Published on in Vol 27 (2025)

This is a member publication of University of Toronto

Preprints (earlier versions) of this paper are available at https://preprints.jmir.org/preprint/72141, first published .
Family Caregivers of Individuals With Neuromuscular Disease Participating in a Randomized Controlled Trial of a Digital Peer Support Program: Nested Qualitative Study

Family Caregivers of Individuals With Neuromuscular Disease Participating in a Randomized Controlled Trial of a Digital Peer Support Program: Nested Qualitative Study

Family Caregivers of Individuals With Neuromuscular Disease Participating in a Randomized Controlled Trial of a Digital Peer Support Program: Nested Qualitative Study

Samantha Mekhuri   1 , MSc ;   Craig Dale   2, 3 , PhD ;   Francine Buchanan   4, 5, 6 , PhD ;   Nouma Hammash   7 , MSW ;   Munazzah Ambreen   1 , MD ;   Sian Saha   8 , MA ;   Louise Rose   8 , PhD ;   Reshma Amin   1, 5, 6 , MSc, MD

1 Department of Paediatrics, Division of Respiratory Medicine, The Hospital for Sick Children, Toronto, ON, Canada

2 Lawrence S. Bloomberg Faculty of Nursing, University of Toronto, Toronto, ON, Canada

3 Tory Trauma Program, Sunnybrook Health Sciences Centre, Toronto, ON, Canada

4 Patient & Family Engagement, The Hospital for Sick Children, Toronto, ON, Canada

5 Child Health Evaluative Sciences, SickKids Research Institute, Toronto, ON, Canada

6 Management and Evaluation, Institute of Health Policy, University of Toronto, Toronto, ON, Canada

7 Spinal Cord Injury Ontario, Toronto, ON, Canada

8 King's College London, London, United Kingdom

Corresponding Author:

  • Reshma Amin, MSc, MD
  • Department of Paediatrics
  • Division of Respiratory Medicine, The Hospital for Sick Children
  • 555 University Avenue
  • Toronto, ON M5G 1X8
  • Canada
  • Phone: 1 6472807374
  • Email: reshma.amin@sickkids.ca