Home-Based Pediatric Palliative Care and Electronic Health: Systematic Mixed Methods Review

Journals

1. Miller K, Baird J, Lira J, Herrera Eguizabal J, Fei S, Kysh L, Lotstein D. The Use of Telemedicine for Home-Based Palliative Care for Children With Serious Illness: A Scoping Review. Journal of Pain and Symptom Management 2021;62(3):619 View
2. Steindal S, Nes A, Godskesen T, Lind S, Dhle A, Winger A, Österlind J, Pettersen F, Holmen H, Klarare A. Advantages and Challenges in Using Telehealth for Home-Based Palliative Care: Protocol for a Systematic Mixed Studies Review. JMIR Research Protocols 2021;10(5):e22626 View
3. Archer S, Cheung N, Williams I, Darzi A. The impact of digital health interventions on the psychological outcomes of patients and families receiving paediatric palliative care: A systematic review and narrative synthesis. Palliative Medicine 2021;35(10):2017 View
4. Disalvo D, Agar M, Caplan G, Murtagh F, Luckett T, Heneka N, Hickman L, Kinchin I, Trethewie S, Sheehan C, Urban K, Cohen J, Harlum J, Long B, Parker T, Schaefer I, Phillips J. Virtual models of care for people with palliative care needs living in their own home: A systematic meta-review and narrative synthesis. Palliative Medicine 2021;35(8):1385 View
5. Lundereng E, Nes A, Holmen H, Winger A, Thygesen H, Jøranson N, Borge C, Dajani O, Mariussen K, Steindal S. Health Care Professionals’ Experiences and Perspectives on Using Telehealth for Home-based Palliative Care: Scoping Review. Journal of Medical Internet Research 2023;25:e43429 View
6. Holmen H, Winger A, Steindal S, Castor C, Kvarme L, Riiser K, Mariussen K, Lee A. Patient-reported outcome measures in pediatric palliative care—a protocol for a scoping review. Systematic Reviews 2021;10(1) View
7. Steindal S, Nes A, Godskesen T, Holmen H, Winger A, Österlind J, Dihle A, Klarare A. Advantages and Challenges of Using Telehealth for Home-Based Palliative Care: Systematic Mixed Studies Review. Journal of Medical Internet Research 2023;25:e43684 View
8. Burlo F, Zanon D, Passone E, Toniutti M, Ponis G, Barbi E, Taucar V, De Zen L. Impact of compounded drugs on the caregivers’ burden of home therapy management in pediatric palliative care: A descriptive study. Palliative Medicine 2023;37(3):384 View
9. Bower K, Lau M, Short R, Lawrence S, Beauchamp-Walters J, Marc-Aurele K. Impact of Home-Based Pediatric Palliative Care on Hospital and Emergency Department Utilization at a Single Institution. Journal of Palliative Medicine 2022;25(2):301 View
10. Lundereng E, Nes A, Holmen H, Winger A, Thygesen H, Jøranson N, Borge C, Chen W, Dajani O, Mariussen K, Steindal S. Health Care Professionals’ Experiences and Perspectives on Using Telehealth for Home-Based Palliative Care: Protocol for a Scoping Review. JMIR Research Protocols 2021;10(10):e33305 View
11. Schmitt S, Ebby C, Doshi A, Bower K, Marc-Aurele K. Retrospective Pediatric Telepalliative Care Experience. Journal of Palliative Medicine 2022;25(2):274 View
12. Salvador Vergès À, Cusí Sánchez M, Bossio Grigera P, Fàbrega Agulló C, Gomes da Costa F, Serra Trullas A, García Abejas A. Determinants in Stakeholder Opinions About Telemedicine in Palliative Care: A Scoping Review. Telemedicine and e-Health 2022;28(7):932 View
13. Overå M. Music therapy in paediatric palliative care: A scoping review. British Journal of Music Therapy 2023;37(2):58 View
14. Zimmermann J, Heilmann M, Fisch-Jessen M, Hauch H, Kruempelmann S, Moeller H, Nagel L, Nathrath M, Vaillant V, Voelker T, Deckers M. Telehealth Needs and Concerns of Stakeholders in Pediatric Palliative Home Care. Children 2023;10(8):1315 View
15. Schröder J, Riiser K, Holmen H. The needs of healthcare personnel who provide home-based pediatric palliative care: a mixed method systematic review. BMC Health Services Research 2024;24(1) View
16. Williams E, White C, Banerjee A, Hellsten M, Nobleza K, Nguyen D, Casas J, Jarrell J. Quality of Outpatient Pediatric Palliative Care Telehealth: A Retrospective Chart Review. Journal of Pain and Symptom Management 2024;67(6):561 View
17. Winger A, Holmen H, Birgisdóttir D, Lykke C, Lövgren M, Neergaard M, Grönroos M, Kero J, Kristinsdóttir O, Pétursdóttir Á, Castor C. Children with palliative care needs – the landscape of the nordic countries. BMC Palliative Care 2024;23(1) View
18. Schröder J, Riiser K, Holmen H. Healthcare personnel’s perspectives on health technology in home-based pediatric palliative care: a qualitative study. BMC Palliative Care 2024;23(1) View
19. Nilsson S, Öhlén J, Nyblom S, Ozanne A, Stenmarker M, Larsdotter C. Place of death among children from 0 to 17 years of age: A population‐based study from Sweden. Acta Paediatrica 2024;113(9):2155 View
20. Jarrell J, Grossoehme D, Friebert S, Ajayi T, Thienprayoon R, Humphrey L. Challenges in Pediatric Home-Based Hospice and Palliative Care: A Case Series. Journal of Pain and Symptom Management 2024;68(4):e319 View
21. Toenne R, Neuhaus U, Höcker M, Koch A, Menzel A, Scharfe D, Geffron J, Reschke F. Exploring the viability of telehealth integration into specialised paediatric palliative care. International Journal of Palliative Nursing 2025;31(2):58 View
22. Peñarrubia-San-Florencio L, Junior C, Ricart S, Vilarrubí S, Ruiz-Herguido C, Esteve A, Meca-Santamaria J, Blanco-Blanco J, Valls L. Family perspectives and experiences on implementing telehealth in pediatric palliative care: a qualitative approach. European Journal of Pediatrics 2025;184(5) View
23. Luo L, Lou Y, Wu C, He J, Jiang F. Worldwide research performance on telemedicine for newborns and neonatal intensive care units: A bibliometric and visualization study. DIGITAL HEALTH 2025;11 View
24. Bjørnerud E, Steindal S, Hofmann B, Winger A, Riiser K, Chen W, Holmen H. Ethical, legal, and social aspects of health technologies for home-based paediatric palliative care – a systematic review. BMC Palliative Care 2025;24(1) View
25. Wasilewska E, Wasilewski A, Onofri A, Wasilewski J, Sabiniewicz-Ziajka D, Sobierajska-Rek A, Meyer-Szary J, Śledzińska K, Wierzba J, Niedoszytko M, Małgorzewicz S. Exploring the Role of Telemedicine in Duchenne Muscular Dystrophy: Benefits and Challenges. JMIR Formative Research 2025;9:e77698 View
26. 范 渝. Research Progress of Death Education for Cancer Patients. Nursing Science 2025;14(07):1291 View
27. Septian R, Suryana R, Rukhama R, Destyanto A, Librianty R. The Use of Telehealth in Home-Based Palliative Care: An Umbrella Review of Systematic Reviews. Home Health Care Management & Practice 2025 View
28. Fink F, Otto S, Grünthal M, Lehmann A, Jahn P. Family Caregivers’ Perspectives on the Potential of Drone-Based Medication Delivery in Palliative Home Care: Qualitative Focus Group Study. JMIR Human Factors 2025;12:e80320 View
29. Martinsen L, Steindal S, Holmen H, Winger A. Help us make a better flow in everyday life - family needs in home-based pediatric palliative care: a qualitative study. BMC Palliative Care 2025;24(1) View
30. Basal M, Erol M. Supporting Everyday Life: Family Needs in Home-Based Pediatric Palliative Care — A Qualitative Study. Journal of Integrative Nursing and Palliative Care 2025;6(1):73 View
31. Steindal S, Winger A, Riiser K, Bjørnerud E, Chen W, Holmen H. Health Technologies and Infrastructures for Supporting Home-based Pediatric Palliative Care: A Scoping Review (Preprint). Journal of Medical Internet Research 2024 View
32. Trae G, Winger A, Nordstrøm M. Coordinating children’s palliative care in municipalities: a qualitative study. BMC Palliative Care 2025 View