Published on in Vol 22, No 8 (2020): August

Preprints (earlier versions) of this paper are available at, first published .
Online Health Information Seeking by Parents for Their Children: Systematic Review and Agenda for Further Research

Online Health Information Seeking by Parents for Their Children: Systematic Review and Agenda for Further Research

Online Health Information Seeking by Parents for Their Children: Systematic Review and Agenda for Further Research

Authors of this article:

Christian Kubb1 Author Orcid Image ;   Heather M Foran1 Author Orcid Image


  1. Miller B, Goldenberg A, Bonhomme N. Digital peer‐to‐peer information seeking and sharing: Opportunities for education and collaboration in newborn screening. American Journal of Medical Genetics Part C: Seminars in Medical Genetics 2021;187(1):64 View
  2. Mahony C, Heavin C, Sammon D. Health-related information resource use: an exploratory study of expectant mothers. Journal of Decision Systems 2022;31(3):234 View
  3. Pitt M, Hendrickson M. Providing a Second Opinion to Dr. Google with the WWW Framework. Journal of General Internal Medicine 2022;37(1):222 View
  4. Paget S, Campbell L, Blaxland A, Lewis J, Morrow A, Wimalasundera N. ‘Life‐changing surgery’: English‐language news media representation of selective dorsal rhizotomy. Child: Care, Health and Development 2021;47(6):844 View
  5. Xie W, Ji M, Liu Y, Hao T, Chow C. Predicting Writing Styles of Web-Based Materials for Children’s Health Education Using the Selection of Semantic Features: Machine Learning Approach. JMIR Medical Informatics 2021;9(7):e30115 View
  6. Choi H, Jeong G. Characteristics of the Measurement Tools for Assessing Health Information–Seeking Behaviors in Nationally Representative Surveys: Systematic Review. Journal of Medical Internet Research 2021;23(7):e27539 View
  7. Barlow S, Yudkin J, Nelson V, Allicock M. Dynamo Kids!/¡Niños Dinámicos! A Web Site for Pediatric Primary Care Providers to Offer Parents of Children 6−12 Years Old With Overweight and Obesity: Web Site Development and Protocol for Pilot Study. Journal of Pediatric Health Care 2023;37(1):17 View
  8. Popovac M, Roomaney R. Measuring online health‐seeking behaviour: Construction and initial validation of a new scale. British Journal of Health Psychology 2022;27(3):756 View
  9. Allen J, Fu Q, Nguyen K, Rose R, Silva D, Corlin L. Parents’ Willingness to Vaccinate Children for COVID-19: Conspiracy Theories, Information Sources, and Perceived Responsibility. Journal of Health Communication 2023;28(1):15 View
  10. Mörelius E, Robinson S, Arabiat D, Whitehead L. Digital Interventions to Improve Health Literacy Among Parents of Children Aged 0 to 12 Years With a Health Condition: Systematic Review. Journal of Medical Internet Research 2021;23(12):e31665 View
  11. Cunningham C, Sung H, Benoit J, Conway J, Scott S. Multimedia Knowledge Translation Tools for Parents About Childhood Heart Failure: Environmental Scan. JMIR Pediatrics and Parenting 2022;5(1):e34166 View
  12. Harney S, Chu T, Trask C, Welch J. Health-related Internet Use by Caregivers of Children and Adolescents With Cancer. Journal of Pediatric Hematology/Oncology 2023;45(2):e214 View
  13. Kubb C, Foran H. Online Health Information Seeking for Self and Child: An Experimental Study of Parental Symptom Search. JMIR Pediatrics and Parenting 2022;5(2):e29618 View
  14. Wu M, Lee T, Lin M. The parental experience of participating in surgical decision-making regarding one's child with a congenital heart disease in Taiwan. Journal of Pediatric Nursing 2023;68:e103 View
  15. Tsao-Wu L, Chepkorir J, Han H. Factors associated with HPV vaccination decision-making among Korean American women. Journal of Behavioral Medicine 2023;46(3):509 View
  16. Vieira M, Kube P, van Helmond J, Hanley P, Graber E, Bialo S, Slamon N. Recipe for Disaster: Homemade Formula Leading to Severe Complications in 2 Infants. Pediatrics 2021;148(3) View
  17. Hussain T, Ahmedna T, Marklund M, Appel L, Henry M. Quality assessment of consumer‐facing websites on sodium reduction. The Journal of Clinical Hypertension 2022;24(10):1285 View
  18. van Kessel R, Kyriopoulos I, Wong B, Mossialos E. The Effect of the COVID-19 Pandemic on Digital Health–Seeking Behavior: Big Data Interrupted Time-Series Analysis of Google Trends. Journal of Medical Internet Research 2023;25:e42401 View
  19. Manganello J, Chiang S, Cowlin H, Kearney M, Massey P. HPV and COVID-19 vaccines:  Social media use, confidence, and intentions among parents living in different community types in the United States. Journal of Behavioral Medicine 2023;46(1-2):212 View
  20. Olpin E, Hanson C, Crandall A. Influence of Social Media Uses and Gratifications on Family Health among U.S. Parents: A Cross-Sectional Study. International Journal of Environmental Research and Public Health 2023;20(3):1910 View
  21. El Sherif R, Pluye P, Ibekwe F. Contexts and Outcomes of Proxy Online Health Information Seeking: Mixed Studies Review With Framework Synthesis. Journal of Medical Internet Research 2022;24(6):e34345 View
  22. Kwan L, Yip H, Tan S, Fan K. A quality assessment of online patient information regarding tonsillitis using the EQIP tool. International Journal of Pediatric Otorhinolaryngology 2022;159:111224 View
  23. Conley C, Raposa E, Bartolotta K, Broner S, Hareli M, Forbes N, Christensen K, Assink M. The Impact of Mobile Technology-Delivered Interventions on Youth Well-being: Systematic Review and 3-Level Meta-analysis. JMIR Mental Health 2022;9(7):e34254 View
  24. Sanders B, Bedrick S, Broder-Fingert S, Brown S, Dolata J, Fombonne E, Reeder J, Rivas Vazquez L, Fuchu P, Morales Y, Zuckerman K. Mobile and online consumer tools to screen for autism do not promote equity. Autism 2023;27(3):714 View
  25. Jawad D, Cheng H, Wen L, Rissel C, Baur L, Mihrshahi S, Taki S. Interactivity, Quality, and Content of Websites Promoting Health Behaviors During Infancy: 6-Year Update of the Systematic Assessment. Journal of Medical Internet Research 2022;24(10):e38641 View
  26. Ma X, Liu Y, Zhang P, Qi R, Meng F. Understanding online health information seeking behavior of older adults: A social cognitive perspective. Frontiers in Public Health 2023;11 View
  27. Khanam L, Sorwar G, Mahfuz M. Antecedents of self-protective behavior during the COVID-19 pandemic in Bangladesh. WHO South-East Asia Journal of Public Health 2022;11(1):32 View
  28. Bizzotto N, Marciano L, de Bruijn G, Schulz P. The Empowering Role of Web-Based Help Seeking on Depressive Symptoms: Systematic Review and Meta-analysis. Journal of Medical Internet Research 2023;25:e36964 View
  29. Huang Y, Chen L, Wang X, Zhao C, Guo Z, Li J, Yang F, Cai W. Maternal knowledge, attitudes and practices related to neonatal jaundice and associated factors in Shenzhen, China: a facility-based cross-sectional study. BMJ Open 2022;12(8):e057981 View
  30. Nievas-Soriano B, Castro-Luna G, García-Duarte S, González-López M, Parrón-Carreño T. Profile of the Users and the Most Visited Topics of a Pediatric eHealth Website. International Journal of Environmental Research and Public Health 2021;18(21):11248 View
  31. Quinn E, Fenton S, Ford-Sahibzada C, Harper A, Marcon A, Caulfield T, Fazel S, Peters C. COVID-19 and Vitamin D Misinformation on YouTube: Content Analysis. JMIR Infodemiology 2022;2(1):e32452 View
  32. McCall M, Hineline M, Anton M, Highlander A, Jones D. The Socioeconomic Indicators Linked to Parent Health-Related Technology Use: Cross-sectional Survey. Journal of Medical Internet Research 2022;24(11):e37455 View
  33. Han K, Hou Z, Tu S, Wang Q, Hu S, Xing Y, Du J, Zang S, Chantler T, Larson H. Childhood Influenza Vaccination and Its Determinants during 2020–2021 Flu Seasons in China: A Cross-Sectional Survey. Vaccines 2022;10(12):1994 View
  34. Zhao X, Coxe S, Timmons A, Frazier S. Mental Health Information Seeking Online: A Google Trends Analysis of ADHD. Administration and Policy in Mental Health and Mental Health Services Research 2022;49(3):357 View
  35. Cinelli G, Croci I, Gesualdo F, Pandolfi E, Miller K, Tozzi A. Public Engagement in Digital Recommendations for Promoting Healthy Parental Behaviours from Preconception through the First 1000 Days. International Journal of Environmental Research and Public Health 2023;20(2):1329 View
  36. Wilkin T, Stott A, Lin J, Pate J, McEwen A, Verhagen A, Turbitt E. Free Online Decision Tools to Support Parents Making Decisions About Their Children's Chronic Health Condition: An Environmental Scan. Academic Pediatrics 2023;23(5):874 View
  37. Zhang X, Bartlett J. What Does the Literature Tell Us? Reviewing Literature Reviews on Information Behavior. Proceedings of the Association for Information Science and Technology 2021;58(1):872 View
  38. Aguirre P, Lotto M, Strieder A, Cruvinel T. Digital surveillance: Monitoring the activity of Internet users searching for information related to early childhood caries. Health Informatics Journal 2022;28(1):146045822110730 View
  39. Delemere E, Maguire R. Caregivers of children feel confident about using the Internet for health information. Health Information & Libraries Journal 2023;40(1):54 View
  40. El Sherif R, Pluye P, Schuster T, Grad R. Proxy Information Seeking by Users of a Parenting Information Website: Quantitative Observational Study. JMIR Pediatrics and Parenting 2022;5(1):e32406 View
  41. Henström M, Duncanson K, Collins C, Ashton L, Davidson E, Ball R. Online reach and engagement of a child nutrition peer-education program (PICNIC): insights from social media and web analytics. BMC Public Health 2022;22(1) View
  42. Karatas C, Caldwell P, Scott K. How paediatricians communicate with parents who access online health information. Journal of Paediatrics and Child Health 2022;58(12):2169 View
  43. Zhao X, Hayes T, Timmons A, Wu W, Frazier S. Unpacking Inequities in ADHD Diagnosis: Examining Individual-Level Race/Ethnicity and State-Level Online Information-Seeking Patterns. Administration and Policy in Mental Health and Mental Health Services Research 2023;50(4):576 View
  44. Hecht C, Burkhart R, McNassor R, Mistovich R. Readability of Online Patient Educational Materials in Pediatric Orthopaedics: A Systematic Review. Journal of Pediatric Orthopaedics 2023;43(7):e591 View
  45. Martínez-Abraín A, Santidrián Tomillo P, Mouriño J, Rodríguez-Silvar J, Bermejo A. Predator-prey collapses at the edge of predator distribution: the case of clupeids and common guillemots (Uria aalge) in NW Iberia. Scientia Marina 2023;87(1):e053 View
  46. Hartling L, Elliott S, Munan M, Scott S. Web-Based Knowledge Translation Tool About Pediatric Acute Gastroenteritis for Parents: Pilot Randomized Controlled Trial. JMIR Formative Research 2023;7:e45276 View
  47. Lander J, Bitzer E, von Sommoggy J, Pawellek M, Altawil H, John C, Apfelbacher C, Dierks M. How do parents access, appraise, and apply health information on early childhood allergy prevention? A focus group and interview study. Frontiers in Public Health 2023;11 View
  48. McCall M, Anton M, Highlander A, Loiselle R, Forehand R, Khavjou O, Jones D. Technology-Enhanced Behavioral Parent Training: The Relationship Between Technology Use and Efficiency of Service Delivery. Behavior Modification 2023;47(5):1094 View
  49. El Sherif R, Pluye P, Paquet V, Ibekwe F, Grad R. How People Use Web-Based Parenting Information to Support Others in Their Social Circle: Qualitative Descriptive Study. JMIR Pediatrics and Parenting 2023;6:e40043 View
  50. Blakeslee S, Vieler K, Horak I, Stritter W, Seifert G. Planting Seeds for the Future: Scoping Review of Child Health Promotion Apps for Parents. JMIR mHealth and uHealth 2023;11:e39929 View
  51. Azak M, Korkmaz N, Şahin K, Gözen D. Evaluation of YouTube videos on complementary feeding: Content quality and reliability analysis. Appetite 2023;188:106766 View
  52. Jawad D, Taki S, Baur L, Rissel C, Mihrshahi S, Ming Wen L. Resources used and trusted regarding child health information by culturally and linguistically diverse communities in Australia: An online cross-sectional survey. International Journal of Medical Informatics 2023;177:105165 View
  53. Treadgold B, Muller I, Teasdale E, Coulson N, Roberts A, Santer M. Parental experiences of eczema advice in online parenting forums: a qualitative interview study. BJGP Open 2023;7(2):BJGPO.2022.0155 View
  54. Orlando J, Cunha A, Alghamdi Z, Lobo M. Information Available to Parents Seeking Education about Infant Play, Milestones, and Development from Popular Sources. Behavioral Sciences 2023;13(5):429 View
  55. Zysset A, Schwärzler P, Dratva J. Seeking Health in a Digital World: Exploring Immigrant Parents’ Quest for Child Health Information—A Scoping Review. International Journal of Environmental Research and Public Health 2023;20(19):6804 View
  56. Lander J, Dierks M, Apfelbacher C, Bitzer E. Breastfeeding and the role of the commercial milk formula industry. The Lancet 2023;402(10400):447 View
  57. Zhang Y, Liu J. Deconstructing proxy health information-seeking behavior: A systematic review. Library & Information Science Research 2023;45(3):101250 View
  58. Aguirre P, Anibal I, Lotto M, Strieder A, Cruvinel T. Decoding early childhood caries: an in-depth analysis of YouTube videos for effective parental education. European Archives of Paediatric Dentistry 2023;24(6):701 View
  59. Ahmad Q, Warraich N, Malik A. Everyday life information seeking behavior of transgender people in Pakistan. Global Knowledge, Memory and Communication 2023 View
  60. Chou F, Donovan D, Weller R, Fremed M, Glickstein J, Krishnan U. Disparities in resource utilisation by families of children with cardiac conditions. Cardiology in the Young 2024;34(2):325 View
  61. Ingeman K, Wright K, Frostholm L, Frydendal D, Ørnbøl E, Rask C. Measurement properties of the Health Anxiety by Proxy Scale (HAPYS): A new questionnaire to assess parents' worries about their child's health. Journal of Psychosomatic Research 2024;176:111555 View
  62. Knisley L, Driedger S, Hartling L, Chartrand F, Sanguins J, Scott S. We’re here too: child health information-seeking experiences and preferences of Red River Métis families – a qualitative study. International Journal for Equity in Health 2023;22(1) View
  63. Khayyat A, Abumansour R, Khayat M, Almalayo N, Saleh R, Baashar D, Almhmadi M, Almalki R, Ageel M. Parents’ Knowledge, Attitude, and Practice Related to Childhood Constipation in Makkah, Saudi Arabia. Cureus 2024 View
  64. Hendry D, Straker L, Bourne B, Coshan S, Kumwembe N, McCarthy C, Zabatiero J. Parental practices and perspectives on health and digital technology use information seeking for children aged 0–36 months. Health Promotion Journal of Australia 2024 View
  65. Zein M, Arafa N, El-Shabrawi M, El-Koofy N. Effect of nutrition-related infodemics and social media on maternal experience: A nationwide survey in a low/middle income country. World Journal of Clinical Pediatrics 2024;13(1) View
  66. Landman B, Khoury E, Cohen A, Trebossen V, Michel A, Lefebvre A, Delorme R. Acceptance of a French e-mental health information website for families (Preprint). JMIR Pediatrics and Parenting 2023 View
  67. Lin-Lewry M, Thi Thuy Nguyen C, Hasanul Huda M, Tsai S, Chipojola R, Kuo S. Effects of digital parenting interventions on self-efficacy, social support, and depressive symptoms in the transition to parenthood: A systematic review and meta-analysis. International Journal of Medical Informatics 2024;185:105405 View
  68. Jawad D, Wen L, Rissel C, Baur L, Mihrshahi S, Taki S. Barriers and enablers to accessing child health resources and services: Findings from qualitative interviews with Arabic and Mongolian immigrant mothers in Australia. Women's Health 2024;20 View
  69. Fagundes N, Young R, Flores‐Mir C, Heo G, Perez A. Parental experiences in navigating health services for paediatric residual obstructive sleep apnoea: An exploratory qualitative descriptive study. Orthodontics & Craniofacial Research 2024 View
  70. Billich N, Dix C, Palmer J, Swyripa C, Murawski B, Truby H. A scoping review of Australian nutrition resources for feeding children under 5 years of age. Nutrition & Dietetics 2024 View
  71. Thomas N, Melchor J, Carr R, Ripps S, Pham N, Golan R, Talathi N, Thompson R, Spence D, Chambers H. Online video resources pertaining to cerebral palsy: A YouTube-based quality control study. Journal of Children's Orthopaedics 2024;18(3):308 View
  72. Hauber S, Robinson K, Fechner R, Pate J, O'Sullivan K. Credibility, readability and content analysis of treatment recommendations for adolescents with nonspecific back pain published on consumer websites. European Journal of Pain 2024 View
  73. Ashfield S, Donelle L, Tryphonopoulos P, Dubé È, Smith M, Wagner A. Digital health literacy, vaccine information sources, and vaccine acceptance among parents in Ontario: Quantitative findings from a mixed methods study. PLOS Global Public Health 2024;4(5):e0003154 View
  74. Zhou Z, Besson A, Hayes D, Yeung J. Ostomy Information on the Internet—Is It Good Enough?. Journal of Wound, Ostomy & Continence Nursing 2024;51(3):199 View
  75. Thompson K, Graf M. Environmental Scan of Online Government Complementary Feeding Resources in the United States. MCN: The American Journal of Maternal/Child Nursing 2024 View

Books/Policy Documents

  1. McDermott, PhD, MS R, Mayer, PhD, MPH A, Martinasek, PhD, MPH M, Loi, PhD, MPH C, Vamos, EdD S, Pasha, PhD, MPH M, McDaniel, PhD, MBA J. Chronic Disease Epidemiology, Prevention, and Control, 5th edition. View
  2. Komalasari R. Multi-Sector Analysis of the Digital Healthcare Industry. View