This paper is in the following e-collection/theme issue:

Ethics, Privacy, and Legal Issues (368) Secondary Use of Clinical Data for Research and Surveillance (253)
Preprints (earlier versions) of this paper are available at https://preprints.jmir.org/preprint/7763, first published .
Investigating the Extent to Which Patients Should Control Access to Patient Records for Research: A Deliberative Process Using Citizens’ Juries

Investigating the Extent to Which Patients Should Control Access to Patient Records for Research: A Deliberative Process Using Citizens’ Juries

Investigating the Extent to Which Patients Should Control Access to Patient Records for Research: A Deliberative Process Using Citizens’ Juries

Authors of this article:

Mary P Tully 1, 2 Author Orcid Image ;   Kyle Bozentko 3 Author Orcid Image ;   Sarah Clement 4 Author Orcid Image ;   Amanda Hunn 5 Author Orcid Image ;   Lamiece Hassan 1 Author Orcid Image ;   Ruth Norris 1 Author Orcid Image ;   Malcolm Oswald 6, 7 Author Orcid Image ;   Niels Peek 1, 8 Author Orcid Image
Article Authors Cited by (26) Tweetations (154) Metrics
Mary P Tully 1, 2 , B.Sc (Hons), M.Sc., PhD, FRPharmS, FFRPS ;   Kyle Bozentko 3 , MTS ;   Sarah Clement 4 , BSc, PhD ;   Amanda Hunn 5 , BSc (Hons), MA ;   Lamiece Hassan 1 , BSc (Hons), MPhil, PhD ;   Ruth Norris 1 , BSc (Hons), PGDip ;   Malcolm Oswald 6, 7 , BA (Econ), MA, PhD ;   Niels Peek 1, 8 , PhD

1 Health E-Research Centre, Division of Imaging, Informatics and Data Sciences , School of Health Sciences, Faculty of Biology, Medicine and Health , The University of Manchester, Manchester Academic Health Science Centre , Manchester , GB

2 Division of Pharmacy and Optometry , School of Health Sciences, Faculty of Biology, Medicine and Health , The University of Manchester, Manchester Academic Health Science Centre , Manchester , GB

3 Jefferson Center , Saint Paul , MN , US

4 Department of Geography and Planning , School of Environmental Sciences , University of Liverpool , Liverpool , GB

5 Health Research Authority , London , GB

6 School of Law , Faculty of Humanities , The University of Manchester , Manchester , GB

7 Citizens Juries c.i.c. , Manchester , GB

8 Greater Manchester Patient Safety Translational Research Centre , Division of Population Health, Health Services Research and Primary Care, School of Health Sciences , The University of Manchester, Manchester Academic Health Science Centre , Manchester , GB

Corresponding Author:

  • Mary P Tully , B.Sc (Hons), M.Sc., PhD, FRPharmS, FFRPS
  • Division of Pharmacy and Optometry
  • School of Health Sciences, Faculty of Biology, Medicine and Health
  • The University of Manchester, Manchester Academic Health Science Centre
  • Oxford Road
  • Manchester
  • GB
  • Phone: 44 01612754242
  • Email: mary.p.tully@manchester.ac.uk