This paper is in the following e-collection/theme issue:

Ethics, Privacy, and Legal Issues (317) Genomics and Bioinformatics for Clinical Use (22) Secondary Use of Clinical Data for Research and Surveillance (207)

Published on in Vol 21, No 8 (2019): August

Preprints (earlier versions) of this paper are available at https://preprints.jmir.org/preprint/14384, first published .
Public Views on Models for Accessing Genomic and Health Data for Research: Mixed Methods Study

Public Views on Models for Accessing Genomic and Health Data for Research: Mixed Methods Study

Public Views on Models for Accessing Genomic and Health Data for Research: Mixed Methods Study

Authors of this article:

Kerina H Jones 1 Author Orcid Image ;   Helen Daniels 1 Author Orcid Image ;   Emma Squires 1 Author Orcid Image ;   David V Ford 1 Author Orcid Image
Article Authors Cited by (3) Tweetations (17) Metrics

Journals

  1. Jones K, Daniels H, Heys S, Lacey A, Ford D. Toward a Risk-Utility Data Governance Framework for Research Using Genomic and Phenotypic Data in Safe Havens: Multifaceted Review. Journal of Medical Internet Research 2020;22(5):e16346 View
  2. Caulfield T, Murdoch B, Ogbogu U. Research, Digital Health Information and Promises of Privacy: Revisiting the Issue of Consent. Canadian Journal of Bioethics 2020;3(1):164 View
  3. Calabrò G, Sassano M, Tognetto A, Boccia S. Citizens' Attitudes, Knowledge, and Educational Needs in the Field of Omics Sciences: A Systematic Literature Review. Frontiers in Genetics 2020;11 View