Digital Health Intervention to Promote Lifelong Specialized Care in Adults With Congenital Heart Disease: Theory-Driven Community Co-Designed Study

Anushree Agarwal   ¹ , MAS, MD ;   Joseph Valente   ^{2, 3} , BS, BCPA ;   Karina Buenrostro   ³ , BA ;   Katelyn Macholl   ³ , BS ;   Juhi Mehta   ³ , BS ;   Keerthana Reddy   ⁴ , MD ;   Karina Manayan   ³ , NP ;   Parang Kim   ³ , MA ;   Aleah Sparks   ⁵ , NP ;   Kunyi Li   ³ , MS, CGC ;   Pranav Ahuja   ³ , BS ;   Kevin Sun   ³ , MS ;   Kimberly Payton   ⁶ , EdD ;   Mark D Norris   ⁷ , MS, MD ;   Katia Bravo-Jaimes   ⁸ , MD ;   Leigh Reardon   ⁹ , MD ;   Philip Moons   ^{10, 11, 12} , RN, PhD ;   Megumi J Okumura   ¹³ , MAS, MD ;   Gregory M Marcus   ³ , MAS, MD ;   Michelle Gurvitz   ¹⁴ , MD

¹ Adult Congenital Heart Disease Section, Division of Cardiology, Associate Professor of Medicine, University of California, San Francisco, San Francisco, United States

² Team Uncle Joe, Katy, TX, United States

³ Department of Medicine, Division of Cardiology, University of California, San Francisco, San Francisco, CA, United States

⁴ Division of Pediatric Cardiology, University of Miami, Miami, FL, United States

⁵ Golden Gate Regional Center, San Francisco, CA, United States

⁶ Senior Patient Advocate and 1st Vice East County NAACP, Parent of an adult with congenital heart disease, East County NAACP, Pittsburg, CA, United States

⁷ Department of Pediatrics, Division of Cardiology, University of Michigan, Ann Arbor, United States

⁸ Department of Cardiovascular Medicine, Mayo Clinic in Florida, Jacksonville, United States

⁹ Division of Pediatric Cardiology, University of California, Los Angeles, Los Angeles, United States

¹⁰ KU Leuven Department of Public Health and Primary Care, KU Leuven, Leuven, Belgium

¹¹ Sahlgrenska Academy, University of Gothenburg Centre for Person-Centered Care (GPCC), University of Gothenburg, Gothenburg, Sweden

¹² Department of Pediatrics and Child Health, University of Cape Town, Cape Town, South Africa

¹³ General Internal Medicine and PRL Institute for Health Policy Studies, Departments of Pediatrics and Internal Medicine, Division of General Pediatrics, University of California, San Francisco, San Francisco, United States

¹⁴ Department of Cardiology, Boston Children's Hospital, Brigham and Women's Hospital, Harvard Medical School, Boston, MA, United States