Published on in Vol 15, No 8 (2013): August

Patient and Public Views on Electronic Health Records and Their Uses in the United Kingdom: Cross-Sectional Survey

Patient and Public Views on Electronic Health Records and Their Uses in the United Kingdom: Cross-Sectional Survey

Patient and Public Views on Electronic Health Records and Their Uses in the United Kingdom: Cross-Sectional Survey

Journals

  1. Thilakanathan D, Calvo R, Chen S, Nepal S, Glozier N. Facilitating Secure Sharing of Personal Health Data in the Cloud. JMIR Medical Informatics 2016;4(2):e15 View
  2. Zalin A, Papoutsi C, Shotliff K, Majeed A, Marston C, Reed J. The use of information for diabetes research and care: patient views in West London. Practical Diabetes 2016;33(3):81 View
  3. Saluvan M, Ozonoff A. Functionality of hospital information systems: results from a survey of quality directors at Turkish hospitals. BMC Medical Informatics and Decision Making 2018;18(1) View
  4. Casey J, Schwartz B, Stewart W, Adler N. Using Electronic Health Records for Population Health Research: A Review of Methods and Applications. Annual Review of Public Health 2016;37(1):61 View
  5. Riordan F, Papoutsi C, Reed J, Marston C, Bell D, Majeed A. Patient and public attitudes towards informed consent models and levels of awareness of Electronic Health Records in the UK. International Journal of Medical Informatics 2015;84(4):237 View
  6. Mazor K, Richards A, Gallagher M, Arterburn D, Raebel M, Nowell W, Curtis J, Paolino A, Toh S. Stakeholders’ views on data sharing in multicenter studies. Journal of Comparative Effectiveness Research 2017;6(6):537 View
  7. Vezyridis P, Timmons S. On the adoption of personal health records: some problematic issues for patient empowerment. Ethics and Information Technology 2015;17(2):113 View
  8. Stockdale J, Cassell J, Ford E. “Giving something back”: A systematic review and ethical enquiry into public views on the use of patient data for research in the United Kingdom and the Republic of Ireland. Wellcome Open Research 2019;3:6 View
  9. Papoutsi C, Reed J, Marston C, Lewis R, Majeed A, Bell D. Patient and public views about the security and privacy of Electronic Health Records (EHRs) in the UK: results from a mixed methods study. BMC Medical Informatics and Decision Making 2015;15(1) View
  10. Sarabdeen J, Moonesar I. Privacy protection laws and public perception of data privacy. Benchmarking: An International Journal 2018;25(6):1883 View
  11. Patil S, Lu H, Saunders C, Potoglou D, Robinson N. Public preferences for electronic health data storage, access, and sharing — evidence from a pan-European survey. Journal of the American Medical Informatics Association 2016;23(6):1096 View
  12. Mello M, Lieou V, Goodman S. Clinical Trial Participants’ Views of the Risks and Benefits of Data Sharing. New England Journal of Medicine 2018;378(23):2202 View
  13. Darquy S, Moutel G, Lapointe A, D'Audiffret D, Champagnat J, Guerroui S, Vendeville M, Boespflug-Tanguy O, Duchange N. Patient/family views on data sharing in rare diseases: study in the European LeukoTreat project. European Journal of Human Genetics 2016;24(3):338 View
  14. Williams H, Spencer K, Sanders C, Lund D, Whitley E, Kaye J, Dixon W. Dynamic Consent: A Possible Solution to Improve Patient Confidence and Trust in How Electronic Patient Records Are Used in Medical Research. JMIR Medical Informatics 2015;3(1):e3 View
  15. Stockdale J, Cassell J, Ford E. “Giving something back”: A systematic review and ethical enquiry of public opinions on the use of patient data for research in the United Kingdom and the Republic of Ireland. Wellcome Open Research 2018;3:6 View
  16. Harron K, Gamble C, Gilbert R. E-health data to support and enhance randomised controlled trials in the United Kingdom. Clinical Trials 2015;12(2):180 View
  17. Azarm M, Backman C, Kuziemsky C, Peyton L. Breaking the Healthcare Interoperability Barrier by Empowering and Engaging Actors in the Healthcare System. Procedia Computer Science 2017;113:326 View
  18. McCormick N, Hamilton C, Koehn C, English K, Stordy A, Li L. Canadians’ views on the use of routinely collected data in health research: a patient-oriented cross-sectional survey. CMAJ Open 2019;7(2):E203 View
  19. Spencer K, Sanders C, Whitley E, Lund D, Kaye J, Dixon W. Patient Perspectives on Sharing Anonymized Personal Health Data Using a Digital System for Dynamic Consent and Research Feedback: A Qualitative Study. Journal of Medical Internet Research 2016;18(4):e66 View
  20. Price G, van Herk M, Faivre-Finn C. Data Mining in Oncology: The ukCAT Project and the Practicalities of Working with Routine Patient Data. Clinical Oncology 2017;29(12):814 View
  21. Entzeridou E, Markopoulou E, Mollaki V. Public and physician’s expectations and ethical concerns about electronic health record: Benefits outweigh risks except for information security. International Journal of Medical Informatics 2018;110:98 View
  22. Scobie S, Castle‐Clarke S. Implementing learning health systems in the UK NHS: Policy actions to improve collaboration and transparency and support innovation and better use of analytics. Learning Health Systems 2020;4(1) View
  23. Azarm-Daigle M, Kuziemsky C, Peyton L. A Review of Cross Organizational Healthcare Data Sharing. Procedia Computer Science 2015;63:425 View
  24. Wiley L, Tarczy-Hornoch P, Denny J, Freimuth R, Overby C, Shah N, Martin R, Sarkar I. Harnessing next-generation informatics for personalizing medicine: a report from AMIA’s 2014 Health Policy Invitational Meeting. Journal of the American Medical Informatics Association 2016;23(2):413 View
  25. Tully M, Hassan L, Oswald M, Ainsworth J. Commercial use of health data—A public “trial” by citizens' jury. Learning Health Systems 2019;3(4) View
  26. van Velthoven M, Mastellos N, Majeed A, O’Donoghue J, Car J. Feasibility of extracting data from electronic medical records for research: an international comparative study. BMC Medical Informatics and Decision Making 2016;16(1) View
  27. Meetoo D, Rylance R, Abuhaimid H. Health care in a technological world. British Journal of Nursing 2018;27(20):1172 View
  28. Wang J, Huang J, Cheung C, Wong W, Cheung N, Wong M. Adoption of an Electronic Patient Record Sharing Pilot Project: Cross-Sectional Survey. Journal of Medical Internet Research 2020;22(4):e13761 View
  29. Mäenpää T, Asikainen P, Suominen T. Views of patient, healthcare professionals and administrative staff on flow of information and collaboration in a regional health information exchange: a qualitative study. Scandinavian Journal of Caring Sciences 2017;31(4):939 View
  30. Costa J, Portela M. Percepções de gestores, profissionais e usuários acerca do registro eletrônico de saúde e de aspectos facilitadores e barreiras para a sua implementação. Cadernos de Saúde Pública 2018;34(1) View
  31. Gallier S, Price G, Pandya H, McCarmack G, James C, Ruane B, Forty L, Crosby B, Atkin C, Evans R, Dunn K, Marston E, Crawford C, Levermore M, Modhwadia S, Attwood J, Perks S, Doal R, Gkoutos G, Dormer R, Rosser A, Fanning H, Sapey E. Infrastructure and operating processes of PIONEER, the HDR-UK Data Hub in Acute Care and the workings of the Data Trust Committee: a protocol paper. BMJ Health & Care Informatics 2021;28(1):e100294 View
  32. Pritchard A, Zabel T, Jacobson L, Jones E, Holingue C, Kalb L. Caregiver Perspectives on Informed Consent for a Pediatric Learning Healthcare System Model of Care. AJOB Empirical Bioethics 2021;12(2):92 View
  33. Hentschel A, Hsiao C, Chen L, Wright L, Shaw J, Du X, Flood-Grady E, Harle C, Reeder C, Francois M, Louis-Jacques A, Shenkman E, Krieger J, Lemas D. Perspectives of Pregnant and Breastfeeding Women on Participating in Longitudinal Mother-Baby Studies Involving Electronic Health Records: Qualitative Study. JMIR Pediatrics and Parenting 2021;4(1):e23842 View
  34. Shestak V, Tsyplakova A. Legal Issues Regarding Protection of Genetic Information. SSRN Electronic Journal 2020 View
  35. Atkin C, Crosby B, Dunn K, Price G, Marston E, Crawford C, O’Hara M, Morgan C, Levermore M, Gallier S, Modhwadia S, Attwood J, Perks S, Denniston A, Gkoutos G, Dormer R, Rosser A, Ignatowicz A, Fanning H, Sapey E. Perceptions of anonymised data use and awareness of the NHS data opt-out amongst patients, carers and healthcare staff. Research Involvement and Engagement 2021;7(1) View
  36. Jones L, Nelder J, Fryer J, Alsop P, Geary M, Prince M, Cardinal R. Public opinion on sharing data from health services for clinical and research purposes without explicit consent: an anonymous online survey in the UK. BMJ Open 2022;12(4):e057579 View
  37. Kirkham E, Lawrie S, Crompton C, Iveson M, Jenkins N, Goerdten J, Beange I, Chan S, McIntosh A, Fletcher-Watson S. Experience of clinical services shapes attitudes to mental health data sharing: findings from a UK-wide survey. BMC Public Health 2022;22(1) View
  38. He Y, He Q, Li L, Wang W, Zha W, Liu Q, Mumtaz S. Factors Affecting Willingness on Sharing of Electronic Health Records Data: A Survey on Chinese Residents. Journal of Oncology 2022;2022:1 View
  39. Kharlamov A, Hohmann R, Parry G. Data sharing decisions: Perceptions and intentions in healthcare. Strategic Change 2023;32(6):223 View
  40. Ong R. Factors affecting patient and public perceptions of the adoption of electronic health record sharing: A Hong Kong study. International Journal of Medical Informatics 2023;178:105193 View
  41. Craven C, Jackson B, Solomonides T. Introduction: Special Issue on Clinical Data Sharing. Journal of the Society for Clinical Data Management 2023;3(4) View
  42. Watson E, Fletcher-Watson S, Kirkham E. Views on sharing mental health data for research purposes: qualitative analysis of interviews with people with mental illness. BMC Medical Ethics 2023;24(1) View
  43. Baines R, Stevens S, Austin D, Anil K, Bradwell H, Cooper L, Maramba I, Chatterjee A, Leigh S. Patient and Public Willingness to Share Personal Health Data for Third-Party or Secondary Uses: Systematic Review. Journal of Medical Internet Research 2024;26:e50421 View
  44. Haug S, Schnell R, Raptis G, Dotter C, Weber K. Wissen und Einstellung zur Speicherung und Nutzung von Gesundheitsdaten: Ergebnisse einer Bevölkerungsbefragung. Zeitschrift für Evidenz, Fortbildung und Qualität im Gesundheitswesen 2024;184:50 View
  45. Morris J. A Call to Reconsider a Nationwide Electronic Health Record System: Correcting the Failures of the National Program for IT. JMIR Medical Informatics 2023;11:e53112 View
  46. Afraz A, Montazeri M, Shahrbabaki M, Ahmadian L, Jahani Y. The viewpoints of parents of children with mental disorders regarding the confidentiality and security of their children’s information in the Iranian national electronic health record system. International Journal of Medical Informatics 2024;183:105334 View

Books/Policy Documents

  1. El Miedany Y. Rheumatology Teaching. View