Published on in Vol 21, No 1 (2019): January

Preprints (earlier versions) of this paper are available at https://preprints.jmir.org/preprint/10875, first published .
Electronic Systems for Patients to Report and Manage Side Effects of Cancer Treatment: Systematic Review

Electronic Systems for Patients to Report and Manage Side Effects of Cancer Treatment: Systematic Review

Electronic Systems for Patients to Report and Manage Side Effects of Cancer Treatment: Systematic Review

Journals

  1. van der Hout A, Jansen F, van Uden-Kraan C, Coupé V, Holtmaat K, Nieuwenhuijzen G, Hardillo J, de Jong R, Tiren-Verbeet N, Sommeijer D, de Heer K, Schaar C, Sedee R, Bosscha K, van den Brekel M, Petersen J, Westerman M, Honings J, Takes R, Houtenbos I, van den Broek W, de Bree R, Jansen P, Eerenstein S, Leemans C, Zijlstra J, Cuijpers P, van de Poll-Franse L, Verdonck-de Leeuw I. Cost-utility of an eHealth application ‘Oncokompas’ that supports cancer survivors in self-management: results of a randomised controlled trial. Journal of Cancer Survivorship 2021;15(1):77 View
  2. Leviton A, Oppenheimer J, Chiujdea M, Antonetty A, Ojo O, Garcia S, Weas S, Fleegler E, Chan E, Loddenkemper T. Characteristics of Future Models of Integrated Outpatient Care. Healthcare 2019;7(2):65 View
  3. Schwartz G, Darling J, Mindo M, Damicis L. Management of Adverse Events Associated with Cabozantinib Treatment in Patients with Advanced Hepatocellular Carcinoma. Targeted Oncology 2020;15(4):549 View
  4. Liao Y, Thompson C, Peterson S, Mandrola J, Beg M. The Future of Wearable Technologies and Remote Monitoring in Health Care. American Society of Clinical Oncology Educational Book 2019;(39):115 View
  5. Jones H, Smith H, Cooksley T, Jones P, Woolley T, Gwyn Murdoch D, Thomas D, Foster B, Wakefield V, Innominato P, Mullard A, Ghosal N, Subbe C. Checklists for Complications During Systemic Cancer Treatment Shared by Patients, Friends, and Health Care Professionals: Prospective Interventional Cohort Study. JMIR mHealth and uHealth 2020;8(9):e19225 View
  6. Avery K, Richards H, Portal A, Reed T, Harding R, Carter R, Bamforth L, Absolom K, O’Connell Francischetto E, Velikova G, Blazeby J. Developing a real-time electronic symptom monitoring system for patients after discharge following cancer-related surgery. BMC Cancer 2019;19(1) View
  7. Leppla L, Mielke J, Kunze M, Mauthner O, Teynor A, Valenta S, Vanhoof J, Dobbels F, Berben L, Zeiser R, Engelhardt M, De Geest S. Clinicians and patients perspectives on follow-up care and eHealth support after allogeneic hematopoietic stem cell transplantation: A mixed-methods contextual analysis as part of the SMILe study. European Journal of Oncology Nursing 2020;45:101723 View
  8. Jabaley T, Rizzo P, Grenon N, Sullivan C, Bagley J, Nassif M, Siegel R, Underhill-Blazey M. Chemotherapy Education and Support: A Model for Use in the Ambulatory Care Setting. Clinical Journal of Oncology Nursing 2020;24(4):E43 View
  9. van der Hout A, van Uden-Kraan C, Holtmaat K, Jansen F, Lissenberg-Witte B, Nieuwenhuijzen G, Hardillo J, Baatenburg de Jong R, Tiren-Verbeet N, Sommeijer D, de Heer K, Schaar C, Sedee R, Bosscha K, van den Brekel M, Petersen J, Westerman M, Honings J, Takes R, Houtenbos I, van den Broek W, de Bree R, Jansen P, Eerenstein S, Leemans C, Zijlstra J, Cuijpers P, van de Poll-Franse L, Verdonck-de Leeuw I. Role of eHealth application Oncokompas in supporting self-management of symptoms and health-related quality of life in cancer survivors: a randomised, controlled trial. The Lancet Oncology 2020;21(1):80 View
  10. Jordan S, Banner T, Gabe-Walters M, Mikhail J, Panes G, Round J, Snelgrove S, Storey M, Hughes D, Vaismoradi M. Nurse-led medicines’ monitoring in care homes, implementing the Adverse Drug Reaction (ADRe) Profile improvement initiative for mental health medicines: An observational and interview study. PLOS ONE 2019;14(9):e0220885 View
  11. Macnair A, Sharkey A, Le Calvez K, Walters R, Smith L, Nelson A, Staffurth J, Williams M, Bloomfield D, Maher J. The Trigger Project: The Challenge of Introducing Electronic Patient-Reported Outcome Measures Into a Radiotherapy Service. Clinical Oncology 2020;32(2):e76 View
  12. Krzyzanowska M, Julian J, Powis M, Howell D, Earle C, Enright K, Mittmann N, Trudeau M, Grunfeld E. Ambulatory Toxicity Management (AToM) in patients receiving adjuvant or neo-adjuvant chemotherapy for early stage breast cancer - a pragmatic cluster randomized trial protocol. BMC Cancer 2019;19(1) View
  13. Chan R, Howell D, Lustberg M, Mustian K, Koczwara B, Ng C, Kim Y, Nápoles A, Dixit N, Klemanski D, Ke Y, Toh Y, Fitch M, Crichton M, Agarawal S, Chan A. Advances and future directions in the use of mobile health in supportive cancer care: proceedings of the 2019 MASCC Annual Meeting symposium. Supportive Care in Cancer 2020;28(9):4059 View
  14. Absolom K, Gibson A, Velikova G. Engaging Patients and Clinicians in Online Reporting of Adverse Effects During Chemotherapy for Cancer. Medical Care 2019;57(Suppl 1):S59 View
  15. Shalowitz D, Moore C. Telemedicine and Gynecologic Cancer Care. Obstetrics and Gynecology Clinics of North America 2020;47(2):271 View
  16. Crafoord M, Fjell M, Sundberg K, Nilsson M, Langius-Eklöf A. Engagement in an Interactive App for Symptom Self-Management during Treatment in Patients With Breast or Prostate Cancer: Mixed Methods Study. Journal of Medical Internet Research 2020;22(8):e17058 View
  17. Moradian S, Krzyzanowska M, Maguire R, Kukreti V, Amir E, Morita P, Liu G, Howell D. Feasibility randomised controlled trial of remote symptom chemotherapy toxicity monitoring using the Canadian adapted Advanced Symptom Management System (ASyMS-Can): a study protocol. BMJ Open 2020;10(6):e035648 View
  18. Gandrup J, Ali S, McBeth J, van der Veer S, Dixon W. Remote symptom monitoring integrated into electronic health records: A systematic review. Journal of the American Medical Informatics Association 2020;27(11):1752 View
  19. Brundage M, Wu A, Rivera Y, Snyder C. Promoting effective use of patient-reported outcomes in clinical practice: themes from a “Methods Tool kit” paper series. Journal of Clinical Epidemiology 2020;122:153 View
  20. Schuler M, Günther M, Jaehde U, Hentschel L. Lebensqualität in der digitalen Transformation. Forum 2020;35(5):391 View
  21. BULUT Ö, KAPLAN S, ŞAHİN S. Jinekolojik Kanserde Evde Bakım ve Teknoloji Kullanımı. Ordu Üniversitesi Hemşirelik Çalışmaları Dergisi 2020;3(2):193 View
  22. Biran N, Anthony Kouyaté R, Yucel E, McGovern G, Schoenthaler A, Durling O, Unawane R, Schutt A, Panjabi S. Adaptation and Evaluation of a Symptom-Monitoring Digital Health Intervention for Patients With Relapsed and Refractory Multiple Myeloma: Pilot Mixed-Methods Implementation Study. JMIR Formative Research 2020;4(11):e18982 View
  23. van der Hout A, Holtmaat K, Jansen F, Lissenberg-Witte B, van Uden-Kraan C, Nieuwenhuijzen G, Hardillo J, Baatenburg de Jong R, Tiren-Verbeet N, Sommeijer D, de Heer K, Schaar C, Sedee R, Bosscha K, van den Brekel M, Petersen J, Westerman M, Honings J, Takes R, Houtenbos I, van den Broek W, de Bree R, Jansen P, Eerenstein S, Leemans C, Zijlstra J, Cuijpers P, van de Poll-Franse L, Verdonck-de Leeuw I. The eHealth self-management application ‘Oncokompas’ that supports cancer survivors to improve health-related quality of life and reduce symptoms: which groups benefit most?. Acta Oncologica 2021;60(4):403 View
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  26. Teckie S, Solomon J, Kadapa K, Sanchez K, Orner D, Kraus D, Kamdar D, Pereira L, Frank D, Diefenbach M. A Mobile Patient-Facing App for Tracking Patient-Reported Outcomes in Head and Neck Cancer Survivors: Single-Arm Feasibility Study. JMIR Formative Research 2021;5(3):e24667 View
  27. Schmalz O, Jacob C, Ammann J, Liss B, Iivanainen S, Kammermann M, Koivunen J, Klein A, Popescu R. Digital Monitoring and Management of Patients With Advanced or Metastatic Non-Small Cell Lung Cancer Treated With Cancer Immunotherapy and Its Impact on Quality of Clinical Care: Interview and Survey Study Among Health Care Professionals and Patients. Journal of Medical Internet Research 2020;22(12):e18655 View
  28. Absolom K, Warrington L, Hudson E, Hewison J, Morris C, Holch P, Carter R, Gibson A, Holmes M, Clayton B, Rogers Z, McParland L, Conner M, Glidewell L, Woroncow B, Dawkins B, Dickinson S, Hulme C, Brown J, Velikova G. Phase III Randomized Controlled Trial of eRAPID: eHealth Intervention During Chemotherapy. Journal of Clinical Oncology 2021;39(7):734 View
  29. Naughton M, Salani R, Peng J, Lustberg M, DeGraffinreid C, Moon J, Loyan H, Beverly Hery C, Paskett E. Feasibility of implementing a text-based symptom-monitoring program of endometrial, ovarian, and breast cancer patients during treatment. Quality of Life Research 2021;30(11):3241 View
  30. Leppla L, Hobelsberger S, Rockstein D, Werlitz V, Pschenitza S, Heidegger P, De Geest S, Valenta S, Teynor A. Implementation Science Meets Software Development to Create eHealth Components for an Integrated Care Model for Allogeneic Stem Cell Transplantation Facilitated by eHealth: The SMILe Study as an Example. Journal of Nursing Scholarship 2021;53(1):35 View
  31. Collado-Borrell R, Escudero-Vilaplana V, Ribed A, Gonzalez-Anleo C, Martin-Conde M, Romero-Jimenez R, Iglesias-Peinado I, Herranz-Alonso A, Sanjurjo-Saez M. Effect of a Mobile App for the Pharmacotherapeutic Follow-Up of Patients With Cancer on Their Health Outcomes: Quasi-Experimental Study. JMIR mHealth and uHealth 2020;8(10):e20480 View
  32. Coolbrandt A, Muylaert K, Vandeneede E, Dooms C, Wildiers H. Real-time symptom management in the context of a remote symptom-monitoring system: prospective process evaluation and cross-sectional survey to explore clinical relevance. Supportive Care in Cancer 2021;29(6):3401 View
  33. Cho Y, Zhang H, Harris M, Gong Y, Smith E, Jiang Y. Acceptance and Use of Home-Based Electronic Symptom Self-Reporting Systems in Patients With Cancer: Systematic Review. Journal of Medical Internet Research 2021;23(3):e24638 View
  34. Tsang C, Lee K, Richards H, Blazeby J, Avery K. Electronic collection of patient-reported outcomes following discharge after surgery: systematic review. BJS Open 2021;5(2) View
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  36. Kane K, Kennedy F, Absolom K, Harley C, Velikova G. Quality of life support in advanced cancer—web and technological interventions: systematic review and narrative synthesis. BMJ Supportive & Palliative Care 2023;13(e2):e221 View
  37. Lehmann J, Buhl P, Giesinger J, Wintner L, Sztankay M, Neppl L, Willenbacher W, Weger R, Weyrer W, Rumpold G, Holzner B. Using the Computer-based Health Evaluation System (CHES) to Support Self-management of Symptoms and Functional Health: Evaluation of Hematological Patient Use of a Web-Based Patient Portal. Journal of Medical Internet Research 2021;23(6):e26022 View
  38. Albino de Queiroz D, André da Costa C, Aparecida Isquierdo Fonseca de Queiroz E, Folchini da Silveira E, da Rosa Righi R. Internet of Things in active cancer Treatment: A systematic review. Journal of Biomedical Informatics 2021;118:103814 View
  39. van der Hout A, van Uden-Kraan C, Holtmaat K, Jansen F, Lissenberg-Witte B, Nieuwenhuijzen G, Hardillo J, Baatenburg de Jong R, Tiren-Verbeet N, Sommeijer D, de Heer K, Schaar C, Sedee R, Bosscha K, van den Brekel M, Petersen J, Westerman M, Honings J, Takes R, Houtenbos I, van den Broek W, de Bree R, Jansen P, Eerenstein S, Leemans C, Zijlstra J, Cuijpers P, van de Poll-Franse L, Verdonck-de Leeuw I. Reasons for not reaching or using web-based self-management applications, and the use and evaluation of Oncokompas among cancer survivors, in the context of a randomised controlled trial. Internet Interventions 2021;25:100429 View
  40. Zon R, Kennedy E, Adelson K, Blau S, Dickson N, Gill D, Laferriere N, Lopez A, Mulvey T, Patt D, Pickard T, Purdom T, Royce T, Sumrall A, Page R. Telehealth in Oncology: ASCO Standards and Practice Recommendations. JCO Oncology Practice 2021;17(9):546 View
  41. Kosse L, Weits G, Vonkeman H, Tas S, Hoentjen F, Van Doorn M, Spuls P, D’Haens G, Nurmohamed M, van Puijenbroek E, Van Den Bemt B, Jessurun N. Patients’ perspectives on a drug safety monitoring system for immune-mediated inflammatory diseases based on patient-reported outcomes. Expert Opinion on Drug Safety 2021;20(12):1565 View
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  44. Suchodolska G, Senkus E. Mobile applications for early breast cancer chemotherapy-related symptoms reporting and management: A scoping review. Cancer Treatment Reviews 2022;105:102364 View
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  73. Papachristou N, Kartsidis P, Anagnostopoulou A, Marshall-McKenna R, Kotronoulas G, Collantes G, Valdivieso B, Santaballa A, Conde-Moreno A, Domenech J, Kokoroskos E, Papachristou P, Sountoulides P, Levva S, Avgitidou K, Tychala C, Bakogiannis C, Stafylas P, Ramon Z, Serrano A, Tavares V, Fernandez-Luque L, Hors-Fraile S, Billis A, Bamidis P. A Smart Digital Health Platform to Enable Monitoring of Quality of Life and Frailty in Older Patients with Cancer: A Mixed-Methods, Feasibility Study Protocol. Seminars in Oncology Nursing 2023;39(3):151437 View
  74. Iivanainen S, Baird A, Balas B, Bustillos A, Castro Sanchez A, Eicher M, Golding S, Mueller-Ohldach M, Reig M, Welslau M, Ammann J. Assessing the impact of digital patient monitoring on health outcomes and healthcare resource usage in addition to the feasibility of its combination with at-home treatment, in participants receiving systemic anticancer treatment in clinical practice: protocol for an interventional, open-label, multicountry platform study (ORIGAMA). BMJ Open 2023;13(4):e063242 View
  75. Chen L, Bartel C, Cai X, Cheng Y, Perer A, McClaine S, Kairis E, Durica K, Huang W, Low C. Patient and Provider Perspectives on Symptom Monitoring During Outpatient Chemotherapy: Interview Study. JMIR Formative Research 2023;7:e46001 View
  76. Shaffer K, Turner K, Siwik C, Gonzalez B, Upasani R, Glazer J, Ferguson R, Joshua C, Low C. Digital health and telehealth in cancer care: a scoping review of reviews. The Lancet Digital Health 2023;5(5):e316 View
  77. Lehmann J, de Ligt K, Tipelius S, Giesinger J, Sztankay M, Voigt S, van de Poll-Franse L, Rumpold G, Weger R, Willenbacher E, Willenbacher W, Holzner B. Adherence to Patient-Reported Symptom Monitoring and Subsequent Clinical Interventions for Patients With Multiple Myeloma in Outpatient Care: Longitudinal Observational Study. Journal of Medical Internet Research 2023;25:e46017 View
  78. Boulanger M, Petrillo L, Temel J. Listen to the patient: integrating patient-reported outcomes into clinical care. JNCI: Journal of the National Cancer Institute 2023;115(12):1451 View
  79. Pritchett J, Patt D, Thanarajasingam G, Schuster A, Snyder C. Patient-Reported Outcomes, Digital Health, and the Quest to Improve Health Equity. American Society of Clinical Oncology Educational Book 2023;(43) View
  80. Doolin J, Haakenstad E, Neville B, Lipsitz S, Zhang S, Cleveland J, Hiruy S, Hassett M, Revette A, Schrag D, Basch E, McCleary N. Feasibility of Weekly Electronic Health Record–Embedded Patient-Reported Outcomes for Patients Starting Oral Cancer–Directed Therapy. JCO Clinical Cancer Informatics 2023;(7) View
  81. Moss B, Goodall E, Maravic Z, Marti F, Moss M, Rowley S, Sarrauste C, Wheatstone P. Real-world evidence research in metastatic colorectal cancer: raising awareness of the need for patient contributions. Future Oncology 2023;19(26):1809 View
  82. Takenaga T, Kuji S, Tanabe K, Kanamori R, Imai H, Takeuchi J, Kondo H, Ohara T, Iwatani T, Suzuki N. Prospective analysis of patient‐reported outcomes and physician‐reported outcomes with gynecologic cancer chemotherapy. Journal of Obstetrics and Gynaecology Research 2024;50(1):75 View
  83. Martin D, Alberti P, Wigmore S, Demartines N, Joliat G. Pancreatic Cancer Surgery: What Matters to Patients?. Journal of Clinical Medicine 2023;12(14):4611 View
  84. da Silva Lopes A, Colomer-Lahiguera S, Darnac C, Giacomini S, Bugeia S, Gutknecht G, Spurrier-Bernard G, Cuendet M, Muet F, Aedo-Lopez V, Mederos N, Michielin O, Addeo A, Latifyan S, Eicher M. Testing a Model of Care for Patients on Immune Checkpoint Inhibitors Based on Electronic Patient-Reported Outcomes: Protocol for a Randomized Phase II Controlled Trial. JMIR Research Protocols 2023;12:e48386 View
  85. Lai-Kwon J, Cohen J, Lisy K, Rutherford C, Girgis A, Basch E, Jefford M. The Feasibility, Acceptability, and Effectiveness of Electronic Patient-Reported Outcome Symptom Monitoring for Immune Checkpoint Inhibitor Toxicities: A Systematic Review. JCO Clinical Cancer Informatics 2023;(7) View
  86. Smit Y, Metsemakers S, Janssen J, Posthuma E, Walraven I, Hermens R, Blijlevens N. Measuring chronic myeloid leukaemia TKI-related toxic effects in the real world: a systematic review and critical assessment of content validity of patient-reported outcome measures. The Lancet Haematology 2023;10(10):e849 View
  87. Liu L, Wang T, Chen Y, Cao Y. Electronic symptom monitoring for patients with advanced cancer. Cochrane Database of Systematic Reviews 2023;2023(7) View
  88. da Silva Lopes A, Colomer-Lahiguera S, Darnac C, Giacomini S, Bugeia S, Gutknecht G, Spurrier-Bernard G, Aedo-Lopez V, Mederos N, Latifyan S, Addedo A, Michielin O, Eicher M. Development of an eHealth-enhanced model of care for the monitoring and management of immune-related adverse events in patients treated with immune checkpoint inhibitors. Supportive Care in Cancer 2023;31(8) View
  89. Fulop N, Walton H, Crellin N, Georghiou T, Herlitz L, Litchfield I, Massou E, Sherlaw-Johnson C, Sidhu M, Tomini S, Vindrola-Padros C, Ellins J, Morris S, Ng P. A rapid mixed-methods evaluation of remote home monitoring models during the COVID-19 pandemic in England. Health and Social Care Delivery Research 2023:1 View
  90. Unni E, Coles T, Lavallee D, Freel J, Roberts N, Absolom K. Patient adherence to patient-reported outcome measure (PROM) completion in clinical care: current understanding and future recommendations. Quality of Life Research 2024;33(1):281 View
  91. Sin C, Kim H, Im H, Ock M, Koh S. Development and pilot study of “Smart Cancer Care”: a platform for managing side effects of chemotherapy. BMC Health Services Research 2023;23(1) View
  92. Warren M. Electronic Patient Reported Outcome Measures for Optimal Remote Symptom Management in Advanced Breast Cancer: Embracing Digital Health Technology. Seminars in Oncology Nursing 2024;40(1):151550 View
  93. Fridriksdottir N, Ingadottir B, Skuladottir K, Zoëga S, Gunnarsdottir S. Supportive Digital Health Service During Cancer Chemotherapy: Single-Arm Before-and-After Feasibility Study. JMIR Formative Research 2023;7:e50550 View
  94. Furqon M, Najwa N, Hermansyah D, Zarkasi M. Knowledge Graph Modeling in Healthcare: A Bibliometric Analysis. Jurnal Komputer Terapan 2022;8(1):113 View
  95. Pappot H, Taarnhøj G, Bentsen L, Friis R, Bæksted C, Christiansen M, Holländer-Mieritz C, Møller P, Rasmussen I, Lund-Jacobsen T, Stormoen D, Tolstrup L. Patient-reported outcomes used actively in cancer patients undergoing antineoplastic treatment: A mini-review of the Danish landscape. Computational and Structural Biotechnology Journal 2024;24:23 View
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  97. Grant M, Chiang A. Telehealth and Outcomes in Patients With Cancer. The Cancer Journal 2024;30(1):16 View

Books/Policy Documents

  1. Oldenmenger W, van den Hurk C, Howell D. Developing and Utilizing Digital Technology in Healthcare for Assessment and Monitoring. View
  2. Butt S, Anjum M, Hassan S, Garai A, Onyema E. Smart Healthcare System Design. View
  3. Rauh S. Survivorship Care for Cancer Patients. View
  4. Kishore C, Ji V, Krishnan S, Jeevanandam J, Acquah C, Danquah M. Plant Polysaccharides as Pharmaceutical Excipients. View
  5. Bauereiß N, Ebert D, Baumeister H. Digitale Gesundheitsinterventionen. View