Published on in Vol 16, No 12 (2014): December

Analysis of a Parent-Initiated Social Media Campaign for Hirschsprung’s Disease

Analysis of a Parent-Initiated Social Media Campaign for Hirschsprung’s Disease

Analysis of a Parent-Initiated Social Media Campaign for Hirschsprung’s Disease

Journals

  1. Carter B, Bray L, Keating P, Wilkinson C. Parent-Driven Campaign Videos: An Analysis of the Motivation and Affect of Videos Created by Parents of Children With Complex Healthcare Needs. Comprehensive Child and Adolescent Nursing 2018;41(4):276 View
  2. Russell D, Sprung J, McCauley D, Kraus de Camargo O, Buchanan F, Gulko R, Martens R, Gorter J. Knowledge Exchange and Discovery in the Age of Social Media: The Journey From Inception to Establishment of a Parent-Led Web-Based Research Advisory Community for Childhood Disability. Journal of Medical Internet Research 2016;18(11):e293 View
  3. Wittmeier K, Hobbs-Murison K, Holland C, Crawford E, Loewen H, Morris M, Lum Min S, Abou-Setta A, Keijzer R. Identifying Information Needs for Hirschsprung Disease Through Caregiver Involvement via Social Media: A Prioritization Study and Literature Review. Journal of Medical Internet Research 2018;20(12):e297 View
  4. De Castro M, Turner C, Kirmse B, Ferreira C. Practical recommendations for the transition to adulthood for the adolescent with a genetic diagnosis. Special emphasis on inborn errors of metabolism. Translational Science of Rare Diseases 2020;4(3-4):159 View
  5. Wolf J. The Multipurpose Tool of Social Media: Applications for Scientists, Science Communicators, and Educators. Clinical Microbiology Newsletter 2017;39(10):75 View
  6. Meng Y, Elkaim L, Wang J, Liu J, Alotaibi N, Ibrahim G, Fallah A, Weil A, Valiante T, Lozano A, Rutka J. Social media in epilepsy: A quantitative and qualitative analysis. Epilepsy & Behavior 2017;71:79 View
  7. Bright K, Ginn C, Keys E, Brockway M, Tomfohr-Madsen L, Doane S, Benzies K. Study Protocol: Determining Research Priorities of Young Albertan Families (The Family Research Agenda Initiative Setting Project—FRAISE)—Participatory Action Research. Frontiers in Public Health 2018;6 View
  8. Gordon S. Prospects for case-based research on social media. Journal of Information Technology Case and Application Research 2016;18(4):193 View
  9. Fry J, Frader J. “We want to do everything”: how parents represent their experiences with maternal–fetal surgery online. Journal of Perinatology 2018;38(3):226 View
  10. Jacobs R, Boyd L, Brennan K, Sinha C, Giuliani S. The importance of social media for patients and families affected by congenital anomalies: A Facebook cross-sectional analysis and user survey. Journal of Pediatric Surgery 2016;51(11):1766 View
  11. DeHoff B, Staten L, Rodgers R, Denne S. The Role of Online Social Support in Supporting and Educating Parents of Young Children With Special Health Care Needs in the United States: A Scoping Review. Journal of Medical Internet Research 2016;18(12):e333 View
  12. Titgemeyer S, Schaaf C. Facebook Support Groups for Rare Pediatric Diseases: Quantitative Analysis. JMIR Pediatrics and Parenting 2020;3(2):e21694 View
  13. Miller E, Woodward A, Flinchum G, Young J, Tabor H, Halley M. Opportunities and pitfalls of social media research in rare genetic diseases: a systematic review. Genetics in Medicine 2021 View