This paper is in the following e-collection/theme issue:

Personal Health Records, Patient-Accessible Electronic Health Records, Patient Portals (586) Participatory Medicine & E-Patients (781)

Published on in Vol 22, No 2 (2020): February

Preprints (earlier versions) of this paper are available at https://preprints.jmir.org/preprint/16144, first published .
Patient Use and Experience With Online Access to Electronic Health Records in Norway: Results From an Online Survey

Patient Use and Experience With Online Access to Electronic Health Records in Norway: Results From an Online Survey

Patient Use and Experience With Online Access to Electronic Health Records in Norway: Results From an Online Survey

Authors of this article:

Paolo Zanaboni1 Author Orcid Image ;   Per Egil Kummervold2 Author Orcid Image ;   Tove Sørensen3 Author Orcid Image ;   Monika Alise Johansen1 Author Orcid Image
Article Authors Cited by (62) Tweetations (13) Metrics

Journals

  1. Turner K, Clary A, Hong Y, Alishahi Tabriz A, Shea C. Patient Portal Barriers and Group Differences: Cross-Sectional National Survey Study. Journal of Medical Internet Research 2020;22(9):e18870 View
  2. Bjerkan J, Kane B, Uhrenfeldt L, Veie M, Fossum M. Citizen-Patient Involvement in the Development of mHealth Technology: Protocol for a Systematic Scoping Review. JMIR Research Protocols 2020;9(8):e16781 View
  3. Tashkandi E, BaAbdullah M, Zeeneldin A, AlAbdulwahab A, Elemam O, Elsamany S, Alfayez M, Dabash Y, Khayat E, Hassanin F, Abdulhameed R, Jazieh A. <p>Optimizing the Communication with Cancer Patients During the COVID-19 Pandemic: Patient Perspectives</p>. Patient Preference and Adherence 2020;Volume 14:1205 View
  4. Heckemann B, Chaaya M, Jakobsson Ung E, Olsson D, Jakobsson S. Finding the Person in Electronic Health Records. A Mixed-Methods Analysis of Person-Centered Content and Language. Health Communication 2022;37(4):418 View
  5. Müller J, Ullrich C, Poss-Doering R. Beyond Known Barriers—Assessing Physician Perspectives and Attitudes Toward Introducing Open Health Records in Germany: Qualitative Study. Journal of Participatory Medicine 2020;12(4):e19093 View
  6. Blease C, Torous J, Hägglund M. Does Patient Access to Clinical Notes Change Documentation?. Frontiers in Public Health 2020;8 View
  7. Avdagovska M, Menon D, Stafinski T. Capturing the Impact of Patient Portals Based on the Quadruple Aim and Benefits Evaluation Frameworks: Scoping Review. Journal of Medical Internet Research 2020;22(12):e24568 View
  8. Verma P, Kumar S, Sharma S. Multiple dimensions of e-healthcare ethics and its relationship to the ethical concerns of the consumer. International Journal of Ethics and Systems 2021;37(1):70 View
  9. Tsai C, Eghdam A, Davoody N, Wright G, Flowerday S, Koch S. Effects of Electronic Health Record Implementation and Barriers to Adoption and Use: A Scoping Review and Qualitative Analysis of the Content. Life 2020;10(12):327 View
  10. Nøst T, Faxvaag A, Steinsbekk A. Participants’ views and experiences from setting up a shared patient portal for primary and specialist health services- a qualitative study. BMC Health Services Research 2021;21(1) View
  11. Valeur H, Lie A, Moen K. Patient Rationales Against the Use of Patient-Accessible Electronic Health Records: Qualitative Study. Journal of Medical Internet Research 2021;23(5):e24090 View
  12. Glöggler M, Ammenwerth E. Development and Validation of a Useful Taxonomy of Patient Portals Based on Characteristics of Patient Engagement. Methods of Information in Medicine 2021;60(S 01):e44 View
  13. Sääskilahti M, Ahonen R, Timonen J. Pharmacy Customers’ Experiences of Use, Usability, and Satisfaction of a Nationwide Patient Portal: Survey Study. Journal of Medical Internet Research 2021;23(7):e25368 View
  14. Bernstein J. Not the Last Word: Seeing Ourselves as Doctors See Us. Clinical Orthopaedics & Related Research 2022;480(9):1653 View
  15. Kujala S, Hörhammer I, Väyrynen A, Holmroos M, Nättiaho-Rönnholm M, Hägglund M, Johansen M. Patients' Experiences of Web-Based Access to Electronic Health Records in Finland: Cross-sectional Survey. Journal of Medical Internet Research 2022;24(6):e37438 View
  16. Kalkhajeh S, Aghajari A, Dindamal B, Shahvali-Kuhshuri Z, Faraji-Khiavi F. The Integrated Electronic Health System in Iranian health centers: benefits and challenges. BMC Primary Care 2023;24(1) View
  17. Zoorob D, Hasbini Y, Chen K, Wangia-Anderson V, Moussa H, Miller B, Brobst D. Ageism in healthcare technology: the older patients’ aspirations for improved online accessibility. JAMIA Open 2022;5(3) View
  18. Liu P, Zhao X, Ye J. The Effects of the Use of Patient-Accessible Electronic Health Record Portals on Cancer Survivors’ Health Outcomes: Cross-sectional Survey Study. Journal of Medical Internet Research 2022;24(10):e39614 View
  19. Barbalho I, Fernandes F, Barros D, Paiva J, Henriques J, Morais A, Coutinho K, Coelho Neto G, Chioro A, Valentim R. Electronic health records in Brazil: Prospects and technological challenges. Frontiers in Public Health 2022;10 View
  20. Shin H, Durocher K, Lo B, Chen S, Ma C, Wiljer D, Strudwick G. Impact of a mental health patient portal on patients’ views of compassion: a mixed-methods study. BMC Digital Health 2023;1(1) View
  21. Weinberg V, van Haren E, Gombert-Handoko K. Improving Patient Access to Hospital Pharmacists Using eConsults: Retrospective Descriptive Study. JMIR Formative Research 2023;7:e38518 View
  22. Nunes Vilaza G, Coyle D, Bardram J. Public Attitudes to Digital Health Research Repositories: Cross-sectional International Survey. Journal of Medical Internet Research 2021;23(10):e31294 View
  23. Kainiemi E, Vehko T, Kyytsönen M, Hörhammer I, Kujala S, Jormanainen V, Heponiemi T. The Factors Associated With Nonuse of and Dissatisfaction With the National Patient Portal in Finland in the Era of COVID-19: Population-Based Cross-sectional Survey. JMIR Medical Informatics 2022;10(4):e37500 View
  24. Zanaboni P, Kristiansen E, Lintvedt O, Wynn R, Johansen M, Sørensen T, Fagerlund A. Impact on patient-provider relationship and documentation practices when mental health patients access their electronic health records online: a qualitative study among health professionals in an outpatient setting. BMC Psychiatry 2022;22(1) View
  25. Griesser A, Bidmon S. A Process Related View on the Usage of Electronic Health Records from the Patients’ Perspective: A Systematic Review. Journal of Medical Systems 2022;47(1) View
  26. Mallmann C, Domröse C, Schröder L, Engelhardt D, Bach F, Rueckel H, Abramian A, Kaiser C, Mustea A, Faridi A, Malter W, Mallmann P, Rudlowski C, Zivanovic O, Mallmann M. Digital Technical and Informal Resources of Breast Cancer Patients From 2012 to 2020: Questionnaire-Based Longitudinal Trend Study. JMIR Cancer 2021;7(4):e20964 View
  27. Leach B, Parkinson S, Gkousis E, Abel G, Atherton H, Campbell J, Clark C, Cockcroft E, Marriott C, Pitchforth E, Sussex J. Digital Facilitation to Support Patient Access to Web-Based Primary Care Services: Scoping Literature Review. Journal of Medical Internet Research 2022;24(7):e33911 View
  28. Marx R. Me and My Electronic Health Record. Journal of Patient Experience 2021;8 View
  29. Sääskilahti M, Ojanen A, Ahonen R, Timonen J. Benefits, Problems, and Potential Improvements in a Nationwide Patient Portal: Cross-sectional Survey of Pharmacy Customers’ Experiences. Journal of Medical Internet Research 2021;23(11):e31483 View
  30. Müller J, Weinert L, Svensson L, Rivinius R, Kreusser M, Heinze O. Mobile Access to Medical Records in Heart Transplantation Aftercare: Mixed-Methods Study Assessing Usability, Feasibility and Effects of a Mobile Application. Life 2022;12(8):1204 View
  31. Hägglund M, McMillan B, Whittaker R, Blease C. Patient empowerment through online access to health records. BMJ 2022:e071531 View
  32. Cajander Å, Huvila I, Salminen-Karlsson M, Lind T, Scandurra I. Effects of patient accessible electronic health records on nurses’ work environment: a survey study on expectations in Sweden. BMJ Open 2022;12(11):e059188 View
  33. Keuper J, Batenburg R, van Tuyl L, Verheij R. General Practices’ Experiences With Patients’ Web-Based Access to Medical Records: Survey Study. Journal of Medical Internet Research 2023;25:e41832 View
  34. Birinci Ş. A Digital Opportunity for Patients to Manage Their Health: Turkey National Personal Health Record System (The e-Nabız). Balkan Medical Journal 2023;40(3):215 View
  35. Simola S, Hörhammer I, Xu Y, Bärkås A, Fagerlund A, Hagström J, Holmroos M, Hägglund M, Johansen M, Kane B, Kharko A, Scandurra I, Kujala S. Patients’ Experiences of a National Patient Portal and Its Usability: Cross-Sectional Survey Study. Journal of Medical Internet Research 2023;25:e45974 View
  36. Bärkås A, Kharko A, Blease C, Cajander Å, Johansen Fagerlund A, Huvila I, Johansen M, Kane B, Kujala S, Moll J, Rexhepi H, Scandurra I, Wang B, Hägglund M. Errors, Omissions, and Offenses in the Health Record of Mental Health Care Patients: Results from a Nationwide Survey in Sweden. Journal of Medical Internet Research 2023;25:e47841 View
  37. Hägglund M, Kharko A, Hagström J, Bärkås A, Blease C, Cajander Å, DesRoches C, Fagerlund A, Haage B, Huvila I, Hörhammer I, Kane B, Klein G, Kristiansen E, Luks K, Moll J, Muli I, Raphaug E, Rexhepi H, Riggare S, Ross P, Scandurra I, Simola S, Soone H, Wang B, Ghorbanian Zolbin M, Åhlfeldt R, Kujala S, Johansen M. The NORDeHEALTH 2022 Patient Survey: Cross-Sectional Study of National Patient Portal Users in Norway, Sweden, Finland, and Estonia. Journal of Medical Internet Research 2023;25:e47573 View
  38. Madanian S, Nakarada-Kordic I, Reay S, Chetty T. Patients' perspectives on digital health tools. PEC Innovation 2023;2:100171 View
  39. Kim H, Lee D, Kim K, Kim S, Park Y. Factors associated with the download and use of mobile personal health record applications in Korean hospitals. Health Informatics Journal 2023;29(3) View
  40. Kuppanda P, Jenkins J. Evaluation of Experiences and Attitudes of Patients Towards Patient Portal–Enabled Access to Their Health Information or Medical Records: A Qualitative Grounded Theory Study. Qualitative Health Research 2023;33(12):1080 View
  41. Blease C, Torous J, McMillan B, Hägglund M, Mandl K. Generative Language Models and Open Notes: Exploring the Promise and Limitations. JMIR Medical Education 2024;10:e51183 View
  42. Petrovskaya O, Karpman A, Schilling J, Singh S, Wegren L, Caine V, Kusi-Appiah E, Geen W. Patient and Health Care Provider Perspectives on Patient Access to Test Results via Web Portals: Scoping Review. Journal of Medical Internet Research 2023;25:e43765 View
  43. Zoorob D, Hasbini Y. Older Patient Receptivity to the Integration of Patient Portals and Telehealth in Urogynecology: Promoters and Deterrents. Urogynecology 2023;29(12):923 View
  44. Blease C. Open AI meets open notes: surveillance capitalism, patient privacy and online record access. Journal of Medical Ethics 2024;50(2):84 View
  45. Schwarz J, Meier-Diedrich E, Neumann K, Heinze M, Eisenmann Y, Thoma S. Reasons for Acceptance or Rejection of Online Record Access Among Patients Affected by a Severe Mental Illness: Mixed Methods Study. JMIR Mental Health 2024;11:e51126 View
  46. Ramamoorthi K, Stamenova V, Liu R, Bhattacharyya O. The Implementation of Federated Digital Identifiers (FDIs) in Healthcare: A Rapid Review (Preprint). Journal of Medical Internet Research 2023 View
  47. Wang B, Kristiansen E, Fagerlund A, Zanaboni P, Hägglund M, Bärkås A, Kujala S, Cajander Å, Blease C, Kharko A, Huvila I, Kane B, Johansen M. Users’ Experiences With Online Access to Electronic Health Records in Mental and Somatic Health Care: Cross-Sectional Study. Journal of Medical Internet Research 2023;25:e47840 View
  48. Rosenberg D. The Use of Online Medical Record Functionalities in Older Adulthood: The Role of Use Encouragement and Access Frequency. Journal of Technology in Human Services 2024;42(1):65 View
  49. Hagström J, Blease C, Scandurra I, Moll J, Cajander Å, Rexhepi H, Hägglund M. Adolescents’ reasons for accessing their health records online, perceived usefulness and experienced provider encouragement: a national survey in Sweden. BMJ Paediatrics Open 2024;8(1):e002258 View
  50. Xu Y, Pei Z, He X, Guo L, Zeng L, Huang X, Zhang J. The individuals’ awareness and adoption of electronic health records in China: a questionnaire survey of 1,337 individuals. BMC Public Health 2024;24(1) View
  51. Moll J, Scandurra I, Bärkås A, Blease C, Hägglund M, Hörhammer I, Kane B, Kristiansen E, Ross P, Åhlfeldt R, Klein G. Sociotechnical Cross-Country Analysis of Contextual Factors That Impact Patients’ Access to Electronic Health Records in 4 European Countries: Framework Evaluation Study. Journal of Medical Internet Research 2024;26:e55752 View
  52. Maaß L, Angoumis K, Freye M, Pan C. Mapping Digital Public Health Interventions Among Existing Digital Technologies and Internet-Based Interventions to Maintain and Improve Population Health in Practice: Scoping Review. Journal of Medical Internet Research 2024;26:e53927 View
  53. Hägglund M, Kharko A, Bärkås A, Blease C, Cajander Å, DesRoches C, Fagerlund A, Hagström J, Huvila I, Hörhammer I, Kane B, Klein G, Kristiansen E, Moll J, Muli I, Rexhepi H, Riggare S, Ross P, Scandurra I, Simola S, Soone H, Wang B, Ghorbanian Zolbin M, Åhlfeldt R, Kujala S, Johansen M. A Nordic Perspective on Patient Online Record Access and the European Health Data Space. Journal of Medical Internet Research 2024;26:e49084 View
  54. Fagerlund A, Bärkås A, Kharko A, Blease C, Hagström J, Huvila I, Hörhammer I, Kane B, Kristiansen E, Kujala S, Moll J, Rexhepi H, Scandurra I, Simola S, Soone H, Wang B, Åhlfeldt R, Hägglund M, Johansen M. Experiences from patients in mental healthcare accessing their electronic health records: results from a cross-national survey in Estonia, Finland, Norway, and Sweden. BMC Psychiatry 2024;24(1) View
  55. Hughes M, Doyle M, Moroney D, Fennelly O. Designing an interoperable patient portal to augment an Advanced Nurse Practitioner service for Children with hydrocephalus. International Journal of Nursing Studies Advances 2024;7:100223 View
  56. Winder R, Campbell J, Akter N, Aminu A, Lambert J, Cockcroft E, Thomas C, Clark C, Bryce C, Sussex J, Atherton H, Marriott C, Abel G. Exploring How Patients Are Supported to Use Online Services in Primary Care in England Through “Digital Facilitation”: Survey Study. Journal of Medical Internet Research 2024;26:e56528 View
  57. Lerbæk B, Kusk K, Jørgensen L, Laugesen B. Navigating the Complexities of Nursing Documentation When Patients Have Access to the Content: A Qualitative Study. Journal of Advanced Nursing 2024 View
  58. Meier-Diedrich E, Lyckblad C, Davidge G, Hägglund M, Kharko A, McMillan B, Blease C, Schwarz J. Impact of Patient Online Record Access on Documentation: A Scoping Review (Preprint). Journal of Medical Internet Research 2024 View
  59. Almuqati L, Alyamani A, Alsulami A, Raea S, Albather M, Alsanad I, Aljohani M, Alhejaili M, Alarfi M, Albalawi M, Alhawiti M. Challenges in medical record documentation: Insights from nurses and physicians. International journal of health sciences 2021;5(S1):1530 View

Books/Policy Documents

  1. Eriksson-Backa K, Ahmad F, Huvila I, Enwald H, Hirvonen N. Information Literacy in a Post-Truth Era. View
  2. Enwald H, Eriksson-Backa K, Hirvonen N, Huvila I. Information Experience and Information Literacy. View