Published on in Vol 12, No 2 (2010): Apr-Jun

Sharing Health Data for Better Outcomes on PatientsLikeMe

Sharing Health Data for Better Outcomes on PatientsLikeMe

Sharing Health Data for Better Outcomes on PatientsLikeMe

Journals

  1. Eaneff S, Wang V, Hanger M, Levy M, Mealy M, Brandt A, Eek D, Ratchford J, Nyberg F, Goodall J, Wicks P. Patient perspectives on neuromyelitis optica spectrum disorders: Data from the PatientsLikeMe online community. Multiple Sclerosis and Related Disorders 2017;17:116 View
  2. Grando A, Ivanova J, Hiestand M, Soni H, Murcko A, Saks M, Kaufman D, Whitfield M, Dye C, Chern D, Maupin J. Mental health professional perspectives on health data sharing: Mixed methods study. Health Informatics Journal 2020;26(3):2067 View
  3. Southall N, Natarajan M, Lau L, Jonker A, Deprez B, Guilliams T, Hunter L, Rademaker C, Hivert V, Ardigò D. The use or generation of biomedical data and existing medicines to discover and establish new treatments for patients with rare diseases – recommendations of the IRDiRC Data Mining and Repurposing Task Force. Orphanet Journal of Rare Diseases 2019;14(1) View
  4. Frost J, Okun S, Vaughan T, Heywood J, Wicks P. Patient-reported Outcomes as a Source of Evidence in Off-Label Prescribing: Analysis of Data From PatientsLikeMe. Journal of Medical Internet Research 2011;13(1):e6 View
  5. Lesk M. Electronic Medical Records: Confidentiality, Care, and Epidemiology. IEEE Security & Privacy 2013;11(6):19 View
  6. Griffiths F, Cave J, Boardman F, Ren J, Pawlikowska T, Ball R, Clarke A, Cohen A. Social networks – The future for health care delivery. Social Science & Medicine 2012;75(12):2233 View
  7. Pearson J, Brownstein C, Brownstein J. Potential for Electronic Health Records and Online Social Networking to Redefine Medical Research. Clinical Chemistry 2011;57(2):196 View
  8. Rubenstein E. Rituals of introduction and revolving roles: Socialization in an online breast cancer community. Library & Information Science Research 2015;37(4):353 View
  9. Gómez-Zúñiga B, Fernandez-Luque L, Pousada M, Hernández-Encuentra E, Armayones M. ePatients on YouTube: Analysis of Four Experiences From the Patients' Perspective. Medicine 2.0 2012;1(1):e1 View
  10. Lau A, Sintchenko V, Crimmins J, Magrabi F, Gallego B, Coiera E. Impact of a web-based personally controlled health management system on influenza vaccination and health services utilization rates: a randomized controlled trial. Journal of the American Medical Informatics Association 2012;19(5):719 View
  11. Budhiraja R, Thomas R, Kim M, Redline S. The Role of Big Data in the Management of Sleep-Disordered Breathing. Sleep Medicine Clinics 2016;11(2):241 View
  12. Du F, Plaisant C, Spring N, Crowley K, Shneiderman B. EventAction. ACM Transactions on Interactive Intelligent Systems 2019;9(4):1 View
  13. McQueen A, Arnold L, Baltes M. Characterizing Online Narratives About Colonoscopy Experiences: Comparing Colon Cancer “Screeners” Versus “Survivors”. Journal of Health Communication 2015;20(8):958 View
  14. Gage-Bouchard E, LaValley S, Mollica M, Beaupin L. Communication and Exchange of Specialized Health-Related Support Among People With Experiential Similarity on Facebook. Health Communication 2017;32(10):1233 View
  15. Pushparajah D, Manning E, Michels E, Arnaudeau-Bégard C. Value of Developing Plain Language Summaries of Scientific and Clinical Articles: A Survey of Patients and Physicians. Therapeutic Innovation & Regulatory Science 2018;52(4):474 View
  16. Jung M. Consumer Health Informatics. The Health Care Manager 2016;35(4):312 View
  17. Wong C, Merchant R, Moreno M. Using social media to engage adolescents and young adults with their health. Healthcare 2014;2(4):220 View
  18. Abbe A, Falissard B. Stopping Antidepressants and Anxiolytics as Major Concerns Reported in Online Health Communities: A Text Mining Approach. JMIR Mental Health 2017;4(4):e48 View
  19. Berenbaum F. E-santé, réseaux sociaux et rhumatologie : compatibles ou pas ?. Revue du Rhumatisme 2018;85(2):109 View
  20. Kalf R, Makady A, ten Ham R, Meijboom K, Goettsch W. Use of Social Media in the Assessment of Relative Effectiveness: Explorative Review With Examples From Oncology. JMIR Cancer 2018;4(1):e11 View
  21. Meisel Z, VonHoltz L, Merchant R. Crowdsourcing healthcare costs: Opportunities and challenges for patient centered price transparency. Healthcare 2016;4(1):3 View
  22. Willis E. Patients’ self-efficacy within online health communities: facilitating chronic disease self-management behaviors through peer education. Health Communication 2016;31(3):299 View
  23. Salsbury S, Goertz C, Vining R, Hondras M, Andresen A, Long C, Lyons K, Killinger L, Wallace R. Interdisciplinary Practice Models for Older Adults With Back Pain: A Qualitative Evaluation. The Gerontologist 2017:gnw188 View
  24. Tresp V, Marc Overhage J, Bundschus M, Rabizadeh S, Fasching P, Yu S. Going Digital: A Survey on Digitalization and Large-Scale Data Analytics in Healthcare. Proceedings of the IEEE 2016;104(11):2180 View
  25. Benedict C, Hahn A, Diefenbach M, Ford J. Recruitment via social media: advantages and potential biases. DIGITAL HEALTH 2019;5:205520761986722 View
  26. Myneni S, Lewis B, Singh T, Paiva K, Kim S, Cebula A, Villanueva G, Wang J. Diabetes Self-Management in the Age of Social Media: Large-Scale Analysis of Peer Interactions Using Semiautomated Methods. JMIR Medical Informatics 2020;8(6):e18441 View
  27. Schulz P, Fitzpatrick M, Hess A, Sudbury-Riley L, Hartung U. Effects of eHealth Literacy on General Practitioner Consultations: A Mediation Analysis. Journal of Medical Internet Research 2017;19(5):e166 View
  28. Chen D, Zhang R, Liu K, Hou L. Enhancing Online Patient Support through Health-Care Knowledge in Online Health Communities: A Descriptive Study. Information 2018;9(8):199 View
  29. Swift B, Jain L, White C, Chandrasekaran V, Bhandari A, Hughes D, Jadhav P. Innovation at the Intersection of Clinical Trials and Real-World Data Science to Advance Patient Care. Clinical and Translational Science 2018;11(5):450 View
  30. Westendorf L, Shaer O, Pollalis C, Verish C, Nov O, Ball M. Exploring Genetic Data Across Individuals: Design and Evaluation of a Novel Comparative Report Tool. Journal of Medical Internet Research 2018;20(9):e10297 View
  31. Flickinger T, DeBolt C, Wispelwey E, Laurence C, Plews-Ogan E, Waldman A, Reynolds G, Cohn W, Beach M, Ingersoll K, Dillingham R. Content Analysis and User Characteristics of a Smartphone-Based Online Support Group for People Living with HIV. Telemedicine and e-Health 2016;22(9):746 View
  32. Heatherly R, Denny J, Haines J, Roden D, Malin B. Size matters: How population size influences genotype–phenotype association studies in anonymized data. Journal of Biomedical Informatics 2014;52:243 View
  33. Kim S, Abner E. Predictors affecting personal health information management skills. Informatics for Health and Social Care 2016;41(3):211 View
  34. Disler R, Inglis S, Newton P, Currow D, Macdonald P, Glanville A, Donesky D, Carrieri-Kohlman V, Davidson P. Patterns of Technology Use in Patients Attending a Cardiopulmonary Outpatient Clinic: A Self-Report Survey. interactive Journal of Medical Research 2015;4(1):e5 View
  35. Rodgers M, Alon G, Pai V, Conroy R. Wearable technologies for active living and rehabilitation: Current research challenges and future opportunities. Journal of Rehabilitation and Assistive Technologies Engineering 2019;6:205566831983960 View
  36. Ghio D, Greenwell K, Muller I, Roberts A, McNiven A, Santer M. Psychosocial needs of adolescents and young adults with eczema: A secondary analysis of qualitative data to inform a behaviour change intervention. British Journal of Health Psychology 2021;26(1):214 View
  37. Thorley E, Iyer R, Wicks P, Curran C, Gandhi S, Abler V, Anderson K, Carlozzi N. Understanding How Chorea Affects Health-Related Quality of Life in Huntington Disease: An Online Survey of Patients and Caregivers in the United States. The Patient - Patient-Centered Outcomes Research 2018;11(5):547 View
  38. Kim H, Lee S, Baik S, Kim J. MELLO: Medical lifelog ontology for data terms from self-tracking and lifelog devices. International Journal of Medical Informatics 2015;84(12):1099 View
  39. Shcherbakova N, Shepherd M. Community pharmacists, Internet and social media: An empirical investigation. Research in Social and Administrative Pharmacy 2014;10(6):e75 View
  40. Borentain S, Nash A, Dayal R, DiBernardo A. Patient-reported outcomes in major depressive disorder with suicidal ideation: a real-world data analysis using PatientsLikeMe platform. BMC Psychiatry 2020;20(1) View
  41. Trevena L. PatientsLikeMe and the tale of three brothers. Medical Journal of Australia 2011;195(5):258 View
  42. Johnson C, McIlwain S, Gray O, Willson B, Vorderstrasse A. Creating a sustainable collaborative consumer health application for chronic disease self-management. Journal of Biomedical Informatics 2017;71:198 View
  43. Benetoli A, Chen T, Aslani P. How patients’ use of social media impacts their interactions with healthcare professionals. Patient Education and Counseling 2018;101(3):439 View
  44. Comfort S, Perera S, Hudson Z, Dorrell D, Meireis S, Nagarajan M, Ramakrishnan C, Fine J. Sorting Through the Safety Data Haystack: Using Machine Learning to Identify Individual Case Safety Reports in Social-Digital Media. Drug Safety 2018;41(6):579 View
  45. Chen L, Baird A, Straub D. Fostering Participant Health Knowledge and Attitudes: An Econometric Study of a Chronic Disease-Focused Online Health Community. Journal of Management Information Systems 2019;36(1):194 View
  46. Marsh K, Bush R, Connelly C. Exploring perceptions and use of the patient portal by young adults with type 1 diabetes: A qualitative study. Health Informatics Journal 2020;26(4):2586 View
  47. Rosenkranz N, Eckhardt A, Kühne M, Rosenkranz C. Gesundheitsinformationen im Internet. WIRTSCHAFTSINFORMATIK 2013;55(4):257 View
  48. Wöhlke S, Schaper M, Oliveri S, Cutica I, Spinella F, Pravettoni G, Steinberger D, Schicktanz S. German and Italian Users of Web-Accessed Genetic Data: Attitudes on Personal Utility and Personal Sharing Preferences. Results of a Comparative Survey (n=192). Frontiers in Genetics 2020;11 View
  49. Hall J, Brown R. Developing translational research infrastructure and capabilities associated with cancer clinical trials. Expert Reviews in Molecular Medicine 2013;15 View
  50. Masters K. Preparing medical students for the e-patient. Medical Teacher 2017;39(7):681 View
  51. Überall M, Werner-Felmayer G. Integrative Biology and Big-Data-Centrism: Mapping out a Bioscience Ethics Perspective with a S.W.O.T. Matrix. OMICS: A Journal of Integrative Biology 2019;23(8):371 View
  52. von Thiele Schwarz U. Co-care: Producing better health outcome through interactions between patients, care providers and information and communication technology. Health Services Management Research 2016;29(1-2):10 View
  53. Balatsoukas P, Kennedy C, Buchan I, Powell J, Ainsworth J. The Role of Social Network Technologies in Online Health Promotion: A Narrative Review of Theoretical and Empirical Factors Influencing Intervention Effectiveness. Journal of Medical Internet Research 2015;17(6):e141 View
  54. Nambisan P, Gustafson D, Hawkins R, Pingree S. Social support and responsiveness in online patient communities: impact on service quality perceptions. Health Expectations 2016;19(1):87 View
  55. Angrist M. You never call, you never write: why return of ‘omic’ results to research participants is both a good idea and a moral imperative. Personalized Medicine 2011;8(6):651 View
  56. Simacek K, Raja P, Chiauzzi E, Eek D, Halling K. What Do Ovarian Cancer Patients Expect From Treatment?. Cancer Nursing 2017;40(5):E17 View
  57. Chretien K, Kind T. Social Media and Clinical Care. Circulation 2013;127(13):1413 View
  58. Bagheri H, Lacroix I, Guitton E, Damase-Michel C, Montastruc J. Cyberpharmacovigilance: What is the usefulness of the social networks in pharmacovigilance?. Therapies 2016;71(2):235 View
  59. Masters K, Loda T, Johannink J, Al-Abri R, Herrmann-Werner A. Surgeons’ Interactions With and Attitudes Toward E-Patients: Questionnaire Study in Germany and Oman. Journal of Medical Internet Research 2020;22(3):e14646 View
  60. Turner K, Klaman S, Shea C. Personal health records for people living with HIV: a review. AIDS Care 2016;28(9):1181 View
  61. Gage-Bouchard E, LaValley S, Mollica M, Beaupin L. Cancer Communication on Social Media. Cancer Nursing 2017;40(4):332 View
  62. Fuoco M, Leveridge M. Early adopters or laggards? Attitudes toward and use of social media among urologists. BJU International 2015;115(3):491 View
  63. Wicks P, Sulham K, Gnanasakthy A. Quality of Life in Organ Transplant Recipients Participating in an Online Transplant Community. The Patient - Patient-Centered Outcomes Research 2014;7(1):73 View
  64. Auffenberg G, Ghani K, Ramani S, Usoro E, Denton B, Rogers C, Stockton B, Miller D, Singh K. askMUSIC: Leveraging a Clinical Registry to Develop a New Machine Learning Model to Inform Patients of Prostate Cancer Treatments Chosen by Similar Men. European Urology 2019;75(6):901 View
  65. Wiggins A, Wilbanks J. The Rise of Citizen Science in Health and Biomedical Research. The American Journal of Bioethics 2019;19(8):3 View
  66. Jaser S, Hamburger E, Pagoto S, Williams R, Meyn A, Jones A, Simmons J. Communication and coping intervention for mothers of adolescents with type 1 diabetes: Rationale and trial design. Contemporary Clinical Trials 2019;85:105844 View
  67. Jung M. Cancer Control and the Communication Innovation in South Korea: Implications for Cancer Disparities. Asian Pacific Journal of Cancer Prevention 2013;14(6):3411 View
  68. Lau A, Proudfoot J, Andrews A, Liaw S, Crimmins J, Arguel A, Coiera E. Which Bundles of Features in a Web-Based Personally Controlled Health Management System Are Associated With Consumer Help-Seeking Behaviors for Physical and Emotional Well-Being?. Journal of Medical Internet Research 2013;15(5):e79 View
  69. Jacobsen P, Thorley E, Curran C. Real-world patient experience with sexual dysfunction and antidepressant use in patients with self-reported depression: A cross-sectional survey study. Neurology, Psychiatry and Brain Research 2020;36:57 View
  70. Bragazzi N. Infodemiology and Infoveillance of Multiple Sclerosis in Italy. Multiple Sclerosis International 2013;2013:1 View
  71. James G, Nyman E, Fitz-Randolph M, Niklasson A, Hedman K, Hedberg J, Wittbrodt E, Medin J, Moreno Quinn C, Allum A, Emmas C. Characteristics, Symptom Severity, and Experiences of Patients Reporting Chronic Kidney Disease in the PatientsLikeMe Online Health Community: Retrospective and Qualitative Study. Journal of Medical Internet Research 2020;22(7):e18548 View
  72. Bert F, Gualano M, Brusaferro S, De Vito E, de Waure C, Torre G, Manzoli L, Messina G, Todros T, Torregrossa M, Siliquini R. Pregnancy e-health: a multicenter Italian cross-sectional study on internet use and decision-making among pregnant women. Journal of Epidemiology and Community Health 2013;67(12):1013 View
  73. Greenhalgh T, Snow R, Ryan S, Rees S, Salisbury H. Six ‘biases’ against patients and carers in evidence-based medicine. BMC Medicine 2015;13(1) View
  74. SEEMAN M, SEEMAN N. The Meaning of Antipsychotic Medication to Patients With Schizophrenia. Journal of Psychiatric Practice 2012;18(5):338 View
  75. Johnson C, Feinglos M, Pereira K, Hassell N, Blascovich J, Nicollerat J, Beresford H, Levy J, Vorderstrasse A. Feasibility and Preliminary Effects of a Virtual Environment for Adults With Type 2 Diabetes: Pilot Study. JMIR Research Protocols 2014;3(2):e23 View
  76. Gavrila V, Garrity A, Hirschfeld E, Edwards B, Lee J. Peer Support Through a Diabetes Social Media Community. Journal of Diabetes Science and Technology 2019;13(3):493 View
  77. McCaffrey S, Chiauzzi E, Chan C, Hoole M. Understanding ‘Good Health care’ from the Patient’s Perspective: Development of a Conceptual Model Using Group Concept Mapping. The Patient - Patient-Centered Outcomes Research 2019;12(1):83 View
  78. Nagle F. The Digital Commons: Tragedy or Opportunity? A Reflection on the 50th Anniversary of Hardin’s Tragedy of the Commons. SSRN Electronic Journal 2018 View
  79. Nikfarjam A, Ransohoff J, Callahan A, Polony V, Shah N. Profiling off-label prescriptions in cancer treatment using social health networks. JAMIA Open 2019;2(3):301 View
  80. Marrie R, Salter A, Tyry T, Fox R, Cutter G. Preferred Sources of Health Information in Persons With Multiple Sclerosis: Degree of Trust and Information Sought. Journal of Medical Internet Research 2013;15(4):e67 View
  81. Wicks P, Massagli M, Kulkarni A, Dastani H. Use of an Online Community to Develop Patient-Reported Outcome Instruments: The Multiple Sclerosis Treatment Adherence Questionnaire (MS-TAQ). Journal of Medical Internet Research 2011;13(1):e12 View
  82. Wicks P, Keininger D, Massagli M, la Loge C, Brownstein C, Isojärvi J, Heywood J. Perceived benefits of sharing health data between people with epilepsy on an online platform. Epilepsy & Behavior 2012;23(1):16 View
  83. Moorhead S, Hazlett D, Harrison L, Carroll J, Irwin A, Hoving C. A New Dimension of Health Care: Systematic Review of the Uses, Benefits, and Limitations of Social Media for Health Communication. Journal of Medical Internet Research 2013;15(4):e85 View
  84. Antheunis M, Tates K, Nieboer T. Patients’ and health professionals’ use of social media in health care: Motives, barriers and expectations. Patient Education and Counseling 2013;92(3):426 View
  85. Jackson M, Bex P, Ellison J, Wicks P, Wallis J. Feasibility of a Web-Based Survey of Hallucinations and Assessment of Visual Function in Patients With Parkinson’s Disease. interactive Journal of Medical Research 2014;3(1):e1 View
  86. Klaber R. Training and learning for the future: making change happen. Postgraduate Medical Journal 2014;90(1062):183 View
  87. Wade T. Traits and types of health data repositories. Health Information Science and Systems 2014;2(1) View
  88. Doing-Harris K, Zeng-Treitler Q. Computer-Assisted Update of a Consumer Health Vocabulary Through Mining of Social Network Data. Journal of Medical Internet Research 2011;13(2):e37 View
  89. Gómez-Zúñiga B, Fernandez-Luque L, Pousada M, Hernández-Encuentra E, Armayones M. ePatients on YouTube: Analysis of Four Experiences From the Patients' Perspective. Medicine 2.0 2012;1(1):e1 View
  90. Tillmann T, Gibson A, Scott G, Harrison O, Dominiczak A, Hanlon P. Systems Medicine 2.0: Potential Benefits of Combining Electronic Health Care Records With Systems Science Models. Journal of Medical Internet Research 2015;17(3):e64 View
  91. Strekalova Y, Hawkins K, Drusbosky L, Cogle C. Using social media to assess care coordination goals and plans for leukemia patients and survivors. Translational Behavioral Medicine 2018;8(3):481 View
  92. Chung C, Cook J, Bales E, Zia J, Munson S. More Than Telemonitoring: Health Provider Use and Nonuse of Life-Log Data in Irritable Bowel Syndrome and Weight Management. Journal of Medical Internet Research 2015;17(8):e203 View
  93. Nisar S, Shafiq M. Framework for efficient utilisation of social media in Pakistan's healthcare sector. Technology in Society 2019;56:31 View
  94. Meenakshi S, Sivakumar P, Ilango P. Effective Health Promotion Interventions for Targeted Audience using Social Networking Sites: A Systematic Review. Indian Journal of Science and Technology 2017;10(36):1 View
  95. Chung A, Vu M, Myers K, Burris J, Kappelman M. Crohn’s and Colitis Foundation of America Partners Patient-Powered Research Network. Medical Care 2018;56(Suppl 1):S33 View
  96. Weitzman E, Adida B, Kelemen S, Mandl K, Shea B. Sharing Data for Public Health Research by Members of an International Online Diabetes Social Network. PLoS ONE 2011;6(4):e19256 View
  97. Pages A, Bondon-Guitton E, Montastruc J, Bagheri H. Undesirable Effects Related to Oral Antineoplastic Drugs: Comparison Between Patients’ Internet Narratives and a National Pharmacovigilance Database. Drug Safety 2014;37(8):629 View
  98. Triantafyllidis A, Velardo C, Salvi D, Shah S, Koutkias V, Tarassenko L. A Survey of Mobile Phone Sensing, Self-Reporting, and Social Sharing for Pervasive Healthcare. IEEE Journal of Biomedical and Health Informatics 2017;21(1):218 View
  99. Farber G. Can data repositories help find effective treatments for complex diseases?. Progress in Neurobiology 2017;152:200 View
  100. Rupert D, Gard Read J, Amoozegar J, Moultrie R, Taylor O, O’Donoghue A, Sullivan H. Peer-Generated Health Information: The Role of Online Communities in Patient and Caregiver Health Decisions. Journal of Health Communication 2016;21(11):1187 View
  101. Frennert S. Hitting a moving target: digital transformation and welfare technology in Swedish municipal eldercare. Disability and Rehabilitation: Assistive Technology 2021;16(1):103 View
  102. Gergle D, Hargittai E. A methodological pilot for gathering data through text-messaging to study question-asking in everyday life. Mobile Media & Communication 2018;6(2):197 View
  103. Workman T, Maurer M, Carman K. Unresolved tensions in consumer engagement in CER: a US research perspective. Journal of Comparative Effectiveness Research 2013;2(2):127 View
  104. Deeny S, Steventon A. Making sense of the shadows: priorities for creating a learning healthcare system based on routinely collected data. BMJ Quality & Safety 2015;24(8):505 View
  105. Lee H, Kim J, Sharratt M. Technology use and its association with health and depressive symptoms in older cancer survivors. Quality of Life Research 2018;27(2):467 View
  106. Okun S, Wicks P. DigitalMe: a journey towards personalized health and thriving. BioMedical Engineering OnLine 2018;17(1) View
  107. Chuang K, Yang C. Interaction Patterns of Nurturant Support Exchanged in Online Health Social Networking. Journal of Medical Internet Research 2012;14(3):e54 View
  108. Foley G, Timonen V, Hardiman O. Experience of Services as a Key Outcome in Amyotrophic Lateral Sclerosis (ALS) Care. American Journal of Hospice and Palliative Medicine® 2012;29(5):362 View
  109. Kim J, Lee J. Health Information Sharing on the Web: The Influences of Age and Gender. Journal of the Korean Society for information Management 2012;29(3):61 View
  110. Vaala S, Lee J, Hood K, Mulvaney S. Sharing and helping: predictors of adolescents’ willingness to share diabetes personal health information with peers. Journal of the American Medical Informatics Association 2018;25(2):135 View
  111. Wicks P, McCaffrey S, Goodwin K, Black R, Hoole M, Heywood J. A Modular Health-Related Quality of Life Instrument for Electronic Assessment and Treatment Monitoring: Web-Based Development and Psychometric Validation of Core Thrive Items. Journal of Medical Internet Research 2019;21(1):e12075 View
  112. Park J, Park S, Kim G, Kim K, Jung J, Yoo S, Yi G, Lee D. Reliable Data Collection in Participatory Trials to Assess Digital Healthcare Applications. IEEE Access 2020;8:79472 View
  113. Hadgkiss E, Jelinek G, Weiland T, Pereira N, Marck C, van der Meer D. Methodology of an International Study of People with Multiple Sclerosis Recruited through Web 2.0 Platforms: Demographics, Lifestyle, and Disease Characteristics. Neurology Research International 2013;2013:1 View
  114. Madathil K, Greenstein J, Juang K, Neyens D, Gramopadhye A. An Investigation of the Informational Needs of Ovarian Cancer Patients and Their Supporters. Proceedings of the Human Factors and Ergonomics Society Annual Meeting 2013;57(1):748 View
  115. Marziniak M, Brichetto G, Feys P, Meyding-Lamadé U, Vernon K, Meuth S. The Use of Digital and Remote Communication Technologies as a Tool for Multiple Sclerosis Management: Narrative Review. JMIR Rehabilitation and Assistive Technologies 2018;5(1):e5 View
  116. ZIEBLAND S, WYKE S. Health and Illness in a Connected World: How Might Sharing Experiences on the Internet Affect People's Health?. Milbank Quarterly 2012;90(2):219 View
  117. Yang N, Ginsburg G, Simmons L. Personalized medicine in women's obesity prevention and treatment: implications for research, policy and practice. Obesity Reviews 2013;14(2):145 View
  118. Schroeder E, Desai J, Schmittdiel J, Paolino A, Schneider J, Goodrich G, Lawrence J, Newton K, Nichols G, O'Connor P, Fitz-Randolph M, Steiner J. An Innovative Approach to Informing Research: Gathering Perspectives on Diabetes Care Challenges From an Online Patient Community. interactive Journal of Medical Research 2015;4(2):e13 View
  119. Ivanov A, Sharman R, Rao H. Exploring factors impacting sharing health-tracking records. Health Policy and Technology 2015;4(3):263 View
  120. Benedict C, Victorson D, Love B, Fuehrer D, Lazard A, Saffer A, Linscott T, Zachary M. The Audacity of Engagement: Hearing Directly from Young Adults with Cancer on Their Attitudes and Perceptions of Cancer Survivorship and Cancer Survivorship Research. Journal of Adolescent and Young Adult Oncology 2018;7(1):103 View
  121. Kulanthaivel A, Fogel R, Jones J, Lammert C. Digital Cohorts Within the Social Mediome: An Approach to Circumvent Conventional Research Challenges?. Clinical Gastroenterology and Hepatology 2017;15(5):614 View
  122. Ploderer B, Smith W, Pearce J, Borland R. An Object-Centred Approach to Encourage Online Participation in the Context of Behaviour Change. Computer Supported Cooperative Work (CSCW) 2015;24(1):39 View
  123. Nyman E, Vaughan T, Desta B, Wang X, Barut V, Emmas C. Characteristics and Symptom Severity of Patients Reporting Systemic Lupus Erythematosus in the PatientsLikeMe Online Health Community: A Retrospective Observational Study. Rheumatology and Therapy 2020;7(1):201 View
  124. Luo A, Xin Z, Yuan Y, Wen T, Xie W, Zhong Z, Peng X, Ouyang W, Hu C, Liu F, Chen Y, He H. Multidimensional Feature Classification of the Health Information Needs of Patients With Hypertension in an Online Health Community Through Analysis of 1000 Patient Question Records: Observational Study. Journal of Medical Internet Research 2020;22(5):e17349 View
  125. Ahern D, Woods S, Lightowler M, Finley S, Houston T. Promise of and Potential for Patient-Facing Technologies to Enable Meaningful Use. American Journal of Preventive Medicine 2011;40(5):S162 View
  126. Swan M. Crowdsourced Health Research Studies: An Important Emerging Complement to Clinical Trials in the Public Health Research Ecosystem. Journal of Medical Internet Research 2012;14(2):e46 View
  127. Maier A, Holm T, Wicks P, Steinfurth L, Linke P, Münch C, Meyer R, Meyer T. Online assessment of ALS functional rating scale compares well to in-clinic evaluation: A prospective trial. Amyotrophic Lateral Sclerosis 2012;13(2):210 View
  128. Storni C. Design challenges for ubiquitous and personal computing in chronic disease care and patient empowerment: a case study rethinking diabetes self-monitoring. Personal and Ubiquitous Computing 2014;18(5):1277 View
  129. Atanasova S, Kamin T, Petrič G. The benefits and challenges of online professional-patient interaction: Comparing views between users and health professional moderators in an online health community. Computers in Human Behavior 2018;83:106 View
  130. Gruzd A, Haythornthwaite C. Enabling Community Through Social Media. Journal of Medical Internet Research 2013;15(10):e248 View
  131. Abel O, Shatunov A, Jones A, Andersen P, Powell J, Al-Chalabi A. Development of a Smartphone App for a Genetics Website: The Amyotrophic Lateral Sclerosis Online Genetics Database (ALSoD). JMIR mhealth and uhealth 2013;1(2):e18 View
  132. Ivanova J, Grando A, Murcko A, Saks M, Whitfield M, Dye C, Chern D. Mental health professionals’ perceptions on patients control of data sharing. Health Informatics Journal 2020;26(3):2011 View
  133. Mao B, Morgan S, Peng W, McFarlane S, Occa A, Grinfeder G, Byrne M. What Motivates You to Share? The Effect of Interactive Tailored Information Aids on Information Sharing about Clinical Trials. Health Communication 2020:1 View
  134. Subirats L, Ceccaroni L, Lopez-Blazquez R, Miralles F, García-Rudolph A, Tormos J. Circles of Health: Towards an advanced social network about disabilities of neurological origin. Journal of Biomedical Informatics 2013;46(6):1006 View
  135. Chiche L, Jourde-Chiche N, Stephan D, Hermant N, Harle J, Chekroun M. Communauté en ligne de patients lupiques en France : leurs caractéristiques, leurs besoins et leurs sources d’informations. La Revue de Médecine Interne 2013;34:A71 View
  136. Berenbaum F. e-Health, social media, and rheumatology: Can they get along?. Joint Bone Spine 2018;85(3):265 View
  137. Hughes A, Park A, Kietzmann J, Archer-Brown C. Beyond Bitcoin: What blockchain and distributed ledger technologies mean for firms. Business Horizons 2019;62(3):273 View
  138. Kim M, Jung Y, Jung D, Hur C. Investigating the Congruence of Crowdsourced Information With Official Government Data: The Case of Pediatric Clinics. Journal of Medical Internet Research 2014;16(2):e29 View
  139. Gage-Bouchard E, LaValley S, Warunek M, Beaupin L, Mollica M. Is Cancer Information Exchanged on Social Media Scientifically Accurate?. Journal of Cancer Education 2018;33(6):1328 View
  140. Bahng J, Lee C. Topic Modeling for Analyzing Patients’ Perceptions and Concerns of Hearing Loss on Social Q&A Sites: Incorporating Patients’ Perspective. International Journal of Environmental Research and Public Health 2020;17(17):6209 View
  141. Yan L, Sun S, Tan Y. Shared Minds: How Patients Use Collaborative Web-Based Information Sharing. SSRN Electronic Journal 2012 View
  142. Basch C, MacLean S. Colorectal Cancer on Instagram: A Content Analysis. Journal of Consumer Health on the Internet 2019;23(4):378 View
  143. Li J. Privacy policies for health social networking sites: Table 1. Journal of the American Medical Informatics Association 2013;20(4):704 View
  144. Liu N, Tong Y, Chan H. Dual effects of social support seeking in patient-centric online healthcare communities: A longitudinal study. Information & Management 2020;57(8):103270 View
  145. Moreira A, Alonso-Calvo R, Muñoz A, Crespo J. Measuring Relevant Information in Health Social Network Conversations and Clinical Diagnosis Cases. International Journal of Environmental Research and Public Health 2018;15(12):2787 View
  146. Hughes S, Cohen D. Can Online Consumers Contribute to Drug Knowledge? A Mixed-Methods Comparison of Consumer-Generated and Professionally Controlled Psychotropic Medication Information on the Internet. Journal of Medical Internet Research 2011;13(3):e53 View
  147. DiSantostefano R, Berlin J, Chuang-Stein C, Quartey G, Eichenbaum G, Levitan B. Selecting and Integrating Data Sources in Benefit–Risk Assessment: Considerations and Future Directions. Statistics in Biopharmaceutical Research 2016;8(4):394 View
  148. McDarby V, Hevey D, Cody D. An Overview of the Role of Social Network Sites in the Treatment of Adolescent Diabetes. Diabetes Technology & Therapeutics 2015;17(4):291 View
  149. Adams S, Schiffers P. Co-constructed health narratives during a ‘media event’: The case of the first Dutch Twitter heart operation. DIGITAL HEALTH 2017;3:205520761771204 View
  150. Yan L, Yan X, Tan Y, Sun S. Shared Minds: How Patients Use Collaborative Information Sharing via Social Media Platforms. Production and Operations Management 2019;28(1):9 View
  151. Schleimer E, Pearce J, Barnecut A, Rowles W, Lizee A, Klein A, Block V, Santaniello A, Renschen A, Gomez R, Keshavan A, Gelfand J, Henry R, Hauser S, Bove R. A Precision Medicine Tool for Patients With Multiple Sclerosis (the Open MS BioScreen): Human-Centered Design and Development. Journal of Medical Internet Research 2020;22(7):e15605 View
  152. Nakamura C, Bromberg M, Bhargava S, Wicks P, Zeng-Treitler Q. Mining Online Social Network Data for Biomedical Research: A Comparison of Clinicians’ and Patients’ Perceptions About Amyotrophic Lateral Sclerosis Treatments. Journal of Medical Internet Research 2012;14(3):e90 View
  153. Bidmon S, Terlutter R, Röttl J. What Explains Usage of Mobile Physician-Rating Apps? Results From a Web-Based Questionnaire. Journal of Medical Internet Research 2014;16(6):e148 View
  154. Taggart T, Grewe M, Conserve D, Gliwa C, Roman Isler M. Social Media and HIV: A Systematic Review of Uses of Social Media in HIV Communication. Journal of Medical Internet Research 2015;17(11):e248 View
  155. Holme P, Huss M. Understanding and Exploiting Information Spreading and Integrating Technologies. Journal of Computer Science and Technology 2011;26(5):829 View
  156. Ho Y, O’Connor B, Mulvaney S. Features of Online Health Communities for Adolescents With Type 1 Diabetes. Western Journal of Nursing Research 2014;36(9):1183 View
  157. Prasanna P, Seagull F, Nagy P. Online Social Networking: A Primer for Radiology. Journal of Digital Imaging 2011;24(5):908 View
  158. Wicks P, Vaughan T, Massagli M. The multiple sclerosis rating scale, revised (MSRS-R): Development, refinement, and psychometric validation using an online community. Health and Quality of Life Outcomes 2012;10(1):70 View
  159. Le N, Wiley M, Loza A, Hristidis V, El-Kareh R. Prediction of Medical Concepts in Electronic Health Records: Similar Patient Analysis. JMIR Medical Informatics 2020;8(7):e16008 View
  160. Stragier J, Evens T, Mechant P. Broadcast Yourself: An Exploratory Study of Sharing Physical Activity on Social Networking Sites. Media International Australia 2015;155(1):120 View
  161. Gholami-Kordkheili F, Wild V, Strech D. The Impact of Social Media on Medical Professionalism: A Systematic Qualitative Review of Challenges and Opportunities. Journal of Medical Internet Research 2013;15(8):e184 View
  162. Grundstrom C, Korhonen O, Väyrynen K, Isomursu M. Insurance Customers’ Expectations for Sharing Health Data: Qualitative Survey Study. JMIR Medical Informatics 2020;8(3):e16102 View
  163. Yan L, Tan Y. The Consensus Effect on Shared Treatment Experience in Online Healthcare Communities. SSRN Electronic Journal 2015 View
  164. Meunier B, Jourde-Chiche N, Mancini J, Chekroun M, Retornaz F, Chiche L. Characteristics and information searched for by French patients with systemic lupus erythematosus: A web-community data-driven online survey. Lupus 2016;25(4):370 View
  165. Raspa M, Fitzgerald T, Furberg R, Wylie A, Moultrie R, DeRamus M, Wheeler A, McCormack L. Mobile technology use and skills among individuals with fragile X syndrome: implications for healthcare decision making. Journal of Intellectual Disability Research 2018;62(10):821 View
  166. Lau A. Hospital-Based Nurses’ Perceptions of the Adoption of Web 2.0 Tools for Knowledge Sharing, Learning, Social Interaction and the Production of Collective Intelligence. Journal of Medical Internet Research 2011;13(4):e92 View
  167. Yang F, Zhong B, Kumar A, Chow S, Ouyang A. Exchanging Social Support Online: A Longitudinal Social Network Analysis of Irritable Bowel Syndrome Patients’ Interactions on a Health Forum. Journalism & Mass Communication Quarterly 2018;95(4):1033 View
  168. Hah H. Health Consumers’ Daily Habit of Internet Banking Use as a Proxy for Understanding Health Information Sharing Behavior: Quasi-Experimental Approach. Journal of Medical Internet Research 2020;22(1):e15585 View
  169. Hobson E, McDermott C. Supportive and symptomatic management of amyotrophic lateral sclerosis. Nature Reviews Neurology 2016;12(9):526 View
  170. Cipolletta S, Votadoro R, Faccio E. Online support for transgender people: an analysis of forums and social networks. Health & Social Care in the Community 2017;25(5):1542 View
  171. Fujieda K, Okubo K. A reusable anatomically segmented digital mannequin for public health communication. Journal of Visual Communication in Medicine 2016;39(1-2):18 View
  172. Ziebland S, Powell J, Briggs P, Jenkinson C, Wyke S, Sillence E, Harris P, Perera R, Mazanderani F, Martin A, Locock L, Kelly L, Booth M, Gann B, Newhouse N, Farmer A. Examining the role of patients’ experiences as a resource for choice and decision-making in health care: a creative, interdisciplinary mixed-method study in digital health. Programme Grants for Applied Research 2016;4(17):1 View
  173. Jacobs M, Gheihman G, Gajos K, Gupta A. "I think we know more than our doctors". Proceedings of the ACM on Human-Computer Interaction 2019;3(CSCW):1 View
  174. Wicks P, Vaughan T, Massagli M, Heywood J. Accelerated clinical discovery using self-reported patient data collected online and a patient-matching algorithm. Nature Biotechnology 2011;29(5):411 View
  175. Avila L, Errecalde M. A simple method for recommending specialized specifications for diabetes monitoring. Expert Systems with Applications 2018;91:298 View
  176. Lindeque B, Saleh J, Robinson B, Kugler N, Illingworth K, Patel P, Saleh K. Effect of Social Media in Health Care and Orthopedic Surgery. Orthopedics 2012;35(4):294 View
  177. Betsch C, Renkewitz F, Haase N. Effect of Narrative Reports about Vaccine Adverse Events and Bias-Awareness Disclaimers on Vaccine Decisions. Medical Decision Making 2013;33(1):14 View
  178. Graham A, Papandonatos G, Zhao K. The failure to increase social support: it just might be time to stop intervening (and start rigorously observing). Translational Behavioral Medicine 2017;7(4):816 View
  179. Riggare S, Höglund P, Hvitfeldt Forsberg H, Eftimovska E, Svenningsson P, Hägglund M. Patients are doing it for themselves: A survey on disease-specific knowledge acquisition among people with Parkinson’s disease in Sweden. Health Informatics Journal 2019;25(1):91 View
  180. Meijer A. Coproduction as a structural transformation of the public sector. International Journal of Public Sector Management 2016;29(6):596 View
  181. Luc J, Stamp N, Antonoff M. Social media in the mentorship and networking of physicians: Important role for women in surgical specialties. The American Journal of Surgery 2018;215(4):752 View
  182. Kaur P, Chana I. Cloud based intelligent system for delivering health care as a service. Computer Methods and Programs in Biomedicine 2014;113(1):346 View
  183. Gee P, Greenwood D, Kim K, Perez S, Staggers N, DeVon H. Exploration of the e-patient phenomenon in nursing informatics. Nursing Outlook 2012;60(4):e9 View
  184. Mirza R, Ren M, Agarwal A, Guyatt G. Assessing Patient Perspectives on Receiving Bad News: A Survey of 1337 Patients With Life-Changing Diagnoses. AJOB Empirical Bioethics 2019;10(1):36 View
  185. Castle N. Staff Assist: A Resource to Improve Nursing Home Quality and Staffing. The Gerontologist 2011;51(5):714 View
  186. Houyez F, Sanchez de Vega R, Brignol T, Mazzucato M, Polizzi A. A European Network of Email and Telephone Help Lines Providing Information and Support on Rare Diseases: Results From a 1-Month Activity Survey. interactive Journal of Medical Research 2014;3(2):e9 View
  187. Laukka E, Rantakokko P, Suhonen M. Consumer-led health-related online sources and their impact on consumers: An integrative review of the literature. Health Informatics Journal 2019;25(2):247 View
  188. Du F, Plaisant C, Spring N, Shneiderman B. Visual Interfaces for Recommendation Systems. ACM Transactions on Intelligent Systems and Technology 2019;10(1):1 View
  189. Abuabara K, Margolis D. Databases for Clinical Research. Journal of Investigative Dermatology 2015;135(8):1 View
  190. McCarrier K, Bull S, Fleming S, Simacek K, Wicks P, Cella D, Pierson R. Concept Elicitation Within Patient-Powered Research Networks: A Feasibility Study in Chronic Lymphocytic Leukemia. Value in Health 2016;19(1):42 View
  191. LaValley S, Gage‐Bouchard E, Mollica M, Beaupin L. Examining social media use among parents of children with cancer. Proceedings of the Association for Information Science and Technology 2015;52(1):1 View
  192. Rowan W, O’Connor Y, Lynch L, Heavin C. Exploring User Behaviours when Providing Electronic Consent on Health Social Networks: A ‘Just Tick Agree’ Approach. Procedia Computer Science 2017;121:968 View
  193. McCaffrey S, Black R, Nagao M, Sepassi M, Sharma G, Thornton S, Kim Y, Braverman J. Measurement of Quality of Life in Patients with Mycosis Fungoides/Sézary Syndrome Cutaneous T-Cell Lymphoma: Development of an Electronic Instrument. Journal of Medical Internet Research 2019;21(1):e11302 View
  194. Nambisan P. Evaluating patient experience in online health communities. Health Care Management Review 2011;36(2):124 View
  195. Aarts J, Vennik F, Nelen W, van der Eijk M, Bloem B, Faber M, Kremer J. Personal health communities: a phenomenological study of a new health-care concept. Health Expectations 2015;18(6):2091 View
  196. Arges K, Assimes T, Bajaj V, Balu S, Bashir M, Beskow L, Blanco R, Califf R, Campbell P, Carin L, Christian V, Cousins S, Das M, Dockery M, Douglas P, Dunham A, Eckstrand J, Fleischmann D, Ford E, Fraulo E, French J, Gambhir S, Ginsburg G, Green R, Haddad F, Hernandez A, Hernandez J, Huang E, Jaffe G, King D, Koweek L, Langlotz C, Liao Y, Mahaffey K, Marcom K, Marks W, Maron D, McCabe R, McCall S, McCue R, Mega J, Miller D, Muhlbaier L, Munshi R, Newby L, Pak-Harvey E, Patrick-Lake B, Pencina M, Peterson E, Rodriguez F, Shore S, Shah S, Shipes S, Sledge G, Spielman S, Spitler R, Schaack T, Swamy G, Willemink M, Wong C. The Project Baseline Health Study: a step towards a broader mission to map human health. npj Digital Medicine 2020;3(1) View
  197. Wicks P. E-mental health: A medium reaches maturity. Journal of Mental Health 2012;21(4):332 View
  198. Yan L, Tan Y. Moment or Momentum? An Empirical Study on Userss Continuous Participation in Online Weight-Loss Communities. SSRN Electronic Journal 2018 View
  199. Karampela M, Ouhbi S, Isomursu M. Connected Health User Willingness to Share Personal Health Data: Questionnaire Study. Journal of Medical Internet Research 2019;21(11):e14537 View
  200. de la Loge C, Dimova S, Mueller K, Phillips G, Durgin T, Wicks P, Borghs S. PatientsLikeMe® Online Epilepsy Community: Patient characteristics and predictors of poor health-related quality of life. Epilepsy & Behavior 2016;63:20 View
  201. Chomutare T, Fernandez-Luque L, Årsand E, Hartvigsen G. Features of Mobile Diabetes Applications: Review of the Literature and Analysis of Current Applications Compared Against Evidence-Based Guidelines. Journal of Medical Internet Research 2011;13(3):e65 View
  202. Park A, Hartzler A, Huh J, McDonald D, Pratt W. Automatically Detecting Failures in Natural Language Processing Tools for Online Community Text. Journal of Medical Internet Research 2015;17(8):e212 View
  203. Wicks P, Rasouliyan L, Katic B, Nafees B, Flood E, Sasané R. The real-world patient experience of fingolimod and dimethyl fumarate for multiple sclerosis. BMC Research Notes 2016;9(1) View
  204. Disler R, Inglis S, Newton P, Currow D, Macdonald P, Glanville A, Donesky D, Carrieri-Kohlman V, Davidson P. Older Patients' Perspectives of Online Health Approaches in Chronic Obstructive Pulmonary Disease. Telemedicine and e-Health 2019;25(9):840 View
  205. Giustini D. Social Media and Clinical Trials Recruitment: Potential Benefits and Challenges. Journal of the Canadian Health Libraries Association / Journal de l'Association des bibliothèques de la santé du Canada 2014;33(3):140 View
  206. Hamed A, Wu X, Erickson R, Fandy T. Twitter K-H networks in action: Advancing biomedical literature for drug search. Journal of Biomedical Informatics 2015;56:157 View
  207. Eysenbach G. Infodemiology and Infoveillance. American Journal of Preventive Medicine 2011;40(5):S154 View
  208. Bagheri H, Lacroix I, Guitton E, Damase-Michel C, Montastruc J. Cyberpharmacovigilance : les réseaux sociaux sont-ils utiles en pharmacovigilance ?. Therapies 2016;71(2):229 View
  209. Ben-Sasson A, Ben-Sasson E, Jacobs K, Malinovitch R. The relationship between users’ technology approaches and experiences in a child development mobile application. Health and Technology 2020;10(5):1079 View
  210. Smailhodzic E, Hooijsma W, Boonstra A, Langley D. Social media use in healthcare: A systematic review of effects on patients and on their relationship with healthcare professionals. BMC Health Services Research 2016;16(1) View
  211. Chiauzzi E, Wicks P. Digital Trespass: Ethical and Terms-of-Use Violations by Researchers Accessing Data From an Online Patient Community. Journal of Medical Internet Research 2019;21(2):e11985 View
  212. van Eenbergen M, van de Poll-Franse L, Heine P, Mols F. The Impact of Participation in Online Cancer Communities on Patient Reported Outcomes: Systematic Review. JMIR Cancer 2017;3(2):e15 View
  213. Colón-Semenza C, Latham N, Quintiliani L, Ellis T. Peer Coaching Through mHealth Targeting Physical Activity in People With Parkinson Disease: Feasibility Study. JMIR mHealth and uHealth 2018;6(2):e42 View
  214. Ma X, Sayama H. Mental disorder recovery correlated with centralities and interactions on an online social network. PeerJ 2015;3:e1163 View
  215. Wright K. Social Networks, Interpersonal Social Support, and Health Outcomes: A Health Communication Perspective. Frontiers in Communication 2016;1 View
  216. Singh K, Meyer S, Westfall J. Consumer-Facing Data, Information, And Tools: Self-Management Of Health In The Digital Age. Health Affairs 2019;38(3):352 View
  217. Kariotis T, Ball M, Greshake Tzovaras B, Dennis S, Sahama T, Johnston C, Almond H, Borda A. Emerging health data platforms: From individual control to collective data governance. Data & Policy 2020;2 View
  218. Ye X, Ng I, Seid-Karbasi P, Imam T, Lee C, Chen S, Herman A, Sharma B, Johal G, Gu B, Wasserman W. Portal for Families Overcoming Neurodevelopmental Disorders (PFOND): Implementation of a Software Framework for Facilitated Community Website Creation by Nontechnical Volunteers. JMIR Research Protocols 2013;2(2):e25 View
  219. Brookes A, Robinson P. Human genotype–phenotype databases: aims, challenges and opportunities. Nature Reviews Genetics 2015;16(12):702 View
  220. Zhou J. Factors Influencing People’s Personal Information Disclosure Behaviors in Online Health Communities: A Pilot Study. Asia Pacific Journal of Public Health 2018;30(3):286 View
  221. van der Eijk M, Faber M, Aarts J, Kremer J, Munneke M, Bloem B. Using Online Health Communities to Deliver Patient-Centered Care to People With Chronic Conditions. Journal of Medical Internet Research 2013;15(6):e115 View
  222. Katsanis S, Katsanis N. Molecular genetic testing and the future of clinical genomics. Nature Reviews Genetics 2013;14(6):415 View
  223. Altuve M, Severeyn E. Joint analysis of fasting and postprandial plasma glucose and insulin concentrations in Venezuelan women. Diabetes & Metabolic Syndrome: Clinical Research & Reviews 2019;13(3):2242 View
  224. Crabb R, Rafie S, Weingardt K. Health-Related Internet Use in Older Primary Care Patients. Gerontology 2012;58(2):164 View
  225. Brusk J, Bensley R. A Comparison of Mobile and Fixed Device Access on User Engagement Associated With Women, Infants, and Children (WIC) Online Nutrition Education. JMIR Research Protocols 2016;5(4):e216 View
  226. Anwar M, Joshi J, Tan J. Anytime, anywhere access to secure, privacy-aware healthcare services: Issues, approaches and challenges. Health Policy and Technology 2015;4(4):299 View
  227. Hung M, Conrad J, Hon S, Cheng C, Franklin J, Tang P. Uncovering patterns of technology use in consumer health informatics. Wiley Interdisciplinary Reviews: Computational Statistics 2013;5(6):432 View
  228. Mazzoni D, Cicognani E. Sharing experiences and social support requests in an Internet forum for patients with systemic lupus erythematosus. Journal of Health Psychology 2014;19(5):689 View
  229. Kwecka Z, Buchanan W, Schafer B, Rauhofer J. “I am Spartacus”: privacy enhancing technologies, collaborative obfuscation and privacy as a public good. Artificial Intelligence and Law 2014;22(2):113 View
  230. Daneshvar H, Anderson S, Williams R, Mozaffar H. How Can Social Media Lead to Co-Production (Co-Delivery) of New Services for the Elderly Population? A Qualitative Study. JMIR Human Factors 2018;5(1):e5 View
  231. Frish Y, Greenbaum D. Is Social Media a Cesspool of Misinformation? Clearing a Path for Patient-Friendly Safe Spaces Online. The American Journal of Bioethics 2017;17(3):19 View
  232. Gibson S. The Role of the Internet in Expanding Consumer-Driven Adverse Drug Reaction Reporting. SSRN Electronic Journal 2012 View
  233. Yan L, Tan Y. The Consensus Effect in Online Health-Care Communities. Journal of Management Information Systems 2017;34(1):11 View
  234. Terry S, Terry P. Power to the People: Participant Ownership of Clinical Trial Data. Science Translational Medicine 2011;3(69):69cm3 View
  235. Nielsen A, Halamka J, Kinkel R. Internet portal use in an academic multiple sclerosis center. Journal of the American Medical Informatics Association 2012;19(1):128 View
  236. Amann J, Zanini C, Rubinelli S, van Rijnsoever F. What Online User Innovation Communities Can Teach Us about Capturing the Experiences of Patients Living with Chronic Health Conditions. A Scoping Review. PLOS ONE 2016;11(6):e0156175 View
  237. Graziani E, Petrini F. Online Communities. Benefits and Risks. International Journal of User-Driven Healthcare 2018;8(2):1 View
  238. Lau A, Dunn A, Mortimer N, Gallagher A, Proudfoot J, Andrews A, Liaw S, Crimmins J, Arguel A, Coiera E. Social and Self-Reflective Use of a Web-Based Personally Controlled Health Management System. Journal of Medical Internet Research 2013;15(9):e211 View
  239. Sharma P, Kaur P. Effectiveness of web-based social sensing in health information dissemination—A review. Telematics and Informatics 2017;34(1):194 View
  240. Greshake B, Bayer P, Rausch H, Reda J, Thornton-Wells T. openSNP–A Crowdsourced Web Resource for Personal Genomics. PLoS ONE 2014;9(3):e89204 View
  241. Hashemi M, Hall M. Multi-label classification and knowledge extraction from oncology-related content on online social networks. Artificial Intelligence Review 2020;53(8):5957 View
  242. Lavallee D, Wicks P, Alfonso Cristancho R, Mullins C. Stakeholder engagement in patient-centered outcomes research: high-touch or high-tech?. Expert Review of Pharmacoeconomics & Outcomes Research 2014;14(3):335 View
  243. Chou W, Prestin A, Lyons C, Wen K. Web 2.0 for Health Promotion: Reviewing the Current Evidence. American Journal of Public Health 2013;103(1):e9 View
  244. Nosakhare E, Picard R. Toward Assessing and Recommending Combinations of Behaviors for Improving Health and Well-Being. ACM Transactions on Computing for Healthcare 2020;1(1):1 View
  245. Rozenkranz N, Eckhardt A, Kühne M, Rosenkranz C. Health Information on the Internet. Business & Information Systems Engineering 2013;5(4):259 View
  246. Perrone M, Carmody D, Philipson L, Greeley S. An online monogenic diabetes discussion group: supporting families and fueling new research. Translational Research 2015;166(5):425 View
  247. Liuccio M. Le malattie rare: informazione e comunicazione nel patient journey. SOCIOLOGIA DELLA COMUNICAZIONE 2018;(55):30 View
  248. Laranjo L, Arguel A, Neves A, Gallagher A, Kaplan R, Mortimer N, Mendes G, Lau A. The influence of social networking sites on health behavior change: a systematic review and meta-analysis. Journal of the American Medical Informatics Association 2015;22(1):243 View
  249. Charles-Smith L, Reynolds T, Cameron M, Conway M, Lau E, Olsen J, Pavlin J, Shigematsu M, Streichert L, Suda K, Corley C, Braunstein L. Using Social Media for Actionable Disease Surveillance and Outbreak Management: A Systematic Literature Review. PLOS ONE 2015;10(10):e0139701 View
  250. Hamakawa N, Nakano R, Kogetsu A, Coathup V, Kaye J, Yamamoto B, Kato K. Landscape of Participant-Centric Initiatives for Medical Research in the United States, the United Kingdom, and Japan: Scoping Review. Journal of Medical Internet Research 2020;22(8):e16441 View
  251. Kazmer M, Lustria M, Cortese J, Burnett G, Kim J, Ma J, Frost J. Distributed knowledge in an online patient support community: Authority and discovery. Journal of the Association for Information Science and Technology 2014;65(7):1319 View
  252. Ricciardi L, Mostashari F, Murphy J, Daniel J, Siminerio E. A National Action Plan To Support Consumer Engagement Via E-Health. Health Affairs 2013;32(2):376 View
  253. Kern R, Haase R, Eisele J, Thomas K, Ziemssen T. Designing an Electronic Patient Management System for Multiple Sclerosis: Building a Next Generation Multiple Sclerosis Documentation System. interactive Journal of Medical Research 2016;5(1):e2 View
  254. Mairs K, McNeil H, McLeod J, Prorok J, Stolee P. Online strategies to facilitate health-related knowledge transfer: a systematic search and review. Health Information & Libraries Journal 2013;30(4):261 View
  255. Fleurence R, Beal A, Sheridan S, Johnson L, Selby J. Patient-Powered Research Networks Aim To Improve Patient Care And Health Research. Health Affairs 2014;33(7):1212 View
  256. O’Kane A, Park S, Mentis H, Blandford A, Chen Y. Turning to Peers: Integrating Understanding of the Self, the Condition, and Others’ Experiences in Making Sense of Complex Chronic Conditions. Computer Supported Cooperative Work (CSCW) 2016;25(6):477 View
  257. Zaidan B, Zaidan A, Mat Kiah M. Impact of Data Privacy and Confidentiality on Developing Telemedicine Applications: A Review Participates Opinion and Expert Concerns. International Journal of Pharmacology 2011;7(3):382 View
  258. Johnston F, Wheeler A, Williamson G, Campbell S, Jones P, Koolhof I, Lucani C, Cooling N, Bowman D. Using smartphone technology to reduce health impacts from atmospheric environmental hazards. Environmental Research Letters 2018;13(4):044019 View
  259. Tempini N. Till data do us part: Understanding data-based value creation in data-intensive infrastructures. Information and Organization 2017;27(4):191 View
  260. Wicks P, Mack Thorley E, Simacek K, Curran C, Emmas C. Scaling PatientsLikeMe via a “Generalized Platform” for Members with Chronic Illness: Web-Based Survey Study of Benefits Arising. Journal of Medical Internet Research 2018;20(5):e175 View
  261. Kim M, Zhu Y, Chen C. How are they different? A quantitative domain comparison of information visualization and data visualization (2000–2014). Scientometrics 2016;107(1):123 View
  262. Kotsilieris T, Pavlaki A, Christopoulou S, Anagnostopoulos I. The impact of social networks on health care. Social Network Analysis and Mining 2017;7(1) View
  263. Gardsten C, Mörtberg C, Blomqvist K. Designing an ICT self-management service: suggestions from persons with type 2 diabetes. Health and Technology 2017;7(2-3):197 View
  264. Zhou J, Liu F, Zhou T. Exploring the Factors Influencing Consumers to Voluntarily Reward Free Health Service Contributors in Online Health Communities: Empirical Study. Journal of Medical Internet Research 2020;22(4):e16526 View
  265. Honka A, Kaipainen K, Hietala H, Saranummi N. Rethinking Health: ICT-Enabled Services to Empower People to Manage Their Health. IEEE Reviews in Biomedical Engineering 2011;4:119 View
  266. Pagoto S, Waring M, May C, Ding E, Kunz W, Hayes R, Oleski J. Adapting Behavioral Interventions for Social Media Delivery. Journal of Medical Internet Research 2016;18(1):e24 View
  267. Mrosek R, Dehling T, Sunyaev A. Taxonomy of health IT and medication adherence. Health Policy and Technology 2015;4(3):215 View
  268. Seltzer E, Goldshear J, Guntuku S, Grande D, Asch D, Klinger E, Merchant R. Patients’ willingness to share digital health and non-health data for research: a cross-sectional study. BMC Medical Informatics and Decision Making 2019;19(1) View
  269. Angelmar R. Marketing Im Gesundheitssektor. SSRN Electronic Journal 2012 View
  270. Bernhard G, Mahler C, Seidling H, Stützle M, Ose D, Baudendistel I, Wensing M, Szecsenyi J. Developing a Shared Patient-Centered, Web-Based Medication Platform for Type 2 Diabetes Patients and Their Health Care Providers: Qualitative Study on User Requirements. Journal of Medical Internet Research 2018;20(3):e105 View
  271. Viswanath K, Nagler R, Bigman-Galimore C, McCauley M, Jung M, Ramanadhan S. The Communications Revolution and Health Inequalities in the 21st Century: Implications for Cancer Control. Cancer Epidemiology Biomarkers & Prevention 2012;21(10):1701 View
  272. Hunsaker A, Hargittai E, Micheli M. Relationship Between Internet Use and Change in Health Status: Panel Study of Young Adults. Journal of Medical Internet Research 2021;23(1):e22051 View
  273. Lai C, Deber R, Jadad A, Shachak A. Income-Generating Processes of Free Web-Based Digital Health Tools to Engage Patients: Qualitative Analysis. Journal of Medical Internet Research 2021;23(2):e23654 View
  274. White E, Read J, Julo S. The role of Facebook groups in the management and raising of awareness of antidepressant withdrawal: is social media filling the void left by health services?. Therapeutic Advances in Psychopharmacology 2021;11:204512532098117 View
  275. Wang X, High A, Wang X, Zhao K. Predicting users' continued engagement in online health communities from the quantity and quality of received support. Journal of the Association for Information Science and Technology 2021;72(6):710 View
  276. Puspitasari I, Fauzi S, Ho C. Factors Driving Users’ Engagement in Patient Social Network Systems. Informatics 2021;8(1):8 View
  277. Bussone A, Kasadha B, Stumpf S, Durrant A, Tariq S, Gibbs J, Lloyd K, Bird J. Trust, Identity, Privacy, and Security Considerations for Designing a Peer Data Sharing Platform Between People Living With HIV. Proceedings of the ACM on Human-Computer Interaction 2020;4(CSCW2):1 View
  278. Liang O, Chen Y, Bennett D, Yang C. Identifying Self-Management Support Needs for Pregnant Women With Opioid Misuse in Online Health Communities: Mixed Methods Analysis of Web Posts. Journal of Medical Internet Research 2021;23(2):e18296 View
  279. Schifferdecker K, Butcher R, Knight E, Creek E, Schrandt M, Marrow L, Jaffe M, Vinci A, Eakin G. Stakeholder Development of an Online Program to Track Arthritis‐Related Patient‐Reported Outcomes Longitudinally: Live Yes! INSIGHTS. ACR Open Rheumatology 2020;2(12):750 View
  280. Khan M, Saleh M, Quazi A. Social Media Adoption by Health Professionals: A TAM-Based Study. Informatics 2021;8(1):6 View
  281. Kazmierska J, Hope A, Spezi E, Beddar S, Nailon W, Osong B, Ankolekar A, Choudhury A, Dekker A, Redalen K, Traverso A. From multisource data to clinical decision aids in radiation oncology: The need for a clinical data science community. Radiotherapy and Oncology 2020;153:43 View
  282. Alasmari A, Zhou L. Share to Seek: The Effects of Disease Complexity on Health Information–Seeking Behavior. Journal of Medical Internet Research 2021;23(3):e21642 View
  283. Froeling F, Gignac F, Hoek G, Vermeulen R, Nieuwenhuijsen M, Ficorilli A, De Marchi B, Biggeri A, Kocman D, Robinson J, Grazuleviciene R, Andrusaityte S, Righi V, Basagaña X. Narrative review of citizen science in environmental epidemiology: Setting the stage for co-created research projects in environmental epidemiology. Environment International 2021;152:106470 View
  284. Fischer H, Cho H, Storksdieck M. Going Beyond Hooked Participants: The Nibble-and-Drop Framework for Classifying Citizen Science Participation. Citizen Science: Theory and Practice 2021;6(1) View
  285. Vigilant L, Heitkamp A, Heitkamp A. “If it Does Turn out to be Herpes, Try not to Stress Too Much”: The Contours of Emotional Support and Peer Diagnosis in an Online Sexual Health Community*. Sociological Inquiry 2021 View
  286. Min A, Miller W, Rocha L, Börner K, Brattig Correia R, Shih P. Just In Time. Proceedings of the ACM on Human-Computer Interaction 2021;5(CSCW1):1 View
  287. Stausberg J, Harkener S, Semler S. Recent Trends in Patient Registries for Health Services Research. Methods of Information in Medicine 2021;60(S 01):e1 View
  288. Deserno T, Dugas M, Löbe M, Stausberg J. A Topical Collection on ICT for Health Science Research – EFMI Special Topic Conference. Journal of Medical Systems 2021;45(7) View
  289. Occhiogrosso R, Ren S, Tayob N, Li T, Gagnon H, Paz A, Freedman R. Feasibility of an Online Patient Community to Support Older Women With Newly Diagnosed Breast Cancer. Clinical Breast Cancer 2021 View
  290. Miller E, Woodward A, Flinchum G, Young J, Tabor H, Halley M. Opportunities and pitfalls of social media research in rare genetic diseases: a systematic review. Genetics in Medicine 2021 View

Books/Policy Documents

  1. Guy I. Social Information Access. View
  2. Varatharajan A, C. S, Varatharajan V. Big Data Analytics for Sustainable Computing. View
  3. Johnson J, Andrews J. Clinical Research Informatics. View
  4. Graham A, Cobb C, Cobb N. Handbook of Health Decision Science. View
  5. . M-Health: Fundamentals and Applications. View
  6. Sánchez-Figueroa F, Preciado J, Conejero J, Rodríguez-Echeverría R. Cooperative Design, Visualization, and Engineering. View
  7. Adams S. Under Observation: The Interplay Between eHealth and Surveillance. View
  8. Andrews J, David Johnson J, Eldredge C. Clinical Research Informatics. View
  9. Wicks P. Blinding as a Solution to Bias. View
  10. Ivanov A, Mileva E. Cooperative Design, Visualization, and Engineering. View
  11. Chen J, Lin Y, Shen B. Translational Informatics in Smart Healthcare. View
  12. Denecke K. Social Media and Mobile Technologies for Healthcare. View
  13. Bertsima M, Varlamis I, Rizomiliotis P. Medical Data Privacy Handbook. View
  14. Bacigalupe G, Cantrell K, Chickerella R. Children and Young People Living with HIV/AIDS. View
  15. Villafranca P. Communicating Rare Diseases and Disorders in the Digital Age. View
  16. Li N, Hopfgartner F. Lifelogging. View
  17. Denecke K. Health Web Science. View
  18. Fischer S, Soyez K. Challenges and Opportunities in Health Care Management. View
  19. Kaminski J. Boundaryless Hospital. View
  20. Rodrigues C. Communicating Rare Diseases and Disorders in the Digital Age. View
  21. Pousti H, Urquhart C, Linger H. Information Systems and Global Assemblages. (Re)Configuring Actors, Artefacts, Organizations. View
  22. Stephens M, Petrie K. International Encyclopedia of the Social & Behavioral Sciences. View
  23. Laranjo L. Participatory Health Through Social Media. View
  24. Hooker D, Shen N, Ho K. Technology Enabled Knowledge Translation for eHealth. View
  25. Katsanis S, Katsanis N. Genomic and Precision Medicine. View
  26. Schapranow M, Perscheid C, Wachsmann A, Siegert M, Bock C, Horschig F, Liedke F, Brauer J, Plattner H. Real-Time Business Intelligence and Analytics. View
  27. Sokolova M, Matwin S. Challenges in Computational Statistics and Data Mining. View
  28. Angelmar R. Scientific Marketing in der Medizin. View
  29. Bai J, Shen L, Sun H, Shen B. Healthcare and Big Data Management. View
  30. Devine B. Comparative Effectiveness Research in Health Services. View
  31. Hesse B. Principles and Concepts of Behavioral Medicine. View
  32. Fatima T, Jyothi S. Emerging Research in Data Engineering Systems and Computer Communications. View
  33. Rizvi S, Wang G, Chen J. Security, Privacy, and Anonymity in Computation, Communication, and Storage. View
  34. Al-Surimi K, Khalifa M, Bahkali S, EL-Metwally A, Househ M. Emerging and Re-emerging Viral Infections. View
  35. Devine B. Comparative Effectiveness Research in Health Services. View
  36. . From Science 2.0 to Pharma 3.0. View
  37. Storni C. Empowering Users through Design. View
  38. Wicks P, Little M. Handbook of Human Computation. View
  39. Denecke K. Social Media and Networking. View
  40. Col N, Correa-de-Araujo R. Clinical Decision Support. View
  41. Bates D, Cresswell K, Wright A, Sheikh A. Key Advances in Clinical Informatics. View
  42. Nambisan P. Encyclopedia of Gerontology and Population Aging. View
  43. Aboelmaged M, Thomas S, Elsheikh S. Handbook of Research on Healthcare Administration and Management. View
  44. Zhao C, Zhao S, Zhang B, Jing S, Chen Z, Zhao M. Cyberspace Safety and Security. View
  45. Johnson L, Quintero E. Personalized Oral Health Care. View
  46. Kaufman D, Mirkovic J, Chan C. Cognitive Informatics in Health and Biomedicine. View
  47. Agarwal S, Alhuwail D, John O. Handbook of Global Health. View
  48. Attanasio B, Di Stefano A, La Corte A, Scatá M. Data Science and Internet of Things. View
  49. Ceccaroni L, Woods S, Sprinks J, Wilson S, Faustman E, Bonn A, Greshake Tzovaras B, Subirats L, Kimura A. The Science of Citizen Science. View
  50. . The Digital Pill: What Everyone Should Know about the Future of Our Healthcare System. View
  51. Agarwal S, Alhuwail D, John O. Handbook of Global Health. View
  52. Mukherjee S, Kumar J, Jha A, Pandey J. E-Collaboration Technologies and Strategies for Competitive Advantage Amid Challenging Times. View
  53. Kumar D, Mandal N, Kumar Y. Machine Learning, Big Data, and IoT for Medical Informatics. View
  54. Rodrigues C. Research Anthology on Public Health Services, Policies, and Education. View