossRef
  19. Spencer K, Sanders C, Whitley EA, Lund D, Kaye J, Dixon WG. Patient Perspectives on Sharing Anonymized Personal Health Data Using a Digital System for Dynamic Consent and Research Feedback: A Qualitative Study. Journal of Medical Internet Research 2016;18(4):e66
    CrossRef
  20. Price G, van Herk M, Faivre-Finn C. Data Mining in Oncology: The ukCAT Project and the Practicalities of Working with Routine Patient Data. Clinical Oncology 2017;29(12):814
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  21. Entzeridou E, Markopoulou E, Mollaki V. Public and physician’s expectations and ethical concerns about electronic health record: Benefits outweigh risks except for information security. International Journal of Medical Informatics 2018;110:98
    CrossRef
  22. Scobie S, Castle‐Clarke S. Implementing learning health systems in the UK NHS: Policy actions to improve collaboration and transparency and support innovation and better use of analytics. Learning Health Systems 2020;4(1)
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  23. Azarm-Daigle M, Kuziemsky C, Peyton L. A Review of Cross Organizational Healthcare Data Sharing. Procedia Computer Science 2015;63:425
    CrossRef
  24. Wiley LK, Tarczy-Hornoch P, Denny JC, Freimuth RR, Overby CL, Shah N, Martin RD, Sarkar IN. Harnessing next-generation informatics for personalizing medicine: a report from AMIA’s 2014 Health Policy Invitational Meeting. Journal of the American Medical Informatics Association 2016;23(2):413
    CrossRef
  25. Tully MP, Hassan L, Oswald M, Ainsworth J. Commercial use of health data—A public “trial” by citizens' jury. Learning Health Systems 2019;3(4)
    CrossRef
  26. van Velthoven MH, Mastellos N, Majeed A, O’Donoghue J, Car J. Feasibility of extracting data from electronic medical records for research: an international comparative study. BMC Medical Informatics and Decision Making 2016;16(1)
    CrossRef
  27. Meetoo D, Rylance R, Abuhaimid HA. Health care in a technological world. British Journal of Nursing 2018;27(20):1172
    CrossRef
  28. Wang J, Huang J, Cheung CSK, Wong WN, Cheung NT, Wong MC. Adoption of an Electronic Patient Record Sharing Pilot Project: Cross-Sectional Survey. Journal of Medical Internet Research 2020;22(4):e13761
    CrossRef
  29. Mäenpää T, Asikainen P, Suominen T. Views of patient, healthcare professionals and administrative staff on flow of information and collaboration in a regional health information exchange: a qualitative study. Scandinavian Journal of Caring Sciences 2017;31(4):939
    CrossRef
  30. Costa JFR, Portela MC. Percepções de gestores, profissionais e usuários acerca do registro eletrônico de saúde e de aspectos facilitadores e barreiras para a sua implementação. Cadernos de Saúde Pública 2018;34(1)
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  31. Gallier S, Price G, Pandya H, McCarmack G, James C, Ruane B, Forty L, Crosby BL, Atkin C, Evans R, Dunn KW, Marston E, Crawford C, Levermore M, Modhwadia S, Attwood J, Perks S, Doal R, Gkoutos G, Dormer R, Rosser A, Fanning H, Sapey E. Infrastructure and operating processes of PIONEER, the HDR-UK Data Hub in Acute Care and the workings of the Data Trust Committee: a protocol paper. BMJ Health & Care Informatics 2021;28(1):e100294
    CrossRef
  32. Pritchard AE, Zabel TA, Jacobson LA, Jones E, Holingue C, Kalb LG. Caregiver Perspectives on Informed Consent for a Pediatric Learning Healthcare System Model of Care. AJOB Empirical Bioethics 2021;12(2):92
    CrossRef
  33. Hentschel A, Hsiao CJ, Chen LY, Wright L, Shaw J, Du X, Flood-Grady E, Harle CA, Reeder CF, Francois M, Louis-Jacques A, Shenkman E, Krieger JL, Lemas DJ. Perspectives of Pregnant and Breastfeeding Women on Participating in Longitudinal Mother-Baby Studies Involving Electronic Health Records: Qualitative Study. JMIR Pediatrics and Parenting 2021;4(1):e23842
    CrossRef
  34. Shestak V, Tsyplakova A. Legal Issues Regarding Protection of Genetic Information. SSRN Electronic Journal 2020;
    CrossRef
  35. Atkin C, Crosby B, Dunn K, Price G, Marston E, Crawford C, O’Hara M, Morgan C, Levermore M, Gallier S, Modhwadia S, Attwood J, Perks S, Denniston AK, Gkoutos G, Dormer R, Rosser A, Ignatowicz A, Fanning H, Sapey E. Perceptions of anonymised data use and awareness of the NHS data opt-out amongst patients, carers and healthcare staff. Research Involvement and Engagement 2021;7(1)
    CrossRef
  36. Jones LA, Nelder JR, Fryer JM, Alsop PH, Geary MR, Prince M, Cardinal RN. Public opinion on sharing data from health services for clinical and research purposes without explicit consent: an anonymous online survey in the UK. BMJ Open 2022;12(4):e057579
    CrossRef
  37. Kirkham EJ, Lawrie SM, Crompton CJ, Iveson MH, Jenkins ND, Goerdten J, Beange I, Chan SWY, McIntosh A, Fletcher-Watson S. Experience of clinical services shapes attitudes to mental health data sharing: findings from a UK-wide survey. BMC Public Health 2022;22(1)
    CrossRef
  38. He Y, He Q, Li L, Wang W, Zha W, Liu Q, Mumtaz S. Factors Affecting Willingness on Sharing of Electronic Health Records Data: A Survey on Chinese Residents. Journal of Oncology 2022;2022:1
    CrossRef
  39. Kharlamov A, Hohmann R, Parry G. Data sharing decisions: Perceptions and intentions in healthcare. Strategic Change 2023;32(6):223
    CrossRef
  40. . Factors affecting patient and public perceptions of the adoption of electronic health record sharing: A Hong Kong study. International Journal of Medical Informatics 2023;178:105193
    CrossRef
  41. Craven C, Jackson B, Solomonides T. Introduction: Special Issue on Clinical Data Sharing. Journal of the Society for Clinical Data Management 2023;3(4)
    CrossRef
  42. Watson E, Fletcher-Watson S, Kirkham EJ. Views on sharing mental health data for research purposes: qualitative analysis of interviews with people with mental illness. BMC Medical Ethics 2023;24(1)
    CrossRef
  43. Baines R, Stevens S, Austin D, Anil K, Bradwell H, Cooper L, Maramba ID, Chatterjee A, Leigh S. Patient and Public Willingness to Share Personal Health Data for Third-Party or Secondary Uses: Systematic Review. Journal of Medical Internet Research 2024;26:e50421
    CrossRef
  44. Haug S, Schnell R, Raptis G, Dotter C, Weber K. Wissen und Einstellung zur Speicherung und Nutzung von Gesundheitsdaten: Ergebnisse einer Bevölkerungsbefragung. Zeitschrift für Evidenz, Fortbildung und Qualität im Gesundheitswesen 2024;184:50
    CrossRef
  45. . A Call to Reconsider a Nationwide Electronic Health Record System: Correcting the Failures of the National Program for IT. JMIR Medical Informatics 2023;11:e53112
    CrossRef
  46. Afraz A, Montazeri M, Shahrbabaki ME, Ahmadian L, Jahani Y. The viewpoints of parents of children with mental disorders regarding the confidentiality and security of their children’s information in the Iranian national electronic health record system. International Journal of Medical Informatics 2024;183:105334
    CrossRef

According to Crossref, the following books are citing this article (DOI 10.2196/jmir.2701):

  1. . Rheumatology Teaching. 2019. Chapter 9:131
    CrossRef