Published on 11.12.14 in Vol 16, No 12 (2014): December
Works citing "Analysis of a Parent-Initiated Social Media Campaign for Hirschsprung’s Disease"
According to Crossref, the following articles are citing this article (DOI 10.2196/jmir.3200):
(note that this is only a small subset of citations)
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Carter B, Bray L, Keating P, Wilkinson C. Parent-Driven Campaign Videos: An Analysis of the Motivation and Affect of Videos Created by Parents of Children With Complex Healthcare Needs. Comprehensive Child and Adolescent Nursing 2018;41(4):276
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Russell DJ, Sprung J, McCauley D, Kraus de Camargo O, Buchanan F, Gulko R, Martens R, Gorter JW. Knowledge Exchange and Discovery in the Age of Social Media: The Journey From Inception to Establishment of a Parent-Led Web-Based Research Advisory Community for Childhood Disability. Journal of Medical Internet Research 2016;18(11):e293
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Wittmeier KD, Hobbs-Murison K, Holland C, Crawford E, Loewen H, Morris M, Lum Min S, Abou-Setta A, Keijzer R. Identifying Information Needs for Hirschsprung Disease Through Caregiver Involvement via Social Media: A Prioritization Study and Literature Review. Journal of Medical Internet Research 2018;20(12):e297
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De Castro M, Turner C, Kirmse B, Ferreira C. Practical recommendations for the transition to adulthood for the adolescent with a genetic diagnosis. Special emphasis on inborn errors of metabolism. Translational Science of Rare Diseases 2020;4(3-4):159
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. The Multipurpose Tool of Social Media: Applications for Scientists, Science Communicators, and Educators. Clinical Microbiology Newsletter 2017;39(10):75
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Meng Y, Elkaim L, Wang J, Liu J, Alotaibi NM, Ibrahim GM, Fallah A, Weil AG, Valiante TA, Lozano AM, Rutka JT. Social media in epilepsy: A quantitative and qualitative analysis. Epilepsy & Behavior 2017;71:79
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Bright KS, Ginn C, Keys EM, Brockway ML, Tomfohr-Madsen L, Doane S, Benzies K. Study Protocol: Determining Research Priorities of Young Albertan Families (The Family Research Agenda Initiative Setting Project—FRAISE)—Participatory Action Research. Frontiers in Public Health 2018;6
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. Prospects for case-based research on social media. Journal of Information Technology Case and Application Research 2016;18(4):193
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Fry JT, Frader JE. “We want to do everything”: how parents represent their experiences with maternal–fetal surgery online. Journal of Perinatology 2018;38(3):226
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Jacobs R, Boyd L, Brennan K, Sinha C, Giuliani S. The importance of social media for patients and families affected by congenital anomalies: A Facebook cross-sectional analysis and user survey. Journal of Pediatric Surgery 2016;51(11):1766
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DeHoff BA, Staten LK, Rodgers RC, Denne SC. The Role of Online Social Support in Supporting and Educating Parents of Young Children With Special Health Care Needs in the United States: A Scoping Review. Journal of Medical Internet Research 2016;18(12):e333
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Titgemeyer SC, Schaaf CP. Facebook Support Groups for Rare Pediatric Diseases: Quantitative Analysis. JMIR Pediatrics and Parenting 2020;3(2):e21694
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Miller EG, Woodward AL, Flinchum G, Young JL, Tabor HK, Halley MC. Opportunities and pitfalls of social media research in rare genetic diseases: a systematic review. Genetics in Medicine 2021;
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Faus M, Alonso F, Javadinejad A, Useche SA. Are social networks effective in promoting healthy behaviors? A systematic review of evaluations of public health campaigns broadcast on Twitter. Frontiers in Public Health 2022;10
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Reppucci ML, De La Torre L, Pickett K, Wehrli L, Nolan MM, Ketzer J, Bischoff A. Social media communities for patients and families affected by congenital pediatric surgical conditions. Pediatric Surgery International 2022;38(7):1047
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Long JC, Best S, Nic Giolla Easpaig B, Hatem S, Fehlberg Z, Christodoulou J, Braithwaite J. Needs of people with rare diseases that can be supported by electronic resources: a scoping review. BMJ Open 2022;12(9):e060394
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Titgemeyer SC, Schaaf CP. Facebook Support Groups for Pediatric Rare Diseases: Cross-Sectional Study to Investigate Opportunities, Limitations, and Privacy Concerns. JMIR Pediatrics and Parenting 2022;5(1):e31411
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Geisthoff UW, Hölzle F, Stuck BA, Jackowski J, Hand Goetz C, Grabowski C, Droege F, Pereira P. Nationwide Awareness Campaign and Call for Dental Screening for Hereditary Hemorrhagic Telangiectasia in Germany. International Journal of Dentistry 2023;2023:1
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Engwerda A, Frentz B, Rraku E, de Souza NFS, Swertz MA, Plantinga M, Kerstjens-Frederikse WS, Ranchor AV, van Ravenswaaij-Arts CMA. Parent-reported phenotype data on chromosome 6 aberrations collected via an online questionnaire: data consistency and data availability. Orphanet Journal of Rare Diseases 2023;18(1)
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Kerns ME, O’Leary ST, Cataldi JR. Activities, Motivations and Demographics of Provaccine Advocates. Pediatric Infectious Disease Journal 2024;43(3):286
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