Participatory Medicine & E-Patients

Articles published in 2023 in this theme: 110 (scroll down to load remaining articles)

2023

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Users’ Experiences With Online Access to Electronic Health Records in Mental and Somatic Health Care: Cross-Sectional Study

Bo Wang, Eli Kristiansen, Asbjørn Johansen Fagerlund, Paolo Zanaboni, Maria Hägglund, Annika Bärkås, Sari Kujala, Åsa Cajander, Charlotte Blease, Anna Kharko, Isto Huvila, Bridget Kane, Monika Alise Johansen

J Med Internet Res 2023 (Dec 25); 25:e47840

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Supportive Digital Health Service During Cancer Chemotherapy: Single-Arm Before-and-After Feasibility Study

Nanna Fridriksdottir, Brynja Ingadottir, Kristin Skuladottir, Sigridur Zoëga, Sigridur Gunnarsdottir

JMIR Form Res 2023 (Dec 22); 7:e50550

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Patient Portal Use Among Family Caregivers of Individuals With Dementia and Cancer: Regression Analysis From the National Study of Caregiving

Reed W R Bratches, Jaclyn A Wall, Frank Puga, Giovanna Pilonieta, Rita Jablonski, Marie Bakitas, David S Geldmacher, J Nicholas Odom

JMIR Aging 2023 (Dec 20); 6:e44166

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Patient Portal Use and Risk of Readmissions in Decompensated Cirrhosis: Retrospective Study

Jeremy Louissaint, Jeffrey Gibbs, Abhishek Shenoy, Shirley Cohen-Mekelburg, Anna Lok, Elliot Tapper

JMIR Form Res 2023 (Dec 19); 7:e47080

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Narrowing the Patient–Physician Gap Based on Self-Reporting and Monthly Hepatologist Feedback for Patients With Alcohol-Related Liver Disease: Interventional Pilot Study Using a Journaling Smartphone App

Noriyo Yamashiki, Kyoko Kawabata, Miki Murata, Shunichiro Ikeda, Takako Fujimaki, Kanehiko Suwa, Toshihito Seki, Eiji Aramaki, Makoto Naganuma

JMIR Form Res 2023 (Dec 19); 7:e44762

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Stakeholders’ Perspectives, Needs, and Barriers to Self-Management for People With Physical Disabilities Experiencing Chronic Conditions: Focus Group Study

Eric Evans, Ayse Zengul, Amy Knight, Amanda Willig, Andrea Cherrington, Tapan Mehta, Mohanraj Thirumalai

JMIR Rehabil Assist Technol 2023 (Dec 18); 10:e43309

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Usability and Perception of a Wearable-Integrated Digital Maternity Record App in Germany: User Study

Michael Nissen, Carlos A Perez, Katharina M Jaeger, Hannah Bleher, Madeleine Flaucher, Hanna Huebner, Nina Danzberger, Adriana Titzmann, Constanza A Pontones, Peter A Fasching, Matthias W Beckmann, Bjoern M Eskofier, Heike Leutheuser

JMIR Pediatr Parent 2023 (Dec 15); 6:e50765

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Thoughts and Experiences of Behçet Disease From Participants on a Reddit Subforum: Qualitative Online Community Analysis

Jenny Xiaoyu Li, Elaine Yacyshyn

JMIR Form Res 2023 (Dec 12); 7:e49380

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A Codeveloped Web-Based Disability Disclosure Toolkit for Youth With Disabilities: Mixed Methods Pilot Evaluation

Sally Lindsay, Polina Kosareva, Nicole Thomson, Jennifer Stinson

JMIR Form Res 2023 (Dec 08); 7:e48609

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Online Forums as a Tool for Broader Inclusion of Voices on Health Care Communication Experiences and Serious Illness Care: Mixed Methods Study

Carine Davila, Stephanie H Chan, Anna Gosline, Zamawa Arenas, Jane Kavanagh, Brian Feltz, Elizabeth McCarthy, Tyrone Pitts, Christine Ritchie

J Med Internet Res 2023 (Dec 06); 25:e48550

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Patient and Physician Perspectives on the Use of a Connected Ecosystem for Diabetes Management: International Cross-Sectional Observational Study

Elizabeth Benito-Garcia, Julio Vega, Eric J Daza, Wei-Nchih Lee, Adee Kennedy, Jean-Marc Chantelot

JMIR Form Res 2023 (Nov 30); 7:e47145

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Learnings in Digital Health Design: Insights From a Pilot Web App for Structured Note-Taking for Patients With Rheumatoid Arthritis

Ujwal Srivastava, Shobha Dasari, Neha Shah

JMIR Form Res 2023 (Nov 28); 7:e49358

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Co-design of a Mobile App for Engaging Breast Cancer Patients in Reporting Health Experiences: Qualitative Case Study

Carla Taramasco, Carla Rimassa, René Noël, María Loreto Bravo Storm, César Sánchez

J Med Internet Res 2023 (Nov 27); 25:e45968

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Exploring Patient Advisors’ Perceptions of Virtual Care Across Canada: Qualitative Phenomenological Study

Heather Braund, Nancy Dalgarno, Sophy Chan-Nguyen, Geneviève Digby, Faizal Haji, Anne O'Riordan, Ramana Appireddy

J Med Internet Res 2023 (Nov 23); 25:e45215

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An Ethics Action Plan for Rare Disease Care: Participatory Action Research Approach

Ariane Quintal, Isabelle Carreau, Annie-Danielle Grenier, Caroline Hébert, Christine Yergeau, Yves Berthiaume, Eric Racine

J Particip Med 2023 (Nov 23); 15:e46607

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Co-Designing an Initiative to Increase Shared Access to Older Adults’ Patient Portals: Stakeholder Engagement

Vadim Dukhanin, Jennifer L Wolff, Liz Salmi, Kendall Harcourt, Deborah Wachenheim, Ira Byock, Matthew J Gonzales, Doug Niehus, Marianne Parshley, Caroline Reay, Sara Epstein, Supriya Mohile, Timothy W Farrell, Mark A Supiano, Anushka Jajodia, Catherine M DesRoches, The Shared Access Project Team

J Med Internet Res 2023 (Nov 22); 25:e46146

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Electronic Patient Portal Use Among People Living With HIV

André Hall, Samantha Devlin, Joshua Won, Jessica Schmitt, Jessica P Ridgway

J Med Internet Res 2023 (Nov 21); 25:e47740

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Incorporating Community Partner Perspectives on eHealth Technology Data Sharing Practices for the California Early Psychosis Intervention Network: Qualitative Focus Group Study With a User-Centered Design Approach

Laura M Tully, Kathleen E Nye, Sabrina Ereshefsky, Valerie L Tryon, Christopher Komei Hakusui, Mark Savill, Tara A Niendam

JMIR Hum Factors 2023 (Nov 14); 10:e44194

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The NORDeHEALTH 2022 Patient Survey: Cross-Sectional Study of National Patient Portal Users in Norway, Sweden, Finland, and Estonia

Maria Hägglund, Anna Kharko, Josefin Hagström, Annika Bärkås, Charlotte Blease, Åsa Cajander, Catherine DesRoches, Asbjørn Johansen Fagerlund, Barbara Haage, Isto Huvila, Iiris Hörhammer, Bridget Kane, Gunnar O Klein, Eli Kristiansen, Kerli Luks, Jonas Moll, Irene Muli, Eline Hovstad Raphaug, Hanife Rexhepi, Sara Riggare, Peeter Ross, Isabella Scandurra, Saija Simola, Hedvig Soone, Bo Wang, Maedeh Ghorbanian Zolbin, Rose-Mharie Åhlfeldt, Sari Kujala, Monika Alise Johansen

J Med Internet Res 2023 (Nov 13); 25:e47573

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Developing an Audit and Feedback Dashboard for Family Physicians: User-Centered Design Process

Jennifer Shuldiner, Tara Kiran, Payal Agarwal, Maryam Daneshvarfard, Kirsten Eldridge, Susie Kim, Michelle Greiver, Iffat Jokhio, Noah Ivers

JMIR Hum Factors 2023 (Nov 09); 10:e47718

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