Self-Reported Differences in Empowerment Between Lurkers and Posters in Online Patient Support Groups

Self-Reported Differences in Empowerment Between Lurkers and Posters in Online Patient Support Groups

Self-Reported Differences in Empowerment Between Lurkers and Posters in Online Patient Support Groups

Journals

  1. Atanasova S, Kamin T, Petrič G. Exploring the benefits and challenges of health professionals’ participation in online health communities: Emergence of (dis)empowerment processes and outcomes. International Journal of Medical Informatics 2017;98:13 View
  2. Henderson E, Rosser B, Keogh E, Eccleston C. Internet Sites Offering Adolescents Help With Headache, Abdominal Pain, and Dysmenorrhoea: A Description of Content, Quality, and Peer Interactions. Journal of Pediatric Psychology 2012;37(3):262 View
  3. Grant M, Wiegand D. Palliative Care Online: A Pilot Study on a Pancreatic Cancer Website. Journal of Palliative Medicine 2011;14(7):846 View
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  5. Betsch C, Renkewitz F, Haase N. Effect of Narrative Reports about Vaccine Adverse Events and Bias-Awareness Disclaimers on Vaccine Decisions. Medical Decision Making 2013;33(1):14 View
  6. Phua J. Quitting smoking using health issue-specific Social Networking Sites (SNSs): What influences participation, social identification, and smoking cessation self-efficacy?. Journal of Smoking Cessation 2014;9(1):39 View
  7. Selby P, van Mierlo T, Voci S, Parent D, Cunningham J. Online Social and Professional Support for Smokers Trying to Quit: An Exploration of First Time Posts From 2562 Members. Journal of Medical Internet Research 2010;12(3):e34 View
  8. Friedman E, Trail T, Vaughan C, Tanielian T. Online peer support groups for family caregivers: are they reaching the caregivers with the greatest needs?. Journal of the American Medical Informatics Association 2018;25(9):1130 View
  9. Huber J, Ihrig A, Peters T, Huber C, Kessler A, Hadaschik B, Pahernik S, Hohenfellner M. Decision-making in localized prostate cancer: lessons learned from an online support group. BJU International 2011;107(10):1570 View
  10. Sillence E, Bussey L. Changing hospitals, choosing chemotherapy and deciding you’ve made the right choice: Understanding the role of online support groups in different health decision-making activities. Patient Education and Counseling 2017;100(5):994 View
  11. Kim S, Marsch L, Brunette M, Dallery J. Harnessing Facebook for Smoking Reduction and Cessation Interventions: Facebook User Engagement and Social Support Predict Smoking Reduction. Journal of Medical Internet Research 2017;19(5):e168 View
  12. Han J, Kim J, Yoon H, Shim M, McTavish F, Gustafson D. Social and Psychological Determinants of Levels of Engagement With an Online Breast Cancer Support Group: Posters, Lurkers, and Nonusers. Journal of Health Communication 2012;17(3):356 View
  13. Herens M, Wagemakers A, Vaandrager L, Koelen M. Exploring participant appreciation of group-based principles for action in community-based physical activity programs for socially vulnerable groups in the Netherlands. BMC Public Health 2015;15(1) View
  14. Benetoli A, Chen T, Aslani P. How patients’ use of social media impacts their interactions with healthcare professionals. Patient Education and Counseling 2018;101(3):439 View
  15. Liu N, Tong Y, Chan H. Dual effects of social support seeking in patient-centric online healthcare communities: A longitudinal study. Information & Management 2020;57(8):103270 View
  16. Ahola Kohut S, LeBlanc C, O'Leary K, McPherson A, McCarthy E, Nguyen C, Stinson J. The internet as a source of support for youth with chronic conditions: A qualitative study. Child: Care, Health and Development 2018;44(2):212 View
  17. McRoy S, Rastegar-Mojarad M, Wang Y, Ruddy K, Haddad T, Liu H. Assessing Unmet Information Needs of Breast Cancer Survivors: Exploratory Study of Online Health Forums Using Text Classification and Retrieval. JMIR Cancer 2018;4(1):e10 View
  18. Lawlor A, Kirakowski J. Online support groups for mental health: A space for challenging self-stigma or a means of social avoidance?. Computers in Human Behavior 2014;32:152 View
  19. Ahmed O, Schneiders A, McCrory P, Sullivan S. Sport Concussion Management Using Facebook: A Feasibility Study of an Innovative Adjunct “iCon”. Journal of Athletic Training 2017;52(4):339 View
  20. Gabbert T, Metze B, Bührer C, Garten L. Use of social networking sites by parents of very low birth weight infants: experiences and the potential of a dedicated site. European Journal of Pediatrics 2013;172(12):1671 View
  21. Zhang Y. Understanding the sustained use of online health communities from a self-determination perspective. Journal of the Association for Information Science and Technology 2016;67(12):2842 View
  22. Petrič G, Atanasova S, Kamin T. Ill Literates or Illiterates? Investigating the eHealth Literacy of Users of Online Health Communities. Journal of Medical Internet Research 2017;19(10):e331 View
  23. Chen A. Information use and illness representations: Understanding their connection in illness coping. Journal of the Association for Information Science and Technology 2015;66(2):340 View
  24. Mo P, Coulson N. Empowering processes in online support groups among people living with HIV/AIDS: A comparative analysis of ‘lurkers’ and ‘posters’. Computers in Human Behavior 2010;26(5):1183 View
  25. Fawcett H, Shrestha L. Blogging about sexual assault: a thematic analysis. Journal of Forensic Practice 2016;18(1):39 View
  26. KLEMM P. Effects of Online Support Group Format (Moderated vs Peer-Led) on Depressive Symptoms and Extent of Participation in Women With Breast Cancer. CIN: Computers, Informatics, Nursing 2012;30(1):9 View
  27. Attai D, Cowher M, Al-Hamadani M, Schoger J, Staley A, Landercasper J. Twitter Social Media is an Effective Tool for Breast Cancer Patient Education and Support: Patient-Reported Outcomes by Survey. Journal of Medical Internet Research 2015;17(7):e188 View
  28. Li Z. Psychological empowerment on social media: Who are the empowered users?. Public Relations Review 2016;42(1):49 View
  29. Das A, Faxvaag A. What Influences Patient Participation in an Online Forum for Weight Loss Surgery? A Qualitative Case Study. interactive Journal of Medical Research 2014;3(1):e4 View
  30. Martin S, Roderick M, Lockridge R, Toledo-Tamula M, Baldwin A, Knight P, Wolters P. Feasibility and Preliminary Efficacy of an Internet Support Group for Parents of a Child with Neurofibromatosis Type 1: a Pilot Study. Journal of Genetic Counseling 2017;26(3):576 View
  31. Havakhor T, Soror A, Sabherwal R. Diffusion of knowledge in social media networks: effects of reputation mechanisms and distribution of knowledge roles. Information Systems Journal 2018;28(1):104 View
  32. Henderson E, Law E, Palermo T, Eccleston C. Case Study: Ethical Guidance for Pediatric e-health Research Using Examples From Pain Research With Adolescents. Journal of Pediatric Psychology 2012;37(10):1116 View
  33. Grosberg D, Grinvald H, Reuveni H, Magnezi R. Frequent Surfing on Social Health Networks is Associated With Increased Knowledge and Patient Health Activation. Journal of Medical Internet Research 2016;18(8):e212 View
  34. Perkins V, Coulson N, Davies E. Using Online Support Communities for Tourette Syndrome and Tic Disorders: Online Survey of Users’ Experiences. Journal of Medical Internet Research 2020;22(11):e18099 View
  35. Sormunen T, Karlgren K, Aanesen A, Fossum B, Westerbotn M. The role of social media for persons affected by infertility. BMC Women's Health 2020;20(1) View
  36. Reifegerste D, Wasgien K, Hagen L. Online social support for obese adults: Exploring the role of forum activity. International Journal of Medical Informatics 2017;101:1 View
  37. Flynn M, Stana A. Social Support in a Men's Online Eating Disorder Forum. International Journal of Men's Health 2012;11(2):150 View
  38. Audrain-Pontevia A, Menvielle L, Ertz M. Effects of Three Antecedents of Patient Compliance for Users of Peer-to-Peer Online Health Communities: Cross-Sectional Study. Journal of Medical Internet Research 2019;21(11):e14006 View
  39. Gliddon E, Lauder S, Berk L, Cosgrove V, Grimm D, Dodd S, Suppes T, Berk M. Evaluating discussion board engagement in the MoodSwings online self-help program for bipolar disorder: protocol for an observational prospective cohort study. BMC Psychiatry 2015;15(1) View
  40. Yoo W, Chih M, Kwon M, Yang J, Cho E, McLaughlin B, Namkoong K, Shah D, Gustafson D. Predictors of the change in the expression of emotional support within an online breast cancer support group: A longitudinal study. Patient Education and Counseling 2013;90(1):88 View
  41. Aardoom J, Dingemans A, Boogaard L, Van Furth E. Internet and patient empowerment in individuals with symptoms of an eating disorder: A cross-sectional investigation of a pro-recovery focused e-community. Eating Behaviors 2014;15(3):350 View
  42. Herens M, Wagemakers A. Assessing participants’ perceptions on group-based principles for action in community-based health enhancing physical activity programmes: The APEF tool. Evaluation and Program Planning 2017;65:54 View
  43. Henderson E, Eccleston C. An online adolescent message board discussion about the internet. Journal of Child Health Care 2015;19(3):412 View
  44. Kimmerle J, Bientzle M, Cress U. Personal Experiences and Emotionality in Health-Related Knowledge Exchange in Internet Forums: A Randomized Controlled Field Experiment Comparing Responses to Facts Vs Personal Experiences. Journal of Medical Internet Research 2014;16(12):e277 View
  45. Brady E, Segar J, Sanders C. Accessing support and empowerment online: The experiences of individuals with diabetes. Health Expectations 2017;20(5):1088 View
  46. Grainger R, White B, Morton C, Day K. A Health Professional–Led Synchronous Discussion on Facebook: Descriptive Analysis of Users and Activities. JMIR Formative Research 2017;1(1):e6 View
  47. McGregor F, Somner J, Bourne R, Munn-Giddings C, Shah P, Cross V. Social media use by patients with glaucoma: what can we learn?. Ophthalmic and Physiological Optics 2014;34(1):46 View
  48. Ip E, Barnett M, Tenerowicz M, Perry P. The Touro 12-Step: A Systematic Guide to Optimizing Survey Research with Online Discussion Boards. Journal of Medical Internet Research 2010;12(2):e16 View
  49. Kim H, Faw M, Michaelides A. Mobile But Connected: Harnessing the Power of Self-Efficacy and Group Support for Weight Loss Success through mHealth Intervention. Journal of Health Communication 2017;22(5):395 View
  50. Park D, Goering E. The Health-Related Uses and Gratifications of YouTube: Motive, Cognitive Involvement, Online Activity, and Sense of Empowerment. Journal of Consumer Health on the Internet 2016;20(1-2):52 View
  51. Syn S, Kim S. College Students’ Health Information Activities on Facebook: Investigating the Impacts of Health Topic Sensitivity, Information Sources, and Demographics. Journal of Health Communication 2016;21(7):743 View
  52. Sillence E, Hardy C, Briggs P, Harris P. How do people with asthma use Internet sites containing patient experiences?. Patient Education and Counseling 2013;93(3):439 View
  53. Benetoli A, Chen T, Aslani P. Consumer Health-Related Activities on Social Media: Exploratory Study. Journal of Medical Internet Research 2017;19(10):e352 View
  54. Zhang S, Bantum E, Owen J, Bakken S, Elhadad N. Online cancer communities as informatics intervention for social support: conceptualization, characterization, and impact. Journal of the American Medical Informatics Association 2017;24(2):451 View
  55. Mattsson S, Olsson E, Alfonsson S, Johansson B, Carlsson M. Measuring Use of Health-Related Support on the Internet: Development of the Health Online Support Questionnaire (HOSQ). Journal of Medical Internet Research 2015;17(11):e266 View
  56. Setoyama Y, Yamazaki Y, Namayama K. Benefits of Peer Support in Online Japanese Breast Cancer Communities: Differences Between Lurkers and Posters. Journal of Medical Internet Research 2011;13(4):e122 View
  57. Steadman J, Pretorius C. The impact of an online Facebook support group for people with multiple sclerosis on non-active users. African Journal of Disability 2014;3(1) View
  58. Banbury A, Nancarrow S, Dart J, Gray L, Parkinson L. Telehealth Interventions Delivering Home-based Support Group Videoconferencing: Systematic Review. Journal of Medical Internet Research 2018;20(2):e25 View
  59. Chuang K, Yang C. Interaction Patterns of Nurturant Support Exchanged in Online Health Social Networking. Journal of Medical Internet Research 2012;14(3):e54 View
  60. Robinson A, Husband A, Slight R, Slight S. Digital Support for Patients Undergoing Bariatric Surgery: Narrative Review of the Roles and Challenges of Online Forums. JMIR Perioperative Medicine 2020;3(2):e17230 View
  61. Santana S, Lausen B, Bujnowska-Fedak M, Chronaki C, Prokosch H, Wynn R. Informed citizen and empowered citizen in health: results from an European survey. BMC Family Practice 2011;12(1) View
  62. Fullwood C, Chadwick D, Keep M, Attrill-Smith A, Asbury T, Kirwan G. Lurking towards empowerment: Explaining propensity to engage with online health support groups and its association with positive outcomes. Computers in Human Behavior 2019;90:131 View
  63. Ahn J, Kahlor L. No Regrets When It Comes to Your Health: Anticipated Regret, Subjective Norms, Information Insufficiency and Intent to Seek Health Information from Multiple Sources. Health Communication 2020;35(10):1295 View
  64. Kinnane N, Milne D. The role of the Internet in supporting and informing carers of people with cancer: a literature review. Supportive Care in Cancer 2010;18(9):1123 View
  65. Edelmann N. Reviewing the Definitions of “Lurkers” and Some Implications for Online Research. Cyberpsychology, Behavior, and Social Networking 2013;16(9):645 View
  66. Huber J, Peters T, Kessler A, Ihrig A, Huber C, Hadaschik B, Pahernik S, Hohenfellner M. Selbsthilfe im Onlineforum bei lokal begrenztem Prostatakarzinom. Der Urologe 2010;49(11):1377 View
  67. Geller P. The role of emerging technology in women’s response to pregnancy loss. Expert Review of Obstetrics & Gynecology 2012;7(1):19 View
  68. Marcus D, Bhowmick A. Migraine Frequency But Not Self-Efficacy Drives Utilization and Impact From Online Resources. Headache: The Journal of Head and Face Pain 2013;53(3):551 View
  69. Griffiths C, Panteli N, Brunton D, Marder B, Williamson H. Designing and evaluating the acceptability of Realshare: An online support community for teenagers and young adults with cancer. Journal of Health Psychology 2015;20(12):1589 View
  70. Nenoff H, Ernst J, Köhler N, Götze H. Erstellung eines Bewertungssystems für virtuelle Selbsthilfegruppen am Beispiel deutschsprachiger Krebsforen. Zeitschrift für Psychosomatische Medizin und Psychotherapie 2019;65(3):272 View
  71. Bartlett Y, Coulson N. An investigation into the empowerment effects of using online support groups and how this affects health professional/patient communication. Patient Education and Counseling 2011;83(1):113 View
  72. Frost J, Vermeulen I, Beekers N. Anonymity Versus Privacy: Selective Information Sharing in Online Cancer Communities. Journal of Medical Internet Research 2014;16(5):e126 View
  73. Ahmed O, Sullivan S, Schneiders A, Mccrory P. iSupport: do social networking sites have a role to play in concussion awareness?. Disability and Rehabilitation 2010;32(22):1877 View
  74. Peng W, Occa A, McFarlane S, Morgan S. A Content Analysis of the Discussions about Clinical Trials on A Cancer-dedicated Online Forum. Journal of Health Communication 2019;24(12):912 View
  75. Versey H. Centering Perspectives on Black Women, Hair Politics, and Physical Activity. American Journal of Public Health 2014;104(5):810 View
  76. Bauermeister J, Golinkoff J, Muessig K, Horvath K, Hightow-Weidman L. Addressing engagement in technology-based behavioural HIV interventions through paradata metrics. Current Opinion in HIV and AIDS 2017;12(5):442 View
  77. Verberne S, Batenburg A, Sanders R, van Eenbergen M, Das E, Lambooij M. Analyzing Empowerment Processes Among Cancer Patients in an Online Community: A Text Mining Approach. JMIR Cancer 2019;5(1):e9887 View
  78. Washington K, Oliver D, Benson J, Rolbiecki A, Jorgensen L, Cruz-Oliver D, Demiris G. Factors influencing engagement in an online support group for family caregivers of individuals with advanced cancer. Journal of Psychosocial Oncology 2020;38(3):235 View
  79. Lippka Y, Patschan O, Todenhöfer T, Schwentner C, Gutzeit A, Merseburger A, Horstmann M. Bladder cancer discussed in the internet: a systematic analysis of gender differences of initial posters on an online discussion board. SpringerPlus 2013;2(1):445 View
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  81. Holbrey S, Coulson N. A qualitative investigation of the impact of peer to peer online support for women living with Polycystic Ovary Syndrome. BMC Women's Health 2013;13(1) View
  82. Smailhodzic E, Hooijsma W, Boonstra A, Langley D. Social media use in healthcare: A systematic review of effects on patients and on their relationship with healthcare professionals. BMC Health Services Research 2016;16(1) View
  83. Walker K. Cognitive and Affective Uses of a Thoracic Outlet Syndrome Facebook Support Group. Health Communication 2014;29(8):773 View
  84. Noiles K, Thomas R. Social Networking and the Psoriasis Patient. Psoriasis Forum 2010;16a(2):43 View
  85. Brady E, Segar J, Sanders C. “You get to know the people and whether they’re talking sense or not”: Negotiating trust on health-related forums. Social Science & Medicine 2016;162:151 View
  86. Hammersley M, Okely A, Batterham M, Jones R. Can Parental Engagement in Social Media Enhance Outcomes of an Online Healthy Lifestyle Program for Preschool-Aged Children?. Health Communication 2020;35(9):1162 View
  87. Kramer J, Boon B, Schotanus-Dijkstra M, van Ballegooijen W, Kerkhof A, van der Poel A. The Mental Health of Visitors of Web-Based Support Forums for Bereaved by Suicide. Crisis 2015;36(1):38 View
  88. Plinsinga M, Besomi M, Maclachlan L, Melo L, Robbins S, Lawford B, Teo P, Mills K, Setchell J, Egerton T, Eyles J, Hall L, Mellor R, Hunter D, Hodges P, Vicenzino B, Bennell K. Exploring the Characteristics and Preferences for Online Support Groups: Mixed Method Study. Journal of Medical Internet Research 2019;21(12):e15987 View
  89. Köhle N, Drossaert C, Oosterik S, Schreurs K, Hagedoorn M, van Uden-Kraan C, Verdonck-de Leeuw I, Bohlmeijer E. Needs and Preferences of Partners of Cancer Patients Regarding a Web-Based Psychological Intervention: A Qualitative Study. JMIR Cancer 2015;1(2):e13 View
  90. Kauw D, Repping-Wuts H, Noordzij A, Stikkelbroeck N, Hermus A, Faber M. The Contribution of Online Peer-to-Peer Communication Among Patients With Adrenal Disease to Patient-Centered Care. Journal of Medical Internet Research 2015;17(3):e54 View
  91. Amichai-Hamburger Y, Gazit T, Bar-Ilan J, Perez O, Aharony N, Bronstein J, Sarah Dyne T. Psychological factors behind the lack of participation in online discussions. Computers in Human Behavior 2016;55:268 View
  92. Bender J, Jimenez-Marroquin M, Jadad A. Seeking Support on Facebook: A Content Analysis of Breast Cancer Groups. Journal of Medical Internet Research 2011;13(1):e16 View
  93. Batenburg A, Das E. Virtual Support Communities and Psychological Well-Being: The Role of Optimistic and Pessimistic Social Comparison Strategies. Journal of Computer-Mediated Communication 2015;20(6):585 View
  94. Stana A, Miller A. “Being a mom = having all the feels”: social support in a postpartum depression online support group. Atlantic Journal of Communication 2019;27(5):297 View
  95. Nisar S, Shafiq M. Framework for efficient utilisation of social media in Pakistan's healthcare sector. Technology in Society 2019;56:31 View
  96. Maaria Askola K, Känsäkoski H, Huotari M. Knowing and actional information in web based weight maintenance services. Journal of Documentation 2014;70(5):759 View
  97. Petrovčič A, Petrič G. Differences in intrapersonal and interactional empowerment between lurkers and posters in health-related online support communities. Computers in Human Behavior 2014;34:39 View
  98. Matzat U, Rooks G. Styles of moderation in online health and support communities: An experimental comparison of their acceptance and effectiveness. Computers in Human Behavior 2014;36:65 View
  99. Carron-Arthur B, Ali K, Cunningham J, Griffiths K. From Help-Seekers to Influential Users: A Systematic Review of Participation Styles in Online Health Communities. Journal of Medical Internet Research 2015;17(12):e271 View
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  103. Sillence E, Hardy C, Briggs P, Harris P. How do carers of people with multiple sclerosis engage with websites containing the personal experiences of other carers and patients?. Health Informatics Journal 2016;22(4):1045 View
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  110. Verma S, Goshtasbi K, Berry L, Anderson C, Francis D, Gelbard A. Utilization and Influence of Online Support Communities in Idiopathic Subglottic Stenosis Patients. The Laryngoscope 2021;131(8):1821 View
  111. Kosugi K, Nishiguchi Y, Miura T, Fujisawa D, Kawaguchi T, Izumi K, Takehana J, Uehara Y, Usui Y, Terada T, Inoue Y, Natsume M, Yajima M, Watanabe Y, Okizaki A, Matsushima E, Matsumoto Y. Association Between Loneliness and the Frequency of Using Online Peer Support Groups Among Cancer Patients With Minor Children: A Cross-Sectional Web-Based Study. Journal of Pain and Symptom Management 2021;61(5):955 View
  112. Mi R, Kornfield R, Shah D, Maus A, Gustafson D. Intraindividual, Dyadic, and Network Communication in a Digital Health Intervention: Distinguishing Message Exposure from Message Production. Health Communication 2020:1 View
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  114. Mariën S, Vandebosch H, Pabian S, Poels K. Coping with distress among adolescents: Effectiveness of personal narratives on support websites. Comunicar 2021;29(67):87 View
  115. Chang C. Cross-Country Comparison of Effects of Early Government Communication on Personal Empowerment during the COVID-19 Pandemic in Taiwan and the United States. Health Communication 2020:1 View
  116. Sun K, Zhou J. Understanding the impacts of Internet use on senior Citizens’ social participation in China: Evidence from longitudinal panel data. Telematics and Informatics 2021;59:101566 View
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  120. Badreddine B, Blount Y. Understanding influential factors behind lurking behaviour in online cancer communities. Behaviour & Information Technology 2021;40(6):542 View
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