Published on in Vol 20, No 5 (2018): May

Preprints (earlier versions) of this paper are available at https://preprints.jmir.org/preprint/9196, first published .
The Importance of Visit Notes on Patient Portals for Engaging Less Educated or Nonwhite Patients: Survey Study

The Importance of Visit Notes on Patient Portals for Engaging Less Educated or Nonwhite Patients: Survey Study

The Importance of Visit Notes on Patient Portals for Engaging Less Educated or Nonwhite Patients: Survey Study

Journals

  1. Crotty B, Winn A, Asan O, Nagavally S, Walker R, Egede L. Clinician Encouragement and Online Health Record Usage. Journal of General Internal Medicine 2019;34(11):2345 View
  2. Blease C, Fernandez L, Bell S, Delbanco T, DesRoches C. Empowering patients and reducing inequities: is there potential in sharing clinical notes?. BMJ Quality & Safety 2020;29(10):1.8 View
  3. Antonio M, Petrovskaya O, Lau F. Is research on patient portals attuned to health equity? A scoping review. Journal of the American Medical Informatics Association 2019;26(8-9):871 View
  4. Blease C, Bell S. Patients as diagnostic collaborators: sharing visit notes to promote accuracy and safety. Diagnosis 2019;6(3):213 View
  5. Bernaerdt J, Moerenhout T, Devisch I. Vulnerable patients' attitudes towards sharing medical data and granular control in patient portal systems: an interview study. Journal of Evaluation in Clinical Practice 2021;27(2):429 View
  6. Varady N, d’Amonville S, Chen A. Electronic Patient Portal Use in Orthopaedic Surgery Is Associated with Disparities, Improved Satisfaction, and Lower No-Show Rates. Journal of Bone and Joint Surgery 2020;102(15):1336 View
  7. Lam B, Bourgeois F, Dong Z, Bell S. Speaking up about patient-perceived serious visit note errors: Patient and family experiences and recommendations. Journal of the American Medical Informatics Association 2021;28(4):685 View
  8. Benjamins J, Haveman-Nies A, Gunnink M, Goudkuil A, de Vet E. How the Use of a Patient-Accessible Health Record Contributes to Patient-Centered Care: Scoping Review. Journal of Medical Internet Research 2021;23(1):e17655 View
  9. Fernández L, Fossa A, Dong Z, Delbanco T, Elmore J, Fitzgerald P, Harcourt K, Perez J, Walker J, DesRoches C. Words Matter: What Do Patients Find Judgmental or Offensive in Outpatient Notes?. Journal of General Internal Medicine 2021;36(9):2571 View
  10. Blok A, Amante D, Hogan T, Sadasivam R, Shimada S, Woods S, Nazi K, Houston T. Impact of Patient Access to Online VA Notes on Healthcare Utilization and Clinician Documentation: a Retrospective Cohort Study. Journal of General Internal Medicine 2021;36(3):592 View
  11. Blease C, Walker J, Torous J, O'Neill S. Sharing Clinical Notes in Psychotherapy: A New Tool to Strengthen Patient Autonomy. Frontiers in Psychiatry 2020;11 View
  12. Richards S, Carlson K, Matthias T, Birge J. Perception versus reality: Does provider documentation behavior change when clinic notes are shared electronically with patients?. International Journal of Medical Informatics 2021;145:104304 View
  13. Parsons C, Hron J, Bourgeois F. Preserving privacy for pediatric patients and families: use of confidential note types in pediatric ambulatory care. Journal of the American Medical Informatics Association 2020;27(11):1705 View
  14. Tapuria A, Porat T, Kalra D, Dsouza G, Xiaohui S, Curcin V. Impact of patient access to their electronic health record: systematic review. Informatics for Health and Social Care 2021;46(2):194 View
  15. Zellmer B, Nacht C, Coller R, Hoonakker P, Smith C, Sklansky D, Dean S, Smith W, Sprackling C, Ehlenfeldt B, Kelly M. BedsideNotes: Sharing Physicians’ Notes With Parents During Hospitalization. Hospital Pediatrics 2021;11(5):503 View
  16. Alkureishi M, Johnson T, Nichols J, Dhodapkar M, Czerwiec M, Wroblewski K, Arora V, Lee W. Impact of an Educational Comic to Enhance Patient-Physician–Electronic Health Record Engagement: Prospective Observational Study. JMIR Human Factors 2021;8(2):e25054 View
  17. Crucefix A, Fleming A, Lebus C, Slowther A, Fritz Z. Sharing a written medical summary with patients on the post‐admission ward round: A qualitative study of clinician and patient experience. Journal of Evaluation in Clinical Practice 2021;27(6):1235 View
  18. Blease C, Salmi L, Rexhepi H, Hägglund M, DesRoches C. Patients, clinicians and open notes: information blocking as a case of epistemic injustice. Journal of Medical Ethics 2022;48(10):785 View
  19. Blease C, Salmi L, Hägglund M, Wachenheim D, DesRoches C. COVID-19 and Open Notes: A New Method to Enhance Patient Safety and Trust. JMIR Mental Health 2021;8(6):e29314 View
  20. Fisher K, Kennedy K, Bloomstone S, Fukunaga M, Bell S, Mazor K. Can sharing clinic notes improve communication and promote self-management? A qualitative study of patients with COPD. Patient Education and Counseling 2022;105(3):726 View
  21. Janssen S, Venema-Taat N, Medlock S. Anticipated Benefits and Concerns of Sharing Hospital Outpatient Visit Notes With Patients (Open Notes) in Dutch Hospitals: Mixed Methods Study. Journal of Medical Internet Research 2021;23(8):e27764 View
  22. DesRoches C, Salmi L, Dong Z, Blease C. How do older patients with chronic conditions view reading open visit notes?. Journal of the American Geriatrics Society 2021;69(12):3497 View
  23. Lam B, Bourgeois F, DesRoches C, Dong Z, Bell S. Attitudes, experiences, and safety behaviours of adolescents and young adults who read visit notes: Opportunities to engage patients early in their care. Future Healthcare Journal 2021;8(3):e585 View
  24. Ndabu T, Agrawal L, Sharman R. The Role of Access Type and Age Group in the Breadth of Use of Patient Portals: Observational Study. Journal of Medical Internet Research 2022;24(12):e41972 View
  25. Sakumoto M, Khanna R. Using Technology to Enhance Communication. Medical Clinics of North America 2022;106(4):705 View
  26. Lear R, Freise L, Kybert M, Darzi A, Neves A, Mayer E. Patients’ Willingness and Ability to Identify and Respond to Errors in Their Personal Health Records: Mixed Methods Analysis of Cross-sectional Survey Data. Journal of Medical Internet Research 2022;24(7):e37226 View
  27. Murugan A, Gooding H, Greenbaum J, Boudreaux J, Blanco R, Swerlick A, Sauer C, Liu S, Bhatia A, Carter A, Burris M, Becker L, Abney L, O'Brien S, Webb S, Popkin M, Williams H, Jennings D, Orenstein E. Lessons Learned from OpenNotes Learning Mode and Subsequent Implementation across a Pediatric Health System. Applied Clinical Informatics 2022;13(01):113 View
  28. Lear R, Freise L, Kybert M, Darzi A, Neves A, Mayer E. Perceptions of Quality of Care Among Users of a Web-Based Patient Portal: Cross-sectional Survey Analysis. Journal of Medical Internet Research 2022;24(11):e39973 View
  29. Arvisais-Anhalt S, Lau M, Lehmann C, Holmgren A, Medford R, Ramirez C, Chen C. The 21st Century Cures Act and Multiuser Electronic Health Record Access: Potential Pitfalls of Information Release. Journal of Medical Internet Research 2022;24(2):e34085 View
  30. BELL S, BOURGEOIS F, DONG J, GILLESPIE A, NGO L, READER T, THOMAS E, DESROCHES C. Patient Identification of Diagnostic Safety Blindspots and Participation in “Good Catches” Through Shared Visit Notes. The Milbank Quarterly 2022;100(4):1121 View
  31. Kelly M, Hoonakker P, Nacht C, Smith C, Dean S, Sklansky D, Smith W, Sprackling C, Zellmer B, Coller R. Parent Perspectives on Sharing Pediatric Hospitalization Clinical Notes. Pediatrics 2023;151(1) View
  32. Tai-Seale M, Rosen R, Ruo B, Hogarth M, Longhurst C, Lander L, Walker A, Stults C, Chan A, Mazor K, Garber L, Millen M. Implementation of Patient Engagement Tools in Electronic Health Records to Enhance Patient-Centered Communication: Protocol for Feasibility Evaluation and Preliminary Results. JMIR Research Protocols 2021;10(8):e30431 View
  33. Wang N, Chen J. Decreasing Racial Disparities in Preventable Emergency Department Visits Through Hospital Health Information Technology Patient Engagement Functionalities. Telemedicine and e-Health 2023;29(6):841 View
  34. Zaidi M, Amante D, Anderson E, Ito Fukunaga M, Faro J, Frisard C, Sadasivam R, Lemon S. Association Between Patient Portal Use and Perceived Patient-Centered Communication Among Adults With Cancer: Cross-sectional Survey Study. JMIR Cancer 2022;8(3):e34745 View
  35. Healy M, Richard A, Kidia K. How to Reduce Stigma and Bias in Clinical Communication: a Narrative Review. Journal of General Internal Medicine 2022;37(10):2533 View
  36. Blease C, McMillan B, Salmi L, Davidge G, Delbanco T. Adapting to transparent medical records: international experience with “open notes”. BMJ 2022:e069861 View
  37. Lam B, Dupee D, Gerard M, Bell S. A Patient-Centered Approach to Writing Ambulatory Visit Notes in the Cures Act Era. Applied Clinical Informatics 2023;14(01):199 View
  38. Benjamins J, de Vet E, Jordaan G, Haveman-Nies A. Effect of using client-accessible youth health records on experienced autonomy among parents and adolescents in preventive child healthcare and youth care: A mixed methods intervention study. Journal of Child Health Care 2023 View
  39. Bell S, Harcourt K, Dong J, DesRoches C, Hart N, Liu S, Ngo L, Thomas E, Bourgeois F. Patient and family contributions to improve the diagnostic process through the OurDX electronic health record tool: a mixed method analysis. BMJ Quality & Safety 2023:bmjqs-2022-015793 View
  40. Schwarz J, Meier-Diedrich E, Neumann K, Heinze M, Eisenmann Y, Thoma S. Reasons for Acceptance or Rejection of Online Record Access Among Patients Affected by a Severe Mental Illness: Mixed Methods Study of Patients’ Views (Preprint). JMIR Mental Health 2023 View
  41. Nacht C, Jacobson N, Shiyanbola O, Smith C, Hoonakker P, Coller R, Dean S, Sklansky D, Smith W, Sprackling C, Kelly M. Perception of Physicians’ Notes Among Parents of Different Health Literacy Levels. Hospital Pediatrics 2024;14(2):108 View
  42. Benjamins J, de Vet E, de Mortier C, Haveman-Nies A. The Effect of Using a Client-Accessible Health Record on Perceived Quality of Care: Interview Study Among Parents and Adolescents. Journal of Participatory Medicine 2024;16:e50092 View
  43. Chu S, Sisk B, Kolmar A, Malone J. Open Notes Experiences of Parents in the Pediatric ICU. Pediatrics 2024;153(5) View
  44. Swanson K, He S, Calvano J, Chen D, Telvizian T, Jiang L, Chong P, Schwell J, Mak G, Lee J, Tariq A. Biomedical text readability after hypernym substitution with fine-tuned large language models. PLOS Digital Health 2024;3(4):e0000489 View

Books/Policy Documents

  1. Blount A. Patient-Centered Primary Care. View
  2. Cohen A, Thammasitboon S, Singhal G, Epner P. Patient Safety. View