Published on in Vol 24, No 12 (2022): December

Preprints (earlier versions) of this paper are available at https://preprints.jmir.org/preprint/43086, first published .
Patient-Centered Digital Health Records and Their Effects on Health Outcomes: Systematic Review

Patient-Centered Digital Health Records and Their Effects on Health Outcomes: Systematic Review

Patient-Centered Digital Health Records and Their Effects on Health Outcomes: Systematic Review

Journals

  1. Kosowicz L, Tran K, Khanh T, Dang T, Pham V, Ta Thi Kim H, Thi Bach Duong H, Nguyen T, Phuong A, Le T, Ta V, Wickramasinghe N, Schofield P, Zelcer J, Pham Le T, Nguyen T. Lessons for Vietnam on the Use of Digital Technologies to Support Patient-Centered Care in Low- and Middle-Income Countries in the Asia-Pacific Region: Scoping Review. Journal of Medical Internet Research 2023;25:e43224 View
  2. Zolnowski-Kolp V, Um Din N, Havreng-Théry C, Pariel S, Veyron J, Lafuente-Lafuente C, Belmin J. Assessment of Frailty by the French Version of the Vulnerable Elders Survey-13 on Digital Tablet: Validation Study. Journal of Medical Internet Research 2023;25:e42017 View
  3. Machal M. Assessing the Alignment Between Existing Finnish Patient Portals and the Newly Implemented Finnish Well-Being Reform. International Journal of Healthcare Information Systems and Informatics 2023;19(1):1 View
  4. Sisk B. The Harms and Benefits of Billing for Patient Portal Messages. Pediatrics 2023;152(3) View
  5. Petrovskaya O, Karpman A, Schilling J, Singh S, Wegren L, Caine V, Kusi-Appiah E, Geen W. Patient and Health Care Provider Perspectives on Patient Access to Test Results via Web Portals: Scoping Review. Journal of Medical Internet Research 2023;25:e43765 View
  6. Herranz C, Martín-Moreno Banegas L, Dana Muzzio F, Siso-Almirall A, Roca J, Cano I. A Practice-Proven Adaptive Case Management Approach for Innovative Health Care Services (Health Circuit): Cluster Randomized Clinical Pilot and Descriptive Observational Study. Journal of Medical Internet Research 2023;25:e47672 View
  7. Krumb E, Vanlangendonck N, Lambert C, Lobet S, Van Damme A, Hermans C. Building a haemophilia‐specific navigator in Epic® Electronic Health Records: Single‐centre preliminary experience. Haemophilia 2023;29(5):1219 View
  8. Johnson K, Ibrahim S, Rosenbloom S. Ensuring Equitable Access to Patient Portals—Closing the “Techquity” Gap. JAMA Health Forum 2023;4(11):e233406 View
  9. Weik L, Fehring L, Mortsiefer A, Meister S. Big 5 Personality Traits and Individual- and Practice-Related Characteristics as Influencing Factors of Digital Maturity in General Practices: Quantitative Web-Based Survey Study. Journal of Medical Internet Research 2024;26:e52085 View
  10. Leino A, Kaiser T, Khalil K, Mansell H, Taber D. Electronic health record-enabled routine assessment of medication adherence after solid organ transplantation: the time is now. American Journal of Transplantation 2024;24(5):711 View
  11. Engelsma T, Heijmink S, Hendriksen H, Visser L, Lemstra A, Jaspers M, Peute L. Capturing Usability Problems for People Living With Dementia by Applying the DEMIGNED Principles in Usability Evaluation Methods: Mixed Methods Study. JMIR Human Factors 2024;11:e54032 View
  12. Canfell O, Woods L, Meshkat Y, Krivit J, Gunashanhar B, Slade C, Burton-Jones A, Sullivan C. The Impact of Digital Hospitals on Patient and Clinician Experience: Systematic Review and Qualitative Evidence Synthesis. Journal of Medical Internet Research 2024;26:e47715 View
  13. Deo S, Barnes E, Arnold-Smith P. Qualitative analysis of healthcare information technology using a novel short-form questionnaire in a UK district hospital. British Journal of Healthcare Management 2024;30(4):1 View
  14. Werk R, Heneghan M, Badawy S. Use of Patient-Centered Technology and Digital Interventions in Pediatric and Adult Patients with Hematologic Malignancies. Current Hematologic Malignancy Reports 2024;19(4):153 View
  15. Philpot L, Ramar P, Roellinger D, Njeru J, Ebbert J. Individual-Level Digital Determinants of Health and Technology Acceptance of Patient Portals: Cross-Sectional Assessment. JMIR Formative Research 2024;8:e56493 View
  16. Wong J, Hekimyan L, Cruz F, Brower T. Identifying Pertinent Digital Health Topics to Incorporate into Self-Care Pharmacy Education. Pharmacy 2024;12(3):96 View
  17. Walden J, Brown L, Seiguer S, Munshaw K, Rausch J, Badawy S, McGann P, Winkler S, Gonzalez L, Creary S, Tucker J. Study protocol for ADHERE (Applying Directly observed therapy to HydroxyurEa to Realize Effectiveness): Using small business partnerships to deliver a scalable and novel hydroxyurea adherence solution to youth with sickle cell disease. PLOS ONE 2024;19(6):e0304644 View
  18. Beavis A, Wethington S, Yu R, Topel K, Bielman M, Olson S, Rositch A. Differential utilization of the online patient portal for completion of health‐related social needs screening during routine gynecologic cancer care. Cancer 2024;130(S20):3578 View
  19. Bogale T, Derseh L, Abraham L, Willems H, Metzger J, Abere B, Tilaye M, Hailegeberel T, Bekele T. Effect of electronic records on mortality among patients in hospital and primary healthcare settings: a systematic review and meta-analyses. Frontiers in Digital Health 2024;6 View
  20. Ortiz Llana A, Zapana Ruiz J, Meneses Claudio B. Quality of service and citizen satisfaction in a Lima district municipality. Southern perspective / Perspectiva austral 2023;1:17 View
  21. Brands M, Haverman L, Muis J, Driessens M, Meijer S, van der Meer F, de Jong M, van der Bom J, Cnossen M, Fijnvandraat K, Gouw S. Toward Personalized Care and Patient Empowerment and Perspectives on a Personal Health Record in Hemophilia Care: Qualitative Interview Study. JMIR Human Factors 2024;11:e48359 View
  22. Nothaft F, Power B. The Most Disruptive Near-Term Use of AI in Cancer Care: Patient Empowerment Through Software Agents. AI in Precision Oncology 2024;1(5):256 View
  23. Pham T, Teh M, Chatzopoulou D, Holmes S, Coulthard P. Artificial Intelligence in Head and Neck Cancer: Innovations, Applications, and Future Directions. Current Oncology 2024;31(9):5255 View
  24. Simoun A, Fleet A, Scharf D, Pope L, Spaeth-Rublee B, Goldman M, Pincus H. Technology for advancing behavioral health integration: implications for behavioral health practice and policy. Translational Behavioral Medicine 2025;15(1) View
  25. Milanfar L, Soulsby W, Ling N, O’Brien J, Oates A, McCulloch C. Automatic Enrollment in Patient Portal Systems Mitigates the Digital Divide in Healthcare: An Interrupted Time Series Analysis of an Autoenrollment Workflow Intervention. Journal of Medical Systems 2024;48(1) View
  26. Kaklamanou D, Nguyen L, Al-Abbadey M, Sangala N, Lewis R, Ayatollahi H. Attitudes towards digital health technology for the care of people with chronic kidney disease: A technology acceptance model exploration. PLOS Digital Health 2024;3(10):e0000614 View
  27. Chokphukhiao C, Pattaranit P, Tun W, Masa S, Leemananil R, Natteerapong N, Phetcharaburanin J, Boonlue S, Sunat K, Patramanon R. Improving health awareness with real-time monitoring through a three-dimensional visualized digital health avatar. Smart Health 2024;34:100522 View
  28. Barberá A, White T, Arora A, Henry L, Lazarus J, Younossi Z. Patient-Reported Outcomes in Metabolic Dysfunction-Associated Steatotic Liver Disease. Seminars in Liver Disease 2025;45(02):210 View
  29. Ono Y, Okada H, Kitagawa N, Majima S, Okamura T, Senmaru T, Ushigome E, Nakanishi N, Hamaguchi M, Fukui M. Impact of Personal Health Records on Diabetes Management: A Propensity Score Matching Study. Diabetology 2024;5(7):640 View
  30. Grouse C, Esper G. The Patient Portal Messaging Crisis. JAMA Neurology 2025;82(4):317 View
  31. Zarekar M, Al-Shehabi H, Dörner R, Weishaar H, Lennemann T, El Bcheraoui C, Bernasconi A. The impact of information and communication technology on immunisation and immunisation programmes in low-income and middle-income countries: a systematic review and meta-analysis. eBioMedicine 2025;111:105520 View
  32. Luchowska K, Chmielewska M, Byszek K, Olearczyk A, Gawrońska A, Więckowska B. Contextual factors influencing the use of digital health by patients and physicians in primary care: a scoping review protocol. BMJ Open 2024;14(12):e088169 View
  33. Kröner S, Schreiweis B, Strotbaum V, Brandl L, Pobiruchin M, Wiesner M. Consumer perspectives on the national electronic health record and barriers to its adoption in Germany: does health policy require a change in communication?. BMC Health Services Research 2025;25(1) View
  34. Shah A, Fiala M. Disparities in Access and Utilization of Electronic Health Record Patient Portals. Journal of General Internal Medicine 2025;40(10):2233 View
  35. Győrffy Z, Döbrössy B, Boros J, Girasek E. Unveiling the digital future: perspectives of Hungarian physicians under 35 years old on eHealth solutions. Frontiers in Digital Health 2025;6 View
  36. Guo R, Zheng Z, Yang F, Wu Y. Translation, Cross-Cultural Adaptation, and Psychometric Validation of the Health Information Technology Usability Evaluation Scale in China: Instrument Validation Study. Journal of Medical Internet Research 2025;27:e67948 View
  37. Padamati S, Thomas T. If a Tree Falls?: Using the Electronic Medical Record to Understand How Patients Self-Advocate for Their Health and Quality of Life. Journal of Palliative Medicine 2025 View
  38. Purcaru E, Kings J, Ayer M, Kipps C, Pinto A. Personal health records: a practical guide for neurologists. Practical Neurology 2025;25(5):438 View
  39. Renting N, Brands M, Velthausz E, Gouw S. How healthcare providers’ IT identity is formed and how it affects the use of telemonitoring: a qualitative interview study in COPD care. BMJ Open 2025;15(2):e086600 View
  40. Okunna N. Examining urban–rural differences in digital patient engagement in the US: evidence from the health information national trends survey, 2020 – 2022. Health and Technology 2025;15(2):427 View
  41. Alcantara K, O’Conor R, Masters M, Svoboda S, Smith R, Yeh F, Wallia A, Bailey S, Pack A. Awareness and perceived risk of type 2 diabetes among older adults with HIV: results from a qualitative study. AIDS Care 2025;37(7):1160 View
  42. Sun C, Dai H, M.J.J. van der Kleij R, Li R, Wu H, Hallensleben C, Willems S, Chavannes N. Digital Health Education for Chronic Lung Disease: Scoping Review. Journal of Medical Internet Research 2025;27:e53142 View
  43. Valkonen P, Hölsä S, Viitanen J, Leinonen S, Karisalmi N, Rauta V. Illustrating User Needs for eHealth With Experience Map: Interview Study With Chronic Kidney Disease Patients. JMIR Human Factors 2025;12:e48221 View
  44. Chen T, Li Q, Zhao D, Zhang W, Li Y, Yang J, Pu C, Fu Q. Large Language Models (LLMs) as Search Engine Alternatives for Health Information Seeking Among Patients with Severe Congenital Scoliosis and Families: A Qualitative Phenomenological Investigation (Preprint). JMIR Formative Research 2024 View
  45. Tensen P, Gaifém F, Paul S, Wekesah F, Acheampong P, Nikolajsen M, Kirk U, Owusu-Dabo E, Kallestrup P, Agyemang C, van de Vijver S. Electronic Personal Health Records for Mobile Populations: A Rapid Systematic Literature Review. International Journal of Environmental Research and Public Health 2025;22(4):488 View
  46. Pinotti C, Pooni R, Gaizo V, Kohlheim M, Schildt E, Taxter A, Ronis T. Patient and Family Perceptions of Real-Time Access to Electronic Health Information: A Social Media Survey. Applied Clinical Informatics 2025;16(02):327 View
  47. Yang B, Zhou F, Bai N, Zhou S, Luo C, Wang Q, Wong A, Lin F. Digital and Intelligence Education in Medicine: A Bibliometric and Visualization Analysis Using CiteSpace and VOSviewer. Frontiers of Digital Education 2025;2(1) View
  48. Bui T, Looney B, DeClercq J, Lynch B, Whelchel K, Nelson S, Choi L, D. Zuckerman A. Implementation of an electronic early treatment assessment and monitoring questionnaire for oral anticancer medication. American Journal of Health-System Pharmacy 2025;82(19):e827 View
  49. Kim J, Chen M, Rezaei S, Hernandez-Boussard T, Chen J, Rodriguez F, Han S, Lal R, Kim S, Dosiou C, Seav S, Akcan T, Rodriguez C, Asch S, Linos E. Artificial intelligence tools in supporting healthcare professionals for tailored patient care. npj Digital Medicine 2025;8(1) View
  50. Chen Y, Spaulding E, Kruahong S, Slone S, Miller H, Koirala B, Davidson P, Commodore‐Mensah Y, Dennison Himmelfarb C. Patient Portals and Shared Decision‐Making in US Adults With or at Risk of Cardiovascular Diseases: A Cross‐Sectional Study. Journal of the American Heart Association 2025;14(10) View
  51. Rule A, Vang P, Micek M, Arndt B. Primary care staff members’ experiences with managing electronic health record inbox messages. Journal of the American Medical Informatics Association 2025;32(6):1040 View
  52. Schmiedmayer P, Rao A, Zagar P, Aalami L, Ravi V, Zahedivash A, Yao D, Fereydooni A, Aalami O. LLMonFHIR. JACC: Advances 2025;4(6):101780 View
  53. Higashi R, Thakur B, Repasky E, Casillas A, Steitz B, Hogan T, Lehmann C, Peterson E, Navar A, Turer R. Digital Health Technology Use Among Spanish Speakers in the US. JAMA Network Open 2025;8(5):e2510386 View
  54. Bywall K, Norgren T, Avagnina B, Gonzalez M, Andersson S. Promoting digital health literacy among immigrants in Sweden: opportunities and challenges for healthcare services. Journal of Public Health 2025 View
  55. LEIVADITIS V, SEPETIS A. DIGITAL TRANSFORMATION AS A CATALYST FOR SUSTAINABLE HEALTH CARE SYSTEMS: A NARRATIVE REVIEW OF CURRENT EVIDENCE. International Journal of Innovation Management 2025;29(05n06) View
  56. Kim Y, Huh K, Yu K. Integrating Personal Health Records to Improve Data Integrity in Trials With Decentralized Elements: A Pilot Study. Clinical and Translational Science 2025;18(6) View
  57. Li M, Chen Y, Chen X, Yao H, You L. Impact of Digital Therapeutics for the Management of Adult Patients With Diabetes: Systematic Review and Meta-Analysis of Randomized Controlled Trials. Journal of Medical Internet Research 2025;27:e70428 View
  58. Wamala Andersson S, Gonzalez M. Digital health literacy—a key factor in realizing the value of digital transformation in healthcare. Frontiers in Digital Health 2025;7 View
  59. Tüzün Ş, Temel M, Akarırmak Z, Bağcıer F, Kirazlı Y, Kutsal Y, Sindel D. Digital integration and sociocultural tailoring in standardized care—FracTurk: the national digital fracture liaison service database by the Turkish Osteoporosis Society. Archives of Osteoporosis 2025;20(1) View
  60. Loo R, Nasta F, Macchi M, Baudot A, Burstein F, Bove R, Greve M, Fröhlich H, Khalid S, Küderle A, Moore S, Storms V, Torous J, Glaab E. Recommendations for Successful Development and Implementation of Digital Health Technology Tools. Journal of Medical Internet Research 2025;27:e56747 View
  61. Carlson A, Badlani S, Shah V. The Role, Potential Benefits and Cost-effectiveness of Digital Tools for Diabetes Management. Clinical Therapeutics 2025;47(8):638 View
  62. Ivanitskaya L, Zikos D, Erzikova E. Multidisciplinary Contributions and Research Trends in eHealth Scholarship (2000-2024): Bibliometric Analysis. Journal of Medical Internet Research 2025;27:e60071 View
  63. Zipursky A, Goldbloom E, Jessa K, King W, Silver S, Johnston D, Yan A. Anticipatory guidance and follow-up regarding online access to test results in the Canadian pediatric setting. Paediatrics & Child Health 2025;30(7):540 View
  64. Rigo D, Fehring L, Mortsiefer A, Meister S. Service Quality Assessment of Digital Health Solutions in Outpatient Care: Qualitative Item Repository Development Study. JMIR Formative Research 2025;9:e68276 View
  65. Chen F, Yang E, Qing H, Wei Y, Tang S. The effect of follow-up on the blood pressure control: a longitudinal study in rural areas of China. Population Health Metrics 2025;23(1) View
  66. Téllez D, Boers E, Kaye L, Vuong V, Barrett M. Sociodemographic predictors of digital health adoption in patients with asthma and COPD. Frontiers in Digital Health 2025;7 View
  67. Peralta L, Davies C, Burns K, Paakkari L. Digital Health Rights, Adult Systems: Are We Leaving Adolescents Behind?. Mayo Clinic Proceedings: Digital Health 2025;3(3):100254 View
  68. Liao M, Sawant A, Corrigan B, Haertter S, Otsubo Y, Younis I, Kasichayanula S, Mehta R. How Clinical Pharmacology Can Support Clinical Trial Diversity and Inclusion. Clinical and Translational Science 2025;18(9) View
  69. Brands M, Baas L, Driessens M, Gouw S, van der Graaf R, Meijer K. People With Haemophilia as Data Coordinators: An Analysis of the Ethics and Feasibility of Self‐Management With Personal Health Records. Haemophilia 2025;31(6):1191 View
  70. Muthukumarana H, Ranatunga R. Utilizing Digital Health Technologies To Improve Patient Experience And Care Quality In Global Healthcare: A Systematic Review. International Journal of Digital Health and Telemedicine 2025;1(2) View
  71. Habibi H, Tulloh E, Gatzoulis M. Empowering Patients with Congenital Heart Disease: Development of a Digital Question Prompt List for Shared Decision-Making: A Pilot Study. Cardiology in the Young 2025;35(10):2126 View
  72. Kim J, Ma S, Chen M, Galatzer-Levy I, Torous J, van Roessel P, Sharp C, Pfeffer M, Rodriguez C, Linos E, Chen J. Optimizing large language models for detecting symptoms of depression/anxiety in chronic diseases patient communications. npj Digital Medicine 2025;8(1) View
  73. van der Smissen D, Leenen-Brinkhuis C, Janssens K, Porte P, van Assen M, Weggelaar-Jansen A. Adoption of Personal Health Records in Dutch Hospitals and Private Medical Clinics: Longitudinal Study. Journal of Medical Internet Research 2025;27:e71915 View
  74. Hjorth A, Ashtiani S, Idegård A, Ozanne A, Zelano J. Clinical and demographic predictors of high epilepsy care utilization: mode of interaction, professionals involved, and reasons for contact. Seizure: European Journal of Epilepsy 2025;133:52 View
  75. Matsuda A, Nishio A, Suzuki A, Hoshi K, Nakano T, Yamamoto Y. Impact of regional medical network systems on emergency transport time for older patients in Japan: a retrospective observational study. BMC Emergency Medicine 2025;25(1) View
  76. Kato Y. Transition From a Paper Diary to an Electronic Diary by Parents of Preschool Children With Food Allergies: Pilot Study. JMIR Formative Research 2025;9:e73400 View
  77. Javed J, Islam S. Artificial intelligence and electronic health records: a narrative review of current applications and challenges in pediatric surgery. World Journal of Pediatric Surgery 2025;8(5):e001100 View
  78. Shi W, Duan D, Dong S, Yu Z, Li J. Digital Divide in Awareness, Want, and Adoption Across Diverse eHealth Services: Cross-Sectional Survey of Inpatients in Jinan, China. Journal of Medical Internet Research 2025;27:e72297 View
  79. Abashidze-Gabaidze G, Gakharia T, Jorbenadze M, Loria L, Dzodzuashvili E, Gabaidze M, Grigalashvili L. The positive impact of electronic healthcare integration on quality and safety: a systematic review. International Journal Of Community Medicine And Public Health 2025;12(11):5216 View
  80. Schwartzman G, Smith A, Ramamurti P, Flowers R, Grant-Kels J. Navigating patient portal overuse: Ethical strategies for compassionate care. Journal of the American Academy of Dermatology 2025 View
  81. Alshehri A, Abduljawad A. Impact of the Saudi Health Sector Transformation Program (SHSTP): A Mixed-Methods Evaluation of Patient-Centered Care and Digital Health Adoption. Healthcare 2025;13(22):2968 View
  82. Bamgboje-Ayodele A, Paonne A, Evans E, Ly M, So A, Solanki H, So S, Nixon N, Dunn A, Howell M, Jones A, Baysari M. Facilitators and Barriers to Implementing a Patient Portal at a Dental Hospital From the Implementers’ Perspectives: Qualitative Study. Journal of Medical Internet Research 2025;27:e78979 View
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Books/Policy Documents

  1. Enwald H, Eriksson-Backa K, Hirvonen N, Huvila I. Information Experience and Information Literacy. View
  2. Crum E. The Semantic Web: ESWC 2024 Satellite Events. View
  3. Klein N. Perioperative Pediatric Patient Blood Management and Transfusion Safety. View
  4. Shehu Kafia E. Evidence-Based Approaches to Integrated Care. View
  5. Gray C, Shen N, Pham Q, Wiljer D. Handbook of Health Services Evaluation. View
  6. Rajendran S, Hu R. Machine Learning in Healthcare. View

Conference Proceedings

  1. Marković L, Trpkov A, Sovtić D, Rodić B, Labus A. 2025 10th International Conference on Smart and Sustainable Technologies (SpliTech). Leveraging blockchain-based healthcare services with artificial intelligence View