This paper is in the following e-collection/theme issue:

Personal Health Records, Patient-Accessible Electronic Health Records, Patient Portals (588) Participatory Medicine & E-Patients (781)

Published on in Vol 19, No 7 (2017): July

What Patients Value About Reading Visit Notes: A Qualitative Inquiry of Patient Experiences With Their Health Information

What Patients Value About Reading Visit Notes: A Qualitative Inquiry of Patient Experiences With Their Health Information

What Patients Value About Reading Visit Notes: A Qualitative Inquiry of Patient Experiences With Their Health Information

Authors of this article:

Macda Gerard1 Author Orcid Image ;   Alan Fossa1 Author Orcid Image ;   Patricia H Folcarelli2 Author Orcid Image ;   Jan Walker1 Author Orcid Image ;   Sigall K Bell1 Author Orcid Image
Article Authors Cited by (66) Tweetations (108) Metrics

Journals

  1. Van den Bulck S, Hermens R, Slegers K, Vandenberghe B, Goderis G, Vankrunkelsven P. Designing a Patient Portal for Patient-Centered Care: Cross-Sectional Survey. Journal of Medical Internet Research 2018;20(10):e269 View
  2. Alpert J, Morris B, Thomson M, Matin K, Sabo R, Brown R. Patient access to clinical notes in oncology: A mixed method analysis of oncologists’ attitudes and linguistic characteristics towards notes. Patient Education and Counseling 2019;102(10):1917 View
  3. Power K, McCrea Z, White M, Breen A, Dunleavy B, O’Donoghue S, Jacquemard T, Lambert V, El‐Naggar H, Delanty N, Doherty C, Fitzsimons M. The development of an epilepsy electronic patient portal: Facilitating both patient empowerment and remote clinician‐patient interaction in a post‐COVID‐19 world. Epilepsia 2020;61(9):1894 View
  4. Hu X, Qu H, Houser S, Ding J, Chen H, Zhang X, Yu M, De Luca V. Exploring association between certified EHRs adoption and patient experience in U.S. psychiatric hospitals. PLOS ONE 2020;15(6):e0234607 View
  5. Ramar P, Roellinger D, Merrick R, Ebbert J, Philpot L. Helpfulness of Clinical Visit Summary Content From Multi-Specialty Care: A Mixed-Methods Assessment. Health Services Research and Managerial Epidemiology 2020;7 View
  6. Nazi K, Turvey C, Klein D, Hogan T. A Decade of Veteran Voices: Examining Patient Portal Enhancements Through the Lens of User-Centered Design. Journal of Medical Internet Research 2018;20(7):e10413 View
  7. Kolodychuk N, Wong M, Chimento G, Adams T, Gastanaduy M, Waddell B. Web-based patient portal access in an orthopedic adult reconstruction patient population. Arthroplasty Today 2019;5(1):83 View
  8. Blease C, Fernandez L, Bell S, Delbanco T, DesRoches C. Empowering patients and reducing inequities: is there potential in sharing clinical notes?. BMJ Quality & Safety 2020;29(10):1.8 View
  9. Fossa A, Bell S, DesRoches C. OpenNotes and shared decision making: a growing practice in clinical transparency and how it can support patient-centered care. Journal of the American Medical Informatics Association 2018;25(9):1153 View
  10. Gilligan T, Salmi L, Enzinger A. Patient-Clinician Communication Is a Joint Creation: Working Together Toward Well-Being. American Society of Clinical Oncology Educational Book 2018;(38):532 View
  11. Alpert J, Morris B, Thomson M, Matin K, Geyer C, Brown R. OpenNotes in oncology: oncologists’ perceptions and a baseline of the content and style of their clinician notes. Translational Behavioral Medicine 2019;9(2):347 View
  12. Kayastha N, Pollak K, LeBlanc T. Open Oncology Notes: A Qualitative Study of Oncology Patients’ Experiences Reading Their Cancer Care Notes. Journal of Oncology Practice 2018;14(4):e251 View
  13. Grossman L, Mitchell E, Hripcsak G, Weng C, Vawdrey D. A method for harmonization of clinical abbreviation and acronym sense inventories. Journal of Biomedical Informatics 2018;88:62 View
  14. Blease C, Bell S. Patients as diagnostic collaborators: sharing visit notes to promote accuracy and safety. Diagnosis 2019;6(3):213 View
  15. Blease C, Delbanco T, Torous J, Ponten M, DesRoches C, Hagglund M, Walker J, Kirsch I. Sharing clinical notes, and placebo and nocebo effects: Can documentation affect patient health?. Journal of Health Psychology 2022;27(1):135 View
  16. Rexhepi H, Moll J, Huvila I. Online electronic healthcare records: Comparing the views of cancer patients and others. Health Informatics Journal 2020;26(4):2915 View
  17. Gerard M, Chimowitz H, Fossa A, Bourgeois F, Fernandez L, Bell S. The Importance of Visit Notes on Patient Portals for Engaging Less Educated and Nonwhite Patients: Survey Study. Journal of Medical Internet Research 2018;20(5):e191 View
  18. Lyles C, Nelson E, Frampton S, Dykes P, Cemballi A, Sarkar U. Using Electronic Health Record Portals to Improve Patient Engagement: Research Priorities and Best Practices. Annals of Internal Medicine 2020;172(11_Supplement):S123 View
  19. Herlihy M, Harcourt K, Fossa A, Folcarelli P, Golen T, Bell S. An Opportunity to Engage Obstetrics and Gynecology Patients Through Shared Visit Notes. Obstetrics & Gynecology 2019;134(1):128 View
  20. Bernaerdt J, Moerenhout T, Devisch I. Vulnerable patients' attitudes towards sharing medical data and granular control in patient portal systems: an interview study. Journal of Evaluation in Clinical Practice 2021;27(2):429 View
  21. O’Neill S, Chimowitz H, Leveille S, Walker J. Embracing the new age of transparency: mental health patients reading their psychotherapy notes online. Journal of Mental Health 2019;28(5):527 View
  22. Crameri K, Maher L, Van Dam P, Prior S. Personal electronic healthcare records: What influences consumers to engage with their clinical data online? A literature review. Health Information Management Journal 2022;51(1):3 View
  23. Belyeu B, Klein J, Reisch L, Peacock S, Oster N, Elmore J, Jackson S. Patients' perceptions of their doctors' notes and after‐visit summaries: A mixed methods study of patients at safety‐net clinics. Health Expectations 2018;21(2):485 View
  24. Adelman D, Fant C, Conner D. Sharing clinical notes with patients. The Nurse Practitioner 2019;44(5):43 View
  25. Kashyap A, Burris H, Callison-Burch C, Boland M. The CLASSE GATOR (CLinical Acronym SenSE disambiGuATOR): A Method for predicting acronym sense from neonatal clinical notes. International Journal of Medical Informatics 2020;137:104101 View
  26. Jones J, Saeed H, Katz M, Lustberg M, Forster V, Nekhlyudov L. Readdressing the Needs of Cancer Survivors During COVID-19: A Path Forward. JNCI: Journal of the National Cancer Institute 2021;113(8):955 View
  27. Blease C, Walker J, Torous J, O'Neill S. Sharing Clinical Notes in Psychotherapy: A New Tool to Strengthen Patient Autonomy. Frontiers in Psychiatry 2020;11 View
  28. Benjamins J, Haveman-Nies A, Gunnink M, Goudkuil A, de Vet E. How the Use of a Patient-Accessible Health Record Contributes to Patient-Centered Care: Scoping Review. Journal of Medical Internet Research 2021;23(1):e17655 View
  29. Heckemann B, Chaaya M, Jakobsson Ung E, Olsson D, Jakobsson S. Finding the Person in Electronic Health Records. A Mixed-Methods Analysis of Person-Centered Content and Language. Health Communication 2022;37(4):418 View
  30. Avdagovska M, Menon D, Stafinski T. Capturing the Impact of Patient Portals Based on the Quadruple Aim and Benefits Evaluation Frameworks: Scoping Review. Journal of Medical Internet Research 2020;22(12):e24568 View
  31. DesRoches C. Healthcare in the new age of transparency. Seminars in Dialysis 2020;33(6):533 View
  32. Fernández L, Fossa A, Dong Z, Delbanco T, Elmore J, Fitzgerald P, Harcourt K, Perez J, Walker J, DesRoches C. Words Matter: What Do Patients Find Judgmental or Offensive in Outpatient Notes?. Journal of General Internal Medicine 2021;36(9):2571 View
  33. Elkefi S, Yu Z, Asan O. Online Medical Record Nonuse Among Patients: Data Analysis Study of the 2019 Health Information National Trends Survey. Journal of Medical Internet Research 2021;23(2):e24767 View
  34. Huvila I, Cajander Å, Moll J, Enwald H, Eriksson-Backa K, Rexhepi H. Technological and informational frames: explaining age-related variation in the use of patient accessible electronic health records as technology and information. Information Technology & People 2022;35(8):1 View
  35. Chen J, Cabudol M, Williams E, Merrill J, Tsui J, Klein J. Perspectives on electronic portal use among patients treated with medications for opioid use disorder in primary care. Journal of Substance Abuse Treatment 2021;126:108463 View
  36. Zhang T, Shen N, Booth R, LaChance J, Jackson B, Strudwick G. Supporting the use of patient portals in mental health settings: a scoping review. Informatics for Health and Social Care 2022;47(1):62 View
  37. Valeur H, Lie A, Moen K. Patient Rationales Against the Use of Patient-Accessible Electronic Health Records: Qualitative Study. Journal of Medical Internet Research 2021;23(5):e24090 View
  38. Fisher K, Kennedy K, Bloomstone S, Fukunaga M, Bell S, Mazor K. Can sharing clinic notes improve communication and promote self-management? A qualitative study of patients with COPD. Patient Education and Counseling 2022;105(3):726 View
  39. Fitzsimons M, Power K, McCrea Z, Kiersey R, White M, Dunleavy B, O'Donoghue S, Lambert V, Delanty N, Doherty C. Democratizing epilepsy care: Utility and usability of an electronic patient portal. Epilepsy & Behavior 2021;122:108197 View
  40. Rexhepi H, Huvila I, Åhlfeldt R, Cajander Å. Cancer patients’ information seeking behavior related to online electronic healthcare records. Health Informatics Journal 2021;27(3) View
  41. Santarossa S, Sitarik A, Johnson C, Li J, Lynch S, Ownby D, Ramirez A, Yong G, Cassidy-Bushrow A. Associations of physical activity with gut microbiota in pre-adolescent children. Physical Activity and Nutrition 2021;25(4):24 View
  42. Raj M, Stephenson A, DePuccio M, Sullivan E, Tarver W, Fleuren B, Thomas S, Scheck McAlearney A. Conceptual Framework for Integrating Family Caregivers Into the Health Care Team: A Scoping Review. Medical Care Research and Review 2023;80(2):131 View
  43. Bell S, Dong Z, Desroches C, Hart N, Liu S, Mahon B, Ngo L, Thomas E, Bourgeois F. Partnering with patients and families living with chronic conditions to coproduce diagnostic safety through OurDX: a previsit online engagement tool. Journal of the American Medical Informatics Association 2023 View
  44. Wardian J, Bersabe D, Duke C, Sauerwein T. Patient Commitment and Its Relationship to A1C. Clinical Diabetes 2018;36(4):295 View
  45. BELL S, BOURGEOIS F, DONG J, GILLESPIE A, NGO L, READER T, THOMAS E, DESROCHES C. Patient Identification of Diagnostic Safety Blindspots and Participation in “Good Catches” Through Shared Visit Notes. The Milbank Quarterly 2022;100(4):1121 View
  46. Griffin A, Troszak L, Van Campen J, Midboe A, Zulman D. Tablet distribution to veterans: an opportunity to increase patient portal adoption and use. Journal of the American Medical Informatics Association 2022;30(1):73 View
  47. Asan O, Choudhury A, Somai M, Crotty B. Augmenting patient safety through participation by design – An assessment of dual monitors for patients in the outpatient clinic. International Journal of Medical Informatics 2021;146:104345 View
  48. Kim E. Patient’s Clinical User Experience in Gastroenterology. The Korean Journal of Gastroenterology 2022;80(6):241 View
  49. Lear R, Freise L, Kybert M, Darzi A, Neves A, Mayer E. Patients’ Willingness and Ability to Identify and Respond to Errors in Their Personal Health Records: Mixed Methods Analysis of Cross-sectional Survey Data. Journal of Medical Internet Research 2022;24(7):e37226 View
  50. Petersen C, Edmunds M, McGraw D, Priest E, Smith J, Kemp E, Campos H. A Policy Framework to Support Shared Decision-Making through the Use of Person-Generated Health Data. ACI Open 2021;05(02):e104 View
  51. Newman B, Joseph K, Chauhan A, Seale H, Li J, Manias E, Walton M, Mears S, Jones B, Harrison R. Do patient engagement interventions work for all patients? A systematic review and realist synthesis of interventions to enhance patient safety. Health Expectations 2021;24(6):1905 View
  52. Schust G, Manning M, Weil A. OpenNotes and Patient Safety: a Perilous Voyage into Uncharted Waters. Journal of General Internal Medicine 2022;37(8):2074 View
  53. Zaidi M, Amante D, Anderson E, Ito Fukunaga M, Faro J, Frisard C, Sadasivam R, Lemon S. Association Between Patient Portal Use and Perceived Patient-Centered Communication Among Adults With Cancer: Cross-sectional Survey Study. JMIR Cancer 2022;8(3):e34745 View
  54. Rexhepi H, Moll J, Huvila I, Åhlfeldt R. Do you want to receive bad news through your patient accessible electronic health record? A national survey on receiving bad news in an era of digital health. Health Informatics Journal 2021;27(3) View
  55. Blease C, DesRoches C. Open notes in patient care: confining deceptive placebos to the past?. Journal of Medical Ethics 2022;48(8):572 View
  56. Nguyen O, Hong Y, Alishahi Tabriz A, Hanna K, Turner K. Prevalence and Factors Associated with Patient-Requested Corrections to the Medical Record through Use of a Patient Portal: Findings from a National Survey. Applied Clinical Informatics 2022;13(01):242 View
  57. Kujala S, Hörhammer I, Väyrynen A, Holmroos M, Nättiaho-Rönnholm M, Hägglund M, Johansen M. Patients' Experiences of Web-Based Access to Electronic Health Records in Finland: Cross-sectional Survey. Journal of Medical Internet Research 2022;24(6):e37438 View
  58. Lam B, Dupee D, Gerard M, Bell S. A Patient-Centered Approach to Writing Ambulatory Visit Notes in the Cures Act Era. Applied Clinical Informatics 2023;14(01):199 View
  59. Kujala S, Simola S, Wang B, Soone H, Hagström J, Bärkås A, Hörhammer I, Cajander Å, Johansen Fagerlund A, Kane B, Kharko A, Kristiansen E, Moll J, Rexphepi H, Hägglund M, Johansen M. Benchmarking usability of patient portals in Estonia, Finland, Norway, and Sweden. International Journal of Medical Informatics 2024;181:105302 View
  60. Benjamins J, de Vet E, de Mortier C, Haveman-Nies A. The Effect of Using a Client-Accessible Health Record on Perceived Quality of Care: Interview Study Among Parents and Adolescents. Journal of Participatory Medicine 2024;16:e50092 View
  61. Giardina T, Vaghani V, Upadhyay D, Scott T, Korukonda S, Spitzmueller C, Singh H. Charting Diagnostic Safety: Exploring Patient-Provider Discordance in Medical Record Documentation. Journal of General Internal Medicine 2024 View
  62. Vanka A, Johnston K, Delbanco T, DesRoches C, Garcia A, Salmi L, Blease C. Guidelines for Patient-Centered Documentation in the Era of Open Notes: A Qualitative Study (Preprint). JMIR Medical Education 2024 View

Books/Policy Documents

  1. Allen D, Pak S. Person-Centered Outcome Metrology. View